How are you treating your MRSA?

[joeytsmom]

My son (11 yrs) has had colonized mrsa in high levels for years now. We were told "oh we don't treat that" but Joey was SICK whenever it would rare up. He'd get worse cough, congestion, decreased energy, low apetite, etc. He'd go on zyvox (pill form) for 2 weeks, feel a little better, then go back to a sick little kid. It sucked.
<br />
<br />He was hospitalized for 2 weeks last March and had iv antibiotics, seemed to help but a few months later, symptoms were back.
<br />
<br />Now instead of Tobi, which the body can build up immunity, another CF parent from a different part of the country said they were using Gentamicin, an inhaled antibiotic not much used with cf any longer. We tried it and it's been like a miracle drug for Joey. He has a vial each morning through the nebulizer and pulmozyme at night. The symptoms disappeared, coughing almost entirely gone and his latest sputum cultures showed FEW mrsa as he's been way over many for years. YAY! His dr said he's not putting other patients on gentamicin. It's not supposed to be irritating or lose potency. Not supposed to build up immunity. Ask your dr about it. It couldn't hurt!

 

[travlinuf]

Has anyone ever heard of Colloidal Silver to treat MRSA in CF kids? My 2 yr old just cultured MRSA for the first time and a friend said she had luck with Colloidal Silver orally in her teenage CFer. I was unsure of the dose to give her and even if it is safe for her size. This is our first set back on a relatively smooth sail since she was born. We got PA last month and treated it woith TOBI, then on the follow up culture found both PA and MRSA. I want to do whatever I can do to get rid of this, but be safe for her. We are now doing 3x/day TOBI, Cipro 2x/day, Bactrim 2x/day in a 3 week on 2 week off cycle.

 

[travlinuf]

Has anyone ever heard of Colloidal Silver to treat MRSA in CF kids? My 2 yr old just cultured MRSA for the first time and a friend said she had luck with Colloidal Silver orally in her teenage CFer. I was unsure of the dose to give her and even if it is safe for her size. This is our first set back on a relatively smooth sail since she was born. We got PA last month and treated it woith TOBI, then on the follow up culture found both PA and MRSA. I want to do whatever I can do to get rid of this, but be safe for her. We are now doing 3x/day TOBI, Cipro 2x/day, Bactrim 2x/day in a 3 week on 2 week off cycle.

 

[travlinuf]

Has anyone ever heard of Colloidal Silver to treat MRSA in CF kids? My 2 yr old just cultured MRSA for the first time and a friend said she had luck with Colloidal Silver orally in her teenage CFer. I was unsure of the dose to give her and even if it is safe for her size. This is our first set back on a relatively smooth sail since she was born. We got PA last month and treated it woith TOBI, then on the follow up culture found both PA and MRSA. I want to do whatever I can do to get rid of this, but be safe for her. We are now doing 3x/day TOBI, Cipro 2x/day, Bactrim 2x/day in a 3 week on 2 week off cycle.

 

[sunshine5637]

I'm sorry to sound completely stupid, but is MRSA? Also, I'm assuming by PA you are meaning the pseudomonas? Isn't this the same as burkholder cepacia?

 

[sunshine5637]

I'm sorry to sound completely stupid, but is MRSA? Also, I'm assuming by PA you are meaning the pseudomonas? Isn't this the same as burkholder cepacia?

 

[sunshine5637]

I'm sorry to sound completely stupid, but is MRSA? Also, I'm assuming by PA you are meaning the pseudomonas? Isn't this the same as burkholder cepacia?

 

[travlinuf]

Hey sorry, yes MRSA (meth resistant staph) and PA (pseudomonas) , no B. Cepacia is another bug.  The silver was to treat the MRSA. I have read lots about it being beneficial on the skin , but not much on CF and in the lungs. ANy thoughts? 

 

[travlinuf]

Hey sorry, yes MRSA (meth resistant staph) and PA (pseudomonas) , no B. Cepacia is another bug. The silver was to treat the MRSA. I have read lots about it being beneficial on the skin , but not much on CF and in the lungs. ANy thoughts?

 

[travlinuf]

<BR>Hey sorry, yes MRSA (meth resistant staph) and PA (pseudomonas) , no B. Cepacia is another bug. The silver was to treat the MRSA. I have read lots about it being beneficial on the skin , but not much on CF and in the lungs. ANy thoughts?

 

[AleksandraKaczynska]

Hi, I wrote about this before --- try Flavon Green with flavon Kids or Max
But there seems to be a problem with selling the product to U.S. - I'm trying to get an awesere how this can be done and I'll give you a link.
It may help to get MRSA out - however it's not an atibiotic - just vegtebles nad friuts - flavonoids - but if possible - try - it helped others since it's common to get MRSA here in hospitals...
http://www.ncbi.nlm.nih.gov/pubmed/15325425
and
http://www.flavonmax.com/en/flavongreen
I'm sending this page cause it's been translated - but I'm asking some other distributor about selling to U.S
Aslo maybe try asking the producer.

 

[AleksandraKaczynska]

Hi, I wrote about this before --- try Flavon Green with flavon Kids or Max
But there seems to be a problem with selling the product to U.S. - I'm trying to get an awesere how this can be done and I'll give you a link.
It may help to get MRSA out - however it's not an atibiotic - just vegtebles nad friuts - flavonoids - but if possible - try - it helped others since it's common to get MRSA here in hospitals...
http://www.ncbi.nlm.nih.gov/pubmed/15325425
and
http://www.flavonmax.com/en/flavongreen
I'm sending this page cause it's been translated - but I'm asking some other distributor about selling to U.S
Aslo maybe try asking the producer.

 

[AleksandraKaczynska]

Hi, I wrote about this before --- try Flavon Green with flavon Kids or Max
<br />But there seems to be a problem with selling the product to U.S. - I'm trying to get an awesere how this can be done and I'll give you a link.
<br />It may help to get MRSA out - however it's not an atibiotic - just vegtebles nad friuts - flavonoids - but if possible - try - it helped others since it's common to get MRSA here in hospitals...
<br />http://www.ncbi.nlm.nih.gov/pubmed/15325425
<br />and
<br />http://www.flavonmax.com/en/flavongreen
<br />I'm sending this page cause it's been translated - but I'm asking some other distributor about selling to U.S
<br />Aslo maybe try asking the producer.
<br />
<br />

 

[randmel89]

I have MRSA at every suptum culture in high range. I never get treated for it unless I am sick then I have to have IV's of Zoyson (sp?) or if my dr feels like it I will go on Doxycycline 100mg for a month and this is by mouth.

 

[randmel89]

I have MRSA at every suptum culture in high range. I never get treated for it unless I am sick then I have to have IV's of Zoyson (sp?) or if my dr feels like it I will go on Doxycycline 100mg for a month and this is by mouth.

 

[randmel89]

I have MRSA at every suptum culture in high range. I never get treated for it unless I am sick then I have to have IV's of Zoyson (sp?) or if my dr feels like it I will go on Doxycycline 100mg for a month and this is by mouth.

 

[AugieDoggie]

My daughter has recently been diagnosed a 2nd time with MRSA. Reading your post Piper's mom, you stated "red man X 10". Could I please ask if that was a reaction or what you're referring to? May be a silly question. But my daughter had a reaction when younger that made her skin completely red and skin hot and nobody knew why. Wondering if there's a connection.

 

[JENNYC]

Red Man is a reaction to the vancomycin. Most of the time is just turns you red and makes you itch and they treat with Benedryl before giving you the vancomycin. But it sound like they had a really really bad reaction. I also read further up about the Gentomycin and my Dr told me that Gentomycin is bad about hearing loss. Just wanted to throw that out there. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[pipersmom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AugieDoggie</b></i> My daughter has recently been diagnosed a 2nd time with MRSA. Reading your post Piper's mom, you stated "red man X 10". Could I please ask if that was a reaction or what you're referring to? May be a silly question. But my daughter had a reaction when younger that made her skin completely red and skin hot and nobody knew why. Wondering if there's a connection. </end quote>
Sorry for the late reply, I don't get here as often as I should <img src="i/expressions/face-icon-small-smile.gif" border="0"> The first time Piper was put on vanc, within probably ten minutes she had a rash and hives literally ALL over her body. It was horrible. We avoided it successfully for a while, but her Dr was never convinced it was an allergic reaction, so when she was inpatient about six months later, they decided to bubble test her. No real reaction to the bubble test, we were all kind of excited. They started infusing at the slowest possible rate, and literally within 5 minutes she had huge (think dinner plate sized), raised welts on her chest, thighs and arms. They still won't say it's an allergy per se, but it's definitely not just red man's either. It sounds like the reaction your daughter had was red man's, but I'm surprised the Drs didn't pick up on it as it's a fairly common reaction to vanc. Hope this helped.

 

[Havoc]

<div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>travlinuf</strong></em> Has anyone ever heard of Colloidal Silver to treat MRSA in CF kids? My 2 yr old just cultured MRSA for the first time and a friend said she had luck with Colloidal Silver orally in her teenage CFer. I was unsure of the dose to give her and even if it is safe for her size. This is our first set back on a relatively smooth sail since she was born. We got PA last month and treated it woith TOBI, then on the follow up culture found both PA and MRSA. I want to do whatever I can do to get rid of this, but be safe for her. We are now doing 3x/day TOBI, Cipro 2x/day, Bactrim 2x/day in a 3 week on 2 week off cycle.</end quote>

A few have an none have seen results that I know of. Furthermore it seems that there is quite an element of danger involved.

Refer to this thread:
http://forums.cysticfibrosis.com/messageview.cfm?catid=4140&threadid=57629