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how often are you on I.V. abx?
- Thread starter ladybug
- Start date
Nightwriter
New member
I first got sick at 21, shortly afterwoods got Pseudomonas. At first I was hospitialized every 4 or 5 years on IV's. Cipro helped me avoid IV's for a long time, until I became resistant. Then IV's started getting more and more frequent, until I started needing them every two years. When that was about to turn into every year, I walked around sick, coughing up blood, because I hated IV's with a passion. The last time I was hospitialized, it was with 4 strains of Pseudomonas, and Staph, my FEV1 was 32%, I coughed up so much blood I needed a transfusion, I lost so much weight I was 96 pounds. After the hospital I was on Tobi all the time. And I still felt sick all the time. I was on a quick decline.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
Nightwriter
New member
I first got sick at 21, shortly afterwoods got Pseudomonas. At first I was hospitialized every 4 or 5 years on IV's. Cipro helped me avoid IV's for a long time, until I became resistant. Then IV's started getting more and more frequent, until I started needing them every two years. When that was about to turn into every year, I walked around sick, coughing up blood, because I hated IV's with a passion. The last time I was hospitialized, it was with 4 strains of Pseudomonas, and Staph, my FEV1 was 32%, I coughed up so much blood I needed a transfusion, I lost so much weight I was 96 pounds. After the hospital I was on Tobi all the time. And I still felt sick all the time. I was on a quick decline.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
Nightwriter
New member
I first got sick at 21, shortly afterwoods got Pseudomonas. At first I was hospitialized every 4 or 5 years on IV's. Cipro helped me avoid IV's for a long time, until I became resistant. Then IV's started getting more and more frequent, until I started needing them every two years. When that was about to turn into every year, I walked around sick, coughing up blood, because I hated IV's with a passion. The last time I was hospitialized, it was with 4 strains of Pseudomonas, and Staph, my FEV1 was 32%, I coughed up so much blood I needed a transfusion, I lost so much weight I was 96 pounds. After the hospital I was on Tobi all the time. And I still felt sick all the time. I was on a quick decline.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
Nightwriter
New member
I first got sick at 21, shortly afterwoods got Pseudomonas. At first I was hospitialized every 4 or 5 years on IV's. Cipro helped me avoid IV's for a long time, until I became resistant. Then IV's started getting more and more frequent, until I started needing them every two years. When that was about to turn into every year, I walked around sick, coughing up blood, because I hated IV's with a passion. The last time I was hospitialized, it was with 4 strains of Pseudomonas, and Staph, my FEV1 was 32%, I coughed up so much blood I needed a transfusion, I lost so much weight I was 96 pounds. After the hospital I was on Tobi all the time. And I still felt sick all the time. I was on a quick decline.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
Nightwriter
New member
I first got sick at 21, shortly afterwoods got Pseudomonas. At first I was hospitialized every 4 or 5 years on IV's. Cipro helped me avoid IV's for a long time, until I became resistant. Then IV's started getting more and more frequent, until I started needing them every two years. When that was about to turn into every year, I walked around sick, coughing up blood, because I hated IV's with a passion. The last time I was hospitialized, it was with 4 strains of Pseudomonas, and Staph, my FEV1 was 32%, I coughed up so much blood I needed a transfusion, I lost so much weight I was 96 pounds. After the hospital I was on Tobi all the time. And I still felt sick all the time. I was on a quick decline.
<br />
<br />I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
<br />
<br />The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
<br />
<br />Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.
<br />
<br />I knew I had to make a change. That was 11 years ago. I found a doctor that took a very different approach to treating me. She believes that if you control the asthma component, lessening the inflammation, the airways open, rather than remain closed, trapping all these bacterias that cause exacerbations. Following her program of environmental control, a healthy diet, appropriate asthma medicine and supplements, addressing sinus issues, my FEV1 went back up to 54%. She told me it was too bad that I hadn't met her sooner because of the extensive damage I had already suffered from the numerous Pseudomonas infections I had over many years. But I was thrilled with the increase, having steadily declined year after year.
<br />
<br />The exacerbations begin to occur less often. And by getting off Tobi and not using antibiotics all the time recognizing that many exacerbations were inflammation and not infection. Although they feel the same to the patient. My doctor determins wich one it is that is causing my symptoms. I eventually noticed that excerbations always follow some exposure to something. And on the occasion that it is an infection, my doctor uses an oral antibiotic and/or an inhaled antibiotic.
<br />
<br />Knock wood, but I haven't been on IV's in eleven years. The point is...my case is not special. My lungs were pretty much like most people on this site. It is possible to change the endless cycle of IV's and the devestating drug resistance. It helps if you have a doctor that treats the asthma component. You may not even test post positive for allergens. They can't test for everything in the world. Plus irritants are just as bad as allergins.