suziecoffeebean
New member
Hello all:
I am new to this board. I have a younger brother and sister who both have CF. 14 and 16. I cannot remember the last time my mother took them to see a CF specialist. We had a pretty hard life. I don't know anywhere else to turn for information or help. My brother and sister were diagnosed as infants and they received all the care they needed up until about 8 years ago. My mother was trafficking crack cocaine out of our home and she went to jail. My younger brother and sister had a different dad than me so when she went to jail they went into foster care. When my mom got out of jail she was able to get them back pretty quickly by being in AA and other drug treatment programs. When she got them back they were involved pretty heavily in govt help. They made sure my brother and sister got what they needed. My mom became homeless about 8 years ago and moved from cincinnati to frankfort to stay with family because she didn't have anywhere else to go. Took my brother and sister with her there. Since they have lived here they haven't seen a doctor for it haven't had any breathing treatments. Enzymes...anything I remember them having to have before she moved. She chain smokes right in their faces on a day to day basis and I am not even sure they understand the severity of the disease they have. I asked my sister about a year ago if she knew she had it and she said yes and didn't really know anything about it at all. This really, really freaks me out. Since my mom has moved she has had a hard time with everything she doesn't have a car or anything and barely affords the food she has in the house. So I found out through social workers in cincy what she could do to get help in kentcuky and when I called her and told her she went off on me and told me that I must think she is a bad mother and she did not speak to me for 3 months because of it. I have tried every method I can think of to talk to her about it but she won't. My brother asked me in front of her a couple weeks ago what does it mean for him to have this and she changed the subject and never answered him. I tried to and she told me to stop. I don't have control because they are not my children but I don't think what she is doing is right and I don't know what else to do or try. I feel totally lost and helpless. I don't want to see my siblings life to be shortened in some way because of her denial or whatever it is. But I don't know what to do....HELP!
I am new to this board. I have a younger brother and sister who both have CF. 14 and 16. I cannot remember the last time my mother took them to see a CF specialist. We had a pretty hard life. I don't know anywhere else to turn for information or help. My brother and sister were diagnosed as infants and they received all the care they needed up until about 8 years ago. My mother was trafficking crack cocaine out of our home and she went to jail. My younger brother and sister had a different dad than me so when she went to jail they went into foster care. When my mom got out of jail she was able to get them back pretty quickly by being in AA and other drug treatment programs. When she got them back they were involved pretty heavily in govt help. They made sure my brother and sister got what they needed. My mom became homeless about 8 years ago and moved from cincinnati to frankfort to stay with family because she didn't have anywhere else to go. Took my brother and sister with her there. Since they have lived here they haven't seen a doctor for it haven't had any breathing treatments. Enzymes...anything I remember them having to have before she moved. She chain smokes right in their faces on a day to day basis and I am not even sure they understand the severity of the disease they have. I asked my sister about a year ago if she knew she had it and she said yes and didn't really know anything about it at all. This really, really freaks me out. Since my mom has moved she has had a hard time with everything she doesn't have a car or anything and barely affords the food she has in the house. So I found out through social workers in cincy what she could do to get help in kentcuky and when I called her and told her she went off on me and told me that I must think she is a bad mother and she did not speak to me for 3 months because of it. I have tried every method I can think of to talk to her about it but she won't. My brother asked me in front of her a couple weeks ago what does it mean for him to have this and she changed the subject and never answered him. I tried to and she told me to stop. I don't have control because they are not my children but I don't think what she is doing is right and I don't know what else to do or try. I feel totally lost and helpless. I don't want to see my siblings life to be shortened in some way because of her denial or whatever it is. But I don't know what to do....HELP!