How is Everyone FeelingToday?

[Juniper]

I'm having a good day today. Been so tired just lately and was disappointed that after two weeks of Home IV's my FEV1 had stayed at 53%.
But we get a bank holiday this Monday so no work. Hubby is off to london to watch Football tomorrow and i'm going out with my girlfriends and my holiday tickets have come. Roll on three weeks time.!!!

Hope you soon have a good day XX

 

[Juniper]

I'm having a good day today. Been so tired just lately and was disappointed that after two weeks of Home IV's my FEV1 had stayed at 53%.
But we get a bank holiday this Monday so no work. Hubby is off to london to watch Football tomorrow and i'm going out with my girlfriends and my holiday tickets have come. Roll on three weeks time.!!!

Hope you soon have a good day XX

 

[Juniper]

I'm having a good day today. Been so tired just lately and was disappointed that after two weeks of Home IV's my FEV1 had stayed at 53%.
But we get a bank holiday this Monday so no work. Hubby is off to london to watch Football tomorrow and i'm going out with my girlfriends and my holiday tickets have come. Roll on three weeks time.!!!

Hope you soon have a good day XX

 

[Juniper]

I'm having a good day today. Been so tired just lately and was disappointed that after two weeks of Home IV's my FEV1 had stayed at 53%.
But we get a bank holiday this Monday so no work. Hubby is off to london to watch Football tomorrow and i'm going out with my girlfriends and my holiday tickets have come. Roll on three weeks time.!!!

Hope you soon have a good day XX

 

[Juniper]

I'm having a good day today. Been so tired just lately and was disappointed that after two weeks of Home IV's my FEV1 had stayed at 53%.
<br />But we get a bank holiday this Monday so no work. Hubby is off to london to watch Football tomorrow and i'm going out with my girlfriends and my holiday tickets have come. Roll on three weeks time.!!!
<br />
<br />Hope you soon have a good day XX

 

[Skye]

I am fighting with my insurance company to get a reflux test I need. Going for PFT's next week, hopefully no IV's needed. I did an article in a local paper about Greatstrides, thought it was an afternoon paper that no one reads. Well everyone does and now everyone asks me how I am feeling. I even had someone tell me my color looked good today. I guess that means I look better than my usual green, ughh! I need to find a good line now cuz the whole city knows now and while the response has been very amazing I can see that it is going to quickly get annoying if I don't come up with some clever lines. My hubbie is somewhat of a local celeb and now everyone knows his wife has CF. I did it to inspire some of the youth around here and be a spokesperson for the cause. Now I need to find a sane way to deal with the idiots who will surely come my way.

 

[Skye]

I am fighting with my insurance company to get a reflux test I need. Going for PFT's next week, hopefully no IV's needed. I did an article in a local paper about Greatstrides, thought it was an afternoon paper that no one reads. Well everyone does and now everyone asks me how I am feeling. I even had someone tell me my color looked good today. I guess that means I look better than my usual green, ughh! I need to find a good line now cuz the whole city knows now and while the response has been very amazing I can see that it is going to quickly get annoying if I don't come up with some clever lines. My hubbie is somewhat of a local celeb and now everyone knows his wife has CF. I did it to inspire some of the youth around here and be a spokesperson for the cause. Now I need to find a sane way to deal with the idiots who will surely come my way.

 

[Skye]

I am fighting with my insurance company to get a reflux test I need. Going for PFT's next week, hopefully no IV's needed. I did an article in a local paper about Greatstrides, thought it was an afternoon paper that no one reads. Well everyone does and now everyone asks me how I am feeling. I even had someone tell me my color looked good today. I guess that means I look better than my usual green, ughh! I need to find a good line now cuz the whole city knows now and while the response has been very amazing I can see that it is going to quickly get annoying if I don't come up with some clever lines. My hubbie is somewhat of a local celeb and now everyone knows his wife has CF. I did it to inspire some of the youth around here and be a spokesperson for the cause. Now I need to find a sane way to deal with the idiots who will surely come my way.

 

[Skye]

I am fighting with my insurance company to get a reflux test I need. Going for PFT's next week, hopefully no IV's needed. I did an article in a local paper about Greatstrides, thought it was an afternoon paper that no one reads. Well everyone does and now everyone asks me how I am feeling. I even had someone tell me my color looked good today. I guess that means I look better than my usual green, ughh! I need to find a good line now cuz the whole city knows now and while the response has been very amazing I can see that it is going to quickly get annoying if I don't come up with some clever lines. My hubbie is somewhat of a local celeb and now everyone knows his wife has CF. I did it to inspire some of the youth around here and be a spokesperson for the cause. Now I need to find a sane way to deal with the idiots who will surely come my way.

 

[Skye]

I am fighting with my insurance company to get a reflux test I need. Going for PFT's next week, hopefully no IV's needed. I did an article in a local paper about Greatstrides, thought it was an afternoon paper that no one reads. Well everyone does and now everyone asks me how I am feeling. I even had someone tell me my color looked good today. I guess that means I look better than my usual green, ughh! I need to find a good line now cuz the whole city knows now and while the response has been very amazing I can see that it is going to quickly get annoying if I don't come up with some clever lines. My hubbie is somewhat of a local celeb and now everyone knows his wife has CF. I did it to inspire some of the youth around here and be a spokesperson for the cause. Now I need to find a sane way to deal with the idiots who will surely come my way.

 

[ERINSBIZ]

Last night I cleaned house so I wouldn't have to on today. I got to enjoy my Friday while the boys were in school. I visited with a great friend for 3 hours while sipped on coffee. I then had lunch with my mom n law. And, then it was time to be mommy again and pick up the boys from school. It's cold and rainy today in SoCal but I didn't feel horrible today. I feel junk in my lungs but I got to ignore it for a day. I didn't do morning nebs or exercise. Whoopsie! Shhh!

We are getting ready to go camping for a week in Yosemite and I am finding it overwhelming to plan and prepare for it. Because when I work I feel tired and out of breath.

 

[ERINSBIZ]

Last night I cleaned house so I wouldn't have to on today. I got to enjoy my Friday while the boys were in school. I visited with a great friend for 3 hours while sipped on coffee. I then had lunch with my mom n law. And, then it was time to be mommy again and pick up the boys from school. It's cold and rainy today in SoCal but I didn't feel horrible today. I feel junk in my lungs but I got to ignore it for a day. I didn't do morning nebs or exercise. Whoopsie! Shhh!

We are getting ready to go camping for a week in Yosemite and I am finding it overwhelming to plan and prepare for it. Because when I work I feel tired and out of breath.

 

[ERINSBIZ]

Last night I cleaned house so I wouldn't have to on today. I got to enjoy my Friday while the boys were in school. I visited with a great friend for 3 hours while sipped on coffee. I then had lunch with my mom n law. And, then it was time to be mommy again and pick up the boys from school. It's cold and rainy today in SoCal but I didn't feel horrible today. I feel junk in my lungs but I got to ignore it for a day. I didn't do morning nebs or exercise. Whoopsie! Shhh!

We are getting ready to go camping for a week in Yosemite and I am finding it overwhelming to plan and prepare for it. Because when I work I feel tired and out of breath.

 

[ERINSBIZ]

Last night I cleaned house so I wouldn't have to on today. I got to enjoy my Friday while the boys were in school. I visited with a great friend for 3 hours while sipped on coffee. I then had lunch with my mom n law. And, then it was time to be mommy again and pick up the boys from school. It's cold and rainy today in SoCal but I didn't feel horrible today. I feel junk in my lungs but I got to ignore it for a day. I didn't do morning nebs or exercise. Whoopsie! Shhh!

We are getting ready to go camping for a week in Yosemite and I am finding it overwhelming to plan and prepare for it. Because when I work I feel tired and out of breath.

 

[ERINSBIZ]

Last night I cleaned house so I wouldn't have to on today. I got to enjoy my Friday while the boys were in school. I visited with a great friend for 3 hours while sipped on coffee. I then had lunch with my mom n law. And, then it was time to be mommy again and pick up the boys from school. It's cold and rainy today in SoCal but I didn't feel horrible today. I feel junk in my lungs but I got to ignore it for a day. I didn't do morning nebs or exercise. Whoopsie! Shhh!
<br />
<br />We are getting ready to go camping for a week in Yosemite and I am finding it overwhelming to plan and prepare for it. Because when I work I feel tired and out of breath.
<br />

 

[mom2lillian]

I'm pissed off because I dont know how to explain that its not like one days you are on IV's feeling horrid then the next you pull the port line and are wonderful, for me it is a process to work back up to 'normal'. NOONE gets that. Its just ooh so you are all better now.

Irritated, tired, irrational, that is how I feel.

 

[mom2lillian]

I'm pissed off because I dont know how to explain that its not like one days you are on IV's feeling horrid then the next you pull the port line and are wonderful, for me it is a process to work back up to 'normal'. NOONE gets that. Its just ooh so you are all better now.

Irritated, tired, irrational, that is how I feel.

 

[mom2lillian]

I'm pissed off because I dont know how to explain that its not like one days you are on IV's feeling horrid then the next you pull the port line and are wonderful, for me it is a process to work back up to 'normal'. NOONE gets that. Its just ooh so you are all better now.

Irritated, tired, irrational, that is how I feel.

 

[mom2lillian]

I'm pissed off because I dont know how to explain that its not like one days you are on IV's feeling horrid then the next you pull the port line and are wonderful, for me it is a process to work back up to 'normal'. NOONE gets that. Its just ooh so you are all better now.

Irritated, tired, irrational, that is how I feel.

 

[mom2lillian]

I'm pissed off because I dont know how to explain that its not like one days you are on IV's feeling horrid then the next you pull the port line and are wonderful, for me it is a process to work back up to 'normal'. NOONE gets that. Its just ooh so you are all better now.
<br />
<br />Irritated, tired, irrational, that is how I feel.