How much Creon for a 3 year old?

[dasjsmum]

I dont know how it's worked out where you are, but we have always worked it out by fat content. One creon 10 for each 6gms of fat in the food.

Our (ex) dietitian was a world leader in the development of the high fat cf diet (as opposed to the old high protein low fat cf diet), and my oldest kids were part of her original research. Her recommendation was to follow the one creon 10 for every 6gms fat.

It has always worked well for my kids. You do need to read the panels on the sides of food for fat content plus buy a fat and calorie counter book...it becomes second nature after a while <img src="">

 

[dasjsmum]

I dont know how it's worked out where you are, but we have always worked it out by fat content. One creon 10 for each 6gms of fat in the food.

Our (ex) dietitian was a world leader in the development of the high fat cf diet (as opposed to the old high protein low fat cf diet), and my oldest kids were part of her original research. Her recommendation was to follow the one creon 10 for every 6gms fat.

It has always worked well for my kids. You do need to read the panels on the sides of food for fat content plus buy a fat and calorie counter book...it becomes second nature after a while <img src="">

 

[dasjsmum]

I dont know how it's worked out where you are, but we have always worked it out by fat content. One creon 10 for each 6gms of fat in the food.

Our (ex) dietitian was a world leader in the development of the high fat cf diet (as opposed to the old high protein low fat cf diet), and my oldest kids were part of her original research. Her recommendation was to follow the one creon 10 for every 6gms fat.

It has always worked well for my kids. You do need to read the panels on the sides of food for fat content plus buy a fat and calorie counter book...it becomes second nature after a while <img src="">

 

[dasjsmum]

I dont know how it's worked out where you are, but we have always worked it out by fat content. One creon 10 for each 6gms of fat in the food.

Our (ex) dietitian was a world leader in the development of the high fat cf diet (as opposed to the old high protein low fat cf diet), and my oldest kids were part of her original research. Her recommendation was to follow the one creon 10 for every 6gms fat.

It has always worked well for my kids. You do need to read the panels on the sides of food for fat content plus buy a fat and calorie counter book...it becomes second nature after a while <img src="">

 

[dasjsmum]

I dont know how it's worked out where you are, but we have always worked it out by fat content. One creon 10 for each 6gms of fat in the food.
<br />
<br />Our (ex) dietitian was a world leader in the development of the high fat cf diet (as opposed to the old high protein low fat cf diet), and my oldest kids were part of her original research. Her recommendation was to follow the one creon 10 for every 6gms fat.
<br />
<br />It has always worked well for my kids. You do need to read the panels on the sides of food for fat content plus buy a fat and calorie counter book...it becomes second nature after a while <img src="">

 

[grassisgreener]

below is a link to a large document written in 2005 on CF Nutrition that has lots of good info. I saved it to my computer in case it is ever removed from the web.

If you look at Table 4 on page 4 you can see the general dosing for enzymes. For a child <4 years old it says:

500 - 4,000 Units lipase/gm fat

This is obviously vague but helps give a starting point. There is also a calculation in the article for how much lipase is safe according to the patients weight. This is helpful to know when increasing. Some people find that they have reached their maximum lipase for their weight but still need more bc of malabsorption.

When my daughter has bms like your daughters for more than a day or 2 we look into adjusting her enzymes. I have very mixed feelings about our (yours & my daughter's) dietician and within very safe reason I adjust to what I feel my daughter needs then run it by the dietician the next time I see her. If it is going to be ahile before we see her then I will email the nurse. We do it this way bc we don't find her very helpful when we come to her for help but still want to make sure we are doing things "right".

For your daughter being newly diagnosed, it is common to start patients out with a low dose of enzymes them adjust them up until the correct dose is found. We increased my daughters dose several times in her first year after dx. I think with kids especially it is common to change the doseage often bc they have so many growth spurts, appetite changes, etc.

FYI, my daughter is 6, weighs 40 pounds and takes 4 Creon12 with meals, 1-2 Creon12 with snacks (daily she takes 15 Creon 12).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/goodinarticle.pdf
">http://www.healthsystem.virgin...les/goodinarticle.pdf
</a>
Hope this helps!

 

[grassisgreener]

below is a link to a large document written in 2005 on CF Nutrition that has lots of good info. I saved it to my computer in case it is ever removed from the web.

If you look at Table 4 on page 4 you can see the general dosing for enzymes. For a child <4 years old it says:

500 - 4,000 Units lipase/gm fat

This is obviously vague but helps give a starting point. There is also a calculation in the article for how much lipase is safe according to the patients weight. This is helpful to know when increasing. Some people find that they have reached their maximum lipase for their weight but still need more bc of malabsorption.

When my daughter has bms like your daughters for more than a day or 2 we look into adjusting her enzymes. I have very mixed feelings about our (yours & my daughter's) dietician and within very safe reason I adjust to what I feel my daughter needs then run it by the dietician the next time I see her. If it is going to be ahile before we see her then I will email the nurse. We do it this way bc we don't find her very helpful when we come to her for help but still want to make sure we are doing things "right".

For your daughter being newly diagnosed, it is common to start patients out with a low dose of enzymes them adjust them up until the correct dose is found. We increased my daughters dose several times in her first year after dx. I think with kids especially it is common to change the doseage often bc they have so many growth spurts, appetite changes, etc.

FYI, my daughter is 6, weighs 40 pounds and takes 4 Creon12 with meals, 1-2 Creon12 with snacks (daily she takes 15 Creon 12).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/goodinarticle.pdf
">http://www.healthsystem.virgin...les/goodinarticle.pdf
</a>
Hope this helps!

 

[grassisgreener]

below is a link to a large document written in 2005 on CF Nutrition that has lots of good info. I saved it to my computer in case it is ever removed from the web.

If you look at Table 4 on page 4 you can see the general dosing for enzymes. For a child <4 years old it says:

500 - 4,000 Units lipase/gm fat

This is obviously vague but helps give a starting point. There is also a calculation in the article for how much lipase is safe according to the patients weight. This is helpful to know when increasing. Some people find that they have reached their maximum lipase for their weight but still need more bc of malabsorption.

When my daughter has bms like your daughters for more than a day or 2 we look into adjusting her enzymes. I have very mixed feelings about our (yours & my daughter's) dietician and within very safe reason I adjust to what I feel my daughter needs then run it by the dietician the next time I see her. If it is going to be ahile before we see her then I will email the nurse. We do it this way bc we don't find her very helpful when we come to her for help but still want to make sure we are doing things "right".

For your daughter being newly diagnosed, it is common to start patients out with a low dose of enzymes them adjust them up until the correct dose is found. We increased my daughters dose several times in her first year after dx. I think with kids especially it is common to change the doseage often bc they have so many growth spurts, appetite changes, etc.

FYI, my daughter is 6, weighs 40 pounds and takes 4 Creon12 with meals, 1-2 Creon12 with snacks (daily she takes 15 Creon 12).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/goodinarticle.pdf
">http://www.healthsystem.virgin...les/goodinarticle.pdf
</a>
Hope this helps!

 

[grassisgreener]

below is a link to a large document written in 2005 on CF Nutrition that has lots of good info. I saved it to my computer in case it is ever removed from the web.

If you look at Table 4 on page 4 you can see the general dosing for enzymes. For a child <4 years old it says:

500 - 4,000 Units lipase/gm fat

This is obviously vague but helps give a starting point. There is also a calculation in the article for how much lipase is safe according to the patients weight. This is helpful to know when increasing. Some people find that they have reached their maximum lipase for their weight but still need more bc of malabsorption.

When my daughter has bms like your daughters for more than a day or 2 we look into adjusting her enzymes. I have very mixed feelings about our (yours & my daughter's) dietician and within very safe reason I adjust to what I feel my daughter needs then run it by the dietician the next time I see her. If it is going to be ahile before we see her then I will email the nurse. We do it this way bc we don't find her very helpful when we come to her for help but still want to make sure we are doing things "right".

For your daughter being newly diagnosed, it is common to start patients out with a low dose of enzymes them adjust them up until the correct dose is found. We increased my daughters dose several times in her first year after dx. I think with kids especially it is common to change the doseage often bc they have so many growth spurts, appetite changes, etc.

FYI, my daughter is 6, weighs 40 pounds and takes 4 Creon12 with meals, 1-2 Creon12 with snacks (daily she takes 15 Creon 12).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/goodinarticle.pdf
">http://www.healthsystem.virgin...les/goodinarticle.pdf
</a>
Hope this helps!

 

[grassisgreener]

below is a link to a large document written in 2005 on CF Nutrition that has lots of good info. I saved it to my computer in case it is ever removed from the web.
<br />
<br />If you look at Table 4 on page 4 you can see the general dosing for enzymes. For a child <4 years old it says:
<br />
<br />500 - 4,000 Units lipase/gm fat
<br />
<br />This is obviously vague but helps give a starting point. There is also a calculation in the article for how much lipase is safe according to the patients weight. This is helpful to know when increasing. Some people find that they have reached their maximum lipase for their weight but still need more bc of malabsorption.
<br />
<br />When my daughter has bms like your daughters for more than a day or 2 we look into adjusting her enzymes. I have very mixed feelings about our (yours & my daughter's) dietician and within very safe reason I adjust to what I feel my daughter needs then run it by the dietician the next time I see her. If it is going to be ahile before we see her then I will email the nurse. We do it this way bc we don't find her very helpful when we come to her for help but still want to make sure we are doing things "right".
<br />
<br />For your daughter being newly diagnosed, it is common to start patients out with a low dose of enzymes them adjust them up until the correct dose is found. We increased my daughters dose several times in her first year after dx. I think with kids especially it is common to change the doseage often bc they have so many growth spurts, appetite changes, etc.
<br />
<br />FYI, my daughter is 6, weighs 40 pounds and takes 4 Creon12 with meals, 1-2 Creon12 with snacks (daily she takes 15 Creon 12).
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.healthsystem.virginia.edu/internet/digestive-health/nutritionarticles/goodinarticle.pdf
">http://www.healthsystem.virgin...les/goodinarticle.pdf
</a><br />
<br />Hope this helps!

 

[Ratatosk]

Like grassisgreener, we too had issues with our dietician. I've mentioned this time and time again on this site -- but from day one I've been driven nuts by the inability to figure out what normal poop looks like, if we were giving DS enough enzymes and the response by the medical staff that one "we'll KNOW what normal poop looks like", that he's within the 50th percentile.. So they'd push aside our concerns with his eating (lack of), his constipation and/or loose stools and his vomiting -- or spitting up as they called it.

I figure we spend 24 hours a day with our kids and know their eating and pooping habits, whereas the medical staff maybe reviews a list of items our child eats in one day to calculate calories and sees him for 10 minutes 2-4 times a year. So we will add 1/2-1 capsule gradually over a weeks time to see if that helps.

Hopefully the increase in enzymes will help and you'll gain a bit more confidence in dealing with these types of issues. It took me about 6 years and I know if DS' throws something new at me, i.e., psychedelic poop perhaps... I'm going to be freaking out and back to square one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Ratatosk]

Like grassisgreener, we too had issues with our dietician. I've mentioned this time and time again on this site -- but from day one I've been driven nuts by the inability to figure out what normal poop looks like, if we were giving DS enough enzymes and the response by the medical staff that one "we'll KNOW what normal poop looks like", that he's within the 50th percentile.. So they'd push aside our concerns with his eating (lack of), his constipation and/or loose stools and his vomiting -- or spitting up as they called it.

I figure we spend 24 hours a day with our kids and know their eating and pooping habits, whereas the medical staff maybe reviews a list of items our child eats in one day to calculate calories and sees him for 10 minutes 2-4 times a year. So we will add 1/2-1 capsule gradually over a weeks time to see if that helps.

Hopefully the increase in enzymes will help and you'll gain a bit more confidence in dealing with these types of issues. It took me about 6 years and I know if DS' throws something new at me, i.e., psychedelic poop perhaps... I'm going to be freaking out and back to square one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Ratatosk]

Like grassisgreener, we too had issues with our dietician. I've mentioned this time and time again on this site -- but from day one I've been driven nuts by the inability to figure out what normal poop looks like, if we were giving DS enough enzymes and the response by the medical staff that one "we'll KNOW what normal poop looks like", that he's within the 50th percentile.. So they'd push aside our concerns with his eating (lack of), his constipation and/or loose stools and his vomiting -- or spitting up as they called it.

I figure we spend 24 hours a day with our kids and know their eating and pooping habits, whereas the medical staff maybe reviews a list of items our child eats in one day to calculate calories and sees him for 10 minutes 2-4 times a year. So we will add 1/2-1 capsule gradually over a weeks time to see if that helps.

Hopefully the increase in enzymes will help and you'll gain a bit more confidence in dealing with these types of issues. It took me about 6 years and I know if DS' throws something new at me, i.e., psychedelic poop perhaps... I'm going to be freaking out and back to square one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Ratatosk]

Like grassisgreener, we too had issues with our dietician. I've mentioned this time and time again on this site -- but from day one I've been driven nuts by the inability to figure out what normal poop looks like, if we were giving DS enough enzymes and the response by the medical staff that one "we'll KNOW what normal poop looks like", that he's within the 50th percentile.. So they'd push aside our concerns with his eating (lack of), his constipation and/or loose stools and his vomiting -- or spitting up as they called it.

I figure we spend 24 hours a day with our kids and know their eating and pooping habits, whereas the medical staff maybe reviews a list of items our child eats in one day to calculate calories and sees him for 10 minutes 2-4 times a year. So we will add 1/2-1 capsule gradually over a weeks time to see if that helps.

Hopefully the increase in enzymes will help and you'll gain a bit more confidence in dealing with these types of issues. It took me about 6 years and I know if DS' throws something new at me, i.e., psychedelic poop perhaps... I'm going to be freaking out and back to square one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Ratatosk]

Like grassisgreener, we too had issues with our dietician. I've mentioned this time and time again on this site -- but from day one I've been driven nuts by the inability to figure out what normal poop looks like, if we were giving DS enough enzymes and the response by the medical staff that one "we'll KNOW what normal poop looks like", that he's within the 50th percentile.. So they'd push aside our concerns with his eating (lack of), his constipation and/or loose stools and his vomiting -- or spitting up as they called it.
<br />
<br />I figure we spend 24 hours a day with our kids and know their eating and pooping habits, whereas the medical staff maybe reviews a list of items our child eats in one day to calculate calories and sees him for 10 minutes 2-4 times a year. So we will add 1/2-1 capsule gradually over a weeks time to see if that helps.
<br />
<br />Hopefully the increase in enzymes will help and you'll gain a bit more confidence in dealing with these types of issues. It took me about 6 years and I know if DS' throws something new at me, i.e., psychedelic poop perhaps... I'm going to be freaking out and back to square one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

The general guide for dosage is to not to exceed more then one creon ten per kilo of weight. If too much is given it can cause bowel problems.

If the kids are putting on weight they ar getting enough enzymes. Poop wise:

Our current dietitian had a lovely diagram of poop for my son to pick from...what a great idea!

Anyhow, from my experience, you get oily (orange, sticks to bowl nappy etc.) looks like oil (strangely enough <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). This usually means that they have eaten something high fat and not had enough enzymes.

There's floaties, usually yellowish, hard to flush and partially formed. There also suds type in this category. I would say this indicates pretty much okay - good enzymes.

Hard formed stools..little balls etc : Never seen them with cf...would indicate too many enzymes, constipated..or maybe no enymes.

One to two a day is good, more or sloppy is bad. Except if a baby. Yellow and loose would be normal for a cfer from my experience. As long as your bub continues gaining weight all sounds good <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hope thid helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

The general guide for dosage is to not to exceed more then one creon ten per kilo of weight. If too much is given it can cause bowel problems.

If the kids are putting on weight they ar getting enough enzymes. Poop wise:

Our current dietitian had a lovely diagram of poop for my son to pick from...what a great idea!

Anyhow, from my experience, you get oily (orange, sticks to bowl nappy etc.) looks like oil (strangely enough <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). This usually means that they have eaten something high fat and not had enough enzymes.

There's floaties, usually yellowish, hard to flush and partially formed. There also suds type in this category. I would say this indicates pretty much okay - good enzymes.

Hard formed stools..little balls etc : Never seen them with cf...would indicate too many enzymes, constipated..or maybe no enymes.

One to two a day is good, more or sloppy is bad. Except if a baby. Yellow and loose would be normal for a cfer from my experience. As long as your bub continues gaining weight all sounds good <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hope thid helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

The general guide for dosage is to not to exceed more then one creon ten per kilo of weight. If too much is given it can cause bowel problems.

If the kids are putting on weight they ar getting enough enzymes. Poop wise:

Our current dietitian had a lovely diagram of poop for my son to pick from...what a great idea!

Anyhow, from my experience, you get oily (orange, sticks to bowl nappy etc.) looks like oil (strangely enough <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). This usually means that they have eaten something high fat and not had enough enzymes.

There's floaties, usually yellowish, hard to flush and partially formed. There also suds type in this category. I would say this indicates pretty much okay - good enzymes.

Hard formed stools..little balls etc : Never seen them with cf...would indicate too many enzymes, constipated..or maybe no enymes.

One to two a day is good, more or sloppy is bad. Except if a baby. Yellow and loose would be normal for a cfer from my experience. As long as your bub continues gaining weight all sounds good <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hope thid helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

The general guide for dosage is to not to exceed more then one creon ten per kilo of weight. If too much is given it can cause bowel problems.

If the kids are putting on weight they ar getting enough enzymes. Poop wise:

Our current dietitian had a lovely diagram of poop for my son to pick from...what a great idea!

Anyhow, from my experience, you get oily (orange, sticks to bowl nappy etc.) looks like oil (strangely enough <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). This usually means that they have eaten something high fat and not had enough enzymes.

There's floaties, usually yellowish, hard to flush and partially formed. There also suds type in this category. I would say this indicates pretty much okay - good enzymes.

Hard formed stools..little balls etc : Never seen them with cf...would indicate too many enzymes, constipated..or maybe no enymes.

One to two a day is good, more or sloppy is bad. Except if a baby. Yellow and loose would be normal for a cfer from my experience. As long as your bub continues gaining weight all sounds good <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hope thid helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

The general guide for dosage is to not to exceed more then one creon ten per kilo of weight. If too much is given it can cause bowel problems.
<br />
<br />If the kids are putting on weight they ar getting enough enzymes. Poop wise:
<br />
<br />Our current dietitian had a lovely diagram of poop for my son to pick from...what a great idea!
<br />
<br />Anyhow, from my experience, you get oily (orange, sticks to bowl nappy etc.) looks like oil (strangely enough <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). This usually means that they have eaten something high fat and not had enough enzymes.
<br />
<br />There's floaties, usually yellowish, hard to flush and partially formed. There also suds type in this category. I would say this indicates pretty much okay - good enzymes.
<br />
<br />Hard formed stools..little balls etc : Never seen them with cf...would indicate too many enzymes, constipated..or maybe no enymes.
<br />
<br />One to two a day is good, more or sloppy is bad. Except if a baby. Yellow and loose would be normal for a cfer from my experience. As long as your bub continues gaining weight all sounds good <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Hope thid helps <img src="i/expressions/face-icon-small-smile.gif" border="0">