kayleesgrandma
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How improtant is prevention in doing chest therapy
- Thread starter kayleesgrandma
- Start date
As much as i hate physio, i beleive it's imperitive. Before i do it i think about how much i hate doing it, and how long it takes, but once it's done i feel soooooooo much better. I can't imagine how fast bacteria and infections would grow if we did not do it. I just feel soooo horrible w/o doing it, even though yes, some times (tho rarely) i miss one. And I suffer and am miserable, lol. But, i have not had an infection in 3 years so I guess it must be working!
As much as i hate physio, i beleive it's imperitive. Before i do it i think about how much i hate doing it, and how long it takes, but once it's done i feel soooooooo much better. I can't imagine how fast bacteria and infections would grow if we did not do it. I just feel soooo horrible w/o doing it, even though yes, some times (tho rarely) i miss one. And I suffer and am miserable, lol. But, i have not had an infection in 3 years so I guess it must be working!
As much as i hate physio, i beleive it's imperitive. Before i do it i think about how much i hate doing it, and how long it takes, but once it's done i feel soooooooo much better. I can't imagine how fast bacteria and infections would grow if we did not do it. I just feel soooo horrible w/o doing it, even though yes, some times (tho rarely) i miss one. And I suffer and am miserable, lol. But, i have not had an infection in 3 years so I guess it must be working!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
I did in the long run only take my enzyms and the oral antibiotics.
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
I did in the long run only take my enzyms and the oral antibiotics.
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
I did in the long run only take my enzyms and the oral antibiotics.
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
I did in the long run only take my enzyms and the oral antibiotics.
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote></div>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
I did in the long run only take my enzyms and the oral antibiotics.
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Uli</b></i>
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
I did in the long run only take my enzyms and the oral antibiotics.
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now
I think its a difficult question because everyone and everyones cf is different.
I was diagnosed with 6 months but did no therapy except some enzyms and when I got a cold oral antibiotics until I got 12. At that time I visited a cf-clinic for the first time. I got oral antibiotics to be taken every day and was told to inhale and do some breathing therapy ( at that time "beating" the chest and back with the hands). As I didn´t like that very much
Later in my early twenties i got my first IV, which I did quite regularly once a year from there on. I remember one e time when inhaling tobramycin for 3 weeks, but otherwise I did not inhale anything.
At about 33/34 I started inhaling powder/spray two times a day and got massages about once a week. Sometimes I inhaled Colistin in case of infection and once I tried tobi.
Until last year I did get around with that without major problems, but now the upper lung parts are chronical infected and I do IV nearly all the time now because I don´t want them to be "taken out" wit an operation...
I don´t know, if my lungs will have been better for some more weeks/months or even years if I had done more therapy, but I for me personally am glad that I lived a nearly normal life all the years before with working fulltime for over 20 years and lots of vacations in different countries without loosing many hours a day for therapy...
I had friends who died -younger than I am now- because of accidents or cancer and did not do half the things I did.
Sometimes I think who knows if my lungs will not have been worse with inhaling lots of stuff all the time because they would have got used to it and therefore the medications would not have helped anymore in case of an infection...
Its just my opinion and I don´t want to offend anybody but I´m convinced it was the right way for me.
Uli,44,Germany</end quote>
to a extent i think you have taken the easy way out i have busted my gut until relativly recently to keep as healthy as possible and in the proccess have at times felt physically and emotionally drained you either have been very lucky or are just a very mild case ie to have skipped on so many treatments and got away to living the age that you have is beyond me if i would of done what you you would of done iam 90% certain i would be dead by now