Hospital Bound

blindhearted · Jun 29, 2008

I got the call from my FNP at Duke that they want to admit me in before July 4th. I have been fighting the same 2 bugs growing in my culture since October. I've done multiple oral abx then IVs. I just finished IVs two weeks ago. I was on Vancomycin and Tobramycin for two weeks on, one week off (awaiting culture results), two weeks on. A week after finishing the 2nd set, we did a sputum culture and it still grew out the same two bugs. Personally I dont think the dosage was high enough. My local Pulmo Dr. (who I requested that he call Duke) & CF Dr spoke and decided I needed to go in. They are afraid I will begin a rapid decline if I dont go in. I dont feel as bad as I did before my IVs, but I guess that doesnt matter since the culture is still the same. I tried to talk them into letting me do it at home, but they said no and only want to admit me. I am upset, depressed & anxious about it. I will be 2 hrs from home, I have never been hospitalized under this doctor, never been outside of the pediatric floor & this is my first hospitalization at Duke since 2000...yes 8 yrs. I'm hoping that I can go in, get the meds and levels straight and finish up at home, but I'm not gonna hold my breath. I know this is needed, I understand that. I just hate it. I hate hospitals...the isolation, so far away from family, no freedom, possiblity of picking up new and more dangerous bugs. I know they want me to go in before the holiday, but I'm not sure when yet. I called Friday to make arrangements but never heard back. I will probably find out more tomorrow. I will give you guys an update when I know more but I am looking at Tue or Wed. I will be taking my laptop, so you guys will need to keep me company!! <img src="">

UPDATE 6/30
Thanks everyone. I will be admitted on Wed 7/2, they said to be there between 4-5pm. I will be on the 7th floor (which is new to me) and I will be on isolation (oh joy). Good news is they are going to try and get me out in 3-5 days. More likely than not, I will be spending the holiday weekend in lockup. At least we didnt have any plans. They told me they dont keep people 2 weeks like the pediatric unit did. They want to get me in, get some basic test, find the right medicine combo and levels, and then send me home to finish up. I was happy about that!! I just hope it happens. I'm gonna pack 2 weeks worth of stuff just in case. I'll update more when I find out.

Oh, Wheezie, I'm the same as you...I didnt know how many dangers where out there in the hospital until I joined this site because I have never gotten anything to my knowledge. So now, I'm super paranoid and nervous.

blindhearted · Jun 29, 2008

I got the call from my FNP at Duke that they want to admit me in before July 4th. I have been fighting the same 2 bugs growing in my culture since October. I've done multiple oral abx then IVs. I just finished IVs two weeks ago. I was on Vancomycin and Tobramycin for two weeks on, one week off (awaiting culture results), two weeks on. A week after finishing the 2nd set, we did a sputum culture and it still grew out the same two bugs. Personally I dont think the dosage was high enough. My local Pulmo Dr. (who I requested that he call Duke) & CF Dr spoke and decided I needed to go in. They are afraid I will begin a rapid decline if I dont go in. I dont feel as bad as I did before my IVs, but I guess that doesnt matter since the culture is still the same. I tried to talk them into letting me do it at home, but they said no and only want to admit me. I am upset, depressed & anxious about it. I will be 2 hrs from home, I have never been hospitalized under this doctor, never been outside of the pediatric floor & this is my first hospitalization at Duke since 2000...yes 8 yrs. I'm hoping that I can go in, get the meds and levels straight and finish up at home, but I'm not gonna hold my breath. I know this is needed, I understand that. I just hate it. I hate hospitals...the isolation, so far away from family, no freedom, possiblity of picking up new and more dangerous bugs. I know they want me to go in before the holiday, but I'm not sure when yet. I called Friday to make arrangements but never heard back. I will probably find out more tomorrow. I will give you guys an update when I know more but I am looking at Tue or Wed. I will be taking my laptop, so you guys will need to keep me company!! <img src="">

UPDATE 6/30
Thanks everyone. I will be admitted on Wed 7/2, they said to be there between 4-5pm. I will be on the 7th floor (which is new to me) and I will be on isolation (oh joy). Good news is they are going to try and get me out in 3-5 days. More likely than not, I will be spending the holiday weekend in lockup. At least we didnt have any plans. They told me they dont keep people 2 weeks like the pediatric unit did. They want to get me in, get some basic test, find the right medicine combo and levels, and then send me home to finish up. I was happy about that!! I just hope it happens. I'm gonna pack 2 weeks worth of stuff just in case. I'll update more when I find out.

Oh, Wheezie, I'm the same as you...I didnt know how many dangers where out there in the hospital until I joined this site because I have never gotten anything to my knowledge. So now, I'm super paranoid and nervous.

blindhearted · Jun 29, 2008

I got the call from my FNP at Duke that they want to admit me in before July 4th. I have been fighting the same 2 bugs growing in my culture since October. I've done multiple oral abx then IVs. I just finished IVs two weeks ago. I was on Vancomycin and Tobramycin for two weeks on, one week off (awaiting culture results), two weeks on. A week after finishing the 2nd set, we did a sputum culture and it still grew out the same two bugs. Personally I dont think the dosage was high enough. My local Pulmo Dr. (who I requested that he call Duke) & CF Dr spoke and decided I needed to go in. They are afraid I will begin a rapid decline if I dont go in. I dont feel as bad as I did before my IVs, but I guess that doesnt matter since the culture is still the same. I tried to talk them into letting me do it at home, but they said no and only want to admit me. I am upset, depressed & anxious about it. I will be 2 hrs from home, I have never been hospitalized under this doctor, never been outside of the pediatric floor & this is my first hospitalization at Duke since 2000...yes 8 yrs. I'm hoping that I can go in, get the meds and levels straight and finish up at home, but I'm not gonna hold my breath. I know this is needed, I understand that. I just hate it. I hate hospitals...the isolation, so far away from family, no freedom, possiblity of picking up new and more dangerous bugs. I know they want me to go in before the holiday, but I'm not sure when yet. I called Friday to make arrangements but never heard back. I will probably find out more tomorrow. I will give you guys an update when I know more but I am looking at Tue or Wed. I will be taking my laptop, so you guys will need to keep me company!! <img src="">

UPDATE 6/30
Thanks everyone. I will be admitted on Wed 7/2, they said to be there between 4-5pm. I will be on the 7th floor (which is new to me) and I will be on isolation (oh joy). Good news is they are going to try and get me out in 3-5 days. More likely than not, I will be spending the holiday weekend in lockup. At least we didnt have any plans. They told me they dont keep people 2 weeks like the pediatric unit did. They want to get me in, get some basic test, find the right medicine combo and levels, and then send me home to finish up. I was happy about that!! I just hope it happens. I'm gonna pack 2 weeks worth of stuff just in case. I'll update more when I find out.

Oh, Wheezie, I'm the same as you...I didnt know how many dangers where out there in the hospital until I joined this site because I have never gotten anything to my knowledge. So now, I'm super paranoid and nervous.

blindhearted · Jun 29, 2008

I got the call from my FNP at Duke that they want to admit me in before July 4th. I have been fighting the same 2 bugs growing in my culture since October. I've done multiple oral abx then IVs. I just finished IVs two weeks ago. I was on Vancomycin and Tobramycin for two weeks on, one week off (awaiting culture results), two weeks on. A week after finishing the 2nd set, we did a sputum culture and it still grew out the same two bugs. Personally I dont think the dosage was high enough. My local Pulmo Dr. (who I requested that he call Duke) & CF Dr spoke and decided I needed to go in. They are afraid I will begin a rapid decline if I dont go in. I dont feel as bad as I did before my IVs, but I guess that doesnt matter since the culture is still the same. I tried to talk them into letting me do it at home, but they said no and only want to admit me. I am upset, depressed & anxious about it. I will be 2 hrs from home, I have never been hospitalized under this doctor, never been outside of the pediatric floor & this is my first hospitalization at Duke since 2000...yes 8 yrs. I'm hoping that I can go in, get the meds and levels straight and finish up at home, but I'm not gonna hold my breath. I know this is needed, I understand that. I just hate it. I hate hospitals...the isolation, so far away from family, no freedom, possiblity of picking up new and more dangerous bugs. I know they want me to go in before the holiday, but I'm not sure when yet. I called Friday to make arrangements but never heard back. I will probably find out more tomorrow. I will give you guys an update when I know more but I am looking at Tue or Wed. I will be taking my laptop, so you guys will need to keep me company!! <img src="">

UPDATE 6/30
Thanks everyone. I will be admitted on Wed 7/2, they said to be there between 4-5pm. I will be on the 7th floor (which is new to me) and I will be on isolation (oh joy). Good news is they are going to try and get me out in 3-5 days. More likely than not, I will be spending the holiday weekend in lockup. At least we didnt have any plans. They told me they dont keep people 2 weeks like the pediatric unit did. They want to get me in, get some basic test, find the right medicine combo and levels, and then send me home to finish up. I was happy about that!! I just hope it happens. I'm gonna pack 2 weeks worth of stuff just in case. I'll update more when I find out.

Oh, Wheezie, I'm the same as you...I didnt know how many dangers where out there in the hospital until I joined this site because I have never gotten anything to my knowledge. So now, I'm super paranoid and nervous.

blindhearted · Jun 29, 2008

I got the call from my FNP at Duke that they want to admit me in before July 4th. I have been fighting the same 2 bugs growing in my culture since October. I've done multiple oral abx then IVs. I just finished IVs two weeks ago. I was on Vancomycin and Tobramycin for two weeks on, one week off (awaiting culture results), two weeks on. A week after finishing the 2nd set, we did a sputum culture and it still grew out the same two bugs. Personally I dont think the dosage was high enough. My local Pulmo Dr. (who I requested that he call Duke) & CF Dr spoke and decided I needed to go in. They are afraid I will begin a rapid decline if I dont go in. I dont feel as bad as I did before my IVs, but I guess that doesnt matter since the culture is still the same. I tried to talk them into letting me do it at home, but they said no and only want to admit me. I am upset, depressed & anxious about it. I will be 2 hrs from home, I have never been hospitalized under this doctor, never been outside of the pediatric floor & this is my first hospitalization at Duke since 2000...yes 8 yrs. I'm hoping that I can go in, get the meds and levels straight and finish up at home, but I'm not gonna hold my breath. I know this is needed, I understand that. I just hate it. I hate hospitals...the isolation, so far away from family, no freedom, possiblity of picking up new and more dangerous bugs. I know they want me to go in before the holiday, but I'm not sure when yet. I called Friday to make arrangements but never heard back. I will probably find out more tomorrow. I will give you guys an update when I know more but I am looking at Tue or Wed. I will be taking my laptop, so you guys will need to keep me company!! <img src="">
 
 UPDATE 6/30
 Thanks everyone. I will be admitted on Wed 7/2, they said to be there between 4-5pm. I will be on the 7th floor (which is new to me) and I will be on isolation (oh joy). Good news is they are going to try and get me out in 3-5 days. More likely than not, I will be spending the holiday weekend in lockup. At least we didnt have any plans. They told me they dont keep people 2 weeks like the pediatric unit did. They want to get me in, get some basic test, find the right medicine combo and levels, and then send me home to finish up. I was happy about that!! I just hope it happens. I'm gonna pack 2 weeks worth of stuff just in case. I'll update more when I find out.
 
 Oh, Wheezie, I'm the same as you...I didnt know how many dangers where out there in the hospital until I joined this site because I have never gotten anything to my knowledge. So now, I'm super paranoid and nervous.

AnD · Jun 29, 2008

I'm sorry Danyell- I hope this does the trick and you come home feeling better than ever. I also hope that they let you come home on your IVs- I hate the germy hospital too <img src="i/expressions/face-icon-small-sad.gif" border="0"> . <img src="i/expressions/heart.gif" border="0"> Maybe you could put a sign on your door that says "Germaphobe- be prepared!" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

AnD · Jun 29, 2008

I'm sorry Danyell- I hope this does the trick and you come home feeling better than ever. I also hope that they let you come home on your IVs- I hate the germy hospital too <img src="i/expressions/face-icon-small-sad.gif" border="0"> . <img src="i/expressions/heart.gif" border="0"> Maybe you could put a sign on your door that says "Germaphobe- be prepared!" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

AnD · Jun 29, 2008

I'm sorry Danyell- I hope this does the trick and you come home feeling better than ever. I also hope that they let you come home on your IVs- I hate the germy hospital too <img src="i/expressions/face-icon-small-sad.gif" border="0"> . <img src="i/expressions/heart.gif" border="0"> Maybe you could put a sign on your door that says "Germaphobe- be prepared!" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

AnD · Jun 29, 2008

I'm sorry Danyell- I hope this does the trick and you come home feeling better than ever. I also hope that they let you come home on your IVs- I hate the germy hospital too <img src="i/expressions/face-icon-small-sad.gif" border="0"> . <img src="i/expressions/heart.gif" border="0"> Maybe you could put a sign on your door that says "Germaphobe- be prepared!" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

AnD · Jun 29, 2008

I'm sorry Danyell- I hope this does the trick and you come home feeling better than ever. I also hope that they let you come home on your IVs- I hate the germy hospital too <img src="i/expressions/face-icon-small-sad.gif" border="0"> . <img src="i/expressions/heart.gif" border="0"> Maybe you could put a sign on your door that says "Germaphobe- be prepared!" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> .

Wheezie · Jun 29, 2008

Being admitted sucks, no doubt about it. And I know hospitals have a nasty reputation of being yucky germ havens (and the rep. is not unwarranted). But I have to say, before I became a member of this site, I had no idea how paranoid I was supposed to be; I had been in lockup plenty of times and never picked up anything new or awful, but once I found this site, suddenly I was a nervous wreck thinking about being admitted.

I also know how sucky it is to be locked up so far away from home - the hospital I go to now, thankfully, is close to where I live, but for many years I went to a hospital 3 hours away and it just plain blew.

Even when we know it's best for us, it still sucks a$$ to be admitted. And it can be extra scary when you don't really know what to expect (new doc, out of practice from not having been in 8 years...).

I don't mean to imply that you should be careless or just blindly trust whatever they tell you - don't be afraid to ask staff to wash their hands, gown/glove up, etc. But try not to be overly worried about things over which you have no control (like germs). And know that you will not be stuck there forever - as lame as it sounds, and as long as it might feel, in the big scheme of things this admission is just a blip on the radar. Hopefully after this, it'll be another 8 years (or more!!) before you have to deal with this again!

Good Luck, Danyell.

Wheezie · Jun 29, 2008

Being admitted sucks, no doubt about it. And I know hospitals have a nasty reputation of being yucky germ havens (and the rep. is not unwarranted). But I have to say, before I became a member of this site, I had no idea how paranoid I was supposed to be; I had been in lockup plenty of times and never picked up anything new or awful, but once I found this site, suddenly I was a nervous wreck thinking about being admitted.

I also know how sucky it is to be locked up so far away from home - the hospital I go to now, thankfully, is close to where I live, but for many years I went to a hospital 3 hours away and it just plain blew.

Even when we know it's best for us, it still sucks a$$ to be admitted. And it can be extra scary when you don't really know what to expect (new doc, out of practice from not having been in 8 years...).

I don't mean to imply that you should be careless or just blindly trust whatever they tell you - don't be afraid to ask staff to wash their hands, gown/glove up, etc. But try not to be overly worried about things over which you have no control (like germs). And know that you will not be stuck there forever - as lame as it sounds, and as long as it might feel, in the big scheme of things this admission is just a blip on the radar. Hopefully after this, it'll be another 8 years (or more!!) before you have to deal with this again!

Good Luck, Danyell.

Wheezie · Jun 29, 2008

Being admitted sucks, no doubt about it. And I know hospitals have a nasty reputation of being yucky germ havens (and the rep. is not unwarranted). But I have to say, before I became a member of this site, I had no idea how paranoid I was supposed to be; I had been in lockup plenty of times and never picked up anything new or awful, but once I found this site, suddenly I was a nervous wreck thinking about being admitted.

I also know how sucky it is to be locked up so far away from home - the hospital I go to now, thankfully, is close to where I live, but for many years I went to a hospital 3 hours away and it just plain blew.

Even when we know it's best for us, it still sucks a$$ to be admitted. And it can be extra scary when you don't really know what to expect (new doc, out of practice from not having been in 8 years...).

I don't mean to imply that you should be careless or just blindly trust whatever they tell you - don't be afraid to ask staff to wash their hands, gown/glove up, etc. But try not to be overly worried about things over which you have no control (like germs). And know that you will not be stuck there forever - as lame as it sounds, and as long as it might feel, in the big scheme of things this admission is just a blip on the radar. Hopefully after this, it'll be another 8 years (or more!!) before you have to deal with this again!

Good Luck, Danyell.

Wheezie · Jun 29, 2008

Being admitted sucks, no doubt about it. And I know hospitals have a nasty reputation of being yucky germ havens (and the rep. is not unwarranted). But I have to say, before I became a member of this site, I had no idea how paranoid I was supposed to be; I had been in lockup plenty of times and never picked up anything new or awful, but once I found this site, suddenly I was a nervous wreck thinking about being admitted.

I also know how sucky it is to be locked up so far away from home - the hospital I go to now, thankfully, is close to where I live, but for many years I went to a hospital 3 hours away and it just plain blew.

Even when we know it's best for us, it still sucks a$$ to be admitted. And it can be extra scary when you don't really know what to expect (new doc, out of practice from not having been in 8 years...).

I don't mean to imply that you should be careless or just blindly trust whatever they tell you - don't be afraid to ask staff to wash their hands, gown/glove up, etc. But try not to be overly worried about things over which you have no control (like germs). And know that you will not be stuck there forever - as lame as it sounds, and as long as it might feel, in the big scheme of things this admission is just a blip on the radar. Hopefully after this, it'll be another 8 years (or more!!) before you have to deal with this again!

Good Luck, Danyell.

Wheezie · Jun 29, 2008

Being admitted sucks, no doubt about it. And I know hospitals have a nasty reputation of being yucky germ havens (and the rep. is not unwarranted). But I have to say, before I became a member of this site, I had no idea how paranoid I was supposed to be; I had been in lockup plenty of times and never picked up anything new or awful, but once I found this site, suddenly I was a nervous wreck thinking about being admitted.
 
 I also know how sucky it is to be locked up so far away from home - the hospital I go to now, thankfully, is close to where I live, but for many years I went to a hospital 3 hours away and it just plain blew.
 
 Even when we know it's best for us, it still sucks a$$ to be admitted. And it can be extra scary when you don't really know what to expect (new doc, out of practice from not having been in 8 years...).
 
 I don't mean to imply that you should be careless or just blindly trust whatever they tell you - don't be afraid to ask staff to wash their hands, gown/glove up, etc. But try not to be overly worried about things over which you have no control (like germs). And know that you will not be stuck there forever - as lame as it sounds, and as long as it might feel, in the big scheme of things this admission is just a blip on the radar. Hopefully after this, it'll be another 8 years (or more!!) before you have to deal with this again!
 
 Good Luck, Danyell.

Diane · Jun 29, 2008

I'm sorry you have to go in. I hate going in the hospital also. But sometimes it is warranted and it sounds like this time for you it is. Keep in mind how much better you will feel afterwards. Hopefully they will allow you to start everything in the hospital and finish at home. Good Luck and keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0">

Diane · Jun 29, 2008

I'm sorry you have to go in. I hate going in the hospital also. But sometimes it is warranted and it sounds like this time for you it is. Keep in mind how much better you will feel afterwards. Hopefully they will allow you to start everything in the hospital and finish at home. Good Luck and keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0">

Diane · Jun 29, 2008

I'm sorry you have to go in. I hate going in the hospital also. But sometimes it is warranted and it sounds like this time for you it is. Keep in mind how much better you will feel afterwards. Hopefully they will allow you to start everything in the hospital and finish at home. Good Luck and keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0">

Diane · Jun 29, 2008

I'm sorry you have to go in. I hate going in the hospital also. But sometimes it is warranted and it sounds like this time for you it is. Keep in mind how much better you will feel afterwards. Hopefully they will allow you to start everything in the hospital and finish at home. Good Luck and keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0">

Diane · Jun 29, 2008

I'm sorry you have to go in. I hate going in the hospital also. But sometimes it is warranted and it sounds like this time for you it is. Keep in mind how much better you will feel afterwards. Hopefully they will allow you to start everything in the hospital and finish at home. Good Luck and keep us posted <img src="i/expressions/face-icon-small-smile.gif" border="0">

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