leoigalvez
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How many of you have never met another person with CF?
- Thread starter albino15
- Start date
leoigalvez
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leoigalvez
New member
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leoigalvez
New member
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I've met a few other CFers, 2 in person and the rest on-line. I am apart of this great site for chronicly ill teens called Starbright World, the age limit is 13-20. Being 20 I am on my last year allowed there, but I would recommend it to all the teen CFers, its a great place to hang out and just chat with other sick teens. They're used to be a lot of CFers but the number recently dropped, so its mostly people with IBD now (like crohns and UC) but I know the numbers will grow again. The site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.starbrightworld.org">www.starbrightworld.org</a> if anyone is intersted. I really do enjoy it.
I've met a few other CFers, 2 in person and the rest on-line. I am apart of this great site for chronicly ill teens called Starbright World, the age limit is 13-20. Being 20 I am on my last year allowed there, but I would recommend it to all the teen CFers, its a great place to hang out and just chat with other sick teens. They're used to be a lot of CFers but the number recently dropped, so its mostly people with IBD now (like crohns and UC) but I know the numbers will grow again. The site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.starbrightworld.org">www.starbrightworld.org</a> if anyone is intersted. I really do enjoy it.
I've met a few other CFers, 2 in person and the rest on-line. I am apart of this great site for chronicly ill teens called Starbright World, the age limit is 13-20. Being 20 I am on my last year allowed there, but I would recommend it to all the teen CFers, its a great place to hang out and just chat with other sick teens. They're used to be a lot of CFers but the number recently dropped, so its mostly people with IBD now (like crohns and UC) but I know the numbers will grow again. The site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.starbrightworld.org">www.starbrightworld.org</a> if anyone is intersted. I really do enjoy it.
I've met a few other CFers, 2 in person and the rest on-line. I am apart of this great site for chronicly ill teens called Starbright World, the age limit is 13-20. Being 20 I am on my last year allowed there, but I would recommend it to all the teen CFers, its a great place to hang out and just chat with other sick teens. They're used to be a lot of CFers but the number recently dropped, so its mostly people with IBD now (like crohns and UC) but I know the numbers will grow again. The site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.starbrightworld.org">www.starbrightworld.org</a> if anyone is intersted. I really do enjoy it.
I've met a few other CFers, 2 in person and the rest on-line. I am apart of this great site for chronicly ill teens called Starbright World, the age limit is 13-20. Being 20 I am on my last year allowed there, but I would recommend it to all the teen CFers, its a great place to hang out and just chat with other sick teens. They're used to be a lot of CFers but the number recently dropped, so its mostly people with IBD now (like crohns and UC) but I know the numbers will grow again. The site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.starbrightworld.org">www.starbrightworld.org</a> if anyone is intersted. I really do enjoy it.
dixiepixie
New member
I met this little boy at my cousins birthday party once, but when he found out me and my bro there had cf he had to stay away from us. im not exactly sure why, but i mean its not a contagious disease, you know? and he already has it?
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
dixiepixie
New member
I met this little boy at my cousins birthday party once, but when he found out me and my bro there had cf he had to stay away from us. im not exactly sure why, but i mean its not a contagious disease, you know? and he already has it?
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
dixiepixie
New member
I met this little boy at my cousins birthday party once, but when he found out me and my bro there had cf he had to stay away from us. im not exactly sure why, but i mean its not a contagious disease, you know? and he already has it?
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
dixiepixie
New member
I met this little boy at my cousins birthday party once, but when he found out me and my bro there had cf he had to stay away from us. im not exactly sure why, but i mean its not a contagious disease, you know? and he already has it?
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
but no one my age or around here =/
dixiepixie
New member
I met this little boy at my cousins birthday party once, but when he found out me and my bro there had cf he had to stay away from us. im not exactly sure why, but i mean its not a contagious disease, you know? and he already has it?
<br />it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
<br />but no one my age or around here =/
<br />it doesnt make sense to me, but other than that ive never met anyone else, besides my brother of course, lol.
<br />but no one my age or around here =/
Well at one point my old hospital had a CF conference that i went to and i have met some people with CF there.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
Well at one point my old hospital had a CF conference that i went to and i have met some people with CF there.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
Well at one point my old hospital had a CF conference that i went to and i have met some people with CF there.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
Well at one point my old hospital had a CF conference that i went to and i have met some people with CF there.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
And now i am friends with about 3 other CF patients.
I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
Well at one point my old hospital had a CF conference that i went to and i have met some people with CF there.
<br />And now i am friends with about 3 other CF patients.
<br />I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
<br />
<br />And now i am friends with about 3 other CF patients.
<br />I usealy see them when i go into the hospital but not anymore since i moved out of the state. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />but im kind of hoping to meet new ones and i still stay in touch with them over myspace and the phone of course. I love meeting people with CF it makes me feel less alone.
<br />
T
tarheel
Guest
I'm 15 with cf, and I've met lots of cf kids because of this thing that my old hospital, UNC used to do called CF family day. All the kids with CF and then all the parents would gather- the kids would play and the adults would talk. It was there that I first realized not everyone took enzymes- thanks to other kids talking about their siblings. Yea. It was so great to see all these kids who were like me. But then they stopped it cause of the cepacia thing. Hey guess what! I found out- that "no persons with CF are reccommended to go to the CF national conference." How's that for irony? But yea now theres a kid with CF who really doesnt have CF in my school. I say that because he doesnt do ANY treatments and hes not growing anything. And hes 15. I'd like to give him something to complain about. And everyone at school is like ooo stay away hes not infected. and i'm like- hes popular, he has a girlfriend, he can live with it. Seriously, the things I would do to him if i could. Its that we're not allowed to meet in a friendly enviroment anymore- finding his name was like hell. and talking to him? Forget it. If we could have met before his mom sounded the stay clear of my perfect angel alert things might have been different.