How do you feel when SOME ONE else tells others you have CF?

[julie]

Have you made it clear to your DH that you don't want this talked about liberally? If so, I would feel violated, upset and have a major trust issue with him.

If you haven't made that clear, do so now, and let him know that future violations of this request will result in trust issues.

Are you sure he told her about your CF though? Somedays Mark is sick (related to CF) and I'll mention it to co-workers, but not mentioning his CF. I just mention that he's feeling sick, or has a cold, or has the flu, or just feels sickly. I didn't see where you mentioned that he told her about the CF.

 

[julie]

Have you made it clear to your DH that you don't want this talked about liberally? If so, I would feel violated, upset and have a major trust issue with him.

If you haven't made that clear, do so now, and let him know that future violations of this request will result in trust issues.

Are you sure he told her about your CF though? Somedays Mark is sick (related to CF) and I'll mention it to co-workers, but not mentioning his CF. I just mention that he's feeling sick, or has a cold, or has the flu, or just feels sickly. I didn't see where you mentioned that he told her about the CF.

 

[julie]

Have you made it clear to your DH that you don't want this talked about liberally? If so, I would feel violated, upset and have a major trust issue with him.

If you haven't made that clear, do so now, and let him know that future violations of this request will result in trust issues.

Are you sure he told her about your CF though? Somedays Mark is sick (related to CF) and I'll mention it to co-workers, but not mentioning his CF. I just mention that he's feeling sick, or has a cold, or has the flu, or just feels sickly. I didn't see where you mentioned that he told her about the CF.

 

[julie]

Have you made it clear to your DH that you don't want this talked about liberally? If so, I would feel violated, upset and have a major trust issue with him.

If you haven't made that clear, do so now, and let him know that future violations of this request will result in trust issues.

Are you sure he told her about your CF though? Somedays Mark is sick (related to CF) and I'll mention it to co-workers, but not mentioning his CF. I just mention that he's feeling sick, or has a cold, or has the flu, or just feels sickly. I didn't see where you mentioned that he told her about the CF.

 

[julie]

Have you made it clear to your DH that you don't want this talked about liberally? If so, I would feel violated, upset and have a major trust issue with him.

If you haven't made that clear, do so now, and let him know that future violations of this request will result in trust issues.

Are you sure he told her about your CF though? Somedays Mark is sick (related to CF) and I'll mention it to co-workers, but not mentioning his CF. I just mention that he's feeling sick, or has a cold, or has the flu, or just feels sickly. I didn't see where you mentioned that he told her about the CF.

 

[bagged2drag]

Look at it this way, cf is an important part of our lives, and our significant others are deeply intertwined in our lives. Even though it is stressful to us, it is also stressful to the significant other as well. He probably meant no harm. Cf is a fact of life we have to face, I personally don't feel its worth getting upset about (even though I used to when I was young) if others are told about it. Its not a rumor, its fact. Theres nothing to be embarrassed about. If someone wants to feel sorry for me, then so be it... I could care less. I guess as I got older I just realized there were more important things in my life to worry about than what others know or think about me. Instead of being upset he said something, try and look at it in his perspective as well. He cares about you a lot, and shared his concern. Like I said, even though the disease is difficult to handle for ourselves, it is also quite stressful to those who love us and are around us and they need to find a way to let that out as well (and not always with us), Just some food for thought.

 

[bagged2drag]

Look at it this way, cf is an important part of our lives, and our significant others are deeply intertwined in our lives. Even though it is stressful to us, it is also stressful to the significant other as well. He probably meant no harm. Cf is a fact of life we have to face, I personally don't feel its worth getting upset about (even though I used to when I was young) if others are told about it. Its not a rumor, its fact. Theres nothing to be embarrassed about. If someone wants to feel sorry for me, then so be it... I could care less. I guess as I got older I just realized there were more important things in my life to worry about than what others know or think about me. Instead of being upset he said something, try and look at it in his perspective as well. He cares about you a lot, and shared his concern. Like I said, even though the disease is difficult to handle for ourselves, it is also quite stressful to those who love us and are around us and they need to find a way to let that out as well (and not always with us), Just some food for thought.

 

[bagged2drag]

Look at it this way, cf is an important part of our lives, and our significant others are deeply intertwined in our lives. Even though it is stressful to us, it is also stressful to the significant other as well. He probably meant no harm. Cf is a fact of life we have to face, I personally don't feel its worth getting upset about (even though I used to when I was young) if others are told about it. Its not a rumor, its fact. Theres nothing to be embarrassed about. If someone wants to feel sorry for me, then so be it... I could care less. I guess as I got older I just realized there were more important things in my life to worry about than what others know or think about me. Instead of being upset he said something, try and look at it in his perspective as well. He cares about you a lot, and shared his concern. Like I said, even though the disease is difficult to handle for ourselves, it is also quite stressful to those who love us and are around us and they need to find a way to let that out as well (and not always with us), Just some food for thought.

 

[bagged2drag]

Look at it this way, cf is an important part of our lives, and our significant others are deeply intertwined in our lives. Even though it is stressful to us, it is also stressful to the significant other as well. He probably meant no harm. Cf is a fact of life we have to face, I personally don't feel its worth getting upset about (even though I used to when I was young) if others are told about it. Its not a rumor, its fact. Theres nothing to be embarrassed about. If someone wants to feel sorry for me, then so be it... I could care less. I guess as I got older I just realized there were more important things in my life to worry about than what others know or think about me. Instead of being upset he said something, try and look at it in his perspective as well. He cares about you a lot, and shared his concern. Like I said, even though the disease is difficult to handle for ourselves, it is also quite stressful to those who love us and are around us and they need to find a way to let that out as well (and not always with us), Just some food for thought.

 

[bagged2drag]

Look at it this way, cf is an important part of our lives, and our significant others are deeply intertwined in our lives. Even though it is stressful to us, it is also stressful to the significant other as well. He probably meant no harm. Cf is a fact of life we have to face, I personally don't feel its worth getting upset about (even though I used to when I was young) if others are told about it. Its not a rumor, its fact. Theres nothing to be embarrassed about. If someone wants to feel sorry for me, then so be it... I could care less. I guess as I got older I just realized there were more important things in my life to worry about than what others know or think about me. Instead of being upset he said something, try and look at it in his perspective as well. He cares about you a lot, and shared his concern. Like I said, even though the disease is difficult to handle for ourselves, it is also quite stressful to those who love us and are around us and they need to find a way to let that out as well (and not always with us), Just some food for thought.

 

[Ricky123]

i dislike it when people say you have cf behind ya back

becasue there is a lot of ignorance out there and people dont understand that there are different levels of cf ,hence some people categorise everyone with cf in the same bracket ie all sick with this disease that everyone dies young,

 

[Ricky123]

i dislike it when people say you have cf behind ya back

becasue there is a lot of ignorance out there and people dont understand that there are different levels of cf ,hence some people categorise everyone with cf in the same bracket ie all sick with this disease that everyone dies young,

 

[Ricky123]

i dislike it when people say you have cf behind ya back

becasue there is a lot of ignorance out there and people dont understand that there are different levels of cf ,hence some people categorise everyone with cf in the same bracket ie all sick with this disease that everyone dies young,

 

[Ricky123]

i dislike it when people say you have cf behind ya back

becasue there is a lot of ignorance out there and people dont understand that there are different levels of cf ,hence some people categorise everyone with cf in the same bracket ie all sick with this disease that everyone dies young,

 

[Ricky123]

i dislike it when people say you have cf behind ya back

becasue there is a lot of ignorance out there and people dont understand that there are different levels of cf ,hence some people categorise everyone with cf in the same bracket ie all sick with this disease that everyone dies young,

 

[mamerth]

I guess I have a slightly different opinion... I don't mind if hubby says something or my parents but if someone else says something I come unglued and unhinged.

I have had two occurrences where someone (not close family) has gone behind my back and told people about my CF. Both occurrences they gave horribly wrong information and it came back to bite "me" in the butt. I have made it very clear to friends and extended family that they let me tell people about my CF (much simpler and less cleaning up to do after that fact). Sometime hubby will call me if someone is asking about my health (he checks to see if I want them to know "stuff").

My CF is a private matter for the most part. Don't get me wrong I used opportune moment to educate but do so very carefully.

 

[mamerth]

I guess I have a slightly different opinion... I don't mind if hubby says something or my parents but if someone else says something I come unglued and unhinged.

I have had two occurrences where someone (not close family) has gone behind my back and told people about my CF. Both occurrences they gave horribly wrong information and it came back to bite "me" in the butt. I have made it very clear to friends and extended family that they let me tell people about my CF (much simpler and less cleaning up to do after that fact). Sometime hubby will call me if someone is asking about my health (he checks to see if I want them to know "stuff").

My CF is a private matter for the most part. Don't get me wrong I used opportune moment to educate but do so very carefully.

 

[mamerth]

I guess I have a slightly different opinion... I don't mind if hubby says something or my parents but if someone else says something I come unglued and unhinged.

I have had two occurrences where someone (not close family) has gone behind my back and told people about my CF. Both occurrences they gave horribly wrong information and it came back to bite "me" in the butt. I have made it very clear to friends and extended family that they let me tell people about my CF (much simpler and less cleaning up to do after that fact). Sometime hubby will call me if someone is asking about my health (he checks to see if I want them to know "stuff").

My CF is a private matter for the most part. Don't get me wrong I used opportune moment to educate but do so very carefully.

 

[mamerth]

I guess I have a slightly different opinion... I don't mind if hubby says something or my parents but if someone else says something I come unglued and unhinged.

I have had two occurrences where someone (not close family) has gone behind my back and told people about my CF. Both occurrences they gave horribly wrong information and it came back to bite "me" in the butt. I have made it very clear to friends and extended family that they let me tell people about my CF (much simpler and less cleaning up to do after that fact). Sometime hubby will call me if someone is asking about my health (he checks to see if I want them to know "stuff").

My CF is a private matter for the most part. Don't get me wrong I used opportune moment to educate but do so very carefully.

 

[mamerth]

I guess I have a slightly different opinion... I don't mind if hubby says something or my parents but if someone else says something I come unglued and unhinged.

I have had two occurrences where someone (not close family) has gone behind my back and told people about my CF. Both occurrences they gave horribly wrong information and it came back to bite "me" in the butt. I have made it very clear to friends and extended family that they let me tell people about my CF (much simpler and less cleaning up to do after that fact). Sometime hubby will call me if someone is asking about my health (he checks to see if I want them to know "stuff").

My CF is a private matter for the most part. Don't get me wrong I used opportune moment to educate but do so very carefully.