Help and support

Lilith

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>my65roses4me</b></i>

I do not believe in lying or hiding the truth but some tact would be helpful.</end quote></div>

Honestly, Khristina, I don't see how (going by the question the poster asked) it could have been answered any differently. I am surely not a tactful person by nature, so maybe I just don't see it because of my personality. But even thinking about it, I find it hard to have put it any other way.

<div class="FTQUOTE"><begin quote>I just think that the conversations on here become a little too cold! I guess thats what you get from being on the internet and not around "real people". But does it have to be that way???????</end quote></div>

In my opinion, there isn't another way. Not without real, human interaction. This is, just as you said, the internet. A bunch of linked machines. There is no emotion that can thoroughly be expressed by typed letters and words. When I see a question, I respond. That's it. I don't really think about the in-depth emotions of the other person because I can't see/hear them. That's one of the drawbacks of the internet, I suppose. Telling your husband about your CF is one thing. He heard it from one person who had every intention of being a friend. Getting responses from a variety of people over the web is very different. Personally, if I worried about every single person here and their emotions, it would be mentally taxing for me. I have enough to deal with in real life, let alone get intimately attached to every poster. Yeah, it seems cold, but for me, its better this way. Just my thoughts and my functions. I'm sure you will get responses that disagree with me, because I know some people see others here as extended family. But not everyone does. Please consider this.

As far as taking a break, I find myself often taking time away from this site, which is a good thing now and then. If you feel you need a reprieve, take it. Come back refreshed. It will help.
 

Lilith

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>my65roses4me</b></i>

I do not believe in lying or hiding the truth but some tact would be helpful.</end quote></div>

Honestly, Khristina, I don't see how (going by the question the poster asked) it could have been answered any differently. I am surely not a tactful person by nature, so maybe I just don't see it because of my personality. But even thinking about it, I find it hard to have put it any other way.

<div class="FTQUOTE"><begin quote>I just think that the conversations on here become a little too cold! I guess thats what you get from being on the internet and not around "real people". But does it have to be that way???????</end quote></div>

In my opinion, there isn't another way. Not without real, human interaction. This is, just as you said, the internet. A bunch of linked machines. There is no emotion that can thoroughly be expressed by typed letters and words. When I see a question, I respond. That's it. I don't really think about the in-depth emotions of the other person because I can't see/hear them. That's one of the drawbacks of the internet, I suppose. Telling your husband about your CF is one thing. He heard it from one person who had every intention of being a friend. Getting responses from a variety of people over the web is very different. Personally, if I worried about every single person here and their emotions, it would be mentally taxing for me. I have enough to deal with in real life, let alone get intimately attached to every poster. Yeah, it seems cold, but for me, its better this way. Just my thoughts and my functions. I'm sure you will get responses that disagree with me, because I know some people see others here as extended family. But not everyone does. Please consider this.

As far as taking a break, I find myself often taking time away from this site, which is a good thing now and then. If you feel you need a reprieve, take it. Come back refreshed. It will help.
 

Lilith

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>my65roses4me</b></i>

I do not believe in lying or hiding the truth but some tact would be helpful.</end quote></div>

Honestly, Khristina, I don't see how (going by the question the poster asked) it could have been answered any differently. I am surely not a tactful person by nature, so maybe I just don't see it because of my personality. But even thinking about it, I find it hard to have put it any other way.

<div class="FTQUOTE"><begin quote>I just think that the conversations on here become a little too cold! I guess thats what you get from being on the internet and not around "real people". But does it have to be that way???????</end quote></div>

In my opinion, there isn't another way. Not without real, human interaction. This is, just as you said, the internet. A bunch of linked machines. There is no emotion that can thoroughly be expressed by typed letters and words. When I see a question, I respond. That's it. I don't really think about the in-depth emotions of the other person because I can't see/hear them. That's one of the drawbacks of the internet, I suppose. Telling your husband about your CF is one thing. He heard it from one person who had every intention of being a friend. Getting responses from a variety of people over the web is very different. Personally, if I worried about every single person here and their emotions, it would be mentally taxing for me. I have enough to deal with in real life, let alone get intimately attached to every poster. Yeah, it seems cold, but for me, its better this way. Just my thoughts and my functions. I'm sure you will get responses that disagree with me, because I know some people see others here as extended family. But not everyone does. Please consider this.

As far as taking a break, I find myself often taking time away from this site, which is a good thing now and then. If you feel you need a reprieve, take it. Come back refreshed. It will help.
 

Lilith

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>my65roses4me</b></i>

I do not believe in lying or hiding the truth but some tact would be helpful.</end quote></div>

Honestly, Khristina, I don't see how (going by the question the poster asked) it could have been answered any differently. I am surely not a tactful person by nature, so maybe I just don't see it because of my personality. But even thinking about it, I find it hard to have put it any other way.

<div class="FTQUOTE"><begin quote>I just think that the conversations on here become a little too cold! I guess thats what you get from being on the internet and not around "real people". But does it have to be that way???????</end quote></div>

In my opinion, there isn't another way. Not without real, human interaction. This is, just as you said, the internet. A bunch of linked machines. There is no emotion that can thoroughly be expressed by typed letters and words. When I see a question, I respond. That's it. I don't really think about the in-depth emotions of the other person because I can't see/hear them. That's one of the drawbacks of the internet, I suppose. Telling your husband about your CF is one thing. He heard it from one person who had every intention of being a friend. Getting responses from a variety of people over the web is very different. Personally, if I worried about every single person here and their emotions, it would be mentally taxing for me. I have enough to deal with in real life, let alone get intimately attached to every poster. Yeah, it seems cold, but for me, its better this way. Just my thoughts and my functions. I'm sure you will get responses that disagree with me, because I know some people see others here as extended family. But not everyone does. Please consider this.

As far as taking a break, I find myself often taking time away from this site, which is a good thing now and then. If you feel you need a reprieve, take it. Come back refreshed. It will help.
 

Lilith

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>my65roses4me</b></i>

I do not believe in lying or hiding the truth but some tact would be helpful.</end quote>

Honestly, Khristina, I don't see how (going by the question the poster asked) it could have been answered any differently. I am surely not a tactful person by nature, so maybe I just don't see it because of my personality. But even thinking about it, I find it hard to have put it any other way.

<div class="FTQUOTE"><begin quote>I just think that the conversations on here become a little too cold! I guess thats what you get from being on the internet and not around "real people". But does it have to be that way???????</end quote>

In my opinion, there isn't another way. Not without real, human interaction. This is, just as you said, the internet. A bunch of linked machines. There is no emotion that can thoroughly be expressed by typed letters and words. When I see a question, I respond. That's it. I don't really think about the in-depth emotions of the other person because I can't see/hear them. That's one of the drawbacks of the internet, I suppose. Telling your husband about your CF is one thing. He heard it from one person who had every intention of being a friend. Getting responses from a variety of people over the web is very different. Personally, if I worried about every single person here and their emotions, it would be mentally taxing for me. I have enough to deal with in real life, let alone get intimately attached to every poster. Yeah, it seems cold, but for me, its better this way. Just my thoughts and my functions. I'm sure you will get responses that disagree with me, because I know some people see others here as extended family. But not everyone does. Please consider this.

As far as taking a break, I find myself often taking time away from this site, which is a good thing now and then. If you feel you need a reprieve, take it. Come back refreshed. It will help.
 

Lilith

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>my65roses4me</b></i>

I do not believe in lying or hiding the truth but some tact would be helpful.</end quote>

Honestly, Khristina, I don't see how (going by the question the poster asked) it could have been answered any differently. I am surely not a tactful person by nature, so maybe I just don't see it because of my personality. But even thinking about it, I find it hard to have put it any other way.

<div class="FTQUOTE"><begin quote>I just think that the conversations on here become a little too cold! I guess thats what you get from being on the internet and not around "real people". But does it have to be that way???????</end quote>

In my opinion, there isn't another way. Not without real, human interaction. This is, just as you said, the internet. A bunch of linked machines. There is no emotion that can thoroughly be expressed by typed letters and words. When I see a question, I respond. That's it. I don't really think about the in-depth emotions of the other person because I can't see/hear them. That's one of the drawbacks of the internet, I suppose. Telling your husband about your CF is one thing. He heard it from one person who had every intention of being a friend. Getting responses from a variety of people over the web is very different. Personally, if I worried about every single person here and their emotions, it would be mentally taxing for me. I have enough to deal with in real life, let alone get intimately attached to every poster. Yeah, it seems cold, but for me, its better this way. Just my thoughts and my functions. I'm sure you will get responses that disagree with me, because I know some people see others here as extended family. But not everyone does. Please consider this.

As far as taking a break, I find myself often taking time away from this site, which is a good thing now and then. If you feel you need a reprieve, take it. Come back refreshed. It will help.
 

CFHockeyMom

New member
Khristina,

I too think your example is fairly weak (there are plenty of others to choose from) but I get your point.

On this site as in the "outside" world, we have all kinds of people. Some need constant support, some are only looking for affirmation, some are looking for the positive and the negative, some are brash, some are sugar sweet even when someone has flamed them, etc... That variety is one reason I love this place! I do believe that everyone here is giving their version of support. It may not be the version you subscribe to but even criticism/negativity can be supportive it just depends on how it's received. As an example, many people view Amy as negative (sorry to call you out Amy) but I think that couldn't be further from the truth. Amy has posted so much valuable information (facts and realities) regarding CF and CF treatments it is obvious that 1) she cares about all of us 2) she is looking to the future and remaining positive. Is she brusk? Yep, but that's just Amy. As with all posts/threads/authors you have the option to not read them.

I don't always agree or like what is posted but I don't take it personally. I think if you look through all the topics/posts you'll find that most of the time they are informational and supportive. Sure, we can find examples to the contrary but wouldn't you agree that seeking those out/focusing on them is negative?

The reality of CF is that it is a progressive disease. It is absolutely wonderful that you are 32 years old and I enjoy sharing those kind of numbers with my son. However, the fact is that 50% of CF patients don't make it to 37. And I for one am way tired of people acting like CF isn't doom and gloom because 50% of CFer's live past 37. Reality sucks but that doesn't mean we get to choose not to live it.

Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0">
 

CFHockeyMom

New member
Khristina,

I too think your example is fairly weak (there are plenty of others to choose from) but I get your point.

On this site as in the "outside" world, we have all kinds of people. Some need constant support, some are only looking for affirmation, some are looking for the positive and the negative, some are brash, some are sugar sweet even when someone has flamed them, etc... That variety is one reason I love this place! I do believe that everyone here is giving their version of support. It may not be the version you subscribe to but even criticism/negativity can be supportive it just depends on how it's received. As an example, many people view Amy as negative (sorry to call you out Amy) but I think that couldn't be further from the truth. Amy has posted so much valuable information (facts and realities) regarding CF and CF treatments it is obvious that 1) she cares about all of us 2) she is looking to the future and remaining positive. Is she brusk? Yep, but that's just Amy. As with all posts/threads/authors you have the option to not read them.

I don't always agree or like what is posted but I don't take it personally. I think if you look through all the topics/posts you'll find that most of the time they are informational and supportive. Sure, we can find examples to the contrary but wouldn't you agree that seeking those out/focusing on them is negative?

The reality of CF is that it is a progressive disease. It is absolutely wonderful that you are 32 years old and I enjoy sharing those kind of numbers with my son. However, the fact is that 50% of CF patients don't make it to 37. And I for one am way tired of people acting like CF isn't doom and gloom because 50% of CFer's live past 37. Reality sucks but that doesn't mean we get to choose not to live it.

Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0">
 

CFHockeyMom

New member
Khristina,

I too think your example is fairly weak (there are plenty of others to choose from) but I get your point.

On this site as in the "outside" world, we have all kinds of people. Some need constant support, some are only looking for affirmation, some are looking for the positive and the negative, some are brash, some are sugar sweet even when someone has flamed them, etc... That variety is one reason I love this place! I do believe that everyone here is giving their version of support. It may not be the version you subscribe to but even criticism/negativity can be supportive it just depends on how it's received. As an example, many people view Amy as negative (sorry to call you out Amy) but I think that couldn't be further from the truth. Amy has posted so much valuable information (facts and realities) regarding CF and CF treatments it is obvious that 1) she cares about all of us 2) she is looking to the future and remaining positive. Is she brusk? Yep, but that's just Amy. As with all posts/threads/authors you have the option to not read them.

I don't always agree or like what is posted but I don't take it personally. I think if you look through all the topics/posts you'll find that most of the time they are informational and supportive. Sure, we can find examples to the contrary but wouldn't you agree that seeking those out/focusing on them is negative?

The reality of CF is that it is a progressive disease. It is absolutely wonderful that you are 32 years old and I enjoy sharing those kind of numbers with my son. However, the fact is that 50% of CF patients don't make it to 37. And I for one am way tired of people acting like CF isn't doom and gloom because 50% of CFer's live past 37. Reality sucks but that doesn't mean we get to choose not to live it.

Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0">
 

CFHockeyMom

New member
Khristina,

I too think your example is fairly weak (there are plenty of others to choose from) but I get your point.

On this site as in the "outside" world, we have all kinds of people. Some need constant support, some are only looking for affirmation, some are looking for the positive and the negative, some are brash, some are sugar sweet even when someone has flamed them, etc... That variety is one reason I love this place! I do believe that everyone here is giving their version of support. It may not be the version you subscribe to but even criticism/negativity can be supportive it just depends on how it's received. As an example, many people view Amy as negative (sorry to call you out Amy) but I think that couldn't be further from the truth. Amy has posted so much valuable information (facts and realities) regarding CF and CF treatments it is obvious that 1) she cares about all of us 2) she is looking to the future and remaining positive. Is she brusk? Yep, but that's just Amy. As with all posts/threads/authors you have the option to not read them.

I don't always agree or like what is posted but I don't take it personally. I think if you look through all the topics/posts you'll find that most of the time they are informational and supportive. Sure, we can find examples to the contrary but wouldn't you agree that seeking those out/focusing on them is negative?

The reality of CF is that it is a progressive disease. It is absolutely wonderful that you are 32 years old and I enjoy sharing those kind of numbers with my son. However, the fact is that 50% of CF patients don't make it to 37. And I for one am way tired of people acting like CF isn't doom and gloom because 50% of CFer's live past 37. Reality sucks but that doesn't mean we get to choose not to live it.

Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0">
 

CFHockeyMom

New member
Khristina,

I too think your example is fairly weak (there are plenty of others to choose from) but I get your point.

On this site as in the "outside" world, we have all kinds of people. Some need constant support, some are only looking for affirmation, some are looking for the positive and the negative, some are brash, some are sugar sweet even when someone has flamed them, etc... That variety is one reason I love this place! I do believe that everyone here is giving their version of support. It may not be the version you subscribe to but even criticism/negativity can be supportive it just depends on how it's received. As an example, many people view Amy as negative (sorry to call you out Amy) but I think that couldn't be further from the truth. Amy has posted so much valuable information (facts and realities) regarding CF and CF treatments it is obvious that 1) she cares about all of us 2) she is looking to the future and remaining positive. Is she brusk? Yep, but that's just Amy. As with all posts/threads/authors you have the option to not read them.

I don't always agree or like what is posted but I don't take it personally. I think if you look through all the topics/posts you'll find that most of the time they are informational and supportive. Sure, we can find examples to the contrary but wouldn't you agree that seeking those out/focusing on them is negative?

The reality of CF is that it is a progressive disease. It is absolutely wonderful that you are 32 years old and I enjoy sharing those kind of numbers with my son. However, the fact is that 50% of CF patients don't make it to 37. And I for one am way tired of people acting like CF isn't doom and gloom because 50% of CFer's live past 37. Reality sucks but that doesn't mean we get to choose not to live it.

Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0">
 

CFHockeyMom

New member
Khristina,

I too think your example is fairly weak (there are plenty of others to choose from) but I get your point.

On this site as in the "outside" world, we have all kinds of people. Some need constant support, some are only looking for affirmation, some are looking for the positive and the negative, some are brash, some are sugar sweet even when someone has flamed them, etc... That variety is one reason I love this place! I do believe that everyone here is giving their version of support. It may not be the version you subscribe to but even criticism/negativity can be supportive it just depends on how it's received. As an example, many people view Amy as negative (sorry to call you out Amy) but I think that couldn't be further from the truth. Amy has posted so much valuable information (facts and realities) regarding CF and CF treatments it is obvious that 1) she cares about all of us 2) she is looking to the future and remaining positive. Is she brusk? Yep, but that's just Amy. As with all posts/threads/authors you have the option to not read them.

I don't always agree or like what is posted but I don't take it personally. I think if you look through all the topics/posts you'll find that most of the time they are informational and supportive. Sure, we can find examples to the contrary but wouldn't you agree that seeking those out/focusing on them is negative?

The reality of CF is that it is a progressive disease. It is absolutely wonderful that you are 32 years old and I enjoy sharing those kind of numbers with my son. However, the fact is that 50% of CF patients don't make it to 37. And I for one am way tired of people acting like CF isn't doom and gloom because 50% of CFer's live past 37. Reality sucks but that doesn't mean we get to choose not to live it.

Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i>



Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0"></end quote></div>



HAHAHAHAHA oh Claudette I want to hug you right now.

You get my vote for Top 5 posts of <b><u> ALL TIME </u></b> on this board.



And for the record, if I didn't care about CFers empowering themselves and giving information to live a healthier, longer life, I would never have put so much time and effort into my blog.

I took me hours upon hours of typing to get that Warwick post up, for example.

I appreciate your shout out.


And man that was a solid laugh you gave me. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i>



Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0"></end quote></div>



HAHAHAHAHA oh Claudette I want to hug you right now.

You get my vote for Top 5 posts of <b><u> ALL TIME </u></b> on this board.



And for the record, if I didn't care about CFers empowering themselves and giving information to live a healthier, longer life, I would never have put so much time and effort into my blog.

I took me hours upon hours of typing to get that Warwick post up, for example.

I appreciate your shout out.


And man that was a solid laugh you gave me. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i>



Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0"></end quote></div>



HAHAHAHAHA oh Claudette I want to hug you right now.

You get my vote for Top 5 posts of <b><u> ALL TIME </u></b> on this board.



And for the record, if I didn't care about CFers empowering themselves and giving information to live a healthier, longer life, I would never have put so much time and effort into my blog.

I took me hours upon hours of typing to get that Warwick post up, for example.

I appreciate your shout out.


And man that was a solid laugh you gave me. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i>



Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0"></end quote></div>



HAHAHAHAHA oh Claudette I want to hug you right now.

You get my vote for Top 5 posts of <b><u> ALL TIME </u></b> on this board.



And for the record, if I didn't care about CFers empowering themselves and giving information to live a healthier, longer life, I would never have put so much time and effort into my blog.

I took me hours upon hours of typing to get that Warwick post up, for example.

I appreciate your shout out.


And man that was a solid laugh you gave me. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i>



Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0"></end quote>



HAHAHAHAHA oh Claudette I want to hug you right now.

You get my vote for Top 5 posts of <b><u> ALL TIME </u></b> on this board.



And for the record, if I didn't care about CFers empowering themselves and giving information to live a healthier, longer life, I would never have put so much time and effort into my blog.

I took me hours upon hours of typing to get that Warwick post up, for example.

I appreciate your shout out.


And man that was a solid laugh you gave me. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFHockeyMom</b></i>



Again I'd like to suggest we start a category titled "Blow sunshine up my butt" so everyone who is afraid to hear the truth has a place to hide. <img src="i/expressions/devil.gif" border="0"></end quote>



HAHAHAHAHA oh Claudette I want to hug you right now.

You get my vote for Top 5 posts of <b><u> ALL TIME </u></b> on this board.



And for the record, if I didn't care about CFers empowering themselves and giving information to live a healthier, longer life, I would never have put so much time and effort into my blog.

I took me hours upon hours of typing to get that Warwick post up, for example.

I appreciate your shout out.


And man that was a solid laugh you gave me. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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