How do you deal with bad news

ktsmom · Jul 9, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: jacksmom

My dentist knows all about Jack and when I told her about his liver she almost started crying. I felt like giving her a hug and telling her that it would be all right.

Carey</end quote></div>

Yes, isn't it strange to be comforting someone else about your own situation. We get that a lot, too. It's like the person glazes over and we know that we need to stop talking about it because they can't handle it.

I'm so glad to hear that you've processed the transplant stuff and are in a better place. Here's hoping that it won't happen for a long, long time! Hugs!

ktsmom · Jul 9, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: jacksmom

My dentist knows all about Jack and when I told her about his liver she almost started crying. I felt like giving her a hug and telling her that it would be all right.

Carey</end quote></div>

Yes, isn't it strange to be comforting someone else about your own situation. We get that a lot, too. It's like the person glazes over and we know that we need to stop talking about it because they can't handle it.

I'm so glad to hear that you've processed the transplant stuff and are in a better place. Here's hoping that it won't happen for a long, long time! Hugs!

ktsmom · Jul 9, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: jacksmom

My dentist knows all about Jack and when I told her about his liver she almost started crying. I felt like giving her a hug and telling her that it would be all right.

Carey</end quote></div>

Yes, isn't it strange to be comforting someone else about your own situation. We get that a lot, too. It's like the person glazes over and we know that we need to stop talking about it because they can't handle it.

I'm so glad to hear that you've processed the transplant stuff and are in a better place. Here's hoping that it won't happen for a long, long time! Hugs!

ktsmom · Jul 9, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: jacksmom

My dentist knows all about Jack and when I told her about his liver she almost started crying. I felt like giving her a hug and telling her that it would be all right.

Carey</end quote>

Yes, isn't it strange to be comforting someone else about your own situation. We get that a lot, too. It's like the person glazes over and we know that we need to stop talking about it because they can't handle it.

I'm so glad to hear that you've processed the transplant stuff and are in a better place. Here's hoping that it won't happen for a long, long time! Hugs!

ktsmom · Jul 9, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: jacksmom
 
 My dentist knows all about Jack and when I told her about his liver she almost started crying. I felt like giving her a hug and telling her that it would be all right.
 
 
 Carey</end quote>
 
 Yes, isn't it strange to be comforting someone else about your own situation. We get that a lot, too. It's like the person glazes over and we know that we need to stop talking about it because they can't handle it.
 
 I'm so glad to hear that you've processed the transplant stuff and are in a better place. Here's hoping that it won't happen for a long, long time! Hugs!

JORDANSMOM · Jul 11, 2008

I know that you will be just fine. I've been there. My son was diagnosed in 1996 @ 5months and in 2006 he had his liver transplant. i also couldn't let my emotions show because I felt that I had to be strong for everyone else. for him, my other 2 children and my husband. I held it for a long time until I found myself alone one day and it seemed like the dam just broke and it all came out and that was the best release. I never wanted himto see me break I felt as though I needed to stay strong and positive for him and if he saw me break down he would. So just know that you are not alone. Stay prayerful and everything will be o.k.

~JordansMom~

JORDANSMOM · Jul 11, 2008

I know that you will be just fine. I've been there. My son was diagnosed in 1996 @ 5months and in 2006 he had his liver transplant. i also couldn't let my emotions show because I felt that I had to be strong for everyone else. for him, my other 2 children and my husband. I held it for a long time until I found myself alone one day and it seemed like the dam just broke and it all came out and that was the best release. I never wanted himto see me break I felt as though I needed to stay strong and positive for him and if he saw me break down he would. So just know that you are not alone. Stay prayerful and everything will be o.k.

~JordansMom~

JORDANSMOM · Jul 11, 2008

I know that you will be just fine. I've been there. My son was diagnosed in 1996 @ 5months and in 2006 he had his liver transplant. i also couldn't let my emotions show because I felt that I had to be strong for everyone else. for him, my other 2 children and my husband. I held it for a long time until I found myself alone one day and it seemed like the dam just broke and it all came out and that was the best release. I never wanted himto see me break I felt as though I needed to stay strong and positive for him and if he saw me break down he would. So just know that you are not alone. Stay prayerful and everything will be o.k.

~JordansMom~

JORDANSMOM · Jul 11, 2008

I know that you will be just fine. I've been there. My son was diagnosed in 1996 @ 5months and in 2006 he had his liver transplant. i also couldn't let my emotions show because I felt that I had to be strong for everyone else. for him, my other 2 children and my husband. I held it for a long time until I found myself alone one day and it seemed like the dam just broke and it all came out and that was the best release. I never wanted himto see me break I felt as though I needed to stay strong and positive for him and if he saw me break down he would. So just know that you are not alone. Stay prayerful and everything will be o.k.

~JordansMom~

JORDANSMOM · Jul 11, 2008

I know that you will be just fine. I've been there. My son was diagnosed in 1996 @ 5months and in 2006 he had his liver transplant. i also couldn't let my emotions show because I felt that I had to be strong for everyone else. for him, my other 2 children and my husband. I held it for a long time until I found myself alone one day and it seemed like the dam just broke and it all came out and that was the best release. I never wanted himto see me break I felt as though I needed to stay strong and positive for him and if he saw me break down he would. So just know that you are not alone. Stay prayerful and everything will be o.k.
 
 ~JordansMom~

TestifyToLove · Jul 11, 2008

They determined our son would require a liver transplant by the time he was 3 months of age. He's now 6 and his Heptalogit is saying we're not even close right now. He does have portal hypertension. And, according to u/s, he already has some varices present. But, his liver enzymes haven't risen in over 2.5 years right now. They just tested him again 3 weeks ago because he's having serious issues metabolizing his vitamins and thus having bruising issues. But, they feel its coming from malabsorption and not his liver at this point.

We've done a lot of research and our Children's hospital is a front runner in doing ABO incapabtible liver transplants. We are not genetically related to our ds. However, Ds and Dh both have O+. Because they require less markers fo livers than other organs its extremely likely DH will be able to be a living donor to Ds. My biggest fear was would a liver come available when he finally needs one. Knowing we have a possible living donor gives me great comfort.

I do sometimes get overwhelmed when I think about how we're going to juggle the family and hospitalization process when the day comes. But, I remind myself that we're not there yet. And we don't know what the future will hold for us.

I think my biggest struggle is knowing that liver failure has a great deal of discomfort and disintegration of the person's health before they finally reach the point of a transplant. I would do anything to spare this child anymore suffering in his life. But, all I can do is stand firm to be there and support him when his liver starts to progress towards transplant and it will do so.

TestifyToLove · Jul 11, 2008

They determined our son would require a liver transplant by the time he was 3 months of age. He's now 6 and his Heptalogit is saying we're not even close right now. He does have portal hypertension. And, according to u/s, he already has some varices present. But, his liver enzymes haven't risen in over 2.5 years right now. They just tested him again 3 weeks ago because he's having serious issues metabolizing his vitamins and thus having bruising issues. But, they feel its coming from malabsorption and not his liver at this point.

We've done a lot of research and our Children's hospital is a front runner in doing ABO incapabtible liver transplants. We are not genetically related to our ds. However, Ds and Dh both have O+. Because they require less markers fo livers than other organs its extremely likely DH will be able to be a living donor to Ds. My biggest fear was would a liver come available when he finally needs one. Knowing we have a possible living donor gives me great comfort.

I do sometimes get overwhelmed when I think about how we're going to juggle the family and hospitalization process when the day comes. But, I remind myself that we're not there yet. And we don't know what the future will hold for us.

I think my biggest struggle is knowing that liver failure has a great deal of discomfort and disintegration of the person's health before they finally reach the point of a transplant. I would do anything to spare this child anymore suffering in his life. But, all I can do is stand firm to be there and support him when his liver starts to progress towards transplant and it will do so.

TestifyToLove · Jul 11, 2008

They determined our son would require a liver transplant by the time he was 3 months of age. He's now 6 and his Heptalogit is saying we're not even close right now. He does have portal hypertension. And, according to u/s, he already has some varices present. But, his liver enzymes haven't risen in over 2.5 years right now. They just tested him again 3 weeks ago because he's having serious issues metabolizing his vitamins and thus having bruising issues. But, they feel its coming from malabsorption and not his liver at this point.

We've done a lot of research and our Children's hospital is a front runner in doing ABO incapabtible liver transplants. We are not genetically related to our ds. However, Ds and Dh both have O+. Because they require less markers fo livers than other organs its extremely likely DH will be able to be a living donor to Ds. My biggest fear was would a liver come available when he finally needs one. Knowing we have a possible living donor gives me great comfort.

I do sometimes get overwhelmed when I think about how we're going to juggle the family and hospitalization process when the day comes. But, I remind myself that we're not there yet. And we don't know what the future will hold for us.

I think my biggest struggle is knowing that liver failure has a great deal of discomfort and disintegration of the person's health before they finally reach the point of a transplant. I would do anything to spare this child anymore suffering in his life. But, all I can do is stand firm to be there and support him when his liver starts to progress towards transplant and it will do so.

TestifyToLove · Jul 11, 2008

They determined our son would require a liver transplant by the time he was 3 months of age. He's now 6 and his Heptalogit is saying we're not even close right now. He does have portal hypertension. And, according to u/s, he already has some varices present. But, his liver enzymes haven't risen in over 2.5 years right now. They just tested him again 3 weeks ago because he's having serious issues metabolizing his vitamins and thus having bruising issues. But, they feel its coming from malabsorption and not his liver at this point.

We've done a lot of research and our Children's hospital is a front runner in doing ABO incapabtible liver transplants. We are not genetically related to our ds. However, Ds and Dh both have O+. Because they require less markers fo livers than other organs its extremely likely DH will be able to be a living donor to Ds. My biggest fear was would a liver come available when he finally needs one. Knowing we have a possible living donor gives me great comfort.

I do sometimes get overwhelmed when I think about how we're going to juggle the family and hospitalization process when the day comes. But, I remind myself that we're not there yet. And we don't know what the future will hold for us.

I think my biggest struggle is knowing that liver failure has a great deal of discomfort and disintegration of the person's health before they finally reach the point of a transplant. I would do anything to spare this child anymore suffering in his life. But, all I can do is stand firm to be there and support him when his liver starts to progress towards transplant and it will do so.

TestifyToLove · Jul 11, 2008

They determined our son would require a liver transplant by the time he was 3 months of age. He's now 6 and his Heptalogit is saying we're not even close right now. He does have portal hypertension. And, according to u/s, he already has some varices present. But, his liver enzymes haven't risen in over 2.5 years right now. They just tested him again 3 weeks ago because he's having serious issues metabolizing his vitamins and thus having bruising issues. But, they feel its coming from malabsorption and not his liver at this point.
 
 We've done a lot of research and our Children's hospital is a front runner in doing ABO incapabtible liver transplants. We are not genetically related to our ds. However, Ds and Dh both have O+. Because they require less markers fo livers than other organs its extremely likely DH will be able to be a living donor to Ds. My biggest fear was would a liver come available when he finally needs one. Knowing we have a possible living donor gives me great comfort.
 
 I do sometimes get overwhelmed when I think about how we're going to juggle the family and hospitalization process when the day comes. But, I remind myself that we're not there yet. And we don't know what the future will hold for us.
 
 I think my biggest struggle is knowing that liver failure has a great deal of discomfort and disintegration of the person's health before they finally reach the point of a transplant. I would do anything to spare this child anymore suffering in his life. But, all I can do is stand firm to be there and support him when his liver starts to progress towards transplant and it will do so.

froggymama · Jul 16, 2008

Carey, I'm sorry you have to deal with this.

I too feel like people's reactions are overwhelming. We have some friends who see our daughter as completely healthy and act like nothing's wrong. And I want to say, "You have no idea how hard it is to KEEP her healthy, and even then we have no control." And sometimes when I tell someone new that our daughter has CF and they almost start to cry, I want to shout,"She's going to be fine, don't pity us!" There are so many contradictory emotions involved. We want emphathy without the sympathy, that's how I've deciphered it. I wish the best for you and your son. Take care. Elise

froggymama · Jul 16, 2008

Carey, I'm sorry you have to deal with this.

I too feel like people's reactions are overwhelming. We have some friends who see our daughter as completely healthy and act like nothing's wrong. And I want to say, "You have no idea how hard it is to KEEP her healthy, and even then we have no control." And sometimes when I tell someone new that our daughter has CF and they almost start to cry, I want to shout,"She's going to be fine, don't pity us!" There are so many contradictory emotions involved. We want emphathy without the sympathy, that's how I've deciphered it. I wish the best for you and your son. Take care. Elise

froggymama · Jul 16, 2008

Carey, I'm sorry you have to deal with this.

I too feel like people's reactions are overwhelming. We have some friends who see our daughter as completely healthy and act like nothing's wrong. And I want to say, "You have no idea how hard it is to KEEP her healthy, and even then we have no control." And sometimes when I tell someone new that our daughter has CF and they almost start to cry, I want to shout,"She's going to be fine, don't pity us!" There are so many contradictory emotions involved. We want emphathy without the sympathy, that's how I've deciphered it. I wish the best for you and your son. Take care. Elise

froggymama · Jul 16, 2008

Carey, I'm sorry you have to deal with this.

I too feel like people's reactions are overwhelming. We have some friends who see our daughter as completely healthy and act like nothing's wrong. And I want to say, "You have no idea how hard it is to KEEP her healthy, and even then we have no control." And sometimes when I tell someone new that our daughter has CF and they almost start to cry, I want to shout,"She's going to be fine, don't pity us!" There are so many contradictory emotions involved. We want emphathy without the sympathy, that's how I've deciphered it. I wish the best for you and your son. Take care. Elise

froggymama · Jul 16, 2008

Carey, I'm sorry you have to deal with this.
 
 I too feel like people's reactions are overwhelming. We have some friends who see our daughter as completely healthy and act like nothing's wrong. And I want to say, "You have no idea how hard it is to KEEP her healthy, and even then we have no control." And sometimes when I tell someone new that our daughter has CF and they almost start to cry, I want to shout,"She's going to be fine, don't pity us!" There are so many contradictory emotions involved. We want emphathy without the sympathy, that's how I've deciphered it. I wish the best for you and your son. Take care. Elise

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