how many times do you take pulmozyme

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lilmac1177

New member
<span style="font-family: tahoma, arial, helvetica, sans-serif; color: #3366ff;">i do Pulmozyme twice a day and HTS 3% twice a day as well...
<span style="font-family: tahoma, arial, helvetica, sans-serif; color: #3366ff;">my CF team has never stated there should be a break between Pulmo and HTS. the order they've always advised is: <span style="color: #800080;"><strong>bronchodialator</strong> --> <strong><span style="color: #ff6600;">HTS</strong> --> <strong><span style="color: #008000;">Pulmozyme</strong> --><span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif;"><strong><span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif;">C<span style="font-family: tahoma, arial, helvetica, sans-serif; color: #3366ff;">PT</strong><span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif;">--> <strong><span style="color: #ff0000;">inhaled abx</strong>
 
L

lilmac1177

New member
<span style="font-family: tahoma, arial, helvetica, sans-serif; color: #3366ff;">i do Pulmozyme twice a day and HTS 3% twice a day as well...
<span style="font-family: tahoma, arial, helvetica, sans-serif; color: #3366ff;">my CF team has never stated there should be a break between Pulmo and HTS. the order they've always advised is: <span style="color: #800080;"><strong>bronchodialator</strong> --> <strong><span style="color: #ff6600;">HTS</strong> --> <strong><span style="color: #008000;">Pulmozyme</strong> --><span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif;"><strong><span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif;">C<span style="font-family: tahoma, arial, helvetica, sans-serif; color: #3366ff;">PT</strong><span style="color: #3366ff; font-family: tahoma, arial, helvetica, sans-serif;">--> <strong><span style="color: #ff0000;">inhaled abx</strong>
 
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lexymarie04

New member
My doctors here in Michigan at the U of M Ann Arbor state you should do albuterol, hypertonic saline, pulmozyne and then an inhaled antibiotic. But the Pulmozyne i only due once a day. The rest are twice a day
 
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lexymarie04

New member
My doctors here in Michigan at the U of M Ann Arbor state you should do albuterol, hypertonic saline, pulmozyne and then an inhaled antibiotic. But the Pulmozyne i only due once a day. The rest are twice a day
 
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mumof1

Guest
Hi
We live in Australia and my son has always taken Pulmozyme once a day before bed and when I asked his cf doc if twice would be better he said no. Hope this helps.

Michelle, mumof1, 14 yo son has Delta508
 
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mumof1

Guest
Hi
We live in Australia and my son has always taken Pulmozyme once a day before bed and when I asked his cf doc if twice would be better he said no. Hope this helps.

Michelle, mumof1, 14 yo son has Delta508
 
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gunelle

Guest
I live in Spain, and I take pulmozyme once a day. In the evening. I have also been told by some doctors that it's better to separate the pulmozyne from the HTS, but my pulmonologist has stated that it's not that important. And separating them will mean a change in my routine, which I am not to keen on, I have sparse time as it is. So I keep doing what I have for about four years. HTS, tearphy, pulmozyme and then inhaled antibiotics.
 
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gunelle

Guest
I live in Spain, and I take pulmozyme once a day. In the evening. I have also been told by some doctors that it's better to separate the pulmozyne from the HTS, but my pulmonologist has stated that it's not that important. And separating them will mean a change in my routine, which I am not to keen on, I have sparse time as it is. So I keep doing what I have for about four years. HTS, tearphy, pulmozyme and then inhaled antibiotics.
 
S

scrapper1264

New member
My 9 year old son has been taking pulmozyme once/day since he was diagnosed at age 5. The CF Center where we live (go twice/yr) said he tells his patients that they can go off of it in the summer for a break. We also go to a CF Center in Chapel Hill twice a year, and they have not mentioned that. I took him off of it for a couple of weeks per doctor #1's suggestion, and he got sick, so we did not do that again!
 
S

scrapper1264

New member
My 9 year old son has been taking pulmozyme once/day since he was diagnosed at age 5. The CF Center where we live (go twice/yr) said he tells his patients that they can go off of it in the summer for a break. We also go to a CF Center in Chapel Hill twice a year, and they have not mentioned that. I took him off of it for a couple of weeks per doctor #1's suggestion, and he got sick, so we did not do that again!
 
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SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> But, when I recently asked him about taking it twice a day, he told me the benefit does not outweigh the cost of the drug :/</end quote> He's not paying the cost of the drug!!! Why does he care? I hate when docs do this. Take care <img src=""></end quote>
SOMEBODY has to pay. Just because we may not pay the actual cost of the medication doesn't mean the cost magically dissapears. Rising healthcare costs anyone?
I used to do it twice a day, then once a day, then I went off, and now I'm back to at least once a day. I try to do it twice if I can remember because I've got about 6 boxes of the stuff sitting in my fridge... hey, anyone want some extra TOBI? hahahaha...
 
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SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> But, when I recently asked him about taking it twice a day, he told me the benefit does not outweigh the cost of the drug :/</end quote> He's not paying the cost of the drug!!! Why does he care? I hate when docs do this. Take care <img src=""></end quote>
SOMEBODY has to pay. Just because we may not pay the actual cost of the medication doesn't mean the cost magically dissapears. Rising healthcare costs anyone?
I used to do it twice a day, then once a day, then I went off, and now I'm back to at least once a day. I try to do it twice if I can remember because I've got about 6 boxes of the stuff sitting in my fridge... hey, anyone want some extra TOBI? hahahaha...
 
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saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SIcklyhatED</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> But, when I recently asked him about taking it twice a day, he told me the benefit does not outweigh the cost of the drug :/</end quote> He's not paying the cost of the drug!!! Why does he care? I hate when docs do this. Take care
</end quote> SOMEBODY has to pay. Just because we may not pay the actual cost of the medication doesn't mean the cost magically dissapears. Rising healthcare costs anyone? </end quote>

If using Pulmozyme BID instead of QD prevents exacerbations, the drug pays for itself. It's not always about the cost of the medication - you have to look at the whole picture.
Pharmacoeconomics, anyone? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SIcklyhatED</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> But, when I recently asked him about taking it twice a day, he told me the benefit does not outweigh the cost of the drug :/</end quote> He's not paying the cost of the drug!!! Why does he care? I hate when docs do this. Take care
</end quote> SOMEBODY has to pay. Just because we may not pay the actual cost of the medication doesn't mean the cost magically dissapears. Rising healthcare costs anyone? </end quote>

If using Pulmozyme BID instead of QD prevents exacerbations, the drug pays for itself. It's not always about the cost of the medication - you have to look at the whole picture.
Pharmacoeconomics, anyone? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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