How do you work your treatments around school?

[hmw]

Emily has to get on the bus at 8:15am and gets home from school a little before 4; she'll be going into 3rd grade this fall.

When she is healthy, we do Ventolin and Flovent inhalers w/ her vest and this cuts down on treatment times. On school mornings she is up by 7 and started on her vest asap; that way, by the time she's done she's hungry enough to eat a good breakfast fairly quickly. If she's mildly ill/congested and we have to add a 3rd treatment to her day, we do it right after she gets home at 4; and she starts her bedtime treatment at about 8:00 (generally a little later if she's had one after school.) She'll be starting Pulmazyne with her bedtime treatment after her next clinic visit but at least that is only once a day. When she is sick, some of her protocol changes a bit and things are more time consuming; and if she is sick enough to require 4 treatments a day, I don't send her to school.

To further help the mornings go smoother, we do showers in the evenings, I try to make sure clothes and backpacks (for all the kids!) are ready the night before to cut down on time-wasting running around for last-minute stuff, etc. But the mornings can be really chaotic! I don't want to haul her out of bed any earlier than I already do, though, since that would mean having to put her to bed even earlier- and as it is, she has so little time to play after school between homework, treatments, dinner, shower, etc- nevermind when she has to fit in an after-school treatment too.

 

[hmw]

Emily has to get on the bus at 8:15am and gets home from school a little before 4; she'll be going into 3rd grade this fall.

When she is healthy, we do Ventolin and Flovent inhalers w/ her vest and this cuts down on treatment times. On school mornings she is up by 7 and started on her vest asap; that way, by the time she's done she's hungry enough to eat a good breakfast fairly quickly. If she's mildly ill/congested and we have to add a 3rd treatment to her day, we do it right after she gets home at 4; and she starts her bedtime treatment at about 8:00 (generally a little later if she's had one after school.) She'll be starting Pulmazyne with her bedtime treatment after her next clinic visit but at least that is only once a day. When she is sick, some of her protocol changes a bit and things are more time consuming; and if she is sick enough to require 4 treatments a day, I don't send her to school.

To further help the mornings go smoother, we do showers in the evenings, I try to make sure clothes and backpacks (for all the kids!) are ready the night before to cut down on time-wasting running around for last-minute stuff, etc. But the mornings can be really chaotic! I don't want to haul her out of bed any earlier than I already do, though, since that would mean having to put her to bed even earlier- and as it is, she has so little time to play after school between homework, treatments, dinner, shower, etc- nevermind when she has to fit in an after-school treatment too.

 

[hmw]

Emily has to get on the bus at 8:15am and gets home from school a little before 4; she'll be going into 3rd grade this fall.

When she is healthy, we do Ventolin and Flovent inhalers w/ her vest and this cuts down on treatment times. On school mornings she is up by 7 and started on her vest asap; that way, by the time she's done she's hungry enough to eat a good breakfast fairly quickly. If she's mildly ill/congested and we have to add a 3rd treatment to her day, we do it right after she gets home at 4; and she starts her bedtime treatment at about 8:00 (generally a little later if she's had one after school.) She'll be starting Pulmazyne with her bedtime treatment after her next clinic visit but at least that is only once a day. When she is sick, some of her protocol changes a bit and things are more time consuming; and if she is sick enough to require 4 treatments a day, I don't send her to school.

To further help the mornings go smoother, we do showers in the evenings, I try to make sure clothes and backpacks (for all the kids!) are ready the night before to cut down on time-wasting running around for last-minute stuff, etc. But the mornings can be really chaotic! I don't want to haul her out of bed any earlier than I already do, though, since that would mean having to put her to bed even earlier- and as it is, she has so little time to play after school between homework, treatments, dinner, shower, etc- nevermind when she has to fit in an after-school treatment too.

 

[hmw]

Emily has to get on the bus at 8:15am and gets home from school a little before 4; she'll be going into 3rd grade this fall.

When she is healthy, we do Ventolin and Flovent inhalers w/ her vest and this cuts down on treatment times. On school mornings she is up by 7 and started on her vest asap; that way, by the time she's done she's hungry enough to eat a good breakfast fairly quickly. If she's mildly ill/congested and we have to add a 3rd treatment to her day, we do it right after she gets home at 4; and she starts her bedtime treatment at about 8:00 (generally a little later if she's had one after school.) She'll be starting Pulmazyne with her bedtime treatment after her next clinic visit but at least that is only once a day. When she is sick, some of her protocol changes a bit and things are more time consuming; and if she is sick enough to require 4 treatments a day, I don't send her to school.

To further help the mornings go smoother, we do showers in the evenings, I try to make sure clothes and backpacks (for all the kids!) are ready the night before to cut down on time-wasting running around for last-minute stuff, etc. But the mornings can be really chaotic! I don't want to haul her out of bed any earlier than I already do, though, since that would mean having to put her to bed even earlier- and as it is, she has so little time to play after school between homework, treatments, dinner, shower, etc- nevermind when she has to fit in an after-school treatment too.

 

[hmw]

Emily has to get on the bus at 8:15am and gets home from school a little before 4; she'll be going into 3rd grade this fall.
<br />
<br />When she is healthy, we do Ventolin and Flovent inhalers w/ her vest and this cuts down on treatment times. On school mornings she is up by 7 and started on her vest asap; that way, by the time she's done she's hungry enough to eat a good breakfast fairly quickly. If she's mildly ill/congested and we have to add a 3rd treatment to her day, we do it right after she gets home at 4; and she starts her bedtime treatment at about 8:00 (generally a little later if she's had one after school.) She'll be starting Pulmazyne with her bedtime treatment after her next clinic visit but at least that is only once a day. When she is sick, some of her protocol changes a bit and things are more time consuming; and if she is sick enough to require 4 treatments a day, I don't send her to school.
<br />
<br />To further help the mornings go smoother, we do showers in the evenings, I try to make sure clothes and backpacks (for all the kids!) are ready the night before to cut down on time-wasting running around for last-minute stuff, etc. But the mornings can be really chaotic! I don't want to haul her out of bed any earlier than I already do, though, since that would mean having to put her to bed even earlier- and as it is, she has so little time to play after school between homework, treatments, dinner, shower, etc- nevermind when she has to fit in an after-school treatment too.

 

[LisaGreene]

We do the albuterol "puffer" instead of nebulized which cuts down on alot of time. With the hypertonic, pulmozyme and Tobi, every bit helps.

The kids just get up early in the morning and then do them after homework in the afternoon. They still manage to fit in "fun stuff" but we certainly don't do as many xtra-curricular activities as peers.

 

[LisaGreene]

We do the albuterol "puffer" instead of nebulized which cuts down on alot of time. With the hypertonic, pulmozyme and Tobi, every bit helps.

The kids just get up early in the morning and then do them after homework in the afternoon. They still manage to fit in "fun stuff" but we certainly don't do as many xtra-curricular activities as peers.

 

[LisaGreene]

We do the albuterol "puffer" instead of nebulized which cuts down on alot of time. With the hypertonic, pulmozyme and Tobi, every bit helps.

The kids just get up early in the morning and then do them after homework in the afternoon. They still manage to fit in "fun stuff" but we certainly don't do as many xtra-curricular activities as peers.

 

[LisaGreene]

We do the albuterol "puffer" instead of nebulized which cuts down on alot of time. With the hypertonic, pulmozyme and Tobi, every bit helps.

The kids just get up early in the morning and then do them after homework in the afternoon. They still manage to fit in "fun stuff" but we certainly don't do as many xtra-curricular activities as peers.

 

[LisaGreene]

We do the albuterol "puffer" instead of nebulized which cuts down on alot of time. With the hypertonic, pulmozyme and Tobi, every bit helps.
<br />
<br />The kids just get up early in the morning and then do them after homework in the afternoon. They still manage to fit in "fun stuff" but we certainly don't do as many xtra-curricular activities as peers.

 

[sasha]

When my brother and I were diagnosed, it was in the middle of the school year, so we were just kinda thrust into it and felt really busy with the whole "meds" thing in the already-rushed morning schedule. But somehow, it all fit into place really quickly, I hope it does the same for you guys!
But anyway, I'm supposed to do the vest for 40 minutes everyday, so I pretty much construed that into 2 intervals, and only did it for 10 minutes in the morning, at the same time as hypertonic, of course. Is it possible for your son to split up vest time so that he only does a short amount of minutes in the morning? ALso, I used an inhaler instead of a neb whenever possible, like with xopenex, but before that I used albuterol in the inhaler as well. And as far as the pulmozyme, I'm just gonna guess that he will only have to take that once a day? Do it as a night time treatment, it saves soo much morning time, which is really the biggest hassle.
My brother and I have one vest to share, which can become a hassle, so he doesn't even do the vest in the morning, and uses his acapella instead. (his choice, i didn't bully him into the 40 minutes at night Lol) My point is that the acapella is a lifesaver if you just run out of time for that vest..
My biggest problem: the nebs take longer than my 10 minutes of vesting..*Sigh*

 

[sasha]

When my brother and I were diagnosed, it was in the middle of the school year, so we were just kinda thrust into it and felt really busy with the whole "meds" thing in the already-rushed morning schedule. But somehow, it all fit into place really quickly, I hope it does the same for you guys!
But anyway, I'm supposed to do the vest for 40 minutes everyday, so I pretty much construed that into 2 intervals, and only did it for 10 minutes in the morning, at the same time as hypertonic, of course. Is it possible for your son to split up vest time so that he only does a short amount of minutes in the morning? ALso, I used an inhaler instead of a neb whenever possible, like with xopenex, but before that I used albuterol in the inhaler as well. And as far as the pulmozyme, I'm just gonna guess that he will only have to take that once a day? Do it as a night time treatment, it saves soo much morning time, which is really the biggest hassle.
My brother and I have one vest to share, which can become a hassle, so he doesn't even do the vest in the morning, and uses his acapella instead. (his choice, i didn't bully him into the 40 minutes at night Lol) My point is that the acapella is a lifesaver if you just run out of time for that vest..
My biggest problem: the nebs take longer than my 10 minutes of vesting..*Sigh*

 

[sasha]

When my brother and I were diagnosed, it was in the middle of the school year, so we were just kinda thrust into it and felt really busy with the whole "meds" thing in the already-rushed morning schedule. But somehow, it all fit into place really quickly, I hope it does the same for you guys!
But anyway, I'm supposed to do the vest for 40 minutes everyday, so I pretty much construed that into 2 intervals, and only did it for 10 minutes in the morning, at the same time as hypertonic, of course. Is it possible for your son to split up vest time so that he only does a short amount of minutes in the morning? ALso, I used an inhaler instead of a neb whenever possible, like with xopenex, but before that I used albuterol in the inhaler as well. And as far as the pulmozyme, I'm just gonna guess that he will only have to take that once a day? Do it as a night time treatment, it saves soo much morning time, which is really the biggest hassle.
My brother and I have one vest to share, which can become a hassle, so he doesn't even do the vest in the morning, and uses his acapella instead. (his choice, i didn't bully him into the 40 minutes at night Lol) My point is that the acapella is a lifesaver if you just run out of time for that vest..
My biggest problem: the nebs take longer than my 10 minutes of vesting..*Sigh*

 

[sasha]

When my brother and I were diagnosed, it was in the middle of the school year, so we were just kinda thrust into it and felt really busy with the whole "meds" thing in the already-rushed morning schedule. But somehow, it all fit into place really quickly, I hope it does the same for you guys!
But anyway, I'm supposed to do the vest for 40 minutes everyday, so I pretty much construed that into 2 intervals, and only did it for 10 minutes in the morning, at the same time as hypertonic, of course. Is it possible for your son to split up vest time so that he only does a short amount of minutes in the morning? ALso, I used an inhaler instead of a neb whenever possible, like with xopenex, but before that I used albuterol in the inhaler as well. And as far as the pulmozyme, I'm just gonna guess that he will only have to take that once a day? Do it as a night time treatment, it saves soo much morning time, which is really the biggest hassle.
My brother and I have one vest to share, which can become a hassle, so he doesn't even do the vest in the morning, and uses his acapella instead. (his choice, i didn't bully him into the 40 minutes at night Lol) My point is that the acapella is a lifesaver if you just run out of time for that vest..
My biggest problem: the nebs take longer than my 10 minutes of vesting..*Sigh*

 

[sasha]

When my brother and I were diagnosed, it was in the middle of the school year, so we were just kinda thrust into it and felt really busy with the whole "meds" thing in the already-rushed morning schedule. But somehow, it all fit into place really quickly, I hope it does the same for you guys!
<br />But anyway, I'm supposed to do the vest for 40 minutes everyday, so I pretty much construed that into 2 intervals, and only did it for 10 minutes in the morning, at the same time as hypertonic, of course. Is it possible for your son to split up vest time so that he only does a short amount of minutes in the morning? ALso, I used an inhaler instead of a neb whenever possible, like with xopenex, but before that I used albuterol in the inhaler as well. And as far as the pulmozyme, I'm just gonna guess that he will only have to take that once a day? Do it as a night time treatment, it saves soo much morning time, which is really the biggest hassle.
<br />My brother and I have one vest to share, which can become a hassle, so he doesn't even do the vest in the morning, and uses his acapella instead. (his choice, i didn't bully him into the 40 minutes at night Lol) My point is that the acapella is a lifesaver if you just run out of time for that vest..
<br />My biggest problem: the nebs take longer than my 10 minutes of vesting..*Sigh*

 

[gr33nie]

my son just started pre-school and he has to be there by 8:30. Even though it's only 10 minutes away, we have to get him up at 6a.m. to get through everything. One thing that really helps is doing nebulizers at the same time as the vest. He does his xopanex puffer and then we do hypertonic saline and pulmozyme while the vest is on. Then TOBI after that.

 

[gr33nie]

my son just started pre-school and he has to be there by 8:30. Even though it's only 10 minutes away, we have to get him up at 6a.m. to get through everything. One thing that really helps is doing nebulizers at the same time as the vest. He does his xopanex puffer and then we do hypertonic saline and pulmozyme while the vest is on. Then TOBI after that.

 

[gr33nie]

my son just started pre-school and he has to be there by 8:30. Even though it's only 10 minutes away, we have to get him up at 6a.m. to get through everything. One thing that really helps is doing nebulizers at the same time as the vest. He does his xopanex puffer and then we do hypertonic saline and pulmozyme while the vest is on. Then TOBI after that.

 

[gr33nie]

my son just started pre-school and he has to be there by 8:30. Even though it's only 10 minutes away, we have to get him up at 6a.m. to get through everything. One thing that really helps is doing nebulizers at the same time as the vest. He does his xopanex puffer and then we do hypertonic saline and pulmozyme while the vest is on. Then TOBI after that.

 

[gr33nie]

my son just started pre-school and he has to be there by 8:30. Even though it's only 10 minutes away, we have to get him up at 6a.m. to get through everything. One thing that really helps is doing nebulizers at the same time as the vest. He does his xopanex puffer and then we do hypertonic saline and pulmozyme while the vest is on. Then TOBI after that.