Holding your little one for "procedures"

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folione

New member
Holding your little one for

The first message from "HMW" could have been written by me for my experience with my little CFer. Same nightmare experience with someone who could not get an IV set and same resolve to never slip into that place again why the boy is crying and screaming and begging me to make it stop. I learned from that to tell hospital staff that my son had a horrid experience there and to demand IVs always get done by the best sticker in the hospital no matter what. He still frets and cries a bit but we've never had a repeat of that experience. The champion stickers get it right on the first try with no hesitation or guessing or signs of nervousness - kids pick up on anxious needle-stickers right away...
 

folione

New member
Holding your little one for

The first message from "HMW" could have been written by me for my experience with my little CFer. Same nightmare experience with someone who could not get an IV set and same resolve to never slip into that place again why the boy is crying and screaming and begging me to make it stop. I learned from that to tell hospital staff that my son had a horrid experience there and to demand IVs always get done by the best sticker in the hospital no matter what. He still frets and cries a bit but we've never had a repeat of that experience. The champion stickers get it right on the first try with no hesitation or guessing or signs of nervousness - kids pick up on anxious needle-stickers right away...
 

folione

New member
Holding your little one for

The first message from "HMW" could have been written by me for my experience with my little CFer. Same nightmare experience with someone who could not get an IV set and same resolve to never slip into that place again why the boy is crying and screaming and begging me to make it stop. I learned from that to tell hospital staff that my son had a horrid experience there and to demand IVs always get done by the best sticker in the hospital no matter what. He still frets and cries a bit but we've never had a repeat of that experience. The champion stickers get it right on the first try with no hesitation or guessing or signs of nervousness - kids pick up on anxious needle-stickers right away...
 

folione

New member
Holding your little one for

The first message from "HMW" could have been written by me for my experience with my little CFer. Same nightmare experience with someone who could not get an IV set and same resolve to never slip into that place again why the boy is crying and screaming and begging me to make it stop. I learned from that to tell hospital staff that my son had a horrid experience there and to demand IVs always get done by the best sticker in the hospital no matter what. He still frets and cries a bit but we've never had a repeat of that experience. The champion stickers get it right on the first try with no hesitation or guessing or signs of nervousness - kids pick up on anxious needle-stickers right away...
 

folione

New member
Holding your little one for

The first message from "HMW" could have been written by me for my experience with my little CFer. Same nightmare experience with someone who could not get an IV set and same resolve to never slip into that place again why the boy is crying and screaming and begging me to make it stop. I learned from that to tell hospital staff that my son had a horrid experience there and to demand IVs always get done by the best sticker in the hospital no matter what. He still frets and cries a bit but we've never had a repeat of that experience. The champion stickers get it right on the first try with no hesitation or guessing or signs of nervousness - kids pick up on anxious needle-stickers right away...
 

dasjsmum

New member
Holding your little one for

Thanks for posting this <img src="i/expressions/face-icon-small-smile.gif" border="0">

You know, I have a 30 year old and I STILL feel guilty for holding/restraining him during procedures...I can still see his face!! i still feel bad about it, I'm sure I've emotionally scared him for life!

Having said that, he does SEEM to be a VERY well adjusted, kind, loving bloke <img src="i/expressions/face-icon-small-smile.gif" border="0">...I just cant get past thinking that I was a traitor <img src="i/expressions/face-icon-small-sad.gif" border="0">.


My daughter escaped a lot of stuff because the clinic didnt push a lot of intervention.

My third had a traumatic experience with the PICC...it's all my fault...why didnt I insist they sedate him...why did I listen to them saying the nitrous oxide would do it...it diidnt....both of us had PTSD after that.

I dont think there's any getting past those feelings.

The truth is, even if they didnt have cf, we parents would be beating ourselves up about something else!!!

It's what parenting is all about I think, at the end of the day we do the best we can...<img src="i/expressions/face-icon-small-smile.gif" border="0">

AND, like I said, my older kids do SEEM <img src="i/expressions/face-icon-small-smile.gif" border="0"> to be well rounded, kind, loving people <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Holding your little one for

Thanks for posting this <img src="i/expressions/face-icon-small-smile.gif" border="0">

You know, I have a 30 year old and I STILL feel guilty for holding/restraining him during procedures...I can still see his face!! i still feel bad about it, I'm sure I've emotionally scared him for life!

Having said that, he does SEEM to be a VERY well adjusted, kind, loving bloke <img src="i/expressions/face-icon-small-smile.gif" border="0">...I just cant get past thinking that I was a traitor <img src="i/expressions/face-icon-small-sad.gif" border="0">.


My daughter escaped a lot of stuff because the clinic didnt push a lot of intervention.

My third had a traumatic experience with the PICC...it's all my fault...why didnt I insist they sedate him...why did I listen to them saying the nitrous oxide would do it...it diidnt....both of us had PTSD after that.

I dont think there's any getting past those feelings.

The truth is, even if they didnt have cf, we parents would be beating ourselves up about something else!!!

It's what parenting is all about I think, at the end of the day we do the best we can...<img src="i/expressions/face-icon-small-smile.gif" border="0">

AND, like I said, my older kids do SEEM <img src="i/expressions/face-icon-small-smile.gif" border="0"> to be well rounded, kind, loving people <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Holding your little one for

Thanks for posting this <img src="i/expressions/face-icon-small-smile.gif" border="0">

You know, I have a 30 year old and I STILL feel guilty for holding/restraining him during procedures...I can still see his face!! i still feel bad about it, I'm sure I've emotionally scared him for life!

Having said that, he does SEEM to be a VERY well adjusted, kind, loving bloke <img src="i/expressions/face-icon-small-smile.gif" border="0">...I just cant get past thinking that I was a traitor <img src="i/expressions/face-icon-small-sad.gif" border="0">.


My daughter escaped a lot of stuff because the clinic didnt push a lot of intervention.

My third had a traumatic experience with the PICC...it's all my fault...why didnt I insist they sedate him...why did I listen to them saying the nitrous oxide would do it...it diidnt....both of us had PTSD after that.

I dont think there's any getting past those feelings.

The truth is, even if they didnt have cf, we parents would be beating ourselves up about something else!!!

It's what parenting is all about I think, at the end of the day we do the best we can...<img src="i/expressions/face-icon-small-smile.gif" border="0">

AND, like I said, my older kids do SEEM <img src="i/expressions/face-icon-small-smile.gif" border="0"> to be well rounded, kind, loving people <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Holding your little one for

Thanks for posting this <img src="i/expressions/face-icon-small-smile.gif" border="0">

You know, I have a 30 year old and I STILL feel guilty for holding/restraining him during procedures...I can still see his face!! i still feel bad about it, I'm sure I've emotionally scared him for life!

Having said that, he does SEEM to be a VERY well adjusted, kind, loving bloke <img src="i/expressions/face-icon-small-smile.gif" border="0">...I just cant get past thinking that I was a traitor <img src="i/expressions/face-icon-small-sad.gif" border="0">.


My daughter escaped a lot of stuff because the clinic didnt push a lot of intervention.

My third had a traumatic experience with the PICC...it's all my fault...why didnt I insist they sedate him...why did I listen to them saying the nitrous oxide would do it...it diidnt....both of us had PTSD after that.

I dont think there's any getting past those feelings.

The truth is, even if they didnt have cf, we parents would be beating ourselves up about something else!!!

It's what parenting is all about I think, at the end of the day we do the best we can...<img src="i/expressions/face-icon-small-smile.gif" border="0">

AND, like I said, my older kids do SEEM <img src="i/expressions/face-icon-small-smile.gif" border="0"> to be well rounded, kind, loving people <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
Holding your little one for

Thanks for posting this <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />You know, I have a 30 year old and I STILL feel guilty for holding/restraining him during procedures...I can still see his face!! i still feel bad about it, I'm sure I've emotionally scared him for life!
<br />
<br />Having said that, he does SEEM to be a VERY well adjusted, kind, loving bloke <img src="i/expressions/face-icon-small-smile.gif" border="0">...I just cant get past thinking that I was a traitor <img src="i/expressions/face-icon-small-sad.gif" border="0">.
<br />
<br />
<br />My daughter escaped a lot of stuff because the clinic didnt push a lot of intervention.
<br />
<br />My third had a traumatic experience with the PICC...it's all my fault...why didnt I insist they sedate him...why did I listen to them saying the nitrous oxide would do it...it diidnt....both of us had PTSD after that.
<br />
<br />I dont think there's any getting past those feelings.
<br />
<br />The truth is, even if they didnt have cf, we parents would be beating ourselves up about something else!!!
<br />
<br />It's what parenting is all about I think, at the end of the day we do the best we can...<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />AND, like I said, my older kids do SEEM <img src="i/expressions/face-icon-small-smile.gif" border="0"> to be well rounded, kind, loving people <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
Holding your little one for

For the most part DS has been pretty good. I think he knows he has to do it. A little whimpering before blood draws or shots, but we've resorted to bribery. Shot = action figure.

When he was a baby the NICU nurses suggested that we not be present for spinal tap, iv in the head placement... Now that he's older it is important for us to be present to offer comfort. This past summer DH had to be the one to hold DS while they put in an NG tube. Not fun. Once it was in, he was a trooper and the hospital staff commented on how good he was about having it in and not complaining.

He put up with a LOT he shouldn't have had to deal with during his hospital stay last summer. One of the biggies was convincing the nurses that he NEEDED pain medicine. Granted it does slow the digestive tract and respiratory rate, but there was no reason he had to suffer. The doctor was on board with pain medicine, in fact he encouraged it's use; however, some of the nurses had a different opinion. Many a night my husband sat up and rubbed DS' tummy non-stop while waiting for the blockage that occured after surgery to pass. NIGHTMARE!
 

Ratatosk

Administrator
Staff member
Holding your little one for

For the most part DS has been pretty good. I think he knows he has to do it. A little whimpering before blood draws or shots, but we've resorted to bribery. Shot = action figure.

When he was a baby the NICU nurses suggested that we not be present for spinal tap, iv in the head placement... Now that he's older it is important for us to be present to offer comfort. This past summer DH had to be the one to hold DS while they put in an NG tube. Not fun. Once it was in, he was a trooper and the hospital staff commented on how good he was about having it in and not complaining.

He put up with a LOT he shouldn't have had to deal with during his hospital stay last summer. One of the biggies was convincing the nurses that he NEEDED pain medicine. Granted it does slow the digestive tract and respiratory rate, but there was no reason he had to suffer. The doctor was on board with pain medicine, in fact he encouraged it's use; however, some of the nurses had a different opinion. Many a night my husband sat up and rubbed DS' tummy non-stop while waiting for the blockage that occured after surgery to pass. NIGHTMARE!
 

Ratatosk

Administrator
Staff member
Holding your little one for

For the most part DS has been pretty good. I think he knows he has to do it. A little whimpering before blood draws or shots, but we've resorted to bribery. Shot = action figure.

When he was a baby the NICU nurses suggested that we not be present for spinal tap, iv in the head placement... Now that he's older it is important for us to be present to offer comfort. This past summer DH had to be the one to hold DS while they put in an NG tube. Not fun. Once it was in, he was a trooper and the hospital staff commented on how good he was about having it in and not complaining.

He put up with a LOT he shouldn't have had to deal with during his hospital stay last summer. One of the biggies was convincing the nurses that he NEEDED pain medicine. Granted it does slow the digestive tract and respiratory rate, but there was no reason he had to suffer. The doctor was on board with pain medicine, in fact he encouraged it's use; however, some of the nurses had a different opinion. Many a night my husband sat up and rubbed DS' tummy non-stop while waiting for the blockage that occured after surgery to pass. NIGHTMARE!
 

Ratatosk

Administrator
Staff member
Holding your little one for

For the most part DS has been pretty good. I think he knows he has to do it. A little whimpering before blood draws or shots, but we've resorted to bribery. Shot = action figure.

When he was a baby the NICU nurses suggested that we not be present for spinal tap, iv in the head placement... Now that he's older it is important for us to be present to offer comfort. This past summer DH had to be the one to hold DS while they put in an NG tube. Not fun. Once it was in, he was a trooper and the hospital staff commented on how good he was about having it in and not complaining.

He put up with a LOT he shouldn't have had to deal with during his hospital stay last summer. One of the biggies was convincing the nurses that he NEEDED pain medicine. Granted it does slow the digestive tract and respiratory rate, but there was no reason he had to suffer. The doctor was on board with pain medicine, in fact he encouraged it's use; however, some of the nurses had a different opinion. Many a night my husband sat up and rubbed DS' tummy non-stop while waiting for the blockage that occured after surgery to pass. NIGHTMARE!
 

Ratatosk

Administrator
Staff member
Holding your little one for

For the most part DS has been pretty good. I think he knows he has to do it. A little whimpering before blood draws or shots, but we've resorted to bribery. Shot = action figure.
<br />
<br />When he was a baby the NICU nurses suggested that we not be present for spinal tap, iv in the head placement... Now that he's older it is important for us to be present to offer comfort. This past summer DH had to be the one to hold DS while they put in an NG tube. Not fun. Once it was in, he was a trooper and the hospital staff commented on how good he was about having it in and not complaining.
<br />
<br />He put up with a LOT he shouldn't have had to deal with during his hospital stay last summer. One of the biggies was convincing the nurses that he NEEDED pain medicine. Granted it does slow the digestive tract and respiratory rate, but there was no reason he had to suffer. The doctor was on board with pain medicine, in fact he encouraged it's use; however, some of the nurses had a different opinion. Many a night my husband sat up and rubbed DS' tummy non-stop while waiting for the blockage that occured after surgery to pass. NIGHTMARE!
 
K

kaylee04cassidy08

Guest
Holding your little one for

Thank you everyone for your responses! Everyone here has so many good ideas. For now, I have decided that I will request that someone else restrain Cassidy while I hold her hand and tell her that it is ok. I talk to her pediatrician and he said that there is always another nurse, CNA or tech that can do the dirty work. He thought it was important that I stay with her, but not restrain her. Makes sense, right?
 
K

kaylee04cassidy08

Guest
Holding your little one for

Thank you everyone for your responses! Everyone here has so many good ideas. For now, I have decided that I will request that someone else restrain Cassidy while I hold her hand and tell her that it is ok. I talk to her pediatrician and he said that there is always another nurse, CNA or tech that can do the dirty work. He thought it was important that I stay with her, but not restrain her. Makes sense, right?
 
K

kaylee04cassidy08

Guest
Holding your little one for

Thank you everyone for your responses! Everyone here has so many good ideas. For now, I have decided that I will request that someone else restrain Cassidy while I hold her hand and tell her that it is ok. I talk to her pediatrician and he said that there is always another nurse, CNA or tech that can do the dirty work. He thought it was important that I stay with her, but not restrain her. Makes sense, right?
 
K

kaylee04cassidy08

Guest
Holding your little one for

Thank you everyone for your responses! Everyone here has so many good ideas. For now, I have decided that I will request that someone else restrain Cassidy while I hold her hand and tell her that it is ok. I talk to her pediatrician and he said that there is always another nurse, CNA or tech that can do the dirty work. He thought it was important that I stay with her, but not restrain her. Makes sense, right?
 
K

kaylee04cassidy08

Guest
Holding your little one for

Thank you everyone for your responses! Everyone here has so many good ideas. For now, I have decided that I will request that someone else restrain Cassidy while I hold her hand and tell her that it is ok. I talk to her pediatrician and he said that there is always another nurse, CNA or tech that can do the dirty work. He thought it was important that I stay with her, but not restrain her. Makes sense, right?
 
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