Hemoptysis battle again

[gsplover]

Hi Sean,

Your sistuation makes me so happy I have the Doctor I have. I had been on IV antibiotice for 6 weeks. Gour days after ending my IVs, I start coughing up blood. My cultures were showing low bacteria count but I was still not feeling normal. After 3 days in a row of coughing up blood, i was told if it happened again he would do an embolization. He already had a CT scan scheduled before the bleeding started. i went a day with out blood. Then whamo next day bllod. He admitted me. Did a bronch. He couldn't find an active bleed so he put the embolization on hold. Started me on another round of IV antibiotics for a totally different bacteria than before. The next day blood again. Luckily I was in the hospital. My bleeds where all small, 3 to 4 tablesppons and they would only last for 5 to 10 minutes but they were continous. So last Friday he did my first embolization. They found two places that they fixed. No bleeds yet. Yeah! I would keep pushing or go somewhere else. I thought my doctpr was being to aggressive but after hearing your situation I am glad he was. I hope you get the care you need soon.

 

[gsplover]

Hi Sean,

Your sistuation makes me so happy I have the Doctor I have. I had been on IV antibiotice for 6 weeks. Gour days after ending my IVs, I start coughing up blood. My cultures were showing low bacteria count but I was still not feeling normal. After 3 days in a row of coughing up blood, i was told if it happened again he would do an embolization. He already had a CT scan scheduled before the bleeding started. i went a day with out blood. Then whamo next day bllod. He admitted me. Did a bronch. He couldn't find an active bleed so he put the embolization on hold. Started me on another round of IV antibiotics for a totally different bacteria than before. The next day blood again. Luckily I was in the hospital. My bleeds where all small, 3 to 4 tablesppons and they would only last for 5 to 10 minutes but they were continous. So last Friday he did my first embolization. They found two places that they fixed. No bleeds yet. Yeah! I would keep pushing or go somewhere else. I thought my doctpr was being to aggressive but after hearing your situation I am glad he was. I hope you get the care you need soon.

 

[gsplover]

Hi Sean,

Your sistuation makes me so happy I have the Doctor I have. I had been on IV antibiotice for 6 weeks. Gour days after ending my IVs, I start coughing up blood. My cultures were showing low bacteria count but I was still not feeling normal. After 3 days in a row of coughing up blood, i was told if it happened again he would do an embolization. He already had a CT scan scheduled before the bleeding started. i went a day with out blood. Then whamo next day bllod. He admitted me. Did a bronch. He couldn't find an active bleed so he put the embolization on hold. Started me on another round of IV antibiotics for a totally different bacteria than before. The next day blood again. Luckily I was in the hospital. My bleeds where all small, 3 to 4 tablesppons and they would only last for 5 to 10 minutes but they were continous. So last Friday he did my first embolization. They found two places that they fixed. No bleeds yet. Yeah! I would keep pushing or go somewhere else. I thought my doctpr was being to aggressive but after hearing your situation I am glad he was. I hope you get the care you need soon.

 

[gsplover]

Hi Sean,

Your sistuation makes me so happy I have the Doctor I have. I had been on IV antibiotice for 6 weeks. Gour days after ending my IVs, I start coughing up blood. My cultures were showing low bacteria count but I was still not feeling normal. After 3 days in a row of coughing up blood, i was told if it happened again he would do an embolization. He already had a CT scan scheduled before the bleeding started. i went a day with out blood. Then whamo next day bllod. He admitted me. Did a bronch. He couldn't find an active bleed so he put the embolization on hold. Started me on another round of IV antibiotics for a totally different bacteria than before. The next day blood again. Luckily I was in the hospital. My bleeds where all small, 3 to 4 tablesppons and they would only last for 5 to 10 minutes but they were continous. So last Friday he did my first embolization. They found two places that they fixed. No bleeds yet. Yeah! I would keep pushing or go somewhere else. I thought my doctpr was being to aggressive but after hearing your situation I am glad he was. I hope you get the care you need soon.

 

[gsplover]

Hi Sean,

Your sistuation makes me so happy I have the Doctor I have. I had been on IV antibiotice for 6 weeks. Gour days after ending my IVs, I start coughing up blood. My cultures were showing low bacteria count but I was still not feeling normal. After 3 days in a row of coughing up blood, i was told if it happened again he would do an embolization. He already had a CT scan scheduled before the bleeding started. i went a day with out blood. Then whamo next day bllod. He admitted me. Did a bronch. He couldn't find an active bleed so he put the embolization on hold. Started me on another round of IV antibiotics for a totally different bacteria than before. The next day blood again. Luckily I was in the hospital. My bleeds where all small, 3 to 4 tablesppons and they would only last for 5 to 10 minutes but they were continous. So last Friday he did my first embolization. They found two places that they fixed. No bleeds yet. Yeah! I would keep pushing or go somewhere else. I thought my doctpr was being to aggressive but after hearing your situation I am glad he was. I hope you get the care you need soon.

 

[Diane]

I dont like the lackadasical attitude your doctor seems to be taking with your situation. Large hemoptysis isnt something to played around with. Once you have an opening large enough to bleed pretty bad, chances are, it wont completely heal and you run the risk of bleeding from there again and again. HE SHOULD KNOW THIS !!
I remeember one time when i asked my last Dr. what if i start to have bleeding issues again and he said "<i>we will cross that bridge when we get to it</i>" and i replied "<i>well to be honest i was hoping to make a detour so we wouldnt have to get to that bridge"</i>
Im with you, i would want to be proactive rather than reactive <b>especially</b> when it comes to hemoptysis.
If i needed another embolization again........as much as i dont want to.... and pray not to ever have to again.... i would do it, rather than sit around hoping that antibiotics help to clear up the problem. If there is a dilated weakened blood vessel, antibiotics wont do anything for it. I hate when Doctors dont choose to cover all bases....but then again thats easy to do when it isnt them coughing up the blood<img src="i/expressions/face-icon-small-mad.gif" border="0">.

 

[Diane]

I dont like the lackadasical attitude your doctor seems to be taking with your situation. Large hemoptysis isnt something to played around with. Once you have an opening large enough to bleed pretty bad, chances are, it wont completely heal and you run the risk of bleeding from there again and again. HE SHOULD KNOW THIS !!
I remeember one time when i asked my last Dr. what if i start to have bleeding issues again and he said "<i>we will cross that bridge when we get to it</i>" and i replied "<i>well to be honest i was hoping to make a detour so we wouldnt have to get to that bridge"</i>
Im with you, i would want to be proactive rather than reactive <b>especially</b> when it comes to hemoptysis.
If i needed another embolization again........as much as i dont want to.... and pray not to ever have to again.... i would do it, rather than sit around hoping that antibiotics help to clear up the problem. If there is a dilated weakened blood vessel, antibiotics wont do anything for it. I hate when Doctors dont choose to cover all bases....but then again thats easy to do when it isnt them coughing up the blood<img src="i/expressions/face-icon-small-mad.gif" border="0">.

 

[Diane]

I dont like the lackadasical attitude your doctor seems to be taking with your situation. Large hemoptysis isnt something to played around with. Once you have an opening large enough to bleed pretty bad, chances are, it wont completely heal and you run the risk of bleeding from there again and again. HE SHOULD KNOW THIS !!
I remeember one time when i asked my last Dr. what if i start to have bleeding issues again and he said "<i>we will cross that bridge when we get to it</i>" and i replied "<i>well to be honest i was hoping to make a detour so we wouldnt have to get to that bridge"</i>
Im with you, i would want to be proactive rather than reactive <b>especially</b> when it comes to hemoptysis.
If i needed another embolization again........as much as i dont want to.... and pray not to ever have to again.... i would do it, rather than sit around hoping that antibiotics help to clear up the problem. If there is a dilated weakened blood vessel, antibiotics wont do anything for it. I hate when Doctors dont choose to cover all bases....but then again thats easy to do when it isnt them coughing up the blood<img src="i/expressions/face-icon-small-mad.gif" border="0">.

 

[Diane]

I dont like the lackadasical attitude your doctor seems to be taking with your situation. Large hemoptysis isnt something to played around with. Once you have an opening large enough to bleed pretty bad, chances are, it wont completely heal and you run the risk of bleeding from there again and again. HE SHOULD KNOW THIS !!
I remeember one time when i asked my last Dr. what if i start to have bleeding issues again and he said "<i>we will cross that bridge when we get to it</i>" and i replied "<i>well to be honest i was hoping to make a detour so we wouldnt have to get to that bridge"</i>
Im with you, i would want to be proactive rather than reactive <b>especially</b> when it comes to hemoptysis.
If i needed another embolization again........as much as i dont want to.... and pray not to ever have to again.... i would do it, rather than sit around hoping that antibiotics help to clear up the problem. If there is a dilated weakened blood vessel, antibiotics wont do anything for it. I hate when Doctors dont choose to cover all bases....but then again thats easy to do when it isnt them coughing up the blood<img src="i/expressions/face-icon-small-mad.gif" border="0">.

 

[Diane]

I dont like the lackadasical attitude your doctor seems to be taking with your situation. Large hemoptysis isnt something to played around with. Once you have an opening large enough to bleed pretty bad, chances are, it wont completely heal and you run the risk of bleeding from there again and again. HE SHOULD KNOW THIS !!
I remeember one time when i asked my last Dr. what if i start to have bleeding issues again and he said "<i>we will cross that bridge when we get to it</i>" and i replied "<i>well to be honest i was hoping to make a detour so we wouldnt have to get to that bridge"</i>
Im with you, i would want to be proactive rather than reactive <b>especially</b> when it comes to hemoptysis.
If i needed another embolization again........as much as i dont want to.... and pray not to ever have to again.... i would do it, rather than sit around hoping that antibiotics help to clear up the problem. If there is a dilated weakened blood vessel, antibiotics wont do anything for it. I hate when Doctors dont choose to cover all bases....but then again thats easy to do when it isnt them coughing up the blood<img src="i/expressions/face-icon-small-mad.gif" border="0">.

 

[Faust]

Well I went there, and the first midline attempt wouldn't go all the way through on my left arm. She got nearly done with the length, and it hit a blockage of some sort. Considering I always get midlines and nearly all past regular iv's on the left arm, hopefully it was just some scar tissue, but who knows. He has me on Maxipime (cefepime) every 8 hours via IV, and a large dose of levoquin in pill form. My fiancee went with me today to the hospital for the procedure, and boy did she want to get her hands on my doc. I explained my concerns with the head RN team there that does all this stuff (they REALLY know their stuff, including things associated with my concerns regarding the need for a CT scan etc), and they let me know with their faces they agreed with me, and added "Yes, he is very opinionated". Well you can have all the opinions and ego in the universe, I don't care, but when it comes to being a doctor and throwing away a logical, widely used procedure that nearly all other CF specialists use to gauge the health of their patients due to your ego, that is fuged up in my world. I will ride this course out, but if I get another bleed after this (which I will), I am going to chew his ass in person.


Not like I would do it because i'm not a maniac, and I do value my freedom, but it's actions like these (or rather inactions) by doctors that leads to crazy people grabbing their gun and going to pay them a visit and doing crazy stuff, especially so if their inaction against experienced advice leads to someones death.

 

[Faust]

Well I went there, and the first midline attempt wouldn't go all the way through on my left arm. She got nearly done with the length, and it hit a blockage of some sort. Considering I always get midlines and nearly all past regular iv's on the left arm, hopefully it was just some scar tissue, but who knows. He has me on Maxipime (cefepime) every 8 hours via IV, and a large dose of levoquin in pill form. My fiancee went with me today to the hospital for the procedure, and boy did she want to get her hands on my doc. I explained my concerns with the head RN team there that does all this stuff (they REALLY know their stuff, including things associated with my concerns regarding the need for a CT scan etc), and they let me know with their faces they agreed with me, and added "Yes, he is very opinionated". Well you can have all the opinions and ego in the universe, I don't care, but when it comes to being a doctor and throwing away a logical, widely used procedure that nearly all other CF specialists use to gauge the health of their patients due to your ego, that is fuged up in my world. I will ride this course out, but if I get another bleed after this (which I will), I am going to chew his ass in person.


Not like I would do it because i'm not a maniac, and I do value my freedom, but it's actions like these (or rather inactions) by doctors that leads to crazy people grabbing their gun and going to pay them a visit and doing crazy stuff, especially so if their inaction against experienced advice leads to someones death.

 

[Faust]

Well I went there, and the first midline attempt wouldn't go all the way through on my left arm. She got nearly done with the length, and it hit a blockage of some sort. Considering I always get midlines and nearly all past regular iv's on the left arm, hopefully it was just some scar tissue, but who knows. He has me on Maxipime (cefepime) every 8 hours via IV, and a large dose of levoquin in pill form. My fiancee went with me today to the hospital for the procedure, and boy did she want to get her hands on my doc. I explained my concerns with the head RN team there that does all this stuff (they REALLY know their stuff, including things associated with my concerns regarding the need for a CT scan etc), and they let me know with their faces they agreed with me, and added "Yes, he is very opinionated". Well you can have all the opinions and ego in the universe, I don't care, but when it comes to being a doctor and throwing away a logical, widely used procedure that nearly all other CF specialists use to gauge the health of their patients due to your ego, that is fuged up in my world. I will ride this course out, but if I get another bleed after this (which I will), I am going to chew his ass in person.


Not like I would do it because i'm not a maniac, and I do value my freedom, but it's actions like these (or rather inactions) by doctors that leads to crazy people grabbing their gun and going to pay them a visit and doing crazy stuff, especially so if their inaction against experienced advice leads to someones death.

 

[Faust]

Well I went there, and the first midline attempt wouldn't go all the way through on my left arm. She got nearly done with the length, and it hit a blockage of some sort. Considering I always get midlines and nearly all past regular iv's on the left arm, hopefully it was just some scar tissue, but who knows. He has me on Maxipime (cefepime) every 8 hours via IV, and a large dose of levoquin in pill form. My fiancee went with me today to the hospital for the procedure, and boy did she want to get her hands on my doc. I explained my concerns with the head RN team there that does all this stuff (they REALLY know their stuff, including things associated with my concerns regarding the need for a CT scan etc), and they let me know with their faces they agreed with me, and added "Yes, he is very opinionated". Well you can have all the opinions and ego in the universe, I don't care, but when it comes to being a doctor and throwing away a logical, widely used procedure that nearly all other CF specialists use to gauge the health of their patients due to your ego, that is fuged up in my world. I will ride this course out, but if I get another bleed after this (which I will), I am going to chew his ass in person.


Not like I would do it because i'm not a maniac, and I do value my freedom, but it's actions like these (or rather inactions) by doctors that leads to crazy people grabbing their gun and going to pay them a visit and doing crazy stuff, especially so if their inaction against experienced advice leads to someones death.

 

[Faust]

Well I went there, and the first midline attempt wouldn't go all the way through on my left arm. She got nearly done with the length, and it hit a blockage of some sort. Considering I always get midlines and nearly all past regular iv's on the left arm, hopefully it was just some scar tissue, but who knows. He has me on Maxipime (cefepime) every 8 hours via IV, and a large dose of levoquin in pill form. My fiancee went with me today to the hospital for the procedure, and boy did she want to get her hands on my doc. I explained my concerns with the head RN team there that does all this stuff (they REALLY know their stuff, including things associated with my concerns regarding the need for a CT scan etc), and they let me know with their faces they agreed with me, and added "Yes, he is very opinionated". Well you can have all the opinions and ego in the universe, I don't care, but when it comes to being a doctor and throwing away a logical, widely used procedure that nearly all other CF specialists use to gauge the health of their patients due to your ego, that is fuged up in my world. I will ride this course out, but if I get another bleed after this (which I will), I am going to chew his ass in person.


Not like I would do it because i'm not a maniac, and I do value my freedom, but it's actions like these (or rather inactions) by doctors that leads to crazy people grabbing their gun and going to pay them a visit and doing crazy stuff, especially so if their inaction against experienced advice leads to someones death.

 

[65rosessamurai]

WHAT CT SCAN DYE?!
I've had 3 CT Scans in the past two years, and never once had to do anything more than lay on a table and hold my breath til the count of ten. Also, I'm curious why everyone is adding "with contrast" to having a CT Scan...it's a given that a CT Scan can only give no more than a resolution of 5mm, which is equvalent to an MRI.

You're doing a lung CT Scan, right? I've never heard a procedure, other than a gastrointestinal X-ray that involved having to suck down something that can be visible on film. (Besides, a CT is not done on film, it's all computerized, then printed out on film)

As for the doc's ego issue, if it goes above the concerns of the patient, perhaps finding a second opinion is very wise, since the doc's ego won't permit consultation with his colleagues. It's either that, or have a heart-to-heart talk with the doc about how your concerns and questions are not being addressed.

And, although you'll agree there cannot be any comparison between a human and a computer, the idea I understand and agree with is that when a problem occurs, it is sometimes the result of multiple causes. Being in the field of repair, I've also seen systems have a problem which was due to multiple causes.

Though the term "malpractice" does come to mind if his "regiment" doesn't work out and your bleeds come back.

 

[65rosessamurai]

WHAT CT SCAN DYE?!
I've had 3 CT Scans in the past two years, and never once had to do anything more than lay on a table and hold my breath til the count of ten. Also, I'm curious why everyone is adding "with contrast" to having a CT Scan...it's a given that a CT Scan can only give no more than a resolution of 5mm, which is equvalent to an MRI.

You're doing a lung CT Scan, right? I've never heard a procedure, other than a gastrointestinal X-ray that involved having to suck down something that can be visible on film. (Besides, a CT is not done on film, it's all computerized, then printed out on film)

As for the doc's ego issue, if it goes above the concerns of the patient, perhaps finding a second opinion is very wise, since the doc's ego won't permit consultation with his colleagues. It's either that, or have a heart-to-heart talk with the doc about how your concerns and questions are not being addressed.

And, although you'll agree there cannot be any comparison between a human and a computer, the idea I understand and agree with is that when a problem occurs, it is sometimes the result of multiple causes. Being in the field of repair, I've also seen systems have a problem which was due to multiple causes.

Though the term "malpractice" does come to mind if his "regiment" doesn't work out and your bleeds come back.

 

[65rosessamurai]

WHAT CT SCAN DYE?!
I've had 3 CT Scans in the past two years, and never once had to do anything more than lay on a table and hold my breath til the count of ten. Also, I'm curious why everyone is adding "with contrast" to having a CT Scan...it's a given that a CT Scan can only give no more than a resolution of 5mm, which is equvalent to an MRI.

You're doing a lung CT Scan, right? I've never heard a procedure, other than a gastrointestinal X-ray that involved having to suck down something that can be visible on film. (Besides, a CT is not done on film, it's all computerized, then printed out on film)

As for the doc's ego issue, if it goes above the concerns of the patient, perhaps finding a second opinion is very wise, since the doc's ego won't permit consultation with his colleagues. It's either that, or have a heart-to-heart talk with the doc about how your concerns and questions are not being addressed.

And, although you'll agree there cannot be any comparison between a human and a computer, the idea I understand and agree with is that when a problem occurs, it is sometimes the result of multiple causes. Being in the field of repair, I've also seen systems have a problem which was due to multiple causes.

Though the term "malpractice" does come to mind if his "regiment" doesn't work out and your bleeds come back.

 

[65rosessamurai]

WHAT CT SCAN DYE?!
I've had 3 CT Scans in the past two years, and never once had to do anything more than lay on a table and hold my breath til the count of ten. Also, I'm curious why everyone is adding "with contrast" to having a CT Scan...it's a given that a CT Scan can only give no more than a resolution of 5mm, which is equvalent to an MRI.

You're doing a lung CT Scan, right? I've never heard a procedure, other than a gastrointestinal X-ray that involved having to suck down something that can be visible on film. (Besides, a CT is not done on film, it's all computerized, then printed out on film)

As for the doc's ego issue, if it goes above the concerns of the patient, perhaps finding a second opinion is very wise, since the doc's ego won't permit consultation with his colleagues. It's either that, or have a heart-to-heart talk with the doc about how your concerns and questions are not being addressed.

And, although you'll agree there cannot be any comparison between a human and a computer, the idea I understand and agree with is that when a problem occurs, it is sometimes the result of multiple causes. Being in the field of repair, I've also seen systems have a problem which was due to multiple causes.

Though the term "malpractice" does come to mind if his "regiment" doesn't work out and your bleeds come back.

 

[65rosessamurai]

WHAT CT SCAN DYE?!
I've had 3 CT Scans in the past two years, and never once had to do anything more than lay on a table and hold my breath til the count of ten. Also, I'm curious why everyone is adding "with contrast" to having a CT Scan...it's a given that a CT Scan can only give no more than a resolution of 5mm, which is equvalent to an MRI.

You're doing a lung CT Scan, right? I've never heard a procedure, other than a gastrointestinal X-ray that involved having to suck down something that can be visible on film. (Besides, a CT is not done on film, it's all computerized, then printed out on film)

As for the doc's ego issue, if it goes above the concerns of the patient, perhaps finding a second opinion is very wise, since the doc's ego won't permit consultation with his colleagues. It's either that, or have a heart-to-heart talk with the doc about how your concerns and questions are not being addressed.

And, although you'll agree there cannot be any comparison between a human and a computer, the idea I understand and agree with is that when a problem occurs, it is sometimes the result of multiple causes. Being in the field of repair, I've also seen systems have a problem which was due to multiple causes.

Though the term "malpractice" does come to mind if his "regiment" doesn't work out and your bleeds come back.