Hemoptysis

[NYCLawGirl]

All my docs have always said to stop airway clearance for 24 hours, as well as strenuous exercise that might induce coughing fits. Back when I used the IPV (a very intense form of airway clearance) I was told to stop for 48 hours. I've always heard that albuterol/xopenex is fine during this 24 hour period.

My doc allows me to add back DNase/pulmo afer 24 hours as long as there is NO blood or streaking. After that, I add HTS again.

I HATE stopping treatments for 24 hours. Believe me, I have kicked and screamed and complained and begged and posted multiple threads hoping other people would tell me that my doctors were crazy. But, most docs follow more or less this protocol it seems (not that those who vary slightly are wrong, of course). The simple fact is, skipping one day of treatments might be uncomfortable, but in the long run it's probably not going to hurt you, whereas allowing a bleed to get out of control can lead to serious complications.

Ask about inhaled antibiotics -- I've always been told I can continue with those during the stop period as well.

 

[NYCLawGirl]

All my docs have always said to stop airway clearance for 24 hours, as well as strenuous exercise that might induce coughing fits. Back when I used the IPV (a very intense form of airway clearance) I was told to stop for 48 hours. I've always heard that albuterol/xopenex is fine during this 24 hour period.

My doc allows me to add back DNase/pulmo afer 24 hours as long as there is NO blood or streaking. After that, I add HTS again.

I HATE stopping treatments for 24 hours. Believe me, I have kicked and screamed and complained and begged and posted multiple threads hoping other people would tell me that my doctors were crazy. But, most docs follow more or less this protocol it seems (not that those who vary slightly are wrong, of course). The simple fact is, skipping one day of treatments might be uncomfortable, but in the long run it's probably not going to hurt you, whereas allowing a bleed to get out of control can lead to serious complications.

Ask about inhaled antibiotics -- I've always been told I can continue with those during the stop period as well.

 

[NYCLawGirl]

All my docs have always said to stop airway clearance for 24 hours, as well as strenuous exercise that might induce coughing fits. Back when I used the IPV (a very intense form of airway clearance) I was told to stop for 48 hours. I've always heard that albuterol/xopenex is fine during this 24 hour period.

My doc allows me to add back DNase/pulmo afer 24 hours as long as there is NO blood or streaking. After that, I add HTS again.

I HATE stopping treatments for 24 hours. Believe me, I have kicked and screamed and complained and begged and posted multiple threads hoping other people would tell me that my doctors were crazy. But, most docs follow more or less this protocol it seems (not that those who vary slightly are wrong, of course). The simple fact is, skipping one day of treatments might be uncomfortable, but in the long run it's probably not going to hurt you, whereas allowing a bleed to get out of control can lead to serious complications.

Ask about inhaled antibiotics -- I've always been told I can continue with those during the stop period as well.

 

[NYCLawGirl]

All my docs have always said to stop airway clearance for 24 hours, as well as strenuous exercise that might induce coughing fits. Back when I used the IPV (a very intense form of airway clearance) I was told to stop for 48 hours. I've always heard that albuterol/xopenex is fine during this 24 hour period.

My doc allows me to add back DNase/pulmo afer 24 hours as long as there is NO blood or streaking. After that, I add HTS again.

I HATE stopping treatments for 24 hours. Believe me, I have kicked and screamed and complained and begged and posted multiple threads hoping other people would tell me that my doctors were crazy. But, most docs follow more or less this protocol it seems (not that those who vary slightly are wrong, of course). The simple fact is, skipping one day of treatments might be uncomfortable, but in the long run it's probably not going to hurt you, whereas allowing a bleed to get out of control can lead to serious complications.

Ask about inhaled antibiotics -- I've always been told I can continue with those during the stop period as well.

 

[NYCLawGirl]

All my docs have always said to stop airway clearance for 24 hours, as well as strenuous exercise that might induce coughing fits. Back when I used the IPV (a very intense form of airway clearance) I was told to stop for 48 hours. I've always heard that albuterol/xopenex is fine during this 24 hour period.
<br />
<br />My doc allows me to add back DNase/pulmo afer 24 hours as long as there is NO blood or streaking. After that, I add HTS again.
<br />
<br />I HATE stopping treatments for 24 hours. Believe me, I have kicked and screamed and complained and begged and posted multiple threads hoping other people would tell me that my doctors were crazy. But, most docs follow more or less this protocol it seems (not that those who vary slightly are wrong, of course). The simple fact is, skipping one day of treatments might be uncomfortable, but in the long run it's probably not going to hurt you, whereas allowing a bleed to get out of control can lead to serious complications.
<br />
<br />Ask about inhaled antibiotics -- I've always been told I can continue with those during the stop period as well.

 

[Mallymookcf]

yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest. Basically any meds that induce coughing. i still do my pulmozyme though because it doesnt really make me cough hard. i also am being treated with progesterone for the last month as a trial to some how stop my periods because ironically the hemoptysis always happens while i am on my menstural cycle. so pay attention to that as well. i ahve seen alot of other women on this site notice it around their menstural cycle as well. something about the way the blodd vessels dialate depending on your hormones. so far teh progesterone has helped this past cycle!! so i am hopeful! good luck and God Bless!
Mallory

 

[Mallymookcf]

yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest. Basically any meds that induce coughing. i still do my pulmozyme though because it doesnt really make me cough hard. i also am being treated with progesterone for the last month as a trial to some how stop my periods because ironically the hemoptysis always happens while i am on my menstural cycle. so pay attention to that as well. i ahve seen alot of other women on this site notice it around their menstural cycle as well. something about the way the blodd vessels dialate depending on your hormones. so far teh progesterone has helped this past cycle!! so i am hopeful! good luck and God Bless!
Mallory

 

[Mallymookcf]

yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest. Basically any meds that induce coughing. i still do my pulmozyme though because it doesnt really make me cough hard. i also am being treated with progesterone for the last month as a trial to some how stop my periods because ironically the hemoptysis always happens while i am on my menstural cycle. so pay attention to that as well. i ahve seen alot of other women on this site notice it around their menstural cycle as well. something about the way the blodd vessels dialate depending on your hormones. so far teh progesterone has helped this past cycle!! so i am hopeful! good luck and God Bless!
Mallory

 

[Mallymookcf]

yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest. Basically any meds that induce coughing. i still do my pulmozyme though because it doesnt really make me cough hard. i also am being treated with progesterone for the last month as a trial to some how stop my periods because ironically the hemoptysis always happens while i am on my menstural cycle. so pay attention to that as well. i ahve seen alot of other women on this site notice it around their menstural cycle as well. something about the way the blodd vessels dialate depending on your hormones. so far teh progesterone has helped this past cycle!! so i am hopeful! good luck and God Bless!
Mallory

 

[Mallymookcf]

yes i also have hemoptysis. i have had it for 10 years now. i am 24 years old. i thought i would respond because this is the biggest part of my struggle with c.f. i know how scary it can be and frusturating to hav e to stop treatments. i myself stop treatment hypertonic saline and the vest. Basically any meds that induce coughing. i still do my pulmozyme though because it doesnt really make me cough hard. i also am being treated with progesterone for the last month as a trial to some how stop my periods because ironically the hemoptysis always happens while i am on my menstural cycle. so pay attention to that as well. i ahve seen alot of other women on this site notice it around their menstural cycle as well. something about the way the blodd vessels dialate depending on your hormones. so far teh progesterone has helped this past cycle!! so i am hopeful! good luck and God Bless!
<br />Mallory

 

[BSJCA]

Hey everybody, thanks for all the advice. I'm crossing my fingers that it won't happen again soon.

 

[BSJCA]

Hey everybody, thanks for all the advice. I'm crossing my fingers that it won't happen again soon.

 

[BSJCA]

Hey everybody, thanks for all the advice. I'm crossing my fingers that it won't happen again soon.

 

[BSJCA]

Hey everybody, thanks for all the advice. I'm crossing my fingers that it won't happen again soon.

 

[BSJCA]

Hey everybody, thanks for all the advice. I'm crossing my fingers that it won't happen again soon.

 

[theLostMiler]

Yes, the bending and laying down is true... also the exercise. Basically anything that raises your blood pressure try not to do, at least that was what I was told. So when it happens to me I just calm down, get the heart rate down, and I stop after one or two coughs, then I just lay low for a day or two... dependin on how I feel I will do the broncodialators and I was told I could continue abx...

 

[theLostMiler]

Yes, the bending and laying down is true... also the exercise. Basically anything that raises your blood pressure try not to do, at least that was what I was told. So when it happens to me I just calm down, get the heart rate down, and I stop after one or two coughs, then I just lay low for a day or two... dependin on how I feel I will do the broncodialators and I was told I could continue abx...

 

[theLostMiler]

Yes, the bending and laying down is true... also the exercise. Basically anything that raises your blood pressure try not to do, at least that was what I was told. So when it happens to me I just calm down, get the heart rate down, and I stop after one or two coughs, then I just lay low for a day or two... dependin on how I feel I will do the broncodialators and I was told I could continue abx...

 

[theLostMiler]

Yes, the bending and laying down is true... also the exercise. Basically anything that raises your blood pressure try not to do, at least that was what I was told. So when it happens to me I just calm down, get the heart rate down, and I stop after one or two coughs, then I just lay low for a day or two... dependin on how I feel I will do the broncodialators and I was told I could continue abx...

 

[theLostMiler]

Yes, the bending and laying down is true... also the exercise. Basically anything that raises your blood pressure try not to do, at least that was what I was told. So when it happens to me I just calm down, get the heart rate down, and I stop after one or two coughs, then I just lay low for a day or two... dependin on how I feel I will do the broncodialators and I was told I could continue abx...