Hospital Stays

[TestifyToLove]

Several weeks ago, M had to go to the ER and they started talking about admitting him. The other kids and I drove 40 minutes for the express purpose of bringing his meds. Dh and I both recognized that if he was admitted, it would be morning before they had all his meds straightened out.

The lesson we learned is because he's so medically complicated, ANY future ER runs will including carrying 24 hours of his routine meds with him.

DH has had to get really ugly a few times when they've left M just starving without food. And, I'm pretty sure that perfume violates OSHS reuirements.

 

[TestifyToLove]

Several weeks ago, M had to go to the ER and they started talking about admitting him. The other kids and I drove 40 minutes for the express purpose of bringing his meds. Dh and I both recognized that if he was admitted, it would be morning before they had all his meds straightened out.

The lesson we learned is because he's so medically complicated, ANY future ER runs will including carrying 24 hours of his routine meds with him.

DH has had to get really ugly a few times when they've left M just starving without food. And, I'm pretty sure that perfume violates OSHS reuirements.

 

[TestifyToLove]

Several weeks ago, M had to go to the ER and they started talking about admitting him. The other kids and I drove 40 minutes for the express purpose of bringing his meds. Dh and I both recognized that if he was admitted, it would be morning before they had all his meds straightened out.

The lesson we learned is because he's so medically complicated, ANY future ER runs will including carrying 24 hours of his routine meds with him.

DH has had to get really ugly a few times when they've left M just starving without food. And, I'm pretty sure that perfume violates OSHS reuirements.

 

[TestifyToLove]

Several weeks ago, M had to go to the ER and they started talking about admitting him. The other kids and I drove 40 minutes for the express purpose of bringing his meds. Dh and I both recognized that if he was admitted, it would be morning before they had all his meds straightened out.

The lesson we learned is because he's so medically complicated, ANY future ER runs will including carrying 24 hours of his routine meds with him.

DH has had to get really ugly a few times when they've left M just starving without food. And, I'm pretty sure that perfume violates OSHS reuirements.

 

[TestifyToLove]

Several weeks ago, M had to go to the ER and they started talking about admitting him. The other kids and I drove 40 minutes for the express purpose of bringing his meds. Dh and I both recognized that if he was admitted, it would be morning before they had all his meds straightened out.
<br />
<br />The lesson we learned is because he's so medically complicated, ANY future ER runs will including carrying 24 hours of his routine meds with him.
<br />
<br />DH has had to get really ugly a few times when they've left M just starving without food. And, I'm pretty sure that perfume violates OSHS reuirements.

 

[JORDYSMOM]

I'm not really surprised by the slow pace at which the meds and formula were obtained. Unfortunately! The perfume, however, is rediculous!!! Definitely make noise about all of these things. They need to improve their system.

I'm sorry your baby girl is back in. I hope it's a short stay. Please keep us posted.

Stacey

 

[JORDYSMOM]

I'm not really surprised by the slow pace at which the meds and formula were obtained. Unfortunately! The perfume, however, is rediculous!!! Definitely make noise about all of these things. They need to improve their system.

I'm sorry your baby girl is back in. I hope it's a short stay. Please keep us posted.

Stacey

 

[JORDYSMOM]

I'm not really surprised by the slow pace at which the meds and formula were obtained. Unfortunately! The perfume, however, is rediculous!!! Definitely make noise about all of these things. They need to improve their system.

I'm sorry your baby girl is back in. I hope it's a short stay. Please keep us posted.

Stacey

 

[JORDYSMOM]

I'm not really surprised by the slow pace at which the meds and formula were obtained. Unfortunately! The perfume, however, is rediculous!!! Definitely make noise about all of these things. They need to improve their system.

I'm sorry your baby girl is back in. I hope it's a short stay. Please keep us posted.

Stacey

 

[JORDYSMOM]

I'm not really surprised by the slow pace at which the meds and formula were obtained. Unfortunately! The perfume, however, is rediculous!!! Definitely make noise about all of these things. They need to improve their system.
<br />
<br />I'm sorry your baby girl is back in. I hope it's a short stay. Please keep us posted.
<br />
<br />Stacey

 

[Rebjane]

I'm sorry Grayson has to go through all that. Definately voice your concerns. Perfume should not be worn in the hospital period by any staff member. We have had a few bad experiences in the hospital; as well as some good. Things tend not to move quickly in a hospital, unless it is an emergency. Too much paperwork and not enough nurses. When Maggie was 2 1/2 she had to have nothing by mouth for a bronchoscopy...Nothing after midnight..Her bronch did not get done until 5pm the next day..By the time they took her she was dehydrated and I wanted her to get IV fluid. They kept delaying her bronch for more emergent cases. I finally had to throw a tantrum and demand her to go next; I got the head of pulmonary up on the floor(her MD at the time) and hmmm she went for her bronch within 10 minutes. That was a bad experience and I spoke with the nurse manager and voiced my many concerns...lack of knowledge of CF; reusing the same nebs over and over for my daughter. She did listen and said they would make changes. Even called us when we were home (I must have really thrown a nutty). I hope they did make those changes; but we haven't been back there since(knock on wood and everything else) Squeaky wheel gets the grease... I think it would be hard for me to let another nurse give my daughter her meds and nebs...since I do it day in day out and could do it in my sleep.

 

[Rebjane]

I'm sorry Grayson has to go through all that. Definately voice your concerns. Perfume should not be worn in the hospital period by any staff member. We have had a few bad experiences in the hospital; as well as some good. Things tend not to move quickly in a hospital, unless it is an emergency. Too much paperwork and not enough nurses. When Maggie was 2 1/2 she had to have nothing by mouth for a bronchoscopy...Nothing after midnight..Her bronch did not get done until 5pm the next day..By the time they took her she was dehydrated and I wanted her to get IV fluid. They kept delaying her bronch for more emergent cases. I finally had to throw a tantrum and demand her to go next; I got the head of pulmonary up on the floor(her MD at the time) and hmmm she went for her bronch within 10 minutes. That was a bad experience and I spoke with the nurse manager and voiced my many concerns...lack of knowledge of CF; reusing the same nebs over and over for my daughter. She did listen and said they would make changes. Even called us when we were home (I must have really thrown a nutty). I hope they did make those changes; but we haven't been back there since(knock on wood and everything else) Squeaky wheel gets the grease... I think it would be hard for me to let another nurse give my daughter her meds and nebs...since I do it day in day out and could do it in my sleep.

 

[Rebjane]

I'm sorry Grayson has to go through all that. Definately voice your concerns. Perfume should not be worn in the hospital period by any staff member. We have had a few bad experiences in the hospital; as well as some good. Things tend not to move quickly in a hospital, unless it is an emergency. Too much paperwork and not enough nurses. When Maggie was 2 1/2 she had to have nothing by mouth for a bronchoscopy...Nothing after midnight..Her bronch did not get done until 5pm the next day..By the time they took her she was dehydrated and I wanted her to get IV fluid. They kept delaying her bronch for more emergent cases. I finally had to throw a tantrum and demand her to go next; I got the head of pulmonary up on the floor(her MD at the time) and hmmm she went for her bronch within 10 minutes. That was a bad experience and I spoke with the nurse manager and voiced my many concerns...lack of knowledge of CF; reusing the same nebs over and over for my daughter. She did listen and said they would make changes. Even called us when we were home (I must have really thrown a nutty). I hope they did make those changes; but we haven't been back there since(knock on wood and everything else) Squeaky wheel gets the grease... I think it would be hard for me to let another nurse give my daughter her meds and nebs...since I do it day in day out and could do it in my sleep.

 

[Rebjane]

I'm sorry Grayson has to go through all that. Definately voice your concerns. Perfume should not be worn in the hospital period by any staff member. We have had a few bad experiences in the hospital; as well as some good. Things tend not to move quickly in a hospital, unless it is an emergency. Too much paperwork and not enough nurses. When Maggie was 2 1/2 she had to have nothing by mouth for a bronchoscopy...Nothing after midnight..Her bronch did not get done until 5pm the next day..By the time they took her she was dehydrated and I wanted her to get IV fluid. They kept delaying her bronch for more emergent cases. I finally had to throw a tantrum and demand her to go next; I got the head of pulmonary up on the floor(her MD at the time) and hmmm she went for her bronch within 10 minutes. That was a bad experience and I spoke with the nurse manager and voiced my many concerns...lack of knowledge of CF; reusing the same nebs over and over for my daughter. She did listen and said they would make changes. Even called us when we were home (I must have really thrown a nutty). I hope they did make those changes; but we haven't been back there since(knock on wood and everything else) Squeaky wheel gets the grease... I think it would be hard for me to let another nurse give my daughter her meds and nebs...since I do it day in day out and could do it in my sleep.

 

[Rebjane]

I'm sorry Grayson has to go through all that. Definately voice your concerns. Perfume should not be worn in the hospital period by any staff member. We have had a few bad experiences in the hospital; as well as some good. Things tend not to move quickly in a hospital, unless it is an emergency. Too much paperwork and not enough nurses. When Maggie was 2 1/2 she had to have nothing by mouth for a bronchoscopy...Nothing after midnight..Her bronch did not get done until 5pm the next day..By the time they took her she was dehydrated and I wanted her to get IV fluid. They kept delaying her bronch for more emergent cases. I finally had to throw a tantrum and demand her to go next; I got the head of pulmonary up on the floor(her MD at the time) and hmmm she went for her bronch within 10 minutes. That was a bad experience and I spoke with the nurse manager and voiced my many concerns...lack of knowledge of CF; reusing the same nebs over and over for my daughter. She did listen and said they would make changes. Even called us when we were home (I must have really thrown a nutty). I hope they did make those changes; but we haven't been back there since(knock on wood and everything else) Squeaky wheel gets the grease... I think it would be hard for me to let another nurse give my daughter her meds and nebs...since I do it day in day out and could do it in my sleep.

 

[Ratatosk]

When DS was hospitalized at the local hospital a day after being sprung from Childrens, DH's cousin who was then a pharmacist there warned us to bring our own meds -- indicated they'd probably try to give DS generic enzymes -- YIKES. We brought everything except the duoneb, which meant we were at the mercy of the RTs, who'd fail to show up a lot of times Ugh.

 

[Ratatosk]

When DS was hospitalized at the local hospital a day after being sprung from Childrens, DH's cousin who was then a pharmacist there warned us to bring our own meds -- indicated they'd probably try to give DS generic enzymes -- YIKES. We brought everything except the duoneb, which meant we were at the mercy of the RTs, who'd fail to show up a lot of times Ugh.

 

[Ratatosk]

When DS was hospitalized at the local hospital a day after being sprung from Childrens, DH's cousin who was then a pharmacist there warned us to bring our own meds -- indicated they'd probably try to give DS generic enzymes -- YIKES. We brought everything except the duoneb, which meant we were at the mercy of the RTs, who'd fail to show up a lot of times Ugh.

 

[Ratatosk]

When DS was hospitalized at the local hospital a day after being sprung from Childrens, DH's cousin who was then a pharmacist there warned us to bring our own meds -- indicated they'd probably try to give DS generic enzymes -- YIKES. We brought everything except the duoneb, which meant we were at the mercy of the RTs, who'd fail to show up a lot of times Ugh.

 

[Ratatosk]

When DS was hospitalized at the local hospital a day after being sprung from Childrens, DH's cousin who was then a pharmacist there warned us to bring our own meds -- indicated they'd probably try to give DS generic enzymes -- YIKES. We brought everything except the duoneb, which meant we were at the mercy of the RTs, who'd fail to show up a lot of times Ugh.