Hi,
A close friend of mine has a six year old daughter with CF. I have offered to head up a fundraiser to raise the funds to purchase a vest. (We are not covered in Canada so we have to come up with 100% of the cash ourselves).
At her last major clinic (3 mths ago) they suggested that she would benefit from getting a vest, so we got the ball rolling on the fundraising ideas. Yesterday at the clinic they said that not only is the vest not more effective then manual therapy, but the vest may actually not be as effective as manual therapy. They weren't discouraging her from getting it but mentioned that it may not help.
So, I offered to do some research. To see what others with CF are using, if they have had good results, what vest they have purchased, do some prefer a different method. I saw the Electro Flo 5000. Is that better then a vest (I know the site says it is, but I prefer to hear from people who aren't affiliated and have an unbiased opintion). I would love to hear what you think, what your experience has been.
Right now, after yesterdays clinic she is up to doing the therapy (pounding, sorry i don't know the technical term) three times a day.
What are your thoughts? Have you found the vest (or other equiptment)just as productive? What are the benefits of the vest for you? If I am doing the fundraising I would like to have some facts. We don't want to go to all this work, raise $16,500 and find out that it wasn't worth it. Not when other peoples money and sweat are involved. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I hope to hear from some of you. Your thoughts and experience and knowledge would be much appreciated.
A close friend of mine has a six year old daughter with CF. I have offered to head up a fundraiser to raise the funds to purchase a vest. (We are not covered in Canada so we have to come up with 100% of the cash ourselves).
At her last major clinic (3 mths ago) they suggested that she would benefit from getting a vest, so we got the ball rolling on the fundraising ideas. Yesterday at the clinic they said that not only is the vest not more effective then manual therapy, but the vest may actually not be as effective as manual therapy. They weren't discouraging her from getting it but mentioned that it may not help.
So, I offered to do some research. To see what others with CF are using, if they have had good results, what vest they have purchased, do some prefer a different method. I saw the Electro Flo 5000. Is that better then a vest (I know the site says it is, but I prefer to hear from people who aren't affiliated and have an unbiased opintion). I would love to hear what you think, what your experience has been.
Right now, after yesterdays clinic she is up to doing the therapy (pounding, sorry i don't know the technical term) three times a day.
What are your thoughts? Have you found the vest (or other equiptment)just as productive? What are the benefits of the vest for you? If I am doing the fundraising I would like to have some facts. We don't want to go to all this work, raise $16,500 and find out that it wasn't worth it. Not when other peoples money and sweat are involved. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I hope to hear from some of you. Your thoughts and experience and knowledge would be much appreciated.