How do you know it is time for a vest?

L

ldenkers

Guest
I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!
 
L

ldenkers

Guest
I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!
 
L

ldenkers

Guest
I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!
 
L

ldenkers

Guest
I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!
 
L

ldenkers

Guest
I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ldenkers</b></i>

I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!</end quote></div>

We've been doing airway clearance since Alyssa was an infant, when she had no symptoms at all. It is probably a good idea to get started doing it and maybe a bronchodialator (albuterol) twice a day. Ask your CF docs -- I'd say its time.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ldenkers</b></i>

I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!</end quote></div>

We've been doing airway clearance since Alyssa was an infant, when she had no symptoms at all. It is probably a good idea to get started doing it and maybe a bronchodialator (albuterol) twice a day. Ask your CF docs -- I'd say its time.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ldenkers</b></i>

I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!</end quote></div>

We've been doing airway clearance since Alyssa was an infant, when she had no symptoms at all. It is probably a good idea to get started doing it and maybe a bronchodialator (albuterol) twice a day. Ask your CF docs -- I'd say its time.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ldenkers</b></i>

I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!</end quote>

We've been doing airway clearance since Alyssa was an infant, when she had no symptoms at all. It is probably a good idea to get started doing it and maybe a bronchodialator (albuterol) twice a day. Ask your CF docs -- I'd say its time.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ldenkers</b></i>
<br />
<br />I don't mean to change the subject too much but I could really use your advice. I have twin boys with CF and so far they don't need any treatments. We've been to two accredited CF centers and not once were told about these treatments. They did have us doing enzymes and the bright orange vitamins for a while but they ended up being PS. They did pass the sweat test as well. Does anyone here do the vest stuff and not really have symptoms? I will do anything!</end quote>
<br />
<br />We've been doing airway clearance since Alyssa was an infant, when she had no symptoms at all. It is probably a good idea to get started doing it and maybe a bronchodialator (albuterol) twice a day. Ask your CF docs -- I'd say its time.
<br />
<br />
 
R

Ratatosk

Administrator
Staff member
We've been doing CPT on DS since he was a week old. Started doing it 4 times a day while on Maternity leave and when he was sick.

DS got his vest when he was 2 1/2 or 3 which is later than most around here, but he needed to be a certain size and his doctor wanted us to be proficient in CPT as well.

Our norm is 3 times a day an increase to as much as every 4 hours when he's had a cough. Important to keep the lungs healthy.
 
R

Ratatosk

Administrator
Staff member
We've been doing CPT on DS since he was a week old. Started doing it 4 times a day while on Maternity leave and when he was sick.

DS got his vest when he was 2 1/2 or 3 which is later than most around here, but he needed to be a certain size and his doctor wanted us to be proficient in CPT as well.

Our norm is 3 times a day an increase to as much as every 4 hours when he's had a cough. Important to keep the lungs healthy.
 
R

Ratatosk

Administrator
Staff member
We've been doing CPT on DS since he was a week old. Started doing it 4 times a day while on Maternity leave and when he was sick.

DS got his vest when he was 2 1/2 or 3 which is later than most around here, but he needed to be a certain size and his doctor wanted us to be proficient in CPT as well.

Our norm is 3 times a day an increase to as much as every 4 hours when he's had a cough. Important to keep the lungs healthy.
 
R

Ratatosk

Administrator
Staff member
We've been doing CPT on DS since he was a week old. Started doing it 4 times a day while on Maternity leave and when he was sick.

DS got his vest when he was 2 1/2 or 3 which is later than most around here, but he needed to be a certain size and his doctor wanted us to be proficient in CPT as well.

Our norm is 3 times a day an increase to as much as every 4 hours when he's had a cough. Important to keep the lungs healthy.
 
R

Ratatosk

Administrator
Staff member
We've been doing CPT on DS since he was a week old. Started doing it 4 times a day while on Maternity leave and when he was sick.
<br />
<br />DS got his vest when he was 2 1/2 or 3 which is later than most around here, but he needed to be a certain size and his doctor wanted us to be proficient in CPT as well.
<br />
<br />Our norm is 3 times a day an increase to as much as every 4 hours when he's had a cough. Important to keep the lungs healthy.
 
N

NanaOf8GirlsAndCounting

Guest
Idenkers, I don't quite understand when you say that they passed the sweat test too. We got the vest for Graycie when she was around 10mo old, coulda been alittle older then that because now it is part of the daily routine and can't remember to well not doing it. Graycie has DDF508 and has both PI, lung involvment and a short gut with a G-tube. Preventive is what her drs are always stressing and it makes me wonder why some doctors are waiting for something to happen before beginning treatment. I would get the vest if at all possible and be a proactive as possible. Grayson also has asthma and we increase vest time when she is feeling ill.
 
N

NanaOf8GirlsAndCounting

Guest
Idenkers, I don't quite understand when you say that they passed the sweat test too. We got the vest for Graycie when she was around 10mo old, coulda been alittle older then that because now it is part of the daily routine and can't remember to well not doing it. Graycie has DDF508 and has both PI, lung involvment and a short gut with a G-tube. Preventive is what her drs are always stressing and it makes me wonder why some doctors are waiting for something to happen before beginning treatment. I would get the vest if at all possible and be a proactive as possible. Grayson also has asthma and we increase vest time when she is feeling ill.
 
N

NanaOf8GirlsAndCounting

Guest
Idenkers, I don't quite understand when you say that they passed the sweat test too. We got the vest for Graycie when she was around 10mo old, coulda been alittle older then that because now it is part of the daily routine and can't remember to well not doing it. Graycie has DDF508 and has both PI, lung involvment and a short gut with a G-tube. Preventive is what her drs are always stressing and it makes me wonder why some doctors are waiting for something to happen before beginning treatment. I would get the vest if at all possible and be a proactive as possible. Grayson also has asthma and we increase vest time when she is feeling ill.
 
N

NanaOf8GirlsAndCounting

Guest
Idenkers, I don't quite understand when you say that they passed the sweat test too. We got the vest for Graycie when she was around 10mo old, coulda been alittle older then that because now it is part of the daily routine and can't remember to well not doing it. Graycie has DDF508 and has both PI, lung involvment and a short gut with a G-tube. Preventive is what her drs are always stressing and it makes me wonder why some doctors are waiting for something to happen before beginning treatment. I would get the vest if at all possible and be a proactive as possible. Grayson also has asthma and we increase vest time when she is feeling ill.
 
N

NanaOf8GirlsAndCounting

Guest
Idenkers, I don't quite understand when you say that they passed the sweat test too. We got the vest for Graycie when she was around 10mo old, coulda been alittle older then that because now it is part of the daily routine and can't remember to well not doing it. Graycie has DDF508 and has both PI, lung involvment and a short gut with a G-tube. Preventive is what her drs are always stressing and it makes me wonder why some doctors are waiting for something to happen before beginning treatment. I would get the vest if at all possible and be a proactive as possible. Grayson also has asthma and we increase vest time when she is feeling ill.
 
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