How do YOU know?

M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

Just curious what YOUR experience is?

</end quote></div>

Hi Sonia,
I have never been on IV antibiotics. I have a different approach to dealing with it than Nightwriter does, but controlling inflammation is one of the cornerstones of what I do. I mostly talk about keeping excess acidity under control but the truth is that removing triggers from my environment (rather than taking allergy medication) is also a very big part of what I do.

My experience (since you asked):
In the fall of 2000, I got very ill. Every time I came off antibiotics, I was back in the ER within 48 hours. In January of 2001, 10 weeks of chronic sinus infections turned to pneumonia and I ended up bedridden for about 3 1/2 months. In May of 2001, I was diagnosed with atypical CF. That summer, armed with the new diagnosis, the doctors were going to get me well. Like the fall before, every time I came off antibiotics, I was back in the ER within 48 hours. Then in late August or early September, after 3 months on this maddening medical merry-go-round, I came up with my own hypothesis. My condition stabilized within two weeks and I have been gradually getting better since then.

I have come to believe that drugs don't make anyone truly well. Drugs are crisis management. To heal the body, you have to rebuild it with good nutrition while killing off infections and removing toxins from the system. For me, being healthy in spite of having CF is very much a lifestyle, not a magic bullet "take this drug and get all better" type thing.

I really don't have any idea what is going on with you. But since you sound very frustrated and since you asked what 'YOUR' experience is, I thought I would share my experience and thoughts. If you are interested in our approach, there is a little info on my website about what has helped me and my son wcf get well. And you are always welcome to write me privately.

Good luck with this. I hope you figure out very soon whatever it is you need to figure out so you can get on the road to recovery.

Peace.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

Just curious what YOUR experience is?

</end quote></div>

Hi Sonia,
I have never been on IV antibiotics. I have a different approach to dealing with it than Nightwriter does, but controlling inflammation is one of the cornerstones of what I do. I mostly talk about keeping excess acidity under control but the truth is that removing triggers from my environment (rather than taking allergy medication) is also a very big part of what I do.

My experience (since you asked):
In the fall of 2000, I got very ill. Every time I came off antibiotics, I was back in the ER within 48 hours. In January of 2001, 10 weeks of chronic sinus infections turned to pneumonia and I ended up bedridden for about 3 1/2 months. In May of 2001, I was diagnosed with atypical CF. That summer, armed with the new diagnosis, the doctors were going to get me well. Like the fall before, every time I came off antibiotics, I was back in the ER within 48 hours. Then in late August or early September, after 3 months on this maddening medical merry-go-round, I came up with my own hypothesis. My condition stabilized within two weeks and I have been gradually getting better since then.

I have come to believe that drugs don't make anyone truly well. Drugs are crisis management. To heal the body, you have to rebuild it with good nutrition while killing off infections and removing toxins from the system. For me, being healthy in spite of having CF is very much a lifestyle, not a magic bullet "take this drug and get all better" type thing.

I really don't have any idea what is going on with you. But since you sound very frustrated and since you asked what 'YOUR' experience is, I thought I would share my experience and thoughts. If you are interested in our approach, there is a little info on my website about what has helped me and my son wcf get well. And you are always welcome to write me privately.

Good luck with this. I hope you figure out very soon whatever it is you need to figure out so you can get on the road to recovery.

Peace.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

Just curious what YOUR experience is?

</end quote></div>

Hi Sonia,
I have never been on IV antibiotics. I have a different approach to dealing with it than Nightwriter does, but controlling inflammation is one of the cornerstones of what I do. I mostly talk about keeping excess acidity under control but the truth is that removing triggers from my environment (rather than taking allergy medication) is also a very big part of what I do.

My experience (since you asked):
In the fall of 2000, I got very ill. Every time I came off antibiotics, I was back in the ER within 48 hours. In January of 2001, 10 weeks of chronic sinus infections turned to pneumonia and I ended up bedridden for about 3 1/2 months. In May of 2001, I was diagnosed with atypical CF. That summer, armed with the new diagnosis, the doctors were going to get me well. Like the fall before, every time I came off antibiotics, I was back in the ER within 48 hours. Then in late August or early September, after 3 months on this maddening medical merry-go-round, I came up with my own hypothesis. My condition stabilized within two weeks and I have been gradually getting better since then.

I have come to believe that drugs don't make anyone truly well. Drugs are crisis management. To heal the body, you have to rebuild it with good nutrition while killing off infections and removing toxins from the system. For me, being healthy in spite of having CF is very much a lifestyle, not a magic bullet "take this drug and get all better" type thing.

I really don't have any idea what is going on with you. But since you sound very frustrated and since you asked what 'YOUR' experience is, I thought I would share my experience and thoughts. If you are interested in our approach, there is a little info on my website about what has helped me and my son wcf get well. And you are always welcome to write me privately.

Good luck with this. I hope you figure out very soon whatever it is you need to figure out so you can get on the road to recovery.

Peace.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

Just curious what YOUR experience is?

</end quote>

Hi Sonia,
I have never been on IV antibiotics. I have a different approach to dealing with it than Nightwriter does, but controlling inflammation is one of the cornerstones of what I do. I mostly talk about keeping excess acidity under control but the truth is that removing triggers from my environment (rather than taking allergy medication) is also a very big part of what I do.

My experience (since you asked):
In the fall of 2000, I got very ill. Every time I came off antibiotics, I was back in the ER within 48 hours. In January of 2001, 10 weeks of chronic sinus infections turned to pneumonia and I ended up bedridden for about 3 1/2 months. In May of 2001, I was diagnosed with atypical CF. That summer, armed with the new diagnosis, the doctors were going to get me well. Like the fall before, every time I came off antibiotics, I was back in the ER within 48 hours. Then in late August or early September, after 3 months on this maddening medical merry-go-round, I came up with my own hypothesis. My condition stabilized within two weeks and I have been gradually getting better since then.

I have come to believe that drugs don't make anyone truly well. Drugs are crisis management. To heal the body, you have to rebuild it with good nutrition while killing off infections and removing toxins from the system. For me, being healthy in spite of having CF is very much a lifestyle, not a magic bullet "take this drug and get all better" type thing.

I really don't have any idea what is going on with you. But since you sound very frustrated and since you asked what 'YOUR' experience is, I thought I would share my experience and thoughts. If you are interested in our approach, there is a little info on my website about what has helped me and my son wcf get well. And you are always welcome to write me privately.

Good luck with this. I hope you figure out very soon whatever it is you need to figure out so you can get on the road to recovery.

Peace.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>
<br />
<br />Just curious what YOUR experience is?
<br />
<br /></end quote>
<br />
<br />Hi Sonia,
<br />I have never been on IV antibiotics. I have a different approach to dealing with it than Nightwriter does, but controlling inflammation is one of the cornerstones of what I do. I mostly talk about keeping excess acidity under control but the truth is that removing triggers from my environment (rather than taking allergy medication) is also a very big part of what I do.
<br />
<br />My experience (since you asked):
<br />In the fall of 2000, I got very ill. Every time I came off antibiotics, I was back in the ER within 48 hours. In January of 2001, 10 weeks of chronic sinus infections turned to pneumonia and I ended up bedridden for about 3 1/2 months. In May of 2001, I was diagnosed with atypical CF. That summer, armed with the new diagnosis, the doctors were going to get me well. Like the fall before, every time I came off antibiotics, I was back in the ER within 48 hours. Then in late August or early September, after 3 months on this maddening medical merry-go-round, I came up with my own hypothesis. My condition stabilized within two weeks and I have been gradually getting better since then.
<br />
<br />I have come to believe that drugs don't make anyone truly well. Drugs are crisis management. To heal the body, you have to rebuild it with good nutrition while killing off infections and removing toxins from the system. For me, being healthy in spite of having CF is very much a lifestyle, not a magic bullet "take this drug and get all better" type thing.
<br />
<br />I really don't have any idea what is going on with you. But since you sound very frustrated and since you asked what 'YOUR' experience is, I thought I would share my experience and thoughts. If you are interested in our approach, there is a little info on my website about what has helped me and my son wcf get well. And you are always welcome to write me privately.
<br />
<br />Good luck with this. I hope you figure out very soon whatever it is you need to figure out so you can get on the road to recovery.
<br />
<br />Peace.
 
J

Jeana

New member
Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.
 
J

Jeana

New member
Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.
 
J

Jeana

New member
Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.
 
J

Jeana

New member
Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.
 
J

Jeana

New member
Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jeana</b></i>

Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.</end quote></div>

I took ibuprofen almost every day for 5 or 6 years. I got off of it about a year ago because of the work I have done to reduce excess acidity in my system. Some general thoughts on how to do that can be found here: <a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.org/howto.shtml">http://healthgazelle.org/howto.shtml</a>

I also can't get rid of carpets (as you mentioned in a different post) but have found that getting rid of other things has helped make it more bearable. I have gone to real extremes and own no upholstered furniture, etc. I don't recommend anyone just ditch ALL their furniture overnight, if only because the massive shock to the system of something like that is too hard on someone who is already sick, but I do recommend that people consider consider getting rid of throw rugs, throw pillows and so forth. If getting rid of them is just too much consider, then at least run everything through the washing machine about once a week.

Yes, I know that's a LOT of work and, yes, I know that gets expensive. Been there, done that, got the T-shirt. And at some point decided that if doing 18 loads of laundry every Saturday at the laundromat could so successfully keep me out of the ER, maybe it wasn't really CF that was killing me. Maybe it was my possessions. So I began to decide I didn't really need throw rugs that badly. And I didn't really need curtains that badly....etc... It just evolved form there.

So keep the dogs. But pitch (or wash like crazy) any throw pillows, throw rugs, curtains...etc... that you can. And work on eating less acid foods and getting your ph balance under control.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jeana</b></i>

Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.</end quote></div>

I took ibuprofen almost every day for 5 or 6 years. I got off of it about a year ago because of the work I have done to reduce excess acidity in my system. Some general thoughts on how to do that can be found here: <a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.org/howto.shtml">http://healthgazelle.org/howto.shtml</a>

I also can't get rid of carpets (as you mentioned in a different post) but have found that getting rid of other things has helped make it more bearable. I have gone to real extremes and own no upholstered furniture, etc. I don't recommend anyone just ditch ALL their furniture overnight, if only because the massive shock to the system of something like that is too hard on someone who is already sick, but I do recommend that people consider consider getting rid of throw rugs, throw pillows and so forth. If getting rid of them is just too much consider, then at least run everything through the washing machine about once a week.

Yes, I know that's a LOT of work and, yes, I know that gets expensive. Been there, done that, got the T-shirt. And at some point decided that if doing 18 loads of laundry every Saturday at the laundromat could so successfully keep me out of the ER, maybe it wasn't really CF that was killing me. Maybe it was my possessions. So I began to decide I didn't really need throw rugs that badly. And I didn't really need curtains that badly....etc... It just evolved form there.

So keep the dogs. But pitch (or wash like crazy) any throw pillows, throw rugs, curtains...etc... that you can. And work on eating less acid foods and getting your ph balance under control.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jeana</b></i>

Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.</end quote></div>

I took ibuprofen almost every day for 5 or 6 years. I got off of it about a year ago because of the work I have done to reduce excess acidity in my system. Some general thoughts on how to do that can be found here: <a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.org/howto.shtml">http://healthgazelle.org/howto.shtml</a>

I also can't get rid of carpets (as you mentioned in a different post) but have found that getting rid of other things has helped make it more bearable. I have gone to real extremes and own no upholstered furniture, etc. I don't recommend anyone just ditch ALL their furniture overnight, if only because the massive shock to the system of something like that is too hard on someone who is already sick, but I do recommend that people consider consider getting rid of throw rugs, throw pillows and so forth. If getting rid of them is just too much consider, then at least run everything through the washing machine about once a week.

Yes, I know that's a LOT of work and, yes, I know that gets expensive. Been there, done that, got the T-shirt. And at some point decided that if doing 18 loads of laundry every Saturday at the laundromat could so successfully keep me out of the ER, maybe it wasn't really CF that was killing me. Maybe it was my possessions. So I began to decide I didn't really need throw rugs that badly. And I didn't really need curtains that badly....etc... It just evolved form there.

So keep the dogs. But pitch (or wash like crazy) any throw pillows, throw rugs, curtains...etc... that you can. And work on eating less acid foods and getting your ph balance under control.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jeana</b></i>

Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.</end quote>

I took ibuprofen almost every day for 5 or 6 years. I got off of it about a year ago because of the work I have done to reduce excess acidity in my system. Some general thoughts on how to do that can be found here: <a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.org/howto.shtml">http://healthgazelle.org/howto.shtml</a>

I also can't get rid of carpets (as you mentioned in a different post) but have found that getting rid of other things has helped make it more bearable. I have gone to real extremes and own no upholstered furniture, etc. I don't recommend anyone just ditch ALL their furniture overnight, if only because the massive shock to the system of something like that is too hard on someone who is already sick, but I do recommend that people consider consider getting rid of throw rugs, throw pillows and so forth. If getting rid of them is just too much consider, then at least run everything through the washing machine about once a week.

Yes, I know that's a LOT of work and, yes, I know that gets expensive. Been there, done that, got the T-shirt. And at some point decided that if doing 18 loads of laundry every Saturday at the laundromat could so successfully keep me out of the ER, maybe it wasn't really CF that was killing me. Maybe it was my possessions. So I began to decide I didn't really need throw rugs that badly. And I didn't really need curtains that badly....etc... It just evolved form there.

So keep the dogs. But pitch (or wash like crazy) any throw pillows, throw rugs, curtains...etc... that you can. And work on eating less acid foods and getting your ph balance under control.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jeana</b></i>
<br />
<br />Many of you wrote different things you used to keep inflammation down. I realized that inflammation hasn't been a big problem in my past, maybe due to the fact that I usually use IB Profin and allergy meds. However, not since becoming pregnant. I am 21 weeks. Now, my doc has me on steroids (Prednisone) which could have fetal effects. Is there anytning else anyone knows about that reduces inflammation while being pregnant? Has anyone been pregnant and been advised to take something in particular for inflammation? P.S. I know I am allergic to dogs (and I have two, but I can't get rid of them because of my son) and dustmites.</end quote>
<br />
<br />I took ibuprofen almost every day for 5 or 6 years. I got off of it about a year ago because of the work I have done to reduce excess acidity in my system. Some general thoughts on how to do that can be found here: <a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.org/howto.shtml">http://healthgazelle.org/howto.shtml</a>
<br />
<br />I also can't get rid of carpets (as you mentioned in a different post) but have found that getting rid of other things has helped make it more bearable. I have gone to real extremes and own no upholstered furniture, etc. I don't recommend anyone just ditch ALL their furniture overnight, if only because the massive shock to the system of something like that is too hard on someone who is already sick, but I do recommend that people consider consider getting rid of throw rugs, throw pillows and so forth. If getting rid of them is just too much consider, then at least run everything through the washing machine about once a week.
<br />
<br />Yes, I know that's a LOT of work and, yes, I know that gets expensive. Been there, done that, got the T-shirt. And at some point decided that if doing 18 loads of laundry every Saturday at the laundromat could so successfully keep me out of the ER, maybe it wasn't really CF that was killing me. Maybe it was my possessions. So I began to decide I didn't really need throw rugs that badly. And I didn't really need curtains that badly....etc... It just evolved form there.
<br />
<br />So keep the dogs. But pitch (or wash like crazy) any throw pillows, throw rugs, curtains...etc... that you can. And work on eating less acid foods and getting your ph balance under control.
<br />
<br />Good luck with this.
 
G

gsplover

New member
Hi Sonia,

I go in Iv antibiotics that I am sensitive to and my lung functions only slightly impove. I haven't had a big improvement on them for over 2 years. We keep trying them but nothing. This is why I am being listed for a transplant. Why keep fighting this fight if their is nothing that is going to help me fight it.

I hope you find something that works for you!

Stephanie
 
G

gsplover

New member
Hi Sonia,

I go in Iv antibiotics that I am sensitive to and my lung functions only slightly impove. I haven't had a big improvement on them for over 2 years. We keep trying them but nothing. This is why I am being listed for a transplant. Why keep fighting this fight if their is nothing that is going to help me fight it.

I hope you find something that works for you!

Stephanie
 
G

gsplover

New member
Hi Sonia,

I go in Iv antibiotics that I am sensitive to and my lung functions only slightly impove. I haven't had a big improvement on them for over 2 years. We keep trying them but nothing. This is why I am being listed for a transplant. Why keep fighting this fight if their is nothing that is going to help me fight it.

I hope you find something that works for you!

Stephanie
 
G

gsplover

New member
Hi Sonia,

I go in Iv antibiotics that I am sensitive to and my lung functions only slightly impove. I haven't had a big improvement on them for over 2 years. We keep trying them but nothing. This is why I am being listed for a transplant. Why keep fighting this fight if their is nothing that is going to help me fight it.

I hope you find something that works for you!

Stephanie
 
G

gsplover

New member
Hi Sonia,
<br />
<br />I go in Iv antibiotics that I am sensitive to and my lung functions only slightly impove. I haven't had a big improvement on them for over 2 years. We keep trying them but nothing. This is why I am being listed for a transplant. Why keep fighting this fight if their is nothing that is going to help me fight it.
<br />
<br />I hope you find something that works for you!
<br />
<br />Stephanie
 
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