fondreflections
New member
I'm not depressed or anything, but I would like your input...
Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.
Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.
Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...
Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:
1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.
2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.
3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.
What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?
Thank you, <img src="i/expressions/heart.gif" border="0">
Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.
Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.
Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...
Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:
1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.
2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.
3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.
What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?
Thank you, <img src="i/expressions/heart.gif" border="0">