Hey, the CF Pharmacy is closed due to an emergency

Jennifer1981

New member
Hey, what crap! I can't refill my Pulmozyme until I'm almost out of it. Well, I have only enough until Monday and called yesterday to refill it. What a surprise on the machine. Now what??? I'm going to try and call my doc. What crap!!! If I stretch it to once a day, I'll have enough until Wednesday. But I can't order it now until Monday, I guess. So it will be too late, right? I get so sick of having to juggle getting my meds on time...
 

Jennifer1981

New member
Hey, what crap! I can't refill my Pulmozyme until I'm almost out of it. Well, I have only enough until Monday and called yesterday to refill it. What a surprise on the machine. Now what??? I'm going to try and call my doc. What crap!!! If I stretch it to once a day, I'll have enough until Wednesday. But I can't order it now until Monday, I guess. So it will be too late, right? I get so sick of having to juggle getting my meds on time...
 

Jennifer1981

New member
Hey, what crap! I can't refill my Pulmozyme until I'm almost out of it. Well, I have only enough until Monday and called yesterday to refill it. What a surprise on the machine. Now what??? I'm going to try and call my doc. What crap!!! If I stretch it to once a day, I'll have enough until Wednesday. But I can't order it now until Monday, I guess. So it will be too late, right? I get so sick of having to juggle getting my meds on time...
 

JazzysMom

New member
This is one of the MAIN reasons that I use a local pharmacy. I dont do well with planning, ordering & tracking meds. Many times I have cut it really close and only a few times has it become a problem for me. My local pharmacy does great by me! Sorry to hear this. I wonder if it has anything to do with the fires etc. Hmmm!
 

JazzysMom

New member
This is one of the MAIN reasons that I use a local pharmacy. I dont do well with planning, ordering & tracking meds. Many times I have cut it really close and only a few times has it become a problem for me. My local pharmacy does great by me! Sorry to hear this. I wonder if it has anything to do with the fires etc. Hmmm!
 

JazzysMom

New member
This is one of the MAIN reasons that I use a local pharmacy. I dont do well with planning, ordering & tracking meds. Many times I have cut it really close and only a few times has it become a problem for me. My local pharmacy does great by me! Sorry to hear this. I wonder if it has anything to do with the fires etc. Hmmm!
 

Jennifer1981

New member
Okay, I called my doc and found out that the main nurse that I deal with is out until Monday. That was great! So I got some other lady. She gave me another CF Pharmacy #. Well, I called it and got the normal message but was forwarded to 1-800-541-4959. So I thought I'd give it one more shot.

Well, it was a miracle. This time the normal message was on. It was only a difference of 20 minutes. I got a hold of someone, and they will send it out UPS for tomorrow, Saturday. Thank Gosh!!! I can breathe again.

The lady told me that they were closed yesterday and this morning because they had a massive water leak in the whole basement of the building and no air conditioning or anything else. That was why they were closed to anyone else who had similiar problems. They are open now. Everything should be fine.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Jennifer1981

New member
Okay, I called my doc and found out that the main nurse that I deal with is out until Monday. That was great! So I got some other lady. She gave me another CF Pharmacy #. Well, I called it and got the normal message but was forwarded to 1-800-541-4959. So I thought I'd give it one more shot.

Well, it was a miracle. This time the normal message was on. It was only a difference of 20 minutes. I got a hold of someone, and they will send it out UPS for tomorrow, Saturday. Thank Gosh!!! I can breathe again.

The lady told me that they were closed yesterday and this morning because they had a massive water leak in the whole basement of the building and no air conditioning or anything else. That was why they were closed to anyone else who had similiar problems. They are open now. Everything should be fine.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Jennifer1981

New member
Okay, I called my doc and found out that the main nurse that I deal with is out until Monday. That was great! So I got some other lady. She gave me another CF Pharmacy #. Well, I called it and got the normal message but was forwarded to 1-800-541-4959. So I thought I'd give it one more shot.

Well, it was a miracle. This time the normal message was on. It was only a difference of 20 minutes. I got a hold of someone, and they will send it out UPS for tomorrow, Saturday. Thank Gosh!!! I can breathe again.

The lady told me that they were closed yesterday and this morning because they had a massive water leak in the whole basement of the building and no air conditioning or anything else. That was why they were closed to anyone else who had similiar problems. They are open now. Everything should be fine.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jennifer1981</b></i>

Okay, I called my doc and found out that the main nurse that I deal with is out until Monday. That was great! So I got some other lady. She gave me another CF Pharmacy #. Well, I called it and got the normal message but was forwarded to 1-800-541-4959. So I thought I'd give it one more shot.

Well, it was a miracle. This time the normal message was on. It was only a difference of 20 minutes. I got a hold of someone, and they will send it out UPS for tomorrow, Saturday. Thank Gosh!!! I can breathe again.

The lady told me that they were closed yesterday and this morning because they had a massive water leak in the whole basement of the building and no air conditioning or anything else. That was why they were closed to anyone else who had similiar problems. They are open now. Everything should be fine.<img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

Good thing you persued it!!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jennifer1981</b></i>

Okay, I called my doc and found out that the main nurse that I deal with is out until Monday. That was great! So I got some other lady. She gave me another CF Pharmacy #. Well, I called it and got the normal message but was forwarded to 1-800-541-4959. So I thought I'd give it one more shot.

Well, it was a miracle. This time the normal message was on. It was only a difference of 20 minutes. I got a hold of someone, and they will send it out UPS for tomorrow, Saturday. Thank Gosh!!! I can breathe again.

The lady told me that they were closed yesterday and this morning because they had a massive water leak in the whole basement of the building and no air conditioning or anything else. That was why they were closed to anyone else who had similiar problems. They are open now. Everything should be fine.<img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

Good thing you persued it!!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jennifer1981</b></i>

Okay, I called my doc and found out that the main nurse that I deal with is out until Monday. That was great! So I got some other lady. She gave me another CF Pharmacy #. Well, I called it and got the normal message but was forwarded to 1-800-541-4959. So I thought I'd give it one more shot.

Well, it was a miracle. This time the normal message was on. It was only a difference of 20 minutes. I got a hold of someone, and they will send it out UPS for tomorrow, Saturday. Thank Gosh!!! I can breathe again.

The lady told me that they were closed yesterday and this morning because they had a massive water leak in the whole basement of the building and no air conditioning or anything else. That was why they were closed to anyone else who had similiar problems. They are open now. Everything should be fine.<img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

Good thing you persued it!!
 

Ratatosk

Administrator
Staff member
When we ordered DS's tobi and adeks from the CF pharmacy, I would only order online because I found dealing with the customer service phone reps was a waste of time -- they'd "fib" and say the tobi was sent, only to find out it wasn't. One time I was waiting forever for adeks, finally got ahold of real person and was told "adeks isn't covered under your insurance, so we weren't sure you wanted it". Hello?! We're able to get just about anything from our local pharmacy and rarely have to wait.
 

Ratatosk

Administrator
Staff member
When we ordered DS's tobi and adeks from the CF pharmacy, I would only order online because I found dealing with the customer service phone reps was a waste of time -- they'd "fib" and say the tobi was sent, only to find out it wasn't. One time I was waiting forever for adeks, finally got ahold of real person and was told "adeks isn't covered under your insurance, so we weren't sure you wanted it". Hello?! We're able to get just about anything from our local pharmacy and rarely have to wait.
 

Ratatosk

Administrator
Staff member
When we ordered DS's tobi and adeks from the CF pharmacy, I would only order online because I found dealing with the customer service phone reps was a waste of time -- they'd "fib" and say the tobi was sent, only to find out it wasn't. One time I was waiting forever for adeks, finally got ahold of real person and was told "adeks isn't covered under your insurance, so we weren't sure you wanted it". Hello?! We're able to get just about anything from our local pharmacy and rarely have to wait.
 

touchdown

New member
Hi
I am new to the site<img src="i/expressions/face-icon-small-smile.gif" border="0">
What CF pharmacy are you talking about? I had a bad experience with the CF pharmacy in Orlando.
Has anyone ever been put into collections for not paying your bill in full? After paying them thousands of dollars for years, they had the nerve to put me into collections!! To do this to a cf person is a disgrace!! BE CAREFUL of the Orlando Pharmacy
<a target=_blank class=ftalternatingbarlinklarge href="http://cystic-l.org/handbook/html/cf_pharmacy__inc._.htm
">http://cystic-l.org/handbook/h...f_pharmacy__inc._.htm
</a>
You have been warned. Never trust a company who says they do so much for cf. They are liars.
 

touchdown

New member
Hi
I am new to the site<img src="i/expressions/face-icon-small-smile.gif" border="0">
What CF pharmacy are you talking about? I had a bad experience with the CF pharmacy in Orlando.
Has anyone ever been put into collections for not paying your bill in full? After paying them thousands of dollars for years, they had the nerve to put me into collections!! To do this to a cf person is a disgrace!! BE CAREFUL of the Orlando Pharmacy
<a target=_blank class=ftalternatingbarlinklarge href="http://cystic-l.org/handbook/html/cf_pharmacy__inc._.htm
">http://cystic-l.org/handbook/h...f_pharmacy__inc._.htm
</a>
You have been warned. Never trust a company who says they do so much for cf. They are liars.
 

touchdown

New member
Hi
I am new to the site<img src="i/expressions/face-icon-small-smile.gif" border="0">
What CF pharmacy are you talking about? I had a bad experience with the CF pharmacy in Orlando.
Has anyone ever been put into collections for not paying your bill in full? After paying them thousands of dollars for years, they had the nerve to put me into collections!! To do this to a cf person is a disgrace!! BE CAREFUL of the Orlando Pharmacy
<a target=_blank class=ftalternatingbarlinklarge href="http://cystic-l.org/handbook/html/cf_pharmacy__inc._.htm
">http://cystic-l.org/handbook/h...f_pharmacy__inc._.htm
</a>
You have been warned. Never trust a company who says they do so much for cf. They are liars.
 

Jennifer1981

New member
Yes and no.

I have had many occasions where bills had arrived to my house that certainly weren't supposed to. However, it was always (thankfully) their fault. They either submitted it to the wrong insurance or to none of them. I have Blue Cross, PACE, and the Pulmozyme Endowment. Usually, they submit the Pulmozyme only to BC and forget about the Endowment portion. Now, I get smart.

I call 1-800-541-4959 and push extension 434. That takes me to Pam's voicemail, sometimes she picks up. They told me that she was my main person or something to that effect. If she doesn't pick up, I push 0 on her voicemail and hold to speak with someone. When I get someone (which always works), I say (for example), I need my Pulmozyme refilled and please bill it to BC first then the Endowment pays the rest. That has resolved most of the billing issues. If I forget to say that, I WILL get a bill one or two months down the road.

As far as being sent to collection that has not ever happened to me AND IT BETTER NOT!!! As a matter of fact, I spoke for 1 hour about 1 month ago to someone in the billing department about a charge of $3,600 for a 1 month supply of Pulmozyme (which I do twice a day). By the way, this charge was from February 2006!!! I called Laverne (the head of the billing department) 4 times about the bill (once each month). She never called me back. So the 5th month, I sent a detailed letter with the statement explaining their mess up. That failed!!! Finally the 6th month, I called again, and she picked up. It was their fault!!! They didn't bill Blue Shield (at that time) or the Endowment.

To be honest, the Maryland office could care less if they get their money. They don't return calls. They don't read letters with statements or anything else for that matter. I have had other charges that they messed up as well that were let go for 6 months or longer. I've NEVER been reported to collection.

IF THEY EVER REPORTED ME, SH*T WOULD HIT THE FAN. When it comes to insurance or more properly lack of insurance, I'm am always ready to knock you out. I do not qualify for any state assistance of any sorts (trust me) because I am married, and it's only me and my husband. We make $100.00 a month over the cut off!!! Money isn't tight, but it could be better. I'd like to see many of these people have to pay the expenses that we have to pay day in and day out. I have always paid my bills on time, but I have had to pay them in payments or sometimes they are deducted a certain percentage due to the fact that I don't qualify for any assistance. THE ONE THING I HAVE PRIDE IN IS MY CREDIT SCORE - 740. If they destroy that, I'd be beyond pissed...

Now, financially things are fine since my husband got a promotion but last December it was a different story since he sold cars as a living. People don't buy too many cars in winter...
 

Jennifer1981

New member
Yes and no.

I have had many occasions where bills had arrived to my house that certainly weren't supposed to. However, it was always (thankfully) their fault. They either submitted it to the wrong insurance or to none of them. I have Blue Cross, PACE, and the Pulmozyme Endowment. Usually, they submit the Pulmozyme only to BC and forget about the Endowment portion. Now, I get smart.

I call 1-800-541-4959 and push extension 434. That takes me to Pam's voicemail, sometimes she picks up. They told me that she was my main person or something to that effect. If she doesn't pick up, I push 0 on her voicemail and hold to speak with someone. When I get someone (which always works), I say (for example), I need my Pulmozyme refilled and please bill it to BC first then the Endowment pays the rest. That has resolved most of the billing issues. If I forget to say that, I WILL get a bill one or two months down the road.

As far as being sent to collection that has not ever happened to me AND IT BETTER NOT!!! As a matter of fact, I spoke for 1 hour about 1 month ago to someone in the billing department about a charge of $3,600 for a 1 month supply of Pulmozyme (which I do twice a day). By the way, this charge was from February 2006!!! I called Laverne (the head of the billing department) 4 times about the bill (once each month). She never called me back. So the 5th month, I sent a detailed letter with the statement explaining their mess up. That failed!!! Finally the 6th month, I called again, and she picked up. It was their fault!!! They didn't bill Blue Shield (at that time) or the Endowment.

To be honest, the Maryland office could care less if they get their money. They don't return calls. They don't read letters with statements or anything else for that matter. I have had other charges that they messed up as well that were let go for 6 months or longer. I've NEVER been reported to collection.

IF THEY EVER REPORTED ME, SH*T WOULD HIT THE FAN. When it comes to insurance or more properly lack of insurance, I'm am always ready to knock you out. I do not qualify for any state assistance of any sorts (trust me) because I am married, and it's only me and my husband. We make $100.00 a month over the cut off!!! Money isn't tight, but it could be better. I'd like to see many of these people have to pay the expenses that we have to pay day in and day out. I have always paid my bills on time, but I have had to pay them in payments or sometimes they are deducted a certain percentage due to the fact that I don't qualify for any assistance. THE ONE THING I HAVE PRIDE IN IS MY CREDIT SCORE - 740. If they destroy that, I'd be beyond pissed...

Now, financially things are fine since my husband got a promotion but last December it was a different story since he sold cars as a living. People don't buy too many cars in winter...
 
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