How do you feel about all the medications that prolong your life?

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Ricky123

New member
just noticed this post in the archive section ,but have to admit it is a real quality post and something i feel strongly about,

sometimes i feel docters parents etc put to much emaphasis on the phisical side of things especially all the medications,doing ya physio eating properly etc etc etc etc etc etc etc
and i know this can have a negative affect on ya social life and specially your personal side,
for me i was affected by all the constant drug use and physio and execcsive demands put on me by a very demanding mother who was told by the docters that i would never live past 30 and thus aimed to turn me into a coughing machine so as in her eyes to avoid early death of her eldest child,
the point of explaining this is i wish my parents would have been less demanding on me and let me lived a little and so what if i would of missed the occasional physio or drugs ,life is about living and as someone rightly pointed on this site we cant be a slave to cf,
 
R

Ricky123

New member
just noticed this post in the archive section ,but have to admit it is a real quality post and something i feel strongly about,

sometimes i feel docters parents etc put to much emaphasis on the phisical side of things especially all the medications,doing ya physio eating properly etc etc etc etc etc etc etc
and i know this can have a negative affect on ya social life and specially your personal side,
for me i was affected by all the constant drug use and physio and execcsive demands put on me by a very demanding mother who was told by the docters that i would never live past 30 and thus aimed to turn me into a coughing machine so as in her eyes to avoid early death of her eldest child,
the point of explaining this is i wish my parents would have been less demanding on me and let me lived a little and so what if i would of missed the occasional physio or drugs ,life is about living and as someone rightly pointed on this site we cant be a slave to cf,
 
R

Ricky123

New member
just noticed this post in the archive section ,but have to admit it is a real quality post and something i feel strongly about,

sometimes i feel docters parents etc put to much emaphasis on the phisical side of things especially all the medications,doing ya physio eating properly etc etc etc etc etc etc etc
and i know this can have a negative affect on ya social life and specially your personal side,
for me i was affected by all the constant drug use and physio and execcsive demands put on me by a very demanding mother who was told by the docters that i would never live past 30 and thus aimed to turn me into a coughing machine so as in her eyes to avoid early death of her eldest child,
the point of explaining this is i wish my parents would have been less demanding on me and let me lived a little and so what if i would of missed the occasional physio or drugs ,life is about living and as someone rightly pointed on this site we cant be a slave to cf,
 
R

Ricky123

New member
just noticed this post in the archive section ,but have to admit it is a real quality post and something i feel strongly about,

sometimes i feel docters parents etc put to much emaphasis on the phisical side of things especially all the medications,doing ya physio eating properly etc etc etc etc etc etc etc
and i know this can have a negative affect on ya social life and specially your personal side,
for me i was affected by all the constant drug use and physio and execcsive demands put on me by a very demanding mother who was told by the docters that i would never live past 30 and thus aimed to turn me into a coughing machine so as in her eyes to avoid early death of her eldest child,
the point of explaining this is i wish my parents would have been less demanding on me and let me lived a little and so what if i would of missed the occasional physio or drugs ,life is about living and as someone rightly pointed on this site we cant be a slave to cf,
 
R

Ricky123

New member
just noticed this post in the archive section ,but have to admit it is a real quality post and something i feel strongly about,

sometimes i feel docters parents etc put to much emaphasis on the phisical side of things especially all the medications,doing ya physio eating properly etc etc etc etc etc etc etc
and i know this can have a negative affect on ya social life and specially your personal side,
for me i was affected by all the constant drug use and physio and execcsive demands put on me by a very demanding mother who was told by the docters that i would never live past 30 and thus aimed to turn me into a coughing machine so as in her eyes to avoid early death of her eldest child,
the point of explaining this is i wish my parents would have been less demanding on me and let me lived a little and so what if i would of missed the occasional physio or drugs ,life is about living and as someone rightly pointed on this site we cant be a slave to cf,
 
R

RTforJCinAZ

New member
I definately think of those things you mention from time to time. What the end days will be like. All I know is where I am going after this, and who is by my side, and it brings a huge comfort deep down to know I am just fine. I think the people that really worry are people who are unsure of death and what that brings. I know it will be hard for my family, but God is there for them, He always will be, so I know he can comfort them more than I could imagine.

Also, with the new medications that are coming down the pipe, someone in your condition (70% FEV1), is going to benefit greatly, as we all will. I would say you have a long and relatively speaking "healthy" life (given that we have CF) ahead of you. Without those "on the horizon" drugs, I think a lot of CF'ers would have serious depression type problems.
 
R

RTforJCinAZ

New member
I definately think of those things you mention from time to time. What the end days will be like. All I know is where I am going after this, and who is by my side, and it brings a huge comfort deep down to know I am just fine. I think the people that really worry are people who are unsure of death and what that brings. I know it will be hard for my family, but God is there for them, He always will be, so I know he can comfort them more than I could imagine.

Also, with the new medications that are coming down the pipe, someone in your condition (70% FEV1), is going to benefit greatly, as we all will. I would say you have a long and relatively speaking "healthy" life (given that we have CF) ahead of you. Without those "on the horizon" drugs, I think a lot of CF'ers would have serious depression type problems.
 
R

RTforJCinAZ

New member
I definately think of those things you mention from time to time. What the end days will be like. All I know is where I am going after this, and who is by my side, and it brings a huge comfort deep down to know I am just fine. I think the people that really worry are people who are unsure of death and what that brings. I know it will be hard for my family, but God is there for them, He always will be, so I know he can comfort them more than I could imagine.

Also, with the new medications that are coming down the pipe, someone in your condition (70% FEV1), is going to benefit greatly, as we all will. I would say you have a long and relatively speaking "healthy" life (given that we have CF) ahead of you. Without those "on the horizon" drugs, I think a lot of CF'ers would have serious depression type problems.
 
R

RTforJCinAZ

New member
I definately think of those things you mention from time to time. What the end days will be like. All I know is where I am going after this, and who is by my side, and it brings a huge comfort deep down to know I am just fine. I think the people that really worry are people who are unsure of death and what that brings. I know it will be hard for my family, but God is there for them, He always will be, so I know he can comfort them more than I could imagine.

Also, with the new medications that are coming down the pipe, someone in your condition (70% FEV1), is going to benefit greatly, as we all will. I would say you have a long and relatively speaking "healthy" life (given that we have CF) ahead of you. Without those "on the horizon" drugs, I think a lot of CF'ers would have serious depression type problems.
 
R

RTforJCinAZ

New member
I definately think of those things you mention from time to time. What the end days will be like. All I know is where I am going after this, and who is by my side, and it brings a huge comfort deep down to know I am just fine. I think the people that really worry are people who are unsure of death and what that brings. I know it will be hard for my family, but God is there for them, He always will be, so I know he can comfort them more than I could imagine.

Also, with the new medications that are coming down the pipe, someone in your condition (70% FEV1), is going to benefit greatly, as we all will. I would say you have a long and relatively speaking "healthy" life (given that we have CF) ahead of you. Without those "on the horizon" drugs, I think a lot of CF'ers would have serious depression type problems.
 
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