Emily is going very frequently right now- monthly- because she is currently having a lot of digestive issues and they are monitoring weight closely and having us try various things in an effort to improve things.
She had been going every two months prior to this (she has never been close to a healthy weight since dx so maybe that's why she's never gone as long as 3mo between visits, but it would be really nice to see that day. <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
Whenever we go, she has pft's w/ the rt, and we see the dr, nurse, dietitian and social worker; other assorted team members pop in at random appts (pt, research nurse, etc.) Labs are yearly and chest ct scans are every two years, unless she is sick and needs one sooner. We go to CCMC in CT... LOVE them there! <img src="i/expressions/face-icon-small-happy.gif" border="0">