How often are your regularly-scheduled clinic visits?

babyluke

New member
We have been going every two months. Although, I think that we would probably be on an every three month schedule (I think that is standard at our clinic, anyway) but something strange always comes up with Luke--right now it is that his height is not coming up on the curve.
We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.
 

babyluke

New member
We have been going every two months. Although, I think that we would probably be on an every three month schedule (I think that is standard at our clinic, anyway) but something strange always comes up with Luke--right now it is that his height is not coming up on the curve.
We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.
 

babyluke

New member
We have been going every two months. Although, I think that we would probably be on an every three month schedule (I think that is standard at our clinic, anyway) but something strange always comes up with Luke--right now it is that his height is not coming up on the curve.
We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.
 

babyluke

New member
We have been going every two months. Although, I think that we would probably be on an every three month schedule (I think that is standard at our clinic, anyway) but something strange always comes up with Luke--right now it is that his height is not coming up on the curve.
We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.
 

babyluke

New member
We have been going every two months. Although, I think that we would probably be on an every three month schedule (I think that is standard at our clinic, anyway) but something strange always comes up with Luke--right now it is that his height is not coming up on the curve.
<br />We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
<br />We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.
 

pnhuffman

New member
Austin goes every two to three months depending on howhis health is going at the time.

Once a year we go in and he gets all of his labs, xrays and whatever other testing needed.
 

pnhuffman

New member
Austin goes every two to three months depending on howhis health is going at the time.

Once a year we go in and he gets all of his labs, xrays and whatever other testing needed.
 

pnhuffman

New member
Austin goes every two to three months depending on howhis health is going at the time.

Once a year we go in and he gets all of his labs, xrays and whatever other testing needed.
 

pnhuffman

New member
Austin goes every two to three months depending on howhis health is going at the time.

Once a year we go in and he gets all of his labs, xrays and whatever other testing needed.
 

pnhuffman

New member
Austin goes every two to three months depending on howhis health is going at the time.
<br />
<br />Once a year we go in and he gets all of his labs, xrays and whatever other testing needed.
<br />
<br />
 

debs2girls

New member
Chey goes once a month on a regular basis if she is sicker she has gone weekly. We never do our yearly stuff...ie xrays, labs, ect at the doctors office sinc she is in the hospital so often we just use those.
 

debs2girls

New member
Chey goes once a month on a regular basis if she is sicker she has gone weekly. We never do our yearly stuff...ie xrays, labs, ect at the doctors office sinc she is in the hospital so often we just use those.
 

debs2girls

New member
Chey goes once a month on a regular basis if she is sicker she has gone weekly. We never do our yearly stuff...ie xrays, labs, ect at the doctors office sinc she is in the hospital so often we just use those.
 

debs2girls

New member
Chey goes once a month on a regular basis if she is sicker she has gone weekly. We never do our yearly stuff...ie xrays, labs, ect at the doctors office sinc she is in the hospital so often we just use those.
 

debs2girls

New member
Chey goes once a month on a regular basis if she is sicker she has gone weekly. We never do our yearly stuff...ie xrays, labs, ect at the doctors office sinc she is in the hospital so often we just use those.
<br />
 

izemmom

New member
Since about the age of 2, we've gone in every 3 months (so, 4 times a year). This is for pfts, dietician, nurse practicioner, pulmonologist and sometimes socialworker or geneticisit. Once a year we add in labs and x-rays.

Now that Emily is in the ISIS study, we go every 6 weeks for a study visit, and our clinic tags the pulmo (usually) and dietician and NP to that. PFT is included in the study visit automatically. I've loved being in the study just for that extra little check on things, a bit sooner than normal!!!
 

izemmom

New member
Since about the age of 2, we've gone in every 3 months (so, 4 times a year). This is for pfts, dietician, nurse practicioner, pulmonologist and sometimes socialworker or geneticisit. Once a year we add in labs and x-rays.

Now that Emily is in the ISIS study, we go every 6 weeks for a study visit, and our clinic tags the pulmo (usually) and dietician and NP to that. PFT is included in the study visit automatically. I've loved being in the study just for that extra little check on things, a bit sooner than normal!!!
 

izemmom

New member
Since about the age of 2, we've gone in every 3 months (so, 4 times a year). This is for pfts, dietician, nurse practicioner, pulmonologist and sometimes socialworker or geneticisit. Once a year we add in labs and x-rays.

Now that Emily is in the ISIS study, we go every 6 weeks for a study visit, and our clinic tags the pulmo (usually) and dietician and NP to that. PFT is included in the study visit automatically. I've loved being in the study just for that extra little check on things, a bit sooner than normal!!!
 

izemmom

New member
Since about the age of 2, we've gone in every 3 months (so, 4 times a year). This is for pfts, dietician, nurse practicioner, pulmonologist and sometimes socialworker or geneticisit. Once a year we add in labs and x-rays.

Now that Emily is in the ISIS study, we go every 6 weeks for a study visit, and our clinic tags the pulmo (usually) and dietician and NP to that. PFT is included in the study visit automatically. I've loved being in the study just for that extra little check on things, a bit sooner than normal!!!
 

izemmom

New member
Since about the age of 2, we've gone in every 3 months (so, 4 times a year). This is for pfts, dietician, nurse practicioner, pulmonologist and sometimes socialworker or geneticisit. Once a year we add in labs and x-rays.
<br />
<br />Now that Emily is in the ISIS study, we go every 6 weeks for a study visit, and our clinic tags the pulmo (usually) and dietician and NP to that. PFT is included in the study visit automatically. I've loved being in the study just for that extra little check on things, a bit sooner than normal!!!
 
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