hospital stay vs. home iv's

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giantsfan91

Guest
@kharm, funny thing is my reaction turned out to be an adverse side effect that I can't be desensitized to so I just ended up needing to take tylenol and benadryl before every dose of zosyn. Zosyn gave me very high fevers (104F) but the tylenol and benadryl bring it down to normal as long as I stick with it. My cf doc said he'd never seen anyone who's side effect is only high fevers. Maybe I should start a new topic? lol
 
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Dwmarchb

Guest
I only have medicare and they do not allow home iv so i have to stay the 14 days when i go in. thank god i only have had to be on Iv 5 times but if i was gonig two or three times a year i would go crazy. I bring my tv and xbox in when i go.
 
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Dwmarchb

Guest
I only have medicare and they do not allow home iv so i have to stay the 14 days when i go in. thank god i only have had to be on Iv 5 times but if i was gonig two or three times a year i would go crazy. I bring my tv and xbox in when i go.
 
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Dwmarchb

Guest
I only have medicare and they do not allow home iv so i have to stay the 14 days when i go in. thank god i only have had to be on Iv 5 times but if i was gonig two or three times a year i would go crazy. I bring my tv and xbox in when i go.
 
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nvbrame

New member
I absolutely hate the hospital. I have been in 4 times for iv antiobitics. 1st time i had to stay the full 2 weeks and it was HORRIBLE! The last time was last month and i only had to go in for the picc line and stay overnight to check my tobi levels. I was sent home with my meds and nurse came in once a week to do vital signs and change the dressing. I find that so much more convenient than having the nurses come in at all hours of the night to wake you to do bloodwork/vitals/hook you up to the antibiotics. My doc at Duke is wonderful and he trusts me enough to do my meds when needed and rest/take it easy/exercise during the two weeks. I feel much more comfortable at home regardless if i have to wake up at 6 to plug myself in or be at home around a certain time to hook up. I returned to work after a week and no problems with doing them there-my boss is wonderful. But myself, prefer home over hospital 100%!
 
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nvbrame

New member
I absolutely hate the hospital. I have been in 4 times for iv antiobitics. 1st time i had to stay the full 2 weeks and it was HORRIBLE! The last time was last month and i only had to go in for the picc line and stay overnight to check my tobi levels. I was sent home with my meds and nurse came in once a week to do vital signs and change the dressing. I find that so much more convenient than having the nurses come in at all hours of the night to wake you to do bloodwork/vitals/hook you up to the antibiotics. My doc at Duke is wonderful and he trusts me enough to do my meds when needed and rest/take it easy/exercise during the two weeks. I feel much more comfortable at home regardless if i have to wake up at 6 to plug myself in or be at home around a certain time to hook up. I returned to work after a week and no problems with doing them there-my boss is wonderful. But myself, prefer home over hospital 100%!
 
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nvbrame

New member
I absolutely hate the hospital. I have been in 4 times for iv antiobitics. 1st time i had to stay the full 2 weeks and it was HORRIBLE! The last time was last month and i only had to go in for the picc line and stay overnight to check my tobi levels. I was sent home with my meds and nurse came in once a week to do vital signs and change the dressing. I find that so much more convenient than having the nurses come in at all hours of the night to wake you to do bloodwork/vitals/hook you up to the antibiotics. My doc at Duke is wonderful and he trusts me enough to do my meds when needed and rest/take it easy/exercise during the two weeks. I feel much more comfortable at home regardless if i have to wake up at 6 to plug myself in or be at home around a certain time to hook up. I returned to work after a week and no problems with doing them there-my boss is wonderful. But myself, prefer home over hospital 100%!
 
K

kharm

New member
@giantsfan91 I also have resorted to loading up on Benydryl (prior to the PICC insertion.) The anapylactic reaction still occurred last time I got a PICC placed (even though I took Benedryl before hand), which was extremely discouraging. I ended up needing more once the reaction began. I read about other people with experiencing the same issues here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.iv-therapy.net/node/586.">http://www.iv-therapy.net/node/586.</a> This kind of goes along with what everyone was saying about being your own advocate, because my doc isn't as concerned (since he isn't the one who has to go through anaphylactic shock every time I get a PICC inserted), and he feels like as long as I can take Zyrtec after it's in for the remainder of the IV course, I should sort of just deal with the trauma of insertion. I am not a fan of this philosophy!
 
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kharm

New member
@giantsfan91 I also have resorted to loading up on Benydryl (prior to the PICC insertion.) The anapylactic reaction still occurred last time I got a PICC placed (even though I took Benedryl before hand), which was extremely discouraging. I ended up needing more once the reaction began. I read about other people with experiencing the same issues here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.iv-therapy.net/node/586.">http://www.iv-therapy.net/node/586.</a> This kind of goes along with what everyone was saying about being your own advocate, because my doc isn't as concerned (since he isn't the one who has to go through anaphylactic shock every time I get a PICC inserted), and he feels like as long as I can take Zyrtec after it's in for the remainder of the IV course, I should sort of just deal with the trauma of insertion. I am not a fan of this philosophy!
 
K

kharm

New member
@giantsfan91 I also have resorted to loading up on Benydryl (prior to the PICC insertion.) The anapylactic reaction still occurred last time I got a PICC placed (even though I took Benedryl before hand), which was extremely discouraging. I ended up needing more once the reaction began. I read about other people with experiencing the same issues here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.iv-therapy.net/node/586.">http://www.iv-therapy.net/node/586.</a> This kind of goes along with what everyone was saying about being your own advocate, because my doc isn't as concerned (since he isn't the one who has to go through anaphylactic shock every time I get a PICC inserted), and he feels like as long as I can take Zyrtec after it's in for the remainder of the IV course, I should sort of just deal with the trauma of insertion. I am not a fan of this philosophy!
 
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JustDucky

New member
I too have Medicare for my primary and usually wind up in the hospital until recently. I had my doc order the most commonly prescribed antibiotics that are covered under my part D insurance so I could have them at home (ordering them takes a few weeks to come to me, I get sick, I can't wait that long to start them...so I have my "pharmacy" LOL) To be honest, I guess it depends on what IV's I am on. I have been on Gent and Zosyn for 4 weeks now...I am exhausted, and not getting much sleep as I have to get up so often to hook up. I like being home for privacy sake and I am more active, but right now...I must confess that a week stay in a hospital wouldn't be bad. I typically get excellent care, but then again, I am usually in the ICU so it is noisy. At home,I have to reconstitute my meds a day's worth at a time, it's not delivered by a home company all prepared. It's not bad, but it is one more thing to do.
Also, I don't know about you guys, but IV's tend to knock me on my butt. They completely wipe me out. I don't know how some of you even work while on that stuff. This is just adding to my extreme fatigue that I am experiencing now.
I think in the future, I will split it up if I can...a week in house, then the rest out when I am feeling a little better as the first week is hell on me.
Jenn
 
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JustDucky

New member
I too have Medicare for my primary and usually wind up in the hospital until recently. I had my doc order the most commonly prescribed antibiotics that are covered under my part D insurance so I could have them at home (ordering them takes a few weeks to come to me, I get sick, I can't wait that long to start them...so I have my "pharmacy" LOL) To be honest, I guess it depends on what IV's I am on. I have been on Gent and Zosyn for 4 weeks now...I am exhausted, and not getting much sleep as I have to get up so often to hook up. I like being home for privacy sake and I am more active, but right now...I must confess that a week stay in a hospital wouldn't be bad. I typically get excellent care, but then again, I am usually in the ICU so it is noisy. At home,I have to reconstitute my meds a day's worth at a time, it's not delivered by a home company all prepared. It's not bad, but it is one more thing to do.
Also, I don't know about you guys, but IV's tend to knock me on my butt. They completely wipe me out. I don't know how some of you even work while on that stuff. This is just adding to my extreme fatigue that I am experiencing now.
I think in the future, I will split it up if I can...a week in house, then the rest out when I am feeling a little better as the first week is hell on me.
Jenn
 
J

JustDucky

New member
I too have Medicare for my primary and usually wind up in the hospital until recently. I had my doc order the most commonly prescribed antibiotics that are covered under my part D insurance so I could have them at home (ordering them takes a few weeks to come to me, I get sick, I can't wait that long to start them...so I have my "pharmacy" LOL) To be honest, I guess it depends on what IV's I am on. I have been on Gent and Zosyn for 4 weeks now...I am exhausted, and not getting much sleep as I have to get up so often to hook up. I like being home for privacy sake and I am more active, but right now...I must confess that a week stay in a hospital wouldn't be bad. I typically get excellent care, but then again, I am usually in the ICU so it is noisy. At home,I have to reconstitute my meds a day's worth at a time, it's not delivered by a home company all prepared. It's not bad, but it is one more thing to do.
<br />Also, I don't know about you guys, but IV's tend to knock me on my butt. They completely wipe me out. I don't know how some of you even work while on that stuff. This is just adding to my extreme fatigue that I am experiencing now.
<br />I think in the future, I will split it up if I can...a week in house, then the rest out when I am feeling a little better as the first week is hell on me.
<br />Jenn
 
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TheAmazingBD

New member
HOME is the best option for me. The hospital is full of sick people and infection is WAY too easy. I feel safer in my own home.

Ldude916...I FULLY AGREE. As well with everyone else, be your own advocate. Get a new nurse, a different PT, whatever it takes to make you comfortable. YOU ARE PAYING for the treatment, and you are trying to heal, not be more stressed or uncomfortable

My first PICC was amazing. The PICC nurse was great and got it done in one try! My mother is a nurse, and both my parents were there to help me through the process. The following PICC lines were horrible. Now this was MY experience. I have thin skin but amazing veins. Unfortunately I've had PICC nurses who thought they were MASTERS but hadn't dealt with my challenges. In any case, they tried MULTIPLE times on both arms to run PICCS and in the end had to have them removed and reinserted more than once. The last PICC nurse struck a nerve and I thought I'd been hit by lightening! THIS IS A RISK I took, but never heard of it happening to anyone else<img src="i/expressions/face-icon-small-sad.gif" border="0"> They ended up just putting in a periphial IV. I can tell you this, i am currently feeling ill and choosing to seek alternative medicine. Not everyone has this option...but I am using it till I don't.

Again, I WOULD RATHER A PICC than a single day stay in the hospital.
 
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TheAmazingBD

New member
HOME is the best option for me. The hospital is full of sick people and infection is WAY too easy. I feel safer in my own home.

Ldude916...I FULLY AGREE. As well with everyone else, be your own advocate. Get a new nurse, a different PT, whatever it takes to make you comfortable. YOU ARE PAYING for the treatment, and you are trying to heal, not be more stressed or uncomfortable

My first PICC was amazing. The PICC nurse was great and got it done in one try! My mother is a nurse, and both my parents were there to help me through the process. The following PICC lines were horrible. Now this was MY experience. I have thin skin but amazing veins. Unfortunately I've had PICC nurses who thought they were MASTERS but hadn't dealt with my challenges. In any case, they tried MULTIPLE times on both arms to run PICCS and in the end had to have them removed and reinserted more than once. The last PICC nurse struck a nerve and I thought I'd been hit by lightening! THIS IS A RISK I took, but never heard of it happening to anyone else<img src="i/expressions/face-icon-small-sad.gif" border="0"> They ended up just putting in a periphial IV. I can tell you this, i am currently feeling ill and choosing to seek alternative medicine. Not everyone has this option...but I am using it till I don't.

Again, I WOULD RATHER A PICC than a single day stay in the hospital.
 
T

TheAmazingBD

New member
HOME is the best option for me. The hospital is full of sick people and infection is WAY too easy. I feel safer in my own home.
<br />
<br />Ldude916...I FULLY AGREE. As well with everyone else, be your own advocate. Get a new nurse, a different PT, whatever it takes to make you comfortable. YOU ARE PAYING for the treatment, and you are trying to heal, not be more stressed or uncomfortable
<br />
<br />My first PICC was amazing. The PICC nurse was great and got it done in one try! My mother is a nurse, and both my parents were there to help me through the process. The following PICC lines were horrible. Now this was MY experience. I have thin skin but amazing veins. Unfortunately I've had PICC nurses who thought they were MASTERS but hadn't dealt with my challenges. In any case, they tried MULTIPLE times on both arms to run PICCS and in the end had to have them removed and reinserted more than once. The last PICC nurse struck a nerve and I thought I'd been hit by lightening! THIS IS A RISK I took, but never heard of it happening to anyone else<img src="i/expressions/face-icon-small-sad.gif" border="0"> They ended up just putting in a periphial IV. I can tell you this, i am currently feeling ill and choosing to seek alternative medicine. Not everyone has this option...but I am using it till I don't.
<br />
<br />Again, I WOULD RATHER A PICC than a single day stay in the hospital.
 
S

sunflower

New member
I prefer to be home. I hate going into hospital I get ver bored and get depressed so home please. But I do like when physo do manual clapping on my lungs.
But home for me.

Sunflower
---------
40yrs
ABPA-Psuedomonas
Asthma, Bronchi
Gallbladder gone
Sinus problems
DF508-P67L.
 
S

sunflower

New member
I prefer to be home. I hate going into hospital I get ver bored and get depressed so home please. But I do like when physo do manual clapping on my lungs.
But home for me.

Sunflower
---------
40yrs
ABPA-Psuedomonas
Asthma, Bronchi
Gallbladder gone
Sinus problems
DF508-P67L.
 
S

sunflower

New member
I prefer to be home. I hate going into hospital I get ver bored and get depressed so home please. But I do like when physo do manual clapping on my lungs.
<br />But home for me.
<br />
<br />Sunflower
<br />---------
<br />40yrs
<br />ABPA-Psuedomonas
<br />Asthma, Bronchi
<br />Gallbladder gone
<br />Sinus problems
<br />DF508-P67L.
 
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