How do you feel when SOME ONE else tells others you have CF?

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I've had it happen. But I never cared. Mike has done it. I think friends have done it over the years. They've told people I don't care for at all. I just don't care, but that's me... I never really seem to care about it.</end quote></div>

couldn't have said it better myself
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I've had it happen. But I never cared. Mike has done it. I think friends have done it over the years. They've told people I don't care for at all. I just don't care, but that's me... I never really seem to care about it.</end quote></div>

couldn't have said it better myself
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I've had it happen. But I never cared. Mike has done it. I think friends have done it over the years. They've told people I don't care for at all. I just don't care, but that's me... I never really seem to care about it.</end quote></div>

couldn't have said it better myself
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I've had it happen. But I never cared. Mike has done it. I think friends have done it over the years. They've told people I don't care for at all. I just don't care, but that's me... I never really seem to care about it.</end quote>

couldn't have said it better myself
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I've had it happen. But I never cared. Mike has done it. I think friends have done it over the years. They've told people I don't care for at all. I just don't care, but that's me... I never really seem to care about it.</end quote>

couldn't have said it better myself
 

Kelli

New member
Yes, well some people DO care about such things.

I am partial owner of a million+ dollar company, and I do care. The person I am talking about is a CUSTOMER of ours, we do business with them and all I need from her is to do business and nothing more.That is CF is MY business and I will only tell who I want to tell.

So to those of you who DO understand where I'm coming from, THANK YOU. And for those of you who don't get where I'm coming from, I didn't ask YOU for your advice. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kelli
 

Kelli

New member
Yes, well some people DO care about such things.

I am partial owner of a million+ dollar company, and I do care. The person I am talking about is a CUSTOMER of ours, we do business with them and all I need from her is to do business and nothing more.That is CF is MY business and I will only tell who I want to tell.

So to those of you who DO understand where I'm coming from, THANK YOU. And for those of you who don't get where I'm coming from, I didn't ask YOU for your advice. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kelli
 

Kelli

New member
Yes, well some people DO care about such things.

I am partial owner of a million+ dollar company, and I do care. The person I am talking about is a CUSTOMER of ours, we do business with them and all I need from her is to do business and nothing more.That is CF is MY business and I will only tell who I want to tell.

So to those of you who DO understand where I'm coming from, THANK YOU. And for those of you who don't get where I'm coming from, I didn't ask YOU for your advice. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kelli
 

Kelli

New member
Yes, well some people DO care about such things.

I am partial owner of a million+ dollar company, and I do care. The person I am talking about is a CUSTOMER of ours, we do business with them and all I need from her is to do business and nothing more.That is CF is MY business and I will only tell who I want to tell.

So to those of you who DO understand where I'm coming from, THANK YOU. And for those of you who don't get where I'm coming from, I didn't ask YOU for your advice. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kelli
 

Kelli

New member
Yes, well some people DO care about such things.

I am partial owner of a million+ dollar company, and I do care. The person I am talking about is a CUSTOMER of ours, we do business with them and all I need from her is to do business and nothing more.That is CF is MY business and I will only tell who I want to tell.

So to those of you who DO understand where I'm coming from, THANK YOU. And for those of you who don't get where I'm coming from, I didn't ask YOU for your advice. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kelli
 

julie

New member
Kelli, I completely understand your feelings on this one- and Mark is a lot like you, he doesn't mind telling his own story to whom he chooses, but it's not my place.

And I agree, it's his story and his place to tell.

Although I must admit, living on the "other side" of it, sometimes it's hard not to tell someone at work something. I feel like I've got this secret that Mark and I live with (and his parents and some friends know) and sometimes I just NEED to talk about it, with someone, anyone. It's hard not to cross that line and violate his requests because I'm having a "moment" about his CF. Just as you all struggle with your own disease, those of us who love you struggle too- in our own way. And sometimes it just helps to talk.

I'm NOT saying what your husband did was ok. I think you should have a very frank and honest discussion with him about it. Make the boundary lines clear to him, but also talk to him about how he feels about your CF. Is HE doing ok? Is there anything HE'D like to talk about? That might help him from slipping and blabbing it to someone you don't know/like very well.

Best of luck in talking with him!
 

julie

New member
Kelli, I completely understand your feelings on this one- and Mark is a lot like you, he doesn't mind telling his own story to whom he chooses, but it's not my place.

And I agree, it's his story and his place to tell.

Although I must admit, living on the "other side" of it, sometimes it's hard not to tell someone at work something. I feel like I've got this secret that Mark and I live with (and his parents and some friends know) and sometimes I just NEED to talk about it, with someone, anyone. It's hard not to cross that line and violate his requests because I'm having a "moment" about his CF. Just as you all struggle with your own disease, those of us who love you struggle too- in our own way. And sometimes it just helps to talk.

I'm NOT saying what your husband did was ok. I think you should have a very frank and honest discussion with him about it. Make the boundary lines clear to him, but also talk to him about how he feels about your CF. Is HE doing ok? Is there anything HE'D like to talk about? That might help him from slipping and blabbing it to someone you don't know/like very well.

Best of luck in talking with him!
 

julie

New member
Kelli, I completely understand your feelings on this one- and Mark is a lot like you, he doesn't mind telling his own story to whom he chooses, but it's not my place.

And I agree, it's his story and his place to tell.

Although I must admit, living on the "other side" of it, sometimes it's hard not to tell someone at work something. I feel like I've got this secret that Mark and I live with (and his parents and some friends know) and sometimes I just NEED to talk about it, with someone, anyone. It's hard not to cross that line and violate his requests because I'm having a "moment" about his CF. Just as you all struggle with your own disease, those of us who love you struggle too- in our own way. And sometimes it just helps to talk.

I'm NOT saying what your husband did was ok. I think you should have a very frank and honest discussion with him about it. Make the boundary lines clear to him, but also talk to him about how he feels about your CF. Is HE doing ok? Is there anything HE'D like to talk about? That might help him from slipping and blabbing it to someone you don't know/like very well.

Best of luck in talking with him!
 

julie

New member
Kelli, I completely understand your feelings on this one- and Mark is a lot like you, he doesn't mind telling his own story to whom he chooses, but it's not my place.

And I agree, it's his story and his place to tell.

Although I must admit, living on the "other side" of it, sometimes it's hard not to tell someone at work something. I feel like I've got this secret that Mark and I live with (and his parents and some friends know) and sometimes I just NEED to talk about it, with someone, anyone. It's hard not to cross that line and violate his requests because I'm having a "moment" about his CF. Just as you all struggle with your own disease, those of us who love you struggle too- in our own way. And sometimes it just helps to talk.

I'm NOT saying what your husband did was ok. I think you should have a very frank and honest discussion with him about it. Make the boundary lines clear to him, but also talk to him about how he feels about your CF. Is HE doing ok? Is there anything HE'D like to talk about? That might help him from slipping and blabbing it to someone you don't know/like very well.

Best of luck in talking with him!
 

julie

New member
Kelli, I completely understand your feelings on this one- and Mark is a lot like you, he doesn't mind telling his own story to whom he chooses, but it's not my place.

And I agree, it's his story and his place to tell.

Although I must admit, living on the "other side" of it, sometimes it's hard not to tell someone at work something. I feel like I've got this secret that Mark and I live with (and his parents and some friends know) and sometimes I just NEED to talk about it, with someone, anyone. It's hard not to cross that line and violate his requests because I'm having a "moment" about his CF. Just as you all struggle with your own disease, those of us who love you struggle too- in our own way. And sometimes it just helps to talk.

I'm NOT saying what your husband did was ok. I think you should have a very frank and honest discussion with him about it. Make the boundary lines clear to him, but also talk to him about how he feels about your CF. Is HE doing ok? Is there anything HE'D like to talk about? That might help him from slipping and blabbing it to someone you don't know/like very well.

Best of luck in talking with him!
 

xosder22

Member
i dont understand how someone, that you don't really know, knowing that you have cf can affect you in any way. personally im very open with everything that is going on with my health because personally i believe that a more informed public is a better situation for all cf'ers
 

xosder22

Member
i dont understand how someone, that you don't really know, knowing that you have cf can affect you in any way. personally im very open with everything that is going on with my health because personally i believe that a more informed public is a better situation for all cf'ers
 

xosder22

Member
i dont understand how someone, that you don't really know, knowing that you have cf can affect you in any way. personally im very open with everything that is going on with my health because personally i believe that a more informed public is a better situation for all cf'ers
 

xosder22

Member
i dont understand how someone, that you don't really know, knowing that you have cf can affect you in any way. personally im very open with everything that is going on with my health because personally i believe that a more informed public is a better situation for all cf'ers
 

xosder22

Member
i dont understand how someone, that you don't really know, knowing that you have cf can affect you in any way. personally im very open with everything that is going on with my health because personally i believe that a more informed public is a better situation for all cf'ers
 
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