Hi I am a newlywed married to someone with cf!

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MissAlexsBP

Guest
Hello!
<br />
<br />While, I have CF, and am not the wife of someone with it, I'm always available to talk for whatever reason, even if it's questions or just to chat! Good luck!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

LouLou

New member
Welcome! I am 31 with cf in CT. My son who is 3 also has cf. Your husband is a lucky guy to have you as his loving wife.
 

LouLou

New member
Welcome! I am 31 with cf in CT. My son who is 3 also has cf. Your husband is a lucky guy to have you as his loving wife.
 

LouLou

New member
Welcome! I am 31 with cf in CT. My son who is 3 also has cf. Your husband is a lucky guy to have you as his loving wife.
 

GrantsWife

New member
Hi LouLou thank you for introducing yourself. I have read some of your posts. <img src="i/expressions/face-icon-small-smile.gif" border="0">
And thank you for such a nice comment.
 

GrantsWife

New member
Hi LouLou thank you for introducing yourself. I have read some of your posts. <img src="i/expressions/face-icon-small-smile.gif" border="0">
And thank you for such a nice comment.
 

GrantsWife

New member
Hi LouLou thank you for introducing yourself. I have read some of your posts. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />And thank you for such a nice comment.
 

beleache

New member
Hi Alisha,

We met last night in chat <img src="i/expressions/face-icon-small-smile.gif" border="0"> I can only say , do exactly what you are doing. Ask questions, "talk to people" stay informed.. The more you learn the more empowered you will feel.. You are not alone there are many spouses here at cf.com ..

Take care , see you in chat !! <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Alisha,

We met last night in chat <img src="i/expressions/face-icon-small-smile.gif" border="0"> I can only say , do exactly what you are doing. Ask questions, "talk to people" stay informed.. The more you learn the more empowered you will feel.. You are not alone there are many spouses here at cf.com ..

Take care , see you in chat !! <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Alisha,
<br />
<br /> We met last night in chat <img src="i/expressions/face-icon-small-smile.gif" border="0"> I can only say , do exactly what you are doing. Ask questions, "talk to people" stay informed.. The more you learn the more empowered you will feel.. You are not alone there are many spouses here at cf.com ..
<br />
<br /> Take care , see you in chat !! <img src="i/expressions/heart.gif" border="0"> joni
 

catco

New member
Hi,

My name is Cath my husband also has CF. He was diagnosed when he was 15. We have been married 25 years. He has had 3 hospitalizations in that time. Two just this past year, his lung functions dropped last November from the 70s down to the 50s and he has been working hard at trying to get them back up with IV antibiotics and doing a lot of airway clearance and they have come up a little. I know exactly how you feel being married to someone with CF. It can be very scary at times.

The best you can do for your husband is educate yourself about the disease (which it seems like you are doing). I always go along with my husband to his doctor visits so between the two of us we make sure we understand everything they tell us and I do PT on him 2 to 3 times a day. He still works full time at a desk job, so we have a strict routine we stick to in order to get all the treatments in everday. We also always try to keep a positive attitude and enjoy every moment.

Feel free to talk anytime.
 

catco

New member
Hi,

My name is Cath my husband also has CF. He was diagnosed when he was 15. We have been married 25 years. He has had 3 hospitalizations in that time. Two just this past year, his lung functions dropped last November from the 70s down to the 50s and he has been working hard at trying to get them back up with IV antibiotics and doing a lot of airway clearance and they have come up a little. I know exactly how you feel being married to someone with CF. It can be very scary at times.

The best you can do for your husband is educate yourself about the disease (which it seems like you are doing). I always go along with my husband to his doctor visits so between the two of us we make sure we understand everything they tell us and I do PT on him 2 to 3 times a day. He still works full time at a desk job, so we have a strict routine we stick to in order to get all the treatments in everday. We also always try to keep a positive attitude and enjoy every moment.

Feel free to talk anytime.
 

catco

New member
Hi,
<br />
<br />My name is Cath my husband also has CF. He was diagnosed when he was 15. We have been married 25 years. He has had 3 hospitalizations in that time. Two just this past year, his lung functions dropped last November from the 70s down to the 50s and he has been working hard at trying to get them back up with IV antibiotics and doing a lot of airway clearance and they have come up a little. I know exactly how you feel being married to someone with CF. It can be very scary at times.
<br />
<br />The best you can do for your husband is educate yourself about the disease (which it seems like you are doing). I always go along with my husband to his doctor visits so between the two of us we make sure we understand everything they tell us and I do PT on him 2 to 3 times a day. He still works full time at a desk job, so we have a strict routine we stick to in order to get all the treatments in everday. We also always try to keep a positive attitude and enjoy every moment.
<br />
<br />Feel free to talk anytime.
 

JonnySlick

New member
My wife has CF and from the time I first met/fell in love with her I have been reading everything I can about CF. I found that going to online research databases (like EBSCOhost) helps you find scholarly articles and studies that have more facts than a lot of the stuff floating around online.

As for helping my wife, I love to do percussive therapy for her so she doesn't have to do her vest. Also, cooking "CF friendly" foods (bring on the butter!) for your spouse is a nice treat. We've been married for just over a month, but I can tell you this: the best thing you can do for your spouse with CF is love them unconditionally and prove it in everything you do and say.
 

JonnySlick

New member
My wife has CF and from the time I first met/fell in love with her I have been reading everything I can about CF. I found that going to online research databases (like EBSCOhost) helps you find scholarly articles and studies that have more facts than a lot of the stuff floating around online.

As for helping my wife, I love to do percussive therapy for her so she doesn't have to do her vest. Also, cooking "CF friendly" foods (bring on the butter!) for your spouse is a nice treat. We've been married for just over a month, but I can tell you this: the best thing you can do for your spouse with CF is love them unconditionally and prove it in everything you do and say.
 

JonnySlick

New member
My wife has CF and from the time I first met/fell in love with her I have been reading everything I can about CF. I found that going to online research databases (like EBSCOhost) helps you find scholarly articles and studies that have more facts than a lot of the stuff floating around online.
<br />
<br />As for helping my wife, I love to do percussive therapy for her so she doesn't have to do her vest. Also, cooking "CF friendly" foods (bring on the butter!) for your spouse is a nice treat. We've been married for just over a month, but I can tell you this: the best thing you can do for your spouse with CF is love them unconditionally and prove it in everything you do and say.
 
W

windex125

Guest
This may sound mean, and I don't want it to so please don't mis-understand. But stop preparing the meds let him be responsible for his treatments and preparing.It is important for him to take care of himself.You want to help him but don't become his nurse, you will have issues in years to come and maybe become resentful, he will depend on you too much. I am a woman of 55 married 30yrs. The only time I ask for my husband for help if I need pounding on my back vs my vest, which always works well.The vest bless it for being invented,but nothing beats the human hands to really work those plugs loose. You should have him make a list of all meds he is taking just so you know in case of emergency, but don't fill the pill case. You sound very in love and want to be involved in taking care of him becasue he is yr. husband and that is all well and good. But don't take on the disease as well, treating him well instead of sick is the best treatment. I leanred that from my Mom. I never got special treatment and I think all those chores kept my lungs clear before any vest did. Best wishes to you. Oh one last thing I think he may be having a bug and running a fever is always a sign so you shd be ckg fever every 4hrs. and use tyenol only if it's over 100 and throw in a extra treatment. but of course call the doctor as well.
 
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