How optimistic are you about the new drugs in the pipeline?

Gnome

New member
OK I'll admit it, I am still pretty optimistic about these drugs. However I do understand that they don't correct the salt channel perfectly.
 

Gnome

New member
OK I'll admit it, I am still pretty optimistic about these drugs. However I do understand that they don't correct the salt channel perfectly.
 

Gnome

New member
OK I'll admit it, I am still pretty optimistic about these drugs. However I do understand that they don't correct the salt channel perfectly.
 

Gnome

New member
OK I'll admit it, I am still pretty optimistic about these drugs. However I do understand that they don't correct the salt channel perfectly.
 

Gnome

New member
OK I'll admit it, I am still pretty optimistic about these drugs. However I do understand that they don't correct the salt channel perfectly.
 

Brad

New member
I stay optimistic about new drugs. I know that it more than likely took many
misfires to get it to this point and there have been many drugs along the way
that we don't even know about...
I remember first hearing about this type of treatment back in the 80's .

I remember when the trials on Pulmozyme was at this stage.
I have seen many new treatments over the years, So I remain Very Optimistic..
 

Brad

New member
I stay optimistic about new drugs. I know that it more than likely took many
misfires to get it to this point and there have been many drugs along the way
that we don't even know about...
I remember first hearing about this type of treatment back in the 80's .

I remember when the trials on Pulmozyme was at this stage.
I have seen many new treatments over the years, So I remain Very Optimistic..
 

Brad

New member
I stay optimistic about new drugs. I know that it more than likely took many
misfires to get it to this point and there have been many drugs along the way
that we don't even know about...
I remember first hearing about this type of treatment back in the 80's .

I remember when the trials on Pulmozyme was at this stage.
I have seen many new treatments over the years, So I remain Very Optimistic..
 

Brad

New member
I stay optimistic about new drugs. I know that it more than likely took many
misfires to get it to this point and there have been many drugs along the way
that we don't even know about...
I remember first hearing about this type of treatment back in the 80's .

I remember when the trials on Pulmozyme was at this stage.
I have seen many new treatments over the years, So I remain Very Optimistic..
 

Brad

New member
I stay optimistic about new drugs. I know that it more than likely took many
<br /> misfires to get it to this point and there have been many drugs along the way
<br /> that we don't even know about...
<br /> I remember first hearing about this type of treatment back in the 80's .
<br />
<br /> I remember when the trials on Pulmozyme was at this stage.
<br /> I have seen many new treatments over the years, So I remain Very Optimistic..
 

TestifyToLove

New member
Optomistic in what sense? In the sense that new drugs and new research will lead to better management of CF? I'm very optomistic about that. In the sense that we're going to find a cure in my child's lifetime? Not a chance. My son won't live to see a cure. But, in his case, his liver will likely kill long before his lung function will. Its part of his CF, but its not a common complication.
 

TestifyToLove

New member
Optomistic in what sense? In the sense that new drugs and new research will lead to better management of CF? I'm very optomistic about that. In the sense that we're going to find a cure in my child's lifetime? Not a chance. My son won't live to see a cure. But, in his case, his liver will likely kill long before his lung function will. Its part of his CF, but its not a common complication.
 

TestifyToLove

New member
Optomistic in what sense? In the sense that new drugs and new research will lead to better management of CF? I'm very optomistic about that. In the sense that we're going to find a cure in my child's lifetime? Not a chance. My son won't live to see a cure. But, in his case, his liver will likely kill long before his lung function will. Its part of his CF, but its not a common complication.
 

TestifyToLove

New member
Optomistic in what sense? In the sense that new drugs and new research will lead to better management of CF? I'm very optomistic about that. In the sense that we're going to find a cure in my child's lifetime? Not a chance. My son won't live to see a cure. But, in his case, his liver will likely kill long before his lung function will. Its part of his CF, but its not a common complication.
 

TestifyToLove

New member
Optomistic in what sense? In the sense that new drugs and new research will lead to better management of CF? I'm very optomistic about that. In the sense that we're going to find a cure in my child's lifetime? Not a chance. My son won't live to see a cure. But, in his case, his liver will likely kill long before his lung function will. Its part of his CF, but its not a common complication.
 

dasjsmum

New member
I'm optimistic about the vertex drugs, especially since my kids have the G551d mutation. Having said that, I dont get too excited these days, but if my kids are doing the vertex trial and report good results, I will become more excited about it.

The vertex drug actually does work at correcting the problem, and there are some on this forum who have participated in the ph2. trial and had fantastic results. If the ph3 is successful, I think that it will pretty much give cfer's with the genes it targets a fairly normal life and I would imagine a normal life span.

I'm working of the fact that most people with cf die from lung related issues, so if that can be corrected it would be fantastic. As far as the liver issues in cf go (the above post), quite a few pwcf have had successful liver transplants and continue to do well.

The lung issues are the most serious problem for the majority of cfer's. My oldest kids are nearly 30 and 28. If the vertex ph3 trial works as well as the ph2 and doesnt take too long to be accessible, then I actually believe that my kids will benefit by having a normal lifespan <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
I'm optimistic about the vertex drugs, especially since my kids have the G551d mutation. Having said that, I dont get too excited these days, but if my kids are doing the vertex trial and report good results, I will become more excited about it.

The vertex drug actually does work at correcting the problem, and there are some on this forum who have participated in the ph2. trial and had fantastic results. If the ph3 is successful, I think that it will pretty much give cfer's with the genes it targets a fairly normal life and I would imagine a normal life span.

I'm working of the fact that most people with cf die from lung related issues, so if that can be corrected it would be fantastic. As far as the liver issues in cf go (the above post), quite a few pwcf have had successful liver transplants and continue to do well.

The lung issues are the most serious problem for the majority of cfer's. My oldest kids are nearly 30 and 28. If the vertex ph3 trial works as well as the ph2 and doesnt take too long to be accessible, then I actually believe that my kids will benefit by having a normal lifespan <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
I'm optimistic about the vertex drugs, especially since my kids have the G551d mutation. Having said that, I dont get too excited these days, but if my kids are doing the vertex trial and report good results, I will become more excited about it.

The vertex drug actually does work at correcting the problem, and there are some on this forum who have participated in the ph2. trial and had fantastic results. If the ph3 is successful, I think that it will pretty much give cfer's with the genes it targets a fairly normal life and I would imagine a normal life span.

I'm working of the fact that most people with cf die from lung related issues, so if that can be corrected it would be fantastic. As far as the liver issues in cf go (the above post), quite a few pwcf have had successful liver transplants and continue to do well.

The lung issues are the most serious problem for the majority of cfer's. My oldest kids are nearly 30 and 28. If the vertex ph3 trial works as well as the ph2 and doesnt take too long to be accessible, then I actually believe that my kids will benefit by having a normal lifespan <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
I'm optimistic about the vertex drugs, especially since my kids have the G551d mutation. Having said that, I dont get too excited these days, but if my kids are doing the vertex trial and report good results, I will become more excited about it.

The vertex drug actually does work at correcting the problem, and there are some on this forum who have participated in the ph2. trial and had fantastic results. If the ph3 is successful, I think that it will pretty much give cfer's with the genes it targets a fairly normal life and I would imagine a normal life span.

I'm working of the fact that most people with cf die from lung related issues, so if that can be corrected it would be fantastic. As far as the liver issues in cf go (the above post), quite a few pwcf have had successful liver transplants and continue to do well.

The lung issues are the most serious problem for the majority of cfer's. My oldest kids are nearly 30 and 28. If the vertex ph3 trial works as well as the ph2 and doesnt take too long to be accessible, then I actually believe that my kids will benefit by having a normal lifespan <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dasjsmum

New member
I'm optimistic about the vertex drugs, especially since my kids have the G551d mutation. Having said that, I dont get too excited these days, but if my kids are doing the vertex trial and report good results, I will become more excited about it.
<br />
<br />The vertex drug actually does work at correcting the problem, and there are some on this forum who have participated in the ph2. trial and had fantastic results. If the ph3 is successful, I think that it will pretty much give cfer's with the genes it targets a fairly normal life and I would imagine a normal life span.
<br />
<br />I'm working of the fact that most people with cf die from lung related issues, so if that can be corrected it would be fantastic. As far as the liver issues in cf go (the above post), quite a few pwcf have had successful liver transplants and continue to do well.
<br />
<br />The lung issues are the most serious problem for the majority of cfer's. My oldest kids are nearly 30 and 28. If the vertex ph3 trial works as well as the ph2 and doesnt take too long to be accessible, then I actually believe that my kids will benefit by having a normal lifespan <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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