help with 2yr old and nebulizer

pjspiegle

New member
You could try to get one of the masks with faces on it. I remember one of the asthma sites had some really cute masks that Nathan loved. Your CF center should be able to help with this or search the internet and see if you can find any.

I remember this being a really difficult time with Nathan as well. We made the decision to really let him know that this was not an option but found other things that he could negotiate over, even at 2 they need to feel that they have some control over all this stuff. It is hard at 2 though because it is hard to reason with them. If it makes you feel better, this is just normal 2 year old stuff and has nothing to do with the CF other than he has to do treatments that other 2 year olds don't, but he really doesn't know that.

Raising four kids I remember those days! Terrible 2's, Horrible 3's, Aweful 4's, and know it all 5's. The one thing I can tell you from experience is that you need to figure this out soon because I have watched and know some cf parents who decided not to fight it at this age and now 7, 10, and 12 years later, they are still having the same battles with their kids over treatments. Those of us who decided that this was not an option and found other things to negotiate with, have CFer's still doing treatments with little to no fights as teens. I say little to no fights because it isn't about whether or not they are going to do the treatment but sometimes about when because as teens they are often so busy they now have to learn time management to get all their CF stuff done with everything else going on in their life.

Don't worry, today he is fighting, and tomorrow he will be doing it joyfully again, he is 2. Does he like to draw and or color yet? Perhaps try getting some special stuff that he can only do while doing his treatments. I had a backpack full of stuff that Nathan could only play with while doing a treatment and one that he could only play with in the hospital during tune-ups and he loved it. Mostly because I put stuff in it that I would never allow him to just play with in my house but he could while doing a treatment. I figured he was more confined during a treatment and made some of it a little safer, stuff like, silly putty, play dough, markers, special coloring books, special toys, and so on, by the way, I would change some of the stuff out from time to time to keep it special, fun, and exciting for him. We just got rid of those backpacks last time he was in for a tune-up in January, he is 14 now, so be prepared for it to last a good 12 years if you start them.

LOL
 

pjspiegle

New member
You could try to get one of the masks with faces on it. I remember one of the asthma sites had some really cute masks that Nathan loved. Your CF center should be able to help with this or search the internet and see if you can find any.

I remember this being a really difficult time with Nathan as well. We made the decision to really let him know that this was not an option but found other things that he could negotiate over, even at 2 they need to feel that they have some control over all this stuff. It is hard at 2 though because it is hard to reason with them. If it makes you feel better, this is just normal 2 year old stuff and has nothing to do with the CF other than he has to do treatments that other 2 year olds don't, but he really doesn't know that.

Raising four kids I remember those days! Terrible 2's, Horrible 3's, Aweful 4's, and know it all 5's. The one thing I can tell you from experience is that you need to figure this out soon because I have watched and know some cf parents who decided not to fight it at this age and now 7, 10, and 12 years later, they are still having the same battles with their kids over treatments. Those of us who decided that this was not an option and found other things to negotiate with, have CFer's still doing treatments with little to no fights as teens. I say little to no fights because it isn't about whether or not they are going to do the treatment but sometimes about when because as teens they are often so busy they now have to learn time management to get all their CF stuff done with everything else going on in their life.

Don't worry, today he is fighting, and tomorrow he will be doing it joyfully again, he is 2. Does he like to draw and or color yet? Perhaps try getting some special stuff that he can only do while doing his treatments. I had a backpack full of stuff that Nathan could only play with while doing a treatment and one that he could only play with in the hospital during tune-ups and he loved it. Mostly because I put stuff in it that I would never allow him to just play with in my house but he could while doing a treatment. I figured he was more confined during a treatment and made some of it a little safer, stuff like, silly putty, play dough, markers, special coloring books, special toys, and so on, by the way, I would change some of the stuff out from time to time to keep it special, fun, and exciting for him. We just got rid of those backpacks last time he was in for a tune-up in January, he is 14 now, so be prepared for it to last a good 12 years if you start them.

LOL
 

pjspiegle

New member
You could try to get one of the masks with faces on it. I remember one of the asthma sites had some really cute masks that Nathan loved. Your CF center should be able to help with this or search the internet and see if you can find any.

I remember this being a really difficult time with Nathan as well. We made the decision to really let him know that this was not an option but found other things that he could negotiate over, even at 2 they need to feel that they have some control over all this stuff. It is hard at 2 though because it is hard to reason with them. If it makes you feel better, this is just normal 2 year old stuff and has nothing to do with the CF other than he has to do treatments that other 2 year olds don't, but he really doesn't know that.

Raising four kids I remember those days! Terrible 2's, Horrible 3's, Aweful 4's, and know it all 5's. The one thing I can tell you from experience is that you need to figure this out soon because I have watched and know some cf parents who decided not to fight it at this age and now 7, 10, and 12 years later, they are still having the same battles with their kids over treatments. Those of us who decided that this was not an option and found other things to negotiate with, have CFer's still doing treatments with little to no fights as teens. I say little to no fights because it isn't about whether or not they are going to do the treatment but sometimes about when because as teens they are often so busy they now have to learn time management to get all their CF stuff done with everything else going on in their life.

Don't worry, today he is fighting, and tomorrow he will be doing it joyfully again, he is 2. Does he like to draw and or color yet? Perhaps try getting some special stuff that he can only do while doing his treatments. I had a backpack full of stuff that Nathan could only play with while doing a treatment and one that he could only play with in the hospital during tune-ups and he loved it. Mostly because I put stuff in it that I would never allow him to just play with in my house but he could while doing a treatment. I figured he was more confined during a treatment and made some of it a little safer, stuff like, silly putty, play dough, markers, special coloring books, special toys, and so on, by the way, I would change some of the stuff out from time to time to keep it special, fun, and exciting for him. We just got rid of those backpacks last time he was in for a tune-up in January, he is 14 now, so be prepared for it to last a good 12 years if you start them.

LOL
 

pjspiegle

New member
You could try to get one of the masks with faces on it. I remember one of the asthma sites had some really cute masks that Nathan loved. Your CF center should be able to help with this or search the internet and see if you can find any.

I remember this being a really difficult time with Nathan as well. We made the decision to really let him know that this was not an option but found other things that he could negotiate over, even at 2 they need to feel that they have some control over all this stuff. It is hard at 2 though because it is hard to reason with them. If it makes you feel better, this is just normal 2 year old stuff and has nothing to do with the CF other than he has to do treatments that other 2 year olds don't, but he really doesn't know that.

Raising four kids I remember those days! Terrible 2's, Horrible 3's, Aweful 4's, and know it all 5's. The one thing I can tell you from experience is that you need to figure this out soon because I have watched and know some cf parents who decided not to fight it at this age and now 7, 10, and 12 years later, they are still having the same battles with their kids over treatments. Those of us who decided that this was not an option and found other things to negotiate with, have CFer's still doing treatments with little to no fights as teens. I say little to no fights because it isn't about whether or not they are going to do the treatment but sometimes about when because as teens they are often so busy they now have to learn time management to get all their CF stuff done with everything else going on in their life.

Don't worry, today he is fighting, and tomorrow he will be doing it joyfully again, he is 2. Does he like to draw and or color yet? Perhaps try getting some special stuff that he can only do while doing his treatments. I had a backpack full of stuff that Nathan could only play with while doing a treatment and one that he could only play with in the hospital during tune-ups and he loved it. Mostly because I put stuff in it that I would never allow him to just play with in my house but he could while doing a treatment. I figured he was more confined during a treatment and made some of it a little safer, stuff like, silly putty, play dough, markers, special coloring books, special toys, and so on, by the way, I would change some of the stuff out from time to time to keep it special, fun, and exciting for him. We just got rid of those backpacks last time he was in for a tune-up in January, he is 14 now, so be prepared for it to last a good 12 years if you start them.

LOL
 

pjspiegle

New member
You could try to get one of the masks with faces on it. I remember one of the asthma sites had some really cute masks that Nathan loved. Your CF center should be able to help with this or search the internet and see if you can find any.
<br />
<br />I remember this being a really difficult time with Nathan as well. We made the decision to really let him know that this was not an option but found other things that he could negotiate over, even at 2 they need to feel that they have some control over all this stuff. It is hard at 2 though because it is hard to reason with them. If it makes you feel better, this is just normal 2 year old stuff and has nothing to do with the CF other than he has to do treatments that other 2 year olds don't, but he really doesn't know that.
<br />
<br />Raising four kids I remember those days! Terrible 2's, Horrible 3's, Aweful 4's, and know it all 5's. The one thing I can tell you from experience is that you need to figure this out soon because I have watched and know some cf parents who decided not to fight it at this age and now 7, 10, and 12 years later, they are still having the same battles with their kids over treatments. Those of us who decided that this was not an option and found other things to negotiate with, have CFer's still doing treatments with little to no fights as teens. I say little to no fights because it isn't about whether or not they are going to do the treatment but sometimes about when because as teens they are often so busy they now have to learn time management to get all their CF stuff done with everything else going on in their life.
<br />
<br />Don't worry, today he is fighting, and tomorrow he will be doing it joyfully again, he is 2. Does he like to draw and or color yet? Perhaps try getting some special stuff that he can only do while doing his treatments. I had a backpack full of stuff that Nathan could only play with while doing a treatment and one that he could only play with in the hospital during tune-ups and he loved it. Mostly because I put stuff in it that I would never allow him to just play with in my house but he could while doing a treatment. I figured he was more confined during a treatment and made some of it a little safer, stuff like, silly putty, play dough, markers, special coloring books, special toys, and so on, by the way, I would change some of the stuff out from time to time to keep it special, fun, and exciting for him. We just got rid of those backpacks last time he was in for a tune-up in January, he is 14 now, so be prepared for it to last a good 12 years if you start them.
<br />
<br />LOL
 

Ratatosk

Administrator
Staff member
We've always used the mask for tobi and pulmozyme. DS usually sleeps thru the a.m. tobi after CPT and duoneb. Could it be he has a sensitive scalp? One thing we've only recently started doing is using the elastic to keep the mask on -- otherwise DH or I would just hold the neb mask onto his face. Figured he didn't need the elastic band getting tangled up in his hair. Nowdays we use it 'cuz he plays xbox during his vest and nebs, so it's difficult to hold onto the neb cup while playing with him.
 

Ratatosk

Administrator
Staff member
We've always used the mask for tobi and pulmozyme. DS usually sleeps thru the a.m. tobi after CPT and duoneb. Could it be he has a sensitive scalp? One thing we've only recently started doing is using the elastic to keep the mask on -- otherwise DH or I would just hold the neb mask onto his face. Figured he didn't need the elastic band getting tangled up in his hair. Nowdays we use it 'cuz he plays xbox during his vest and nebs, so it's difficult to hold onto the neb cup while playing with him.
 

Ratatosk

Administrator
Staff member
We've always used the mask for tobi and pulmozyme. DS usually sleeps thru the a.m. tobi after CPT and duoneb. Could it be he has a sensitive scalp? One thing we've only recently started doing is using the elastic to keep the mask on -- otherwise DH or I would just hold the neb mask onto his face. Figured he didn't need the elastic band getting tangled up in his hair. Nowdays we use it 'cuz he plays xbox during his vest and nebs, so it's difficult to hold onto the neb cup while playing with him.
 

Ratatosk

Administrator
Staff member
We've always used the mask for tobi and pulmozyme. DS usually sleeps thru the a.m. tobi after CPT and duoneb. Could it be he has a sensitive scalp? One thing we've only recently started doing is using the elastic to keep the mask on -- otherwise DH or I would just hold the neb mask onto his face. Figured he didn't need the elastic band getting tangled up in his hair. Nowdays we use it 'cuz he plays xbox during his vest and nebs, so it's difficult to hold onto the neb cup while playing with him.
 

Ratatosk

Administrator
Staff member
We've always used the mask for tobi and pulmozyme. DS usually sleeps thru the a.m. tobi after CPT and duoneb. Could it be he has a sensitive scalp? One thing we've only recently started doing is using the elastic to keep the mask on -- otherwise DH or I would just hold the neb mask onto his face. Figured he didn't need the elastic band getting tangled up in his hair. Nowdays we use it 'cuz he plays xbox during his vest and nebs, so it's difficult to hold onto the neb cup while playing with him.
 
M

momofcash

Guest
Thanks for the ideas. I'm going to load up his backpack today. I also noticed it was easier this morning without my older children and husband here. It is hard when you have to get dinner, homework and everyone else taken care of too. I know we will get a routine soon. We do have the little dragon mask but the novelty seemed to wear off<img src="i/expressions/face-icon-small-sad.gif" border="0">

It is good to know that I am not the only who has had to struggle with a strong willed 2 year old.
 
M

momofcash

Guest
Thanks for the ideas. I'm going to load up his backpack today. I also noticed it was easier this morning without my older children and husband here. It is hard when you have to get dinner, homework and everyone else taken care of too. I know we will get a routine soon. We do have the little dragon mask but the novelty seemed to wear off<img src="i/expressions/face-icon-small-sad.gif" border="0">

It is good to know that I am not the only who has had to struggle with a strong willed 2 year old.
 
M

momofcash

Guest
Thanks for the ideas. I'm going to load up his backpack today. I also noticed it was easier this morning without my older children and husband here. It is hard when you have to get dinner, homework and everyone else taken care of too. I know we will get a routine soon. We do have the little dragon mask but the novelty seemed to wear off<img src="i/expressions/face-icon-small-sad.gif" border="0">

It is good to know that I am not the only who has had to struggle with a strong willed 2 year old.
 
M

momofcash

Guest
Thanks for the ideas. I'm going to load up his backpack today. I also noticed it was easier this morning without my older children and husband here. It is hard when you have to get dinner, homework and everyone else taken care of too. I know we will get a routine soon. We do have the little dragon mask but the novelty seemed to wear off<img src="i/expressions/face-icon-small-sad.gif" border="0">

It is good to know that I am not the only who has had to struggle with a strong willed 2 year old.
 
M

momofcash

Guest
Thanks for the ideas. I'm going to load up his backpack today. I also noticed it was easier this morning without my older children and husband here. It is hard when you have to get dinner, homework and everyone else taken care of too. I know we will get a routine soon. We do have the little dragon mask but the novelty seemed to wear off<img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />It is good to know that I am not the only who has had to struggle with a strong willed 2 year old.
 

izemmom

New member
You have gotten some good advice already. Emily struggles with her nebs from time to time, too. (She's 2, as well). We have special DVD's that she watches during her treatments, or sometimes she'll want to read a story. I let her pick what we do durig this time so that she has some control. I think that for her, at least, control is the major issue. She HATES having us decide anything for her most of hte time, not just treatment times. (I know, I'm in for a rough few years with her...LOL). We try to set up win-win choices for her and let her do as much of the treatment for herself as she can. We let her squeeze the ampule of saline or pulmozyme into the neb. She carries one of them to the compressor, plugs the tubing into the bottom of the cup, buckles her own vest, turns on the compressor, holds the neb if she feels like it...Some days it backfires, but most of the time feeling "in control" seems to help her.

Also, have a general question for others reading this thread. I asked for Bubbles the Fish mask to go with our Pari cups, and was told by clinic that they can not dispense them any more. CFF has nixed them becasue of the strap. It can't be sterlized. We have always held her neb for her, but I'd really like to get soemthing with a strap so we can let her be more independent, and she can be hands free...Anyone have a source for Pari compatible masks with straps that can be sterilized?

Good luck with Cash. This too shall pass. Just letting him know that this is something he HAS to do will pay off in the long run. The really really really LONG run...Hang in there.
 

izemmom

New member
You have gotten some good advice already. Emily struggles with her nebs from time to time, too. (She's 2, as well). We have special DVD's that she watches during her treatments, or sometimes she'll want to read a story. I let her pick what we do durig this time so that she has some control. I think that for her, at least, control is the major issue. She HATES having us decide anything for her most of hte time, not just treatment times. (I know, I'm in for a rough few years with her...LOL). We try to set up win-win choices for her and let her do as much of the treatment for herself as she can. We let her squeeze the ampule of saline or pulmozyme into the neb. She carries one of them to the compressor, plugs the tubing into the bottom of the cup, buckles her own vest, turns on the compressor, holds the neb if she feels like it...Some days it backfires, but most of the time feeling "in control" seems to help her.

Also, have a general question for others reading this thread. I asked for Bubbles the Fish mask to go with our Pari cups, and was told by clinic that they can not dispense them any more. CFF has nixed them becasue of the strap. It can't be sterlized. We have always held her neb for her, but I'd really like to get soemthing with a strap so we can let her be more independent, and she can be hands free...Anyone have a source for Pari compatible masks with straps that can be sterilized?

Good luck with Cash. This too shall pass. Just letting him know that this is something he HAS to do will pay off in the long run. The really really really LONG run...Hang in there.
 

izemmom

New member
You have gotten some good advice already. Emily struggles with her nebs from time to time, too. (She's 2, as well). We have special DVD's that she watches during her treatments, or sometimes she'll want to read a story. I let her pick what we do durig this time so that she has some control. I think that for her, at least, control is the major issue. She HATES having us decide anything for her most of hte time, not just treatment times. (I know, I'm in for a rough few years with her...LOL). We try to set up win-win choices for her and let her do as much of the treatment for herself as she can. We let her squeeze the ampule of saline or pulmozyme into the neb. She carries one of them to the compressor, plugs the tubing into the bottom of the cup, buckles her own vest, turns on the compressor, holds the neb if she feels like it...Some days it backfires, but most of the time feeling "in control" seems to help her.

Also, have a general question for others reading this thread. I asked for Bubbles the Fish mask to go with our Pari cups, and was told by clinic that they can not dispense them any more. CFF has nixed them becasue of the strap. It can't be sterlized. We have always held her neb for her, but I'd really like to get soemthing with a strap so we can let her be more independent, and she can be hands free...Anyone have a source for Pari compatible masks with straps that can be sterilized?

Good luck with Cash. This too shall pass. Just letting him know that this is something he HAS to do will pay off in the long run. The really really really LONG run...Hang in there.
 

izemmom

New member
You have gotten some good advice already. Emily struggles with her nebs from time to time, too. (She's 2, as well). We have special DVD's that she watches during her treatments, or sometimes she'll want to read a story. I let her pick what we do durig this time so that she has some control. I think that for her, at least, control is the major issue. She HATES having us decide anything for her most of hte time, not just treatment times. (I know, I'm in for a rough few years with her...LOL). We try to set up win-win choices for her and let her do as much of the treatment for herself as she can. We let her squeeze the ampule of saline or pulmozyme into the neb. She carries one of them to the compressor, plugs the tubing into the bottom of the cup, buckles her own vest, turns on the compressor, holds the neb if she feels like it...Some days it backfires, but most of the time feeling "in control" seems to help her.

Also, have a general question for others reading this thread. I asked for Bubbles the Fish mask to go with our Pari cups, and was told by clinic that they can not dispense them any more. CFF has nixed them becasue of the strap. It can't be sterlized. We have always held her neb for her, but I'd really like to get soemthing with a strap so we can let her be more independent, and she can be hands free...Anyone have a source for Pari compatible masks with straps that can be sterilized?

Good luck with Cash. This too shall pass. Just letting him know that this is something he HAS to do will pay off in the long run. The really really really LONG run...Hang in there.
 

izemmom

New member
You have gotten some good advice already. Emily struggles with her nebs from time to time, too. (She's 2, as well). We have special DVD's that she watches during her treatments, or sometimes she'll want to read a story. I let her pick what we do durig this time so that she has some control. I think that for her, at least, control is the major issue. She HATES having us decide anything for her most of hte time, not just treatment times. (I know, I'm in for a rough few years with her...LOL). We try to set up win-win choices for her and let her do as much of the treatment for herself as she can. We let her squeeze the ampule of saline or pulmozyme into the neb. She carries one of them to the compressor, plugs the tubing into the bottom of the cup, buckles her own vest, turns on the compressor, holds the neb if she feels like it...Some days it backfires, but most of the time feeling "in control" seems to help her.
<br />
<br />Also, have a general question for others reading this thread. I asked for Bubbles the Fish mask to go with our Pari cups, and was told by clinic that they can not dispense them any more. CFF has nixed them becasue of the strap. It can't be sterlized. We have always held her neb for her, but I'd really like to get soemthing with a strap so we can let her be more independent, and she can be hands free...Anyone have a source for Pari compatible masks with straps that can be sterilized?
<br />
<br />Good luck with Cash. This too shall pass. Just letting him know that this is something he HAS to do will pay off in the long run. The really really really LONG run...Hang in there.
 
Top