We have been going every two months. Although, I think that we would probably be on an every three month schedule (I think that is standard at our clinic, anyway) but something strange always comes up with Luke--right now it is that his height is not coming up on the curve.
We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.
We always see the nurse and the pulm. We do not always see the nutritionist. We have never seen her on a regular basis and have not been impressed when we have, so I don't even ask to see her. The social worker usually pokes her head in the door every visit to see if we need anything and PT has stopped by a couple of times. We also do the one time of year "Big" appt. where they update his bloodwork and x rays. He is too little for PFT's right now. He gets swabbed at least 4 times a year.
We went weekly in the beginning because Luke was severely anemic and so grossly underwieght.