How do you feel about all the medications that prolong your life?

[barbc888]

It's been quite a ride with this CF, and I've learned so much just by experiencing this disease: compassion, strength of character, being able to interpret my CF lab results, etc.!

As far as whether all these meds are worth it, I want to feel good now, and I want meds that will help me feel good now, today. Even tho I'm very regimented with my treatments and taking care of myself, I'm not so concerned with the drugs that claim to extend my life. Because who really knows if they're actually working like that in my body? Sorry, I can be very cynical when it comes to this...

Cheers,
Barbara

 

[barbc888]

It's been quite a ride with this CF, and I've learned so much just by experiencing this disease: compassion, strength of character, being able to interpret my CF lab results, etc.!

As far as whether all these meds are worth it, I want to feel good now, and I want meds that will help me feel good now, today. Even tho I'm very regimented with my treatments and taking care of myself, I'm not so concerned with the drugs that claim to extend my life. Because who really knows if they're actually working like that in my body? Sorry, I can be very cynical when it comes to this...

Cheers,
Barbara

 

[barbc888]

It's been quite a ride with this CF, and I've learned so much just by experiencing this disease: compassion, strength of character, being able to interpret my CF lab results, etc.!

As far as whether all these meds are worth it, I want to feel good now, and I want meds that will help me feel good now, today. Even tho I'm very regimented with my treatments and taking care of myself, I'm not so concerned with the drugs that claim to extend my life. Because who really knows if they're actually working like that in my body? Sorry, I can be very cynical when it comes to this...

Cheers,
Barbara

 

[barbc888]

It's been quite a ride with this CF, and I've learned so much just by experiencing this disease: compassion, strength of character, being able to interpret my CF lab results, etc.!

As far as whether all these meds are worth it, I want to feel good now, and I want meds that will help me feel good now, today. Even tho I'm very regimented with my treatments and taking care of myself, I'm not so concerned with the drugs that claim to extend my life. Because who really knows if they're actually working like that in my body? Sorry, I can be very cynical when it comes to this...

Cheers,
Barbara

 

[barbc888]

It's been quite a ride with this CF, and I've learned so much just by experiencing this disease: compassion, strength of character, being able to interpret my CF lab results, etc.!

As far as whether all these meds are worth it, I want to feel good now, and I want meds that will help me feel good now, today. Even tho I'm very regimented with my treatments and taking care of myself, I'm not so concerned with the drugs that claim to extend my life. Because who really knows if they're actually working like that in my body? Sorry, I can be very cynical when it comes to this...

Cheers,
Barbara

 

[Skye]

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!

 

[Skye]

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!

 

[Skye]

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!

 

[Skye]

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!

 

[Skye]

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Skye</b></i>

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!</end quote></div>


I LOVE YOU....WILL YOU MARRY ME? LOL

You just really, really made my day Sweety!

HUGS 1000 times over

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Skye</b></i>

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!</end quote></div>


I LOVE YOU....WILL YOU MARRY ME? LOL

You just really, really made my day Sweety!

HUGS 1000 times over

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Skye</b></i>

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!</end quote></div>


I LOVE YOU....WILL YOU MARRY ME? LOL

You just really, really made my day Sweety!

HUGS 1000 times over

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Skye</b></i>

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!</end quote>


I LOVE YOU....WILL YOU MARRY ME? LOL

You just really, really made my day Sweety!

HUGS 1000 times over

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Skye</b></i>

On another note, I think this disease can be so "self-involved" because it takes sooooo much work to take care of ourselves. It is all about "us" from a very early age and we get some added attention<img src="i/expressions/face-icon-small-smile.gif" border="0"> I think if we can stand back and look at it from the perspective of the lives that we affect and the positive changes we can make, that is what it is all about. We all have a purpose here and even in dark moments, we are affecting others. It is our choice whether it is a neagative or a positive effect. I say all of that because, Jazzy, you had a positive effect on me in this forum over a year ago. You don't even know me and your story and attitude about things picked me up during a very difficult time for me. You never know the difference you may make in someones life in a simple moment. We all have a divine purpose here on earth; it's not about buying a honkin big flat screen tv<img src="i/expressions/face-icon-small-smile.gif" border="0"> So keep doin those treatments, keep hope alive, and go change your world!</end quote>


I LOVE YOU....WILL YOU MARRY ME? LOL

You just really, really made my day Sweety!

HUGS 1000 times over

 

[JORDYSMOM]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>fondreflections</b></i>


Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
</end quote></div>

I guess one could say that any care we take with our health is just slowing down the inevitable, CF or not.

I bet your husband cannot imagine life without having met you and loved you. I bet if asked, he would say he'd rather have a short time with you than none at all. You brought something into his life. You enriched him in a way that no one else could have. Yes he is a grown up, and it was his choice to be with you, but I bet he's happy with his choice.

My grandmother lost her mother when she was 12 years old. Her older siblings finished raising her. Yes she wished she'd had more time with her mother. I wished I'd had more time with her when she passed in her 70's. It doesn't matter how much time we have with our loved ones, we always wish for more. My grandmother never wished she hadn't been born. She enjoyed life. Every child reacts differently to the loss of a parent. The way the adults around that child handle it has a huge impact on them as well.

Everyone has reasons to be compliant with their treatments, but I'm willing to bet that staying around for their loved ones is one of the biggest. Some people just enjoy life and want to live it longer. I'm of the opinion that if something is worth doing, it's worth doing well.

There has been so much death here lately. It's easy to lose faith, and I do understand the feeling that it doesn't matter what you do, it will get you in the end. Nobody can be strong all of the time. We all get overwhelmed, and want to give up. It's okay to feel that way. It's okay to be sad, mad, whatever. We just have to let ourselves have a little down time, and then get back at it.

Stacey

 

[JORDYSMOM]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>fondreflections</b></i>


Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
</end quote></div>

I guess one could say that any care we take with our health is just slowing down the inevitable, CF or not.

I bet your husband cannot imagine life without having met you and loved you. I bet if asked, he would say he'd rather have a short time with you than none at all. You brought something into his life. You enriched him in a way that no one else could have. Yes he is a grown up, and it was his choice to be with you, but I bet he's happy with his choice.

My grandmother lost her mother when she was 12 years old. Her older siblings finished raising her. Yes she wished she'd had more time with her mother. I wished I'd had more time with her when she passed in her 70's. It doesn't matter how much time we have with our loved ones, we always wish for more. My grandmother never wished she hadn't been born. She enjoyed life. Every child reacts differently to the loss of a parent. The way the adults around that child handle it has a huge impact on them as well.

Everyone has reasons to be compliant with their treatments, but I'm willing to bet that staying around for their loved ones is one of the biggest. Some people just enjoy life and want to live it longer. I'm of the opinion that if something is worth doing, it's worth doing well.

There has been so much death here lately. It's easy to lose faith, and I do understand the feeling that it doesn't matter what you do, it will get you in the end. Nobody can be strong all of the time. We all get overwhelmed, and want to give up. It's okay to feel that way. It's okay to be sad, mad, whatever. We just have to let ourselves have a little down time, and then get back at it.

Stacey

 

[JORDYSMOM]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>fondreflections</b></i>


Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
</end quote></div>

I guess one could say that any care we take with our health is just slowing down the inevitable, CF or not.

I bet your husband cannot imagine life without having met you and loved you. I bet if asked, he would say he'd rather have a short time with you than none at all. You brought something into his life. You enriched him in a way that no one else could have. Yes he is a grown up, and it was his choice to be with you, but I bet he's happy with his choice.

My grandmother lost her mother when she was 12 years old. Her older siblings finished raising her. Yes she wished she'd had more time with her mother. I wished I'd had more time with her when she passed in her 70's. It doesn't matter how much time we have with our loved ones, we always wish for more. My grandmother never wished she hadn't been born. She enjoyed life. Every child reacts differently to the loss of a parent. The way the adults around that child handle it has a huge impact on them as well.

Everyone has reasons to be compliant with their treatments, but I'm willing to bet that staying around for their loved ones is one of the biggest. Some people just enjoy life and want to live it longer. I'm of the opinion that if something is worth doing, it's worth doing well.

There has been so much death here lately. It's easy to lose faith, and I do understand the feeling that it doesn't matter what you do, it will get you in the end. Nobody can be strong all of the time. We all get overwhelmed, and want to give up. It's okay to feel that way. It's okay to be sad, mad, whatever. We just have to let ourselves have a little down time, and then get back at it.

Stacey

 

[JORDYSMOM]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>fondreflections</b></i>


Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
</end quote>

I guess one could say that any care we take with our health is just slowing down the inevitable, CF or not.

I bet your husband cannot imagine life without having met you and loved you. I bet if asked, he would say he'd rather have a short time with you than none at all. You brought something into his life. You enriched him in a way that no one else could have. Yes he is a grown up, and it was his choice to be with you, but I bet he's happy with his choice.

My grandmother lost her mother when she was 12 years old. Her older siblings finished raising her. Yes she wished she'd had more time with her mother. I wished I'd had more time with her when she passed in her 70's. It doesn't matter how much time we have with our loved ones, we always wish for more. My grandmother never wished she hadn't been born. She enjoyed life. Every child reacts differently to the loss of a parent. The way the adults around that child handle it has a huge impact on them as well.

Everyone has reasons to be compliant with their treatments, but I'm willing to bet that staying around for their loved ones is one of the biggest. Some people just enjoy life and want to live it longer. I'm of the opinion that if something is worth doing, it's worth doing well.

There has been so much death here lately. It's easy to lose faith, and I do understand the feeling that it doesn't matter what you do, it will get you in the end. Nobody can be strong all of the time. We all get overwhelmed, and want to give up. It's okay to feel that way. It's okay to be sad, mad, whatever. We just have to let ourselves have a little down time, and then get back at it.

Stacey

 

[JORDYSMOM]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>fondreflections</b></i>


Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.
</end quote>

I guess one could say that any care we take with our health is just slowing down the inevitable, CF or not.

I bet your husband cannot imagine life without having met you and loved you. I bet if asked, he would say he'd rather have a short time with you than none at all. You brought something into his life. You enriched him in a way that no one else could have. Yes he is a grown up, and it was his choice to be with you, but I bet he's happy with his choice.

My grandmother lost her mother when she was 12 years old. Her older siblings finished raising her. Yes she wished she'd had more time with her mother. I wished I'd had more time with her when she passed in her 70's. It doesn't matter how much time we have with our loved ones, we always wish for more. My grandmother never wished she hadn't been born. She enjoyed life. Every child reacts differently to the loss of a parent. The way the adults around that child handle it has a huge impact on them as well.

Everyone has reasons to be compliant with their treatments, but I'm willing to bet that staying around for their loved ones is one of the biggest. Some people just enjoy life and want to live it longer. I'm of the opinion that if something is worth doing, it's worth doing well.

There has been so much death here lately. It's easy to lose faith, and I do understand the feeling that it doesn't matter what you do, it will get you in the end. Nobody can be strong all of the time. We all get overwhelmed, and want to give up. It's okay to feel that way. It's okay to be sad, mad, whatever. We just have to let ourselves have a little down time, and then get back at it.

Stacey