We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
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We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.