kayleesgrandma
New member
Well said Amy...
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How do you feel about all the medications that prolong your life?
- Thread starter fondreflections
- Start date
kayleesgrandma
New member
Well said Amy...
kayleesgrandma
New member
Well said Amy...
kayleesgrandma
New member
Well said Amy...
kayleesgrandma
New member
Well said Amy...
T
TonyaH
Guest
I agree, Terri,,,Amy's post was so accurate.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
T
TonyaH
Guest
I agree, Terri,,,Amy's post was so accurate.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
T
TonyaH
Guest
I agree, Terri,,,Amy's post was so accurate.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
T
TonyaH
Guest
I agree, Terri,,,Amy's post was so accurate.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
T
TonyaH
Guest
I agree, Terri,,,Amy's post was so accurate.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
I am not a CF adult, not even a CFer myself. But I do have a son who is just starting the wonderful world of ivs, increased nebs, increased CPT etc.
For the first week with the PICC, which we had so many problems with, I was exhausted and felt scared that this was the beginning of a life we had to adjust to. In the middle of the night as I tried to stay awake for his meds to run I felt very bitter...And we are just starting out!!
But once we worked into a routine it dawned on me how ungrateful I was being. We all get excited to hear about new drugs in the pipeline, an increase in median life expectancy almost every year, etc. The least we can do is use the tools available to us. I know living a more complicated CF schedule is different after 20 years than it is after 2 weeks, but I can't help but think how lucky I am that Andrew was born in 1998, not in the 50's.
Anyway, like I said, we are just boarding this CF ride, relatively speaking. It will be interesting to see if my views change, and it will be interesting to watch Andrew's journey, thoughts, and feelings on this.
Hey Tonya, I was born in the 50's 1951 to be exact...LOL .. I consider myself to be blessed to still be here.. As far as the meds go , well i didnt use any of them untill i was 44, that's when i was dx'd... I do however agree that the meds are a blessing... I just wish that the Dr.s/Nurses would be extra careful when ppl are on so many meds, because as good as they are, i almost died due to them.. I guess that is the beauty of this site, to share our experiences and learn from them..I too, like so many others here have a great peace within me from the Lord.. I am grateful for that peace (it was during the time that i almost died that i gained that peace) and also for this site and the many ppl that i have come to know and yes even love... Take care and God Bless you guys...<img src="i/expressions/heart.gif" border="0"> joni
Hey Tonya, I was born in the 50's 1951 to be exact...LOL .. I consider myself to be blessed to still be here.. As far as the meds go , well i didnt use any of them untill i was 44, that's when i was dx'd... I do however agree that the meds are a blessing... I just wish that the Dr.s/Nurses would be extra careful when ppl are on so many meds, because as good as they are, i almost died due to them.. I guess that is the beauty of this site, to share our experiences and learn from them..I too, like so many others here have a great peace within me from the Lord.. I am grateful for that peace (it was during the time that i almost died that i gained that peace) and also for this site and the many ppl that i have come to know and yes even love... Take care and God Bless you guys...<img src="i/expressions/heart.gif" border="0"> joni
Hey Tonya, I was born in the 50's 1951 to be exact...LOL .. I consider myself to be blessed to still be here.. As far as the meds go , well i didnt use any of them untill i was 44, that's when i was dx'd... I do however agree that the meds are a blessing... I just wish that the Dr.s/Nurses would be extra careful when ppl are on so many meds, because as good as they are, i almost died due to them.. I guess that is the beauty of this site, to share our experiences and learn from them..I too, like so many others here have a great peace within me from the Lord.. I am grateful for that peace (it was during the time that i almost died that i gained that peace) and also for this site and the many ppl that i have come to know and yes even love... Take care and God Bless you guys...<img src="i/expressions/heart.gif" border="0"> joni
Hey Tonya, I was born in the 50's 1951 to be exact...LOL .. I consider myself to be blessed to still be here.. As far as the meds go , well i didnt use any of them untill i was 44, that's when i was dx'd... I do however agree that the meds are a blessing... I just wish that the Dr.s/Nurses would be extra careful when ppl are on so many meds, because as good as they are, i almost died due to them.. I guess that is the beauty of this site, to share our experiences and learn from them..I too, like so many others here have a great peace within me from the Lord.. I am grateful for that peace (it was during the time that i almost died that i gained that peace) and also for this site and the many ppl that i have come to know and yes even love... Take care and God Bless you guys...<img src="i/expressions/heart.gif" border="0"> joni
Hey Tonya, I was born in the 50's 1951 to be exact...LOL .. I consider myself to be blessed to still be here.. As far as the meds go , well i didnt use any of them untill i was 44, that's when i was dx'd... I do however agree that the meds are a blessing... I just wish that the Dr.s/Nurses would be extra careful when ppl are on so many meds, because as good as they are, i almost died due to them.. I guess that is the beauty of this site, to share our experiences and learn from them..I too, like so many others here have a great peace within me from the Lord.. I am grateful for that peace (it was during the time that i almost died that i gained that peace) and also for this site and the many ppl that i have come to know and yes even love... Take care and God Bless you guys...<img src="i/expressions/heart.gif" border="0"> joni
B
Brian1986
Guest
Sometimes I feel like if I had a choice to be born with CF or not born at all, I'd choose not at all... That said, if my cousin and I didn't have CF I probably wouldn't have known or cared about it. I don't think I'd be nearly as caring as I am because of CF... Many times, disease can give someone strength of character and a new outlook on life. It reminds me of FDR and his polio. Before FDR got polio, he was quite arrogant, and would probably not have become President of the US. The experience changed him for the better.
B
Brian1986
Guest
Sometimes I feel like if I had a choice to be born with CF or not born at all, I'd choose not at all... That said, if my cousin and I didn't have CF I probably wouldn't have known or cared about it. I don't think I'd be nearly as caring as I am because of CF... Many times, disease can give someone strength of character and a new outlook on life. It reminds me of FDR and his polio. Before FDR got polio, he was quite arrogant, and would probably not have become President of the US. The experience changed him for the better.
B
Brian1986
Guest
Sometimes I feel like if I had a choice to be born with CF or not born at all, I'd choose not at all... That said, if my cousin and I didn't have CF I probably wouldn't have known or cared about it. I don't think I'd be nearly as caring as I am because of CF... Many times, disease can give someone strength of character and a new outlook on life. It reminds me of FDR and his polio. Before FDR got polio, he was quite arrogant, and would probably not have become President of the US. The experience changed him for the better.
B
Brian1986
Guest
Sometimes I feel like if I had a choice to be born with CF or not born at all, I'd choose not at all... That said, if my cousin and I didn't have CF I probably wouldn't have known or cared about it. I don't think I'd be nearly as caring as I am because of CF... Many times, disease can give someone strength of character and a new outlook on life. It reminds me of FDR and his polio. Before FDR got polio, he was quite arrogant, and would probably not have become President of the US. The experience changed him for the better.
B
Brian1986
Guest
Sometimes I feel like if I had a choice to be born with CF or not born at all, I'd choose not at all... That said, if my cousin and I didn't have CF I probably wouldn't have known or cared about it. I don't think I'd be nearly as caring as I am because of CF... Many times, disease can give someone strength of character and a new outlook on life. It reminds me of FDR and his polio. Before FDR got polio, he was quite arrogant, and would probably not have become President of the US. The experience changed him for the better.