littledebbie
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nevermind
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- Thread starter my65roses4me
- Start date
littledebbie
New member
nevermind
littledebbie
New member
nevermind
littledebbie
New member
nevermind
janddburke
New member
you must also keep in mind that you are not dealing with the 'general' CF population.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
janddburke
New member
you must also keep in mind that you are not dealing with the 'general' CF population.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
janddburke
New member
you must also keep in mind that you are not dealing with the 'general' CF population.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
janddburke
New member
you must also keep in mind that you are not dealing with the 'general' CF population.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
janddburke
New member
you must also keep in mind that you are not dealing with the 'general' CF population.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
janddburke
New member
you must also keep in mind that you are not dealing with the 'general' CF population.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
the people that check in here, even if they never contribute, are looking for information. They are proactive.
How many people w/cf or their caregivers keep all their Dr. appointments as often as they should? take all their meds? do all their treatments?
I think the people that check in here are here because they care and want to know and do more.
Just my opinion.
Lessons can be learned by hearing for all types of responders.
there is value in 'Sunshine and Roses' as well as 'Doom and Gloom'.
Don't shoot the messenger.
I found this site, and was happy to find others like me. I had never really had conversations with other CFer's up until that point. I didn't start reading the forums until recently, and have found that out of 100 posts that I have read already this week only 5 really bothered me. 3 I thought were negative and the other 2 were just dumb ( in my opinion)
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I found this site, and was happy to find others like me. I had never really had conversations with other CFer's up until that point. I didn't start reading the forums until recently, and have found that out of 100 posts that I have read already this week only 5 really bothered me. 3 I thought were negative and the other 2 were just dumb ( in my opinion)
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I found this site, and was happy to find others like me. I had never really had conversations with other CFer's up until that point. I didn't start reading the forums until recently, and have found that out of 100 posts that I have read already this week only 5 really bothered me. 3 I thought were negative and the other 2 were just dumb ( in my opinion)
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I found this site, and was happy to find others like me. I had never really had conversations with other CFer's up until that point. I didn't start reading the forums until recently, and have found that out of 100 posts that I have read already this week only 5 really bothered me. 3 I thought were negative and the other 2 were just dumb ( in my opinion)
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think its all how you interpret what you read. Although admittedly many people don't want to hear the downs on CF...
I agree that we should live life to the fullest CF or not. Living one day at a time is a good idea too, however we must take care of ourselves, and we must be prepared for what *may* happen down the road. That being said, I do not feel like advice that is not sugar coated is negative or invalid. It's advice. Take it or leave it.
<img src="i/expressions/rose.gif" border="0">
Chrissy
PS- <div class="FTQUOTE"><begin quote>I as a cfer, try to live my life to the fullest and try to live a semi normal life. My mother made sure that I knew I had cf, growing up, but also made sure that I was aware that it is possible to live out my dreams. I was taught how to take care of myself and that my life will be cut short some day, by her and I love her for that. So I am well aware of my outcome and I have never felt so doom and gloomed about my cf until I came here. </end quote></div>
I'd like to add that I agree with you and your mom. I'm just saying that all advice should be taken with a grain of salt. Some people who are negative (by negative I mean those who dont sugar coat)about CF have a reason to be. A reason that I don't have today, but I might tomorrow. Does that stop me from living? No. It helps me to feel confidently prepared in what *may* be in my future. There are some out there whom I consider to be rude, but hey the wonderful thing about advice forums...you don't have to take everyones or anyones advice! <img src="i/expressions/face-icon-small-wink.gif" border="0">