up until 3 years or so ago, I could count on 1 hand the times I have had streaking, no all out bleeds. about 3 years ago my streaking started to increase from rarely to 1 a year to around once every other month or so, still no all out bleeders though. However when I started doing pulmozyme again last summer that number drastically went up to nearly every day when I stopped pulmo. it returned to 1 every other month.
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Hemoptysis
- Thread starter my65roses4me
- Start date
Hi,
I'm 29 w/CF and have hemoptysis all the time. Mine is weird b/c I'll have it everyday and night for 4 months and then it will be gone for a while. Then out of the blue, I'm bleeding again.
My bleeds are never bad but just annoying. I cannot lay flat at night to sleep, I'm always propped up on 3 pillows so I can be in bed w/out bleeding. I sometimes bleed more when it's near my period but not always. I cannot for the life of me come up with anything that aggrivates my bleeding. Like I said, I'll be fine and then boom, I'll be bleeding for several months straight.
I usually take Vit K if I'm in the hospital and bleed. Otherwise my dr's tell me to do everything as I normally would as if I weren't bleeding. I can do my vest, pulmozyme and exercise right thru it now. Which is good b/c I hated stopping and starting every other day due to bleeding. And actually the more I exercised (even thru the blood) the less I would bleed. It was weird, kind of like my body realized I'd do what I wanted anyway so it might as well give up on the bleeding.
So I'm sure this wasn't any good advice but it's my 2 cents.
Good luck with your bleeding. I hate bleeding, it just tends to annoy me. No tanning, no massages, no good sleep. I miss those things!
Have a great day!
KELLI
29 female with CF
I'm 29 w/CF and have hemoptysis all the time. Mine is weird b/c I'll have it everyday and night for 4 months and then it will be gone for a while. Then out of the blue, I'm bleeding again.
My bleeds are never bad but just annoying. I cannot lay flat at night to sleep, I'm always propped up on 3 pillows so I can be in bed w/out bleeding. I sometimes bleed more when it's near my period but not always. I cannot for the life of me come up with anything that aggrivates my bleeding. Like I said, I'll be fine and then boom, I'll be bleeding for several months straight.
I usually take Vit K if I'm in the hospital and bleed. Otherwise my dr's tell me to do everything as I normally would as if I weren't bleeding. I can do my vest, pulmozyme and exercise right thru it now. Which is good b/c I hated stopping and starting every other day due to bleeding. And actually the more I exercised (even thru the blood) the less I would bleed. It was weird, kind of like my body realized I'd do what I wanted anyway so it might as well give up on the bleeding.
So I'm sure this wasn't any good advice but it's my 2 cents.
Good luck with your bleeding. I hate bleeding, it just tends to annoy me. No tanning, no massages, no good sleep. I miss those things!
Have a great day!
KELLI
29 female with CF
Hi,
I'm 29 w/CF and have hemoptysis all the time. Mine is weird b/c I'll have it everyday and night for 4 months and then it will be gone for a while. Then out of the blue, I'm bleeding again.
My bleeds are never bad but just annoying. I cannot lay flat at night to sleep, I'm always propped up on 3 pillows so I can be in bed w/out bleeding. I sometimes bleed more when it's near my period but not always. I cannot for the life of me come up with anything that aggrivates my bleeding. Like I said, I'll be fine and then boom, I'll be bleeding for several months straight.
I usually take Vit K if I'm in the hospital and bleed. Otherwise my dr's tell me to do everything as I normally would as if I weren't bleeding. I can do my vest, pulmozyme and exercise right thru it now. Which is good b/c I hated stopping and starting every other day due to bleeding. And actually the more I exercised (even thru the blood) the less I would bleed. It was weird, kind of like my body realized I'd do what I wanted anyway so it might as well give up on the bleeding.
So I'm sure this wasn't any good advice but it's my 2 cents.
Good luck with your bleeding. I hate bleeding, it just tends to annoy me. No tanning, no massages, no good sleep. I miss those things!
Have a great day!
KELLI
29 female with CF
I'm 29 w/CF and have hemoptysis all the time. Mine is weird b/c I'll have it everyday and night for 4 months and then it will be gone for a while. Then out of the blue, I'm bleeding again.
My bleeds are never bad but just annoying. I cannot lay flat at night to sleep, I'm always propped up on 3 pillows so I can be in bed w/out bleeding. I sometimes bleed more when it's near my period but not always. I cannot for the life of me come up with anything that aggrivates my bleeding. Like I said, I'll be fine and then boom, I'll be bleeding for several months straight.
I usually take Vit K if I'm in the hospital and bleed. Otherwise my dr's tell me to do everything as I normally would as if I weren't bleeding. I can do my vest, pulmozyme and exercise right thru it now. Which is good b/c I hated stopping and starting every other day due to bleeding. And actually the more I exercised (even thru the blood) the less I would bleed. It was weird, kind of like my body realized I'd do what I wanted anyway so it might as well give up on the bleeding.
So I'm sure this wasn't any good advice but it's my 2 cents.
Good luck with your bleeding. I hate bleeding, it just tends to annoy me. No tanning, no massages, no good sleep. I miss those things!
Have a great day!
KELLI
29 female with CF
Hi,
I'm 29 w/CF and have hemoptysis all the time. Mine is weird b/c I'll have it everyday and night for 4 months and then it will be gone for a while. Then out of the blue, I'm bleeding again.
My bleeds are never bad but just annoying. I cannot lay flat at night to sleep, I'm always propped up on 3 pillows so I can be in bed w/out bleeding. I sometimes bleed more when it's near my period but not always. I cannot for the life of me come up with anything that aggrivates my bleeding. Like I said, I'll be fine and then boom, I'll be bleeding for several months straight.
I usually take Vit K if I'm in the hospital and bleed. Otherwise my dr's tell me to do everything as I normally would as if I weren't bleeding. I can do my vest, pulmozyme and exercise right thru it now. Which is good b/c I hated stopping and starting every other day due to bleeding. And actually the more I exercised (even thru the blood) the less I would bleed. It was weird, kind of like my body realized I'd do what I wanted anyway so it might as well give up on the bleeding.
So I'm sure this wasn't any good advice but it's my 2 cents.
Good luck with your bleeding. I hate bleeding, it just tends to annoy me. No tanning, no massages, no good sleep. I miss those things!
Have a great day!
KELLI
29 female with CF
I'm 29 w/CF and have hemoptysis all the time. Mine is weird b/c I'll have it everyday and night for 4 months and then it will be gone for a while. Then out of the blue, I'm bleeding again.
My bleeds are never bad but just annoying. I cannot lay flat at night to sleep, I'm always propped up on 3 pillows so I can be in bed w/out bleeding. I sometimes bleed more when it's near my period but not always. I cannot for the life of me come up with anything that aggrivates my bleeding. Like I said, I'll be fine and then boom, I'll be bleeding for several months straight.
I usually take Vit K if I'm in the hospital and bleed. Otherwise my dr's tell me to do everything as I normally would as if I weren't bleeding. I can do my vest, pulmozyme and exercise right thru it now. Which is good b/c I hated stopping and starting every other day due to bleeding. And actually the more I exercised (even thru the blood) the less I would bleed. It was weird, kind of like my body realized I'd do what I wanted anyway so it might as well give up on the bleeding.
So I'm sure this wasn't any good advice but it's my 2 cents.
Good luck with your bleeding. I hate bleeding, it just tends to annoy me. No tanning, no massages, no good sleep. I miss those things!
Have a great day!
KELLI
29 female with CF
I along with others started streaking in my teens, nothing serious, then summer of 2002 it got to be more, my doc. didn't do anything unless I had a fever then we would do antibiotics, then I got married in Oct. '02 and I was on birth control for a couple months, well 5 weeks later I had the most major bleed of all, had to be on a ventilator and everything, I then proceeded to have 7 embolizations in 6 weeks, after that I played off and on with the birth control and really felt like my hemoptysis was better when I wasn't on it so I haven't been on it in a couple years and was doing good in the hemoptysis dept. just around the period, if it got to be more we would do antibiotics and that would work, but then this past Aug. all **** broke loose on the ventilator again and this time for a week etc..... since then I've just been recovering and now will have a lobectomy (upper right lobe) next week.
I along with others started streaking in my teens, nothing serious, then summer of 2002 it got to be more, my doc. didn't do anything unless I had a fever then we would do antibiotics, then I got married in Oct. '02 and I was on birth control for a couple months, well 5 weeks later I had the most major bleed of all, had to be on a ventilator and everything, I then proceeded to have 7 embolizations in 6 weeks, after that I played off and on with the birth control and really felt like my hemoptysis was better when I wasn't on it so I haven't been on it in a couple years and was doing good in the hemoptysis dept. just around the period, if it got to be more we would do antibiotics and that would work, but then this past Aug. all **** broke loose on the ventilator again and this time for a week etc..... since then I've just been recovering and now will have a lobectomy (upper right lobe) next week.
I along with others started streaking in my teens, nothing serious, then summer of 2002 it got to be more, my doc. didn't do anything unless I had a fever then we would do antibiotics, then I got married in Oct. '02 and I was on birth control for a couple months, well 5 weeks later I had the most major bleed of all, had to be on a ventilator and everything, I then proceeded to have 7 embolizations in 6 weeks, after that I played off and on with the birth control and really felt like my hemoptysis was better when I wasn't on it so I haven't been on it in a couple years and was doing good in the hemoptysis dept. just around the period, if it got to be more we would do antibiotics and that would work, but then this past Aug. all **** broke loose on the ventilator again and this time for a week etc..... since then I've just been recovering and now will have a lobectomy (upper right lobe) next week.
my65roses4me
New member
Thanks to you all for responding to my post. I find it very interesting to know how hemoptysis affects others.
HairGirl I am sorry to hear that you are struggling with this so severly. I too have struggled with hemoptysis severly in the past too. If oyu have any questions that I can help with please feel free to ask. If oyu want my email addy you can private message me and I will send it to you. My thoughts are with you. I know how scary major surgery can be, but hang in there!!!
HairGirl I am sorry to hear that you are struggling with this so severly. I too have struggled with hemoptysis severly in the past too. If oyu have any questions that I can help with please feel free to ask. If oyu want my email addy you can private message me and I will send it to you. My thoughts are with you. I know how scary major surgery can be, but hang in there!!!
my65roses4me
New member
Thanks to you all for responding to my post. I find it very interesting to know how hemoptysis affects others.
HairGirl I am sorry to hear that you are struggling with this so severly. I too have struggled with hemoptysis severly in the past too. If oyu have any questions that I can help with please feel free to ask. If oyu want my email addy you can private message me and I will send it to you. My thoughts are with you. I know how scary major surgery can be, but hang in there!!!
HairGirl I am sorry to hear that you are struggling with this so severly. I too have struggled with hemoptysis severly in the past too. If oyu have any questions that I can help with please feel free to ask. If oyu want my email addy you can private message me and I will send it to you. My thoughts are with you. I know how scary major surgery can be, but hang in there!!!
my65roses4me
New member
Thanks to you all for responding to my post. I find it very interesting to know how hemoptysis affects others.
HairGirl I am sorry to hear that you are struggling with this so severly. I too have struggled with hemoptysis severly in the past too. If oyu have any questions that I can help with please feel free to ask. If oyu want my email addy you can private message me and I will send it to you. My thoughts are with you. I know how scary major surgery can be, but hang in there!!!
HairGirl I am sorry to hear that you are struggling with this so severly. I too have struggled with hemoptysis severly in the past too. If oyu have any questions that I can help with please feel free to ask. If oyu want my email addy you can private message me and I will send it to you. My thoughts are with you. I know how scary major surgery can be, but hang in there!!!
mom2lillian
New member
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b>
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b>
mom2lillian
New member
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b>
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b>
mom2lillian
New member
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b>
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b>
Jennifer1981
New member
I never had it growing up. NEVER! I would cycle every month too and that had no influence.
However, I noticed that this past July 2006, I did have blood-streaked mucus right after I finished my 3 weeks worth of IV's. It happened in the evening right before I was ready to do my treatment every night for 5 days like clockwork. Sometimes, the mucus was completely pinkish tinted. Then, it went away. I have never experienced anything like many of you. If I did, I'd panic!
However, I noticed that this past July 2006, I did have blood-streaked mucus right after I finished my 3 weeks worth of IV's. It happened in the evening right before I was ready to do my treatment every night for 5 days like clockwork. Sometimes, the mucus was completely pinkish tinted. Then, it went away. I have never experienced anything like many of you. If I did, I'd panic!
Jennifer1981
New member
I never had it growing up. NEVER! I would cycle every month too and that had no influence.
However, I noticed that this past July 2006, I did have blood-streaked mucus right after I finished my 3 weeks worth of IV's. It happened in the evening right before I was ready to do my treatment every night for 5 days like clockwork. Sometimes, the mucus was completely pinkish tinted. Then, it went away. I have never experienced anything like many of you. If I did, I'd panic!
However, I noticed that this past July 2006, I did have blood-streaked mucus right after I finished my 3 weeks worth of IV's. It happened in the evening right before I was ready to do my treatment every night for 5 days like clockwork. Sometimes, the mucus was completely pinkish tinted. Then, it went away. I have never experienced anything like many of you. If I did, I'd panic!
Jennifer1981
New member
I never had it growing up. NEVER! I would cycle every month too and that had no influence.
However, I noticed that this past July 2006, I did have blood-streaked mucus right after I finished my 3 weeks worth of IV's. It happened in the evening right before I was ready to do my treatment every night for 5 days like clockwork. Sometimes, the mucus was completely pinkish tinted. Then, it went away. I have never experienced anything like many of you. If I did, I'd panic!
However, I noticed that this past July 2006, I did have blood-streaked mucus right after I finished my 3 weeks worth of IV's. It happened in the evening right before I was ready to do my treatment every night for 5 days like clockwork. Sometimes, the mucus was completely pinkish tinted. Then, it went away. I have never experienced anything like many of you. If I did, I'd panic!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b></end quote></div>
MY doc & I use to butt heads about this. She insisted that my bleeds were from infection. UNTIL I was in the hospital after weeks of iv's & on the mend when BAM they started. I happen to get my period then & the air in the hospital is exceptionally dry. I also started noting when it happened at home (around period etc) & she finally agreed that its apparent its not always from infection. I think she thought this because I would tend not to contact them when I was sick etc. I dont do this anymore tho. So I found its important to be alert of my caffein intake, physical exertion (lifting/straining to do so is a problem), period and just physical exhaustion. I did fine with my pregnancy until the 8th month. Mind you tho I did NOT take care of myself as far as nebs or any treatments. So I might have been able to avoid the bleeds altogether. I will never know about that tho.
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b></end quote></div>
MY doc & I use to butt heads about this. She insisted that my bleeds were from infection. UNTIL I was in the hospital after weeks of iv's & on the mend when BAM they started. I happen to get my period then & the air in the hospital is exceptionally dry. I also started noting when it happened at home (around period etc) & she finally agreed that its apparent its not always from infection. I think she thought this because I would tend not to contact them when I was sick etc. I dont do this anymore tho. So I found its important to be alert of my caffein intake, physical exertion (lifting/straining to do so is a problem), period and just physical exhaustion. I did fine with my pregnancy until the 8th month. Mind you tho I did NOT take care of myself as far as nebs or any treatments. So I might have been able to avoid the bleeds altogether. I will never know about that tho.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b></end quote></div>
MY doc & I use to butt heads about this. She insisted that my bleeds were from infection. UNTIL I was in the hospital after weeks of iv's & on the mend when BAM they started. I happen to get my period then & the air in the hospital is exceptionally dry. I also started noting when it happened at home (around period etc) & she finally agreed that its apparent its not always from infection. I think she thought this because I would tend not to contact them when I was sick etc. I dont do this anymore tho. So I found its important to be alert of my caffein intake, physical exertion (lifting/straining to do so is a problem), period and just physical exhaustion. I did fine with my pregnancy until the 8th month. Mind you tho I did NOT take care of myself as far as nebs or any treatments. So I might have been able to avoid the bleeds altogether. I will never know about that tho.
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b></end quote></div>
MY doc & I use to butt heads about this. She insisted that my bleeds were from infection. UNTIL I was in the hospital after weeks of iv's & on the mend when BAM they started. I happen to get my period then & the air in the hospital is exceptionally dry. I also started noting when it happened at home (around period etc) & she finally agreed that its apparent its not always from infection. I think she thought this because I would tend not to contact them when I was sick etc. I dont do this anymore tho. So I found its important to be alert of my caffein intake, physical exertion (lifting/straining to do so is a problem), period and just physical exhaustion. I did fine with my pregnancy until the 8th month. Mind you tho I did NOT take care of myself as far as nebs or any treatments. So I might have been able to avoid the bleeds altogether. I will never know about that tho.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b></end quote></div>
MY doc & I use to butt heads about this. She insisted that my bleeds were from infection. UNTIL I was in the hospital after weeks of iv's & on the mend when BAM they started. I happen to get my period then & the air in the hospital is exceptionally dry. I also started noting when it happened at home (around period etc) & she finally agreed that its apparent its not always from infection. I think she thought this because I would tend not to contact them when I was sick etc. I dont do this anymore tho. So I found its important to be alert of my caffein intake, physical exertion (lifting/straining to do so is a problem), period and just physical exhaustion. I did fine with my pregnancy until the 8th month. Mind you tho I did NOT take care of myself as far as nebs or any treatments. So I might have been able to avoid the bleeds altogether. I will never know about that tho.
OMG
My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said I have lots bronchiectesis and thin areas due to the late dx and latent infections but can never find a spot where bleeding is coming from. <b>My clinic automatically says a bleed = IV's does everone else do this???? (only if more than streaks)</b> and they wont let me do a spirometry obviously but if I could I know I could prove that my lung functions are still good and I am not that ill but they say I woudlnt be bleeding if there wastn an infection.<b> I would love to hear what you all think on this.</b>
I did IVF in Mar06 and in Feb06 I did IV's since I wanted to be healthy starting out pregnancy so I 100% know I was not sick but 1/2 way through my IVF drugs I had a bleed, I was not ill at all but it was bad enough I had to go to the hospital. I could not for the life of me figure it out, I now wonder if it was due to the massive surge inhormones associated with teh IVF?
<b>Has anyone els with CF that did IVF had hemoptysis during cycle?</b></end quote></div>
MY doc & I use to butt heads about this. She insisted that my bleeds were from infection. UNTIL I was in the hospital after weeks of iv's & on the mend when BAM they started. I happen to get my period then & the air in the hospital is exceptionally dry. I also started noting when it happened at home (around period etc) & she finally agreed that its apparent its not always from infection. I think she thought this because I would tend not to contact them when I was sick etc. I dont do this anymore tho. So I found its important to be alert of my caffein intake, physical exertion (lifting/straining to do so is a problem), period and just physical exhaustion. I did fine with my pregnancy until the 8th month. Mind you tho I did NOT take care of myself as far as nebs or any treatments. So I might have been able to avoid the bleeds altogether. I will never know about that tho.
Hi I'am 27yr old male wcf,
My first bleed was when i was about 10, and then again when i was 18, but i since have had 2 embolisation done last Feb for yet another bleed, I know when its going to happen as i get a crackling feeling at my right upper zones, but touch wood i have not a anymore since last year.
Take Care,
James H.
My first bleed was when i was about 10, and then again when i was 18, but i since have had 2 embolisation done last Feb for yet another bleed, I know when its going to happen as i get a crackling feeling at my right upper zones, but touch wood i have not a anymore since last year.
Take Care,
James H.