How do you feel about all the medications that prolong your life?

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bittyhorse23

New member
Interesting topic....

I don't see the medications as prolonging my life. Yes I KNOW they do but I see it as more a way to actually LIVE my life. While I know they add some years to me and I know without them I would be dead right now, I don't think of it that way. I guess I am more of the here and now type and I see it as if I don't do my nebs now I can't breathe now. I don't see it as sustaining me longer. Well not on a conscious level anyhow.

A few years ago I decided I no longer wanted to live like this. I decided to stop taking my abx and just do my nebs so I could breathe. I didn't do the vest either. Just nebs and enzymes because to me they are a comfort med. I obviously have changed my tune and now I do everything...well just about <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do my treatments and I am faithful because: I NEED to do them to actually function otherwise I would be laying in a bed all day trying just to breathe.

If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer it is how we use them. You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.

So maybe it is really US who prolongs our lives and not the meds?

SO went off course didn't I? LOL!!!!

Hope no one is confused after reading that!!! I just sat in rush hour traffic for over an hour so my brain is fried <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Interesting topic....

I don't see the medications as prolonging my life. Yes I KNOW they do but I see it as more a way to actually LIVE my life. While I know they add some years to me and I know without them I would be dead right now, I don't think of it that way. I guess I am more of the here and now type and I see it as if I don't do my nebs now I can't breathe now. I don't see it as sustaining me longer. Well not on a conscious level anyhow.

A few years ago I decided I no longer wanted to live like this. I decided to stop taking my abx and just do my nebs so I could breathe. I didn't do the vest either. Just nebs and enzymes because to me they are a comfort med. I obviously have changed my tune and now I do everything...well just about <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do my treatments and I am faithful because: I NEED to do them to actually function otherwise I would be laying in a bed all day trying just to breathe.

If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer it is how we use them. You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.

So maybe it is really US who prolongs our lives and not the meds?

SO went off course didn't I? LOL!!!!

Hope no one is confused after reading that!!! I just sat in rush hour traffic for over an hour so my brain is fried <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Interesting topic....

I don't see the medications as prolonging my life. Yes I KNOW they do but I see it as more a way to actually LIVE my life. While I know they add some years to me and I know without them I would be dead right now, I don't think of it that way. I guess I am more of the here and now type and I see it as if I don't do my nebs now I can't breathe now. I don't see it as sustaining me longer. Well not on a conscious level anyhow.

A few years ago I decided I no longer wanted to live like this. I decided to stop taking my abx and just do my nebs so I could breathe. I didn't do the vest either. Just nebs and enzymes because to me they are a comfort med. I obviously have changed my tune and now I do everything...well just about <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do my treatments and I am faithful because: I NEED to do them to actually function otherwise I would be laying in a bed all day trying just to breathe.

If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer it is how we use them. You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.

So maybe it is really US who prolongs our lives and not the meds?

SO went off course didn't I? LOL!!!!

Hope no one is confused after reading that!!! I just sat in rush hour traffic for over an hour so my brain is fried <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Interesting topic....

I don't see the medications as prolonging my life. Yes I KNOW they do but I see it as more a way to actually LIVE my life. While I know they add some years to me and I know without them I would be dead right now, I don't think of it that way. I guess I am more of the here and now type and I see it as if I don't do my nebs now I can't breathe now. I don't see it as sustaining me longer. Well not on a conscious level anyhow.

A few years ago I decided I no longer wanted to live like this. I decided to stop taking my abx and just do my nebs so I could breathe. I didn't do the vest either. Just nebs and enzymes because to me they are a comfort med. I obviously have changed my tune and now I do everything...well just about <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do my treatments and I am faithful because: I NEED to do them to actually function otherwise I would be laying in a bed all day trying just to breathe.

If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer it is how we use them. You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.

So maybe it is really US who prolongs our lives and not the meds?

SO went off course didn't I? LOL!!!!

Hope no one is confused after reading that!!! I just sat in rush hour traffic for over an hour so my brain is fried <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bittyhorse23

New member
Interesting topic....

I don't see the medications as prolonging my life. Yes I KNOW they do but I see it as more a way to actually LIVE my life. While I know they add some years to me and I know without them I would be dead right now, I don't think of it that way. I guess I am more of the here and now type and I see it as if I don't do my nebs now I can't breathe now. I don't see it as sustaining me longer. Well not on a conscious level anyhow.

A few years ago I decided I no longer wanted to live like this. I decided to stop taking my abx and just do my nebs so I could breathe. I didn't do the vest either. Just nebs and enzymes because to me they are a comfort med. I obviously have changed my tune and now I do everything...well just about <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do my treatments and I am faithful because: I NEED to do them to actually function otherwise I would be laying in a bed all day trying just to breathe.

If you think about it, if the meds really sustained us then why we would all of a sudden just stop responding? Why would our FEV1 go down, why would it take so much more effort to get the junk out? And going with that, the meds don't make us live longer it is how we use them. You can do your nebs and stop there, but if you don't get the garbage out then you really didn't help yourself. All you did was open the airways to allow more gunk in or allow more air to get behind the gunk and stay trapped.

So maybe it is really US who prolongs our lives and not the meds?

SO went off course didn't I? LOL!!!!

Hope no one is confused after reading that!!! I just sat in rush hour traffic for over an hour so my brain is fried <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
X

xosder22

Member
<q><i>Originally posted by: <b>Skye</b></i>
it's not about buying a honkin big flat screen tv</q>

yeah but that big honkin flat screen sure keeps me occupied during my treatments <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
X

xosder22

Member
<q><i>Originally posted by: <b>Skye</b></i>
it's not about buying a honkin big flat screen tv</q>

yeah but that big honkin flat screen sure keeps me occupied during my treatments <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
X

xosder22

Member
<q><i>Originally posted by: <b>Skye</b></i>
it's not about buying a honkin big flat screen tv</q>

yeah but that big honkin flat screen sure keeps me occupied during my treatments <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
X

xosder22

Member
<q><i>Originally posted by: <b>Skye</b></i>
it's not about buying a honkin big flat screen tv</q>

yeah but that big honkin flat screen sure keeps me occupied during my treatments <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
X

xosder22

Member
<q><i>Originally posted by: <b>Skye</b></i>
it's not about buying a honkin big flat screen tv</q>

yeah but that big honkin flat screen sure keeps me occupied during my treatments <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

LisaV

New member
Boy I wish Rip was still alive so he could post in this thread.
I know for years he was extremely grateful for all of the meds and treatments that kept him alive. I know he signed up to be a guieney pig for every new thing the minute it came up. I also know at the end after being basically bedbound for a couple of years that he chose not to have a lung transplant and to only do the medications that actually brought him daily comfort.

I also know he carried the prayer of St. Francis with him and spent his life serving others:
THE PRAYER OF ST. FRANCIS

Lord, make me a channel of thy peace,
that where there is hatred, I may bring love;
that where there is wrong, I may bring the spirit of forgiveness;
that where there is discord, I may bring harmony;
that where there is error, I may bring truth;
that where there is doubt, I may bring faith;
that where there is despair, I may bring hope;
that where there are shadows, I may bring light;
that where there is sadness, I may bring joy.
Lord, grant that I may seek rather to comfort than to be comforted;
to understand, than to be understood;
to love, than to be loved.
For it is by self-forgetting that one finds.
It is by forgiving that one is forgiven.
It is by dying that one awakens to Eternal Life.

And that he often quoted this from Viktor Frankl:

"What we need is a fundamental change in our attitude toward life. We need to learn that...it does not really matter what we expect from life, but rather what life expects of us. We need to stop asking about the meaning of life, and instead to think of ourselves as those who are being questioned by life - daily and hourly. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks it constantly sets for each individual."- Viictor Frankl, writing about his fellow residents in the concentration camps (paraphrase)

Perhaps from that information, those of you who are living a life similar to his can intuit what he would post if he could.

Peace my friends,
LisaV
 
L

LisaV

New member
Boy I wish Rip was still alive so he could post in this thread.
I know for years he was extremely grateful for all of the meds and treatments that kept him alive. I know he signed up to be a guieney pig for every new thing the minute it came up. I also know at the end after being basically bedbound for a couple of years that he chose not to have a lung transplant and to only do the medications that actually brought him daily comfort.

I also know he carried the prayer of St. Francis with him and spent his life serving others:
THE PRAYER OF ST. FRANCIS

Lord, make me a channel of thy peace,
that where there is hatred, I may bring love;
that where there is wrong, I may bring the spirit of forgiveness;
that where there is discord, I may bring harmony;
that where there is error, I may bring truth;
that where there is doubt, I may bring faith;
that where there is despair, I may bring hope;
that where there are shadows, I may bring light;
that where there is sadness, I may bring joy.
Lord, grant that I may seek rather to comfort than to be comforted;
to understand, than to be understood;
to love, than to be loved.
For it is by self-forgetting that one finds.
It is by forgiving that one is forgiven.
It is by dying that one awakens to Eternal Life.

And that he often quoted this from Viktor Frankl:

"What we need is a fundamental change in our attitude toward life. We need to learn that...it does not really matter what we expect from life, but rather what life expects of us. We need to stop asking about the meaning of life, and instead to think of ourselves as those who are being questioned by life - daily and hourly. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks it constantly sets for each individual."- Viictor Frankl, writing about his fellow residents in the concentration camps (paraphrase)

Perhaps from that information, those of you who are living a life similar to his can intuit what he would post if he could.

Peace my friends,
LisaV
 
L

LisaV

New member
Boy I wish Rip was still alive so he could post in this thread.
I know for years he was extremely grateful for all of the meds and treatments that kept him alive. I know he signed up to be a guieney pig for every new thing the minute it came up. I also know at the end after being basically bedbound for a couple of years that he chose not to have a lung transplant and to only do the medications that actually brought him daily comfort.

I also know he carried the prayer of St. Francis with him and spent his life serving others:
THE PRAYER OF ST. FRANCIS

Lord, make me a channel of thy peace,
that where there is hatred, I may bring love;
that where there is wrong, I may bring the spirit of forgiveness;
that where there is discord, I may bring harmony;
that where there is error, I may bring truth;
that where there is doubt, I may bring faith;
that where there is despair, I may bring hope;
that where there are shadows, I may bring light;
that where there is sadness, I may bring joy.
Lord, grant that I may seek rather to comfort than to be comforted;
to understand, than to be understood;
to love, than to be loved.
For it is by self-forgetting that one finds.
It is by forgiving that one is forgiven.
It is by dying that one awakens to Eternal Life.

And that he often quoted this from Viktor Frankl:

"What we need is a fundamental change in our attitude toward life. We need to learn that...it does not really matter what we expect from life, but rather what life expects of us. We need to stop asking about the meaning of life, and instead to think of ourselves as those who are being questioned by life - daily and hourly. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks it constantly sets for each individual."- Viictor Frankl, writing about his fellow residents in the concentration camps (paraphrase)

Perhaps from that information, those of you who are living a life similar to his can intuit what he would post if he could.

Peace my friends,
LisaV
 
L

LisaV

New member
Boy I wish Rip was still alive so he could post in this thread.
I know for years he was extremely grateful for all of the meds and treatments that kept him alive. I know he signed up to be a guieney pig for every new thing the minute it came up. I also know at the end after being basically bedbound for a couple of years that he chose not to have a lung transplant and to only do the medications that actually brought him daily comfort.

I also know he carried the prayer of St. Francis with him and spent his life serving others:
THE PRAYER OF ST. FRANCIS

Lord, make me a channel of thy peace,
that where there is hatred, I may bring love;
that where there is wrong, I may bring the spirit of forgiveness;
that where there is discord, I may bring harmony;
that where there is error, I may bring truth;
that where there is doubt, I may bring faith;
that where there is despair, I may bring hope;
that where there are shadows, I may bring light;
that where there is sadness, I may bring joy.
Lord, grant that I may seek rather to comfort than to be comforted;
to understand, than to be understood;
to love, than to be loved.
For it is by self-forgetting that one finds.
It is by forgiving that one is forgiven.
It is by dying that one awakens to Eternal Life.

And that he often quoted this from Viktor Frankl:

"What we need is a fundamental change in our attitude toward life. We need to learn that...it does not really matter what we expect from life, but rather what life expects of us. We need to stop asking about the meaning of life, and instead to think of ourselves as those who are being questioned by life - daily and hourly. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks it constantly sets for each individual."- Viictor Frankl, writing about his fellow residents in the concentration camps (paraphrase)

Perhaps from that information, those of you who are living a life similar to his can intuit what he would post if he could.

Peace my friends,
LisaV
 
L

LisaV

New member
Boy I wish Rip was still alive so he could post in this thread.
I know for years he was extremely grateful for all of the meds and treatments that kept him alive. I know he signed up to be a guieney pig for every new thing the minute it came up. I also know at the end after being basically bedbound for a couple of years that he chose not to have a lung transplant and to only do the medications that actually brought him daily comfort.

I also know he carried the prayer of St. Francis with him and spent his life serving others:
THE PRAYER OF ST. FRANCIS

Lord, make me a channel of thy peace,
that where there is hatred, I may bring love;
that where there is wrong, I may bring the spirit of forgiveness;
that where there is discord, I may bring harmony;
that where there is error, I may bring truth;
that where there is doubt, I may bring faith;
that where there is despair, I may bring hope;
that where there are shadows, I may bring light;
that where there is sadness, I may bring joy.
Lord, grant that I may seek rather to comfort than to be comforted;
to understand, than to be understood;
to love, than to be loved.
For it is by self-forgetting that one finds.
It is by forgiving that one is forgiven.
It is by dying that one awakens to Eternal Life.

And that he often quoted this from Viktor Frankl:

"What we need is a fundamental change in our attitude toward life. We need to learn that...it does not really matter what we expect from life, but rather what life expects of us. We need to stop asking about the meaning of life, and instead to think of ourselves as those who are being questioned by life - daily and hourly. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks it constantly sets for each individual."- Viictor Frankl, writing about his fellow residents in the concentration camps (paraphrase)

Perhaps from that information, those of you who are living a life similar to his can intuit what he would post if he could.

Peace my friends,
LisaV
 
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