I need to dig into medical reports and convince myself there is scientific hope for a cure. I've had too many years of engineering classes to not try to dig into the science behind it all. Plus for me when I'm learning something new it envelopes me fully and pretty much minimizes the brain power left over for feeling hopeless or depressed. The other way I've noticed I get hope, is to try to cheer up my Mom or daughter when they get depressed about it. Usually I do a good enough job giving them hope I start to believe myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> But if it's just me, then it's really tough. I've was only diagnosed recently so the concept of living permanently with a condition like this that isn't going to go away (like cancer can sometimes) and is only going to get worse, is a very difficult situation to deal with without getting depressed - at least to some degree. ~Juliet
How do you keep your hope alive?
- Thread starter LisaGreene
- Start date
I need to dig into medical reports and convince myself there is scientific hope for a cure. I've had too many years of engineering classes to not try to dig into the science behind it all. Plus for me when I'm learning something new it envelopes me fully and pretty much minimizes the brain power left over for feeling hopeless or depressed. The other way I've noticed I get hope, is to try to cheer up my Mom or daughter when they get depressed about it. Usually I do a good enough job giving them hope I start to believe myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> But if it's just me, then it's really tough. I've was only diagnosed recently so the concept of living permanently with a condition like this that isn't going to go away (like cancer can sometimes) and is only going to get worse, is a very difficult situation to deal with without getting depressed - at least to some degree. ~Juliet
I need to dig into medical reports and convince myself there is scientific hope for a cure. I've had too many years of engineering classes to not try to dig into the science behind it all. Plus for me when I'm learning something new it envelopes me fully and pretty much minimizes the brain power left over for feeling hopeless or depressed. The other way I've noticed I get hope, is to try to cheer up my Mom or daughter when they get depressed about it. Usually I do a good enough job giving them hope I start to believe myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> But if it's just me, then it's really tough. I've was only diagnosed recently so the concept of living permanently with a condition like this that isn't going to go away (like cancer can sometimes) and is only going to get worse, is a very difficult situation to deal with without getting depressed - at least to some degree. ~Juliet
I need to dig into medical reports and convince myself there is scientific hope for a cure. I've had too many years of engineering classes to not try to dig into the science behind it all. Plus for me when I'm learning something new it envelopes me fully and pretty much minimizes the brain power left over for feeling hopeless or depressed. The other way I've noticed I get hope, is to try to cheer up my Mom or daughter when they get depressed about it. Usually I do a good enough job giving them hope I start to believe myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> But if it's just me, then it's really tough. I've was only diagnosed recently so the concept of living permanently with a condition like this that isn't going to go away (like cancer can sometimes) and is only going to get worse, is a very difficult situation to deal with without getting depressed - at least to some degree. ~Juliet
I need to dig into medical reports and convince myself there is scientific hope for a cure. I've had too many years of engineering classes to not try to dig into the science behind it all. Plus for me when I'm learning something new it envelopes me fully and pretty much minimizes the brain power left over for feeling hopeless or depressed. The other way I've noticed I get hope, is to try to cheer up my Mom or daughter when they get depressed about it. Usually I do a good enough job giving them hope I start to believe myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> But if it's just me, then it's really tough. I've was only diagnosed recently so the concept of living permanently with a condition like this that isn't going to go away (like cancer can sometimes) and is only going to get worse, is a very difficult situation to deal with without getting depressed - at least to some degree. ~Juliet
I find hope here, on the site. On the days that it is difficult to imagine Emily as an adult, I look to the wonderful young (and not so young <img src="i/expressions/face-icon-small-happy.gif" border="0"> ) adults with CF that are regulars here. We all know that CF is unpredictable. I know that Emily could be gone from us before she finishes high school. But, the wonderful people I"ve met here who are thriving and leaving their mark on the world remind me that there is always HOPE.
I find hope here, on the site. On the days that it is difficult to imagine Emily as an adult, I look to the wonderful young (and not so young <img src="i/expressions/face-icon-small-happy.gif" border="0"> ) adults with CF that are regulars here. We all know that CF is unpredictable. I know that Emily could be gone from us before she finishes high school. But, the wonderful people I"ve met here who are thriving and leaving their mark on the world remind me that there is always HOPE.
I find hope here, on the site. On the days that it is difficult to imagine Emily as an adult, I look to the wonderful young (and not so young <img src="i/expressions/face-icon-small-happy.gif" border="0"> ) adults with CF that are regulars here. We all know that CF is unpredictable. I know that Emily could be gone from us before she finishes high school. But, the wonderful people I"ve met here who are thriving and leaving their mark on the world remind me that there is always HOPE.
I find hope here, on the site. On the days that it is difficult to imagine Emily as an adult, I look to the wonderful young (and not so young <img src="i/expressions/face-icon-small-happy.gif" border="0"> ) adults with CF that are regulars here. We all know that CF is unpredictable. I know that Emily could be gone from us before she finishes high school. But, the wonderful people I"ve met here who are thriving and leaving their mark on the world remind me that there is always HOPE.
I find hope here, on the site. On the days that it is difficult to imagine Emily as an adult, I look to the wonderful young (and not so young <img src="i/expressions/face-icon-small-happy.gif" border="0"> ) adults with CF that are regulars here. We all know that CF is unpredictable. I know that Emily could be gone from us before she finishes high school. But, the wonderful people I"ve met here who are thriving and leaving their mark on the world remind me that there is always HOPE.
BabyBeauty
New member
I would have to say most days are pretty easy. Then you have one of those really rough days of either a bad doctor's visit, or my daughter is vomiting everywhere, or I read a sad story of a child losing his/her battle with CF. When those rough days come I find that I lean on my family for support. Then I look at my beautiful little angel and I cannot help but think she is going to fight this. I am also very hopeful for new drugs coming down the pipeline that could enhance her life. The amount of money and research that is going on helps a lot. I find that also education on this disease helps tremendously. If I was walking in the dark about what my daughter was going through I would be a basket case.
BabyBeauty
New member
I would have to say most days are pretty easy. Then you have one of those really rough days of either a bad doctor's visit, or my daughter is vomiting everywhere, or I read a sad story of a child losing his/her battle with CF. When those rough days come I find that I lean on my family for support. Then I look at my beautiful little angel and I cannot help but think she is going to fight this. I am also very hopeful for new drugs coming down the pipeline that could enhance her life. The amount of money and research that is going on helps a lot. I find that also education on this disease helps tremendously. If I was walking in the dark about what my daughter was going through I would be a basket case.
BabyBeauty
New member
I would have to say most days are pretty easy. Then you have one of those really rough days of either a bad doctor's visit, or my daughter is vomiting everywhere, or I read a sad story of a child losing his/her battle with CF. When those rough days come I find that I lean on my family for support. Then I look at my beautiful little angel and I cannot help but think she is going to fight this. I am also very hopeful for new drugs coming down the pipeline that could enhance her life. The amount of money and research that is going on helps a lot. I find that also education on this disease helps tremendously. If I was walking in the dark about what my daughter was going through I would be a basket case.
BabyBeauty
New member
I would have to say most days are pretty easy. Then you have one of those really rough days of either a bad doctor's visit, or my daughter is vomiting everywhere, or I read a sad story of a child losing his/her battle with CF. When those rough days come I find that I lean on my family for support. Then I look at my beautiful little angel and I cannot help but think she is going to fight this. I am also very hopeful for new drugs coming down the pipeline that could enhance her life. The amount of money and research that is going on helps a lot. I find that also education on this disease helps tremendously. If I was walking in the dark about what my daughter was going through I would be a basket case.
BabyBeauty
New member
I would have to say most days are pretty easy. Then you have one of those really rough days of either a bad doctor's visit, or my daughter is vomiting everywhere, or I read a sad story of a child losing his/her battle with CF. When those rough days come I find that I lean on my family for support. Then I look at my beautiful little angel and I cannot help but think she is going to fight this. I am also very hopeful for new drugs coming down the pipeline that could enhance her life. The amount of money and research that is going on helps a lot. I find that also education on this disease helps tremendously. If I was walking in the dark about what my daughter was going through I would be a basket case.
LisaGreene
New member
Wow, I love all of these posts! Thank you so much for sharing your wisdom and your light with me and others. You are all right on as far as I can tell by my research for this article. And many of us have alot in common. I am also an "information junkie" when it comes to CF.
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to!
). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues).
Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to!
). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues). Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
LisaGreene
New member
Wow, I love all of these posts! Thank you so much for sharing your wisdom and your light with me and others. You are all right on as far as I can tell by my research for this article. And many of us have alot in common. I am also an "information junkie" when it comes to CF.
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to! ). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues).
Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to!
). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues). Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
LisaGreene
New member
Wow, I love all of these posts! Thank you so much for sharing your wisdom and your light with me and others. You are all right on as far as I can tell by my research for this article. And many of us have alot in common. I am also an "information junkie" when it comes to CF.
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to! ). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues).
Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to!
). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues). Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
LisaGreene
New member
Wow, I love all of these posts! Thank you so much for sharing your wisdom and your light with me and others. You are all right on as far as I can tell by my research for this article. And many of us have alot in common. I am also an "information junkie" when it comes to CF.
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to! ). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues).
Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to!
). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues). Please keep these posts coming. This is an important subject for all of us and I love learning from you!
Hugs,
Lisa G.
mom of 2 kids with CF, speaker and author
LisaGreene
New member
Wow, I love all of these posts! Thank you so much for sharing your wisdom and your light with me and others. You are all right on as far as I can tell by my research for this article. And many of us have alot in common. I am also an "information junkie" when it comes to CF.
<br />
<br />I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to! ). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues).
<br />
<br />Please keep these posts coming. This is an important subject for all of us and I love learning from you!
<br />
<br />Hugs,
<br />Lisa G.
<br />mom of 2 kids with CF, speaker and author
<br />
<br />I am integrating what you are all saying into my writing (don't worry, I won't include your name- unless you want me to!
). I'll post the link to it here when it is published (I can't post the whole article here cause of copyright issues). <br />
<br />Please keep these posts coming. This is an important subject for all of us and I love learning from you!
<br />
<br />Hugs,
<br />Lisa G.
<br />mom of 2 kids with CF, speaker and author