Hello my friends...been awhile since I have been here. Been very ill since Thanksgiving and in hospital for about 3 weeks for severe flare up of my B. cepacia (other bugs had a party as well, but that one the docs worried most about). Needless to say, I have been thoroughly nuked by just about every combination of antibiotics. Some of them made me feel very toxic, my eyes hurt, my skin hurt so did my teeth not to mention my GI tract which felt like flames throughout. It was chaos to say the least. I was in isolation the whole time. My doc felt bad, he kept asking whether I would be offended if I was put in isolation. I of course said no, I know why I needed to be put in isolation...for other cystic's health as well as mine as I pick up everything as well. He even put me on a different floor than the regular cystic population, in the MICU because of my vent too. That made me feel good about him, that he was concienscious about other's wellfare.
I know some of you got packages, please let me know if you got them or not, my mom mailed some of them...I pray they got to you. If not, I will look into it and see what happened. Poor mom mailed so many things between Thanksgiving and Christmas, some things may have gotten confused. I spent my holidays in the hospital, it wasn't so bad though. The nurses were great and my family visited when they could. I was an hour and a half away, not too far but far enough to make it really tiring to visit sometimes. I made it home just before New Year's. My colony counts are down and I feel really good actually. My insulin dosages were tweaked while I was in hospital along with my enzymes. PT at home was restarted...it's amazing how deconditioned we can become with long hospital stays. I pray that this year is better than the last, but I know one thing for certain, I will not give up the fight even if it does turn out to be a struggle. To all of you, Happy New Year may all of your wishes come true. Also, to those who are having health issues, I pray that you recover. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
I know some of you got packages, please let me know if you got them or not, my mom mailed some of them...I pray they got to you. If not, I will look into it and see what happened. Poor mom mailed so many things between Thanksgiving and Christmas, some things may have gotten confused. I spent my holidays in the hospital, it wasn't so bad though. The nurses were great and my family visited when they could. I was an hour and a half away, not too far but far enough to make it really tiring to visit sometimes. I made it home just before New Year's. My colony counts are down and I feel really good actually. My insulin dosages were tweaked while I was in hospital along with my enzymes. PT at home was restarted...it's amazing how deconditioned we can become with long hospital stays. I pray that this year is better than the last, but I know one thing for certain, I will not give up the fight even if it does turn out to be a struggle. To all of you, Happy New Year may all of your wishes come true. Also, to those who are having health issues, I pray that you recover. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">