Husband with CF, fertility options and costs?

[julie]

mmm89, are you talking about Hannah's blog? If you are, she and I became friends through this site and she flew to WA and used the same Reproductive Endocronologist we did. I have 4 year old triplets and she has 2+ year old twins.
<br />
<br />If any of you ladies have specific questions, I'm an open book so feel free to ask away or you can email me privately

 

[kmiller]

Julie- Your website answered so many questions, Thanks! It's nice knowing other people are willing to help. I love hearing all the stories and successes for IVF and CF, I agree with mmm89, very inspiring!

 

[kmiller]

Julie- Your website answered so many questions, Thanks! It's nice knowing other people are willing to help. I love hearing all the stories and successes for IVF and CF, I agree with mmm89, very inspiring!

 

[kmiller]

Julie- Your website answered so many questions, Thanks! It's nice knowing other people are willing to help. I love hearing all the stories and successes for IVF and CF, I agree with mmm89, very inspiring!

 

[mmm89]

Yes, I have looked at her blog and yours! Your triplets are so cute, by the way! What blessings! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have also looked at your male infertility website several times. It is great! Very informational! I don't have any specific questions, right now. We will be looking into children, in the future, but aren't as of right now. I am sure when the times comes, I will have plenty though!

Oh... and just wondering again... what was the reasoning behind flying to WA for your Reproductive Endocronologist again? I didn't remember if it was an insurance thing or... ?

 

[mmm89]

Yes, I have looked at her blog and yours! Your triplets are so cute, by the way! What blessings! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have also looked at your male infertility website several times. It is great! Very informational! I don't have any specific questions, right now. We will be looking into children, in the future, but aren't as of right now. I am sure when the times comes, I will have plenty though!

Oh... and just wondering again... what was the reasoning behind flying to WA for your Reproductive Endocronologist again? I didn't remember if it was an insurance thing or... ?

 

[mmm89]

Yes, I have looked at her blog and yours! Your triplets are so cute, by the way! What blessings! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have also looked at your male infertility website several times. It is great! Very informational! I don't have any specific questions, right now. We will be looking into children, in the future, but aren't as of right now. I am sure when the times comes, I will have plenty though!
<br />
<br />Oh... and just wondering again... what was the reasoning behind flying to WA for your Reproductive Endocronologist again? I didn't remember if it was an insurance thing or... ?

 

[WeloveDavid820927]

Why would you take such chance of subjecting more lives to suffering with CF, either by the baby being born with this horrific disease that so far has no cure, or the strong possibility of them being a carrier which only means the possibility of their child repeating the cycle.

I recently lost someone to CF who was only 27 and he certainly showed much more consideration than what I am hearing from those that would try to bring in more and more lives to such an existance.

 

[WeloveDavid820927]

Why would you take such chance of subjecting more lives to suffering with CF, either by the baby being born with this horrific disease that so far has no cure, or the strong possibility of them being a carrier which only means the possibility of their child repeating the cycle.

I recently lost someone to CF who was only 27 and he certainly showed much more consideration than what I am hearing from those that would try to bring in more and more lives to such an existance.

 

[WeloveDavid820927]

Why would you take such chance of subjecting more lives to suffering with CF, either by the baby being born with this horrific disease that so far has no cure, or the strong possibility of them being a carrier which only means the possibility of their child repeating the cycle.
<br />
<br />I recently lost someone to CF who was only 27 and he certainly showed much more consideration than what I am hearing from those that would try to bring in more and more lives to such an existance.

 

[damndisease]

CF is a homozygous recessive trait, meaning you need 2 copies of the allele to have a child who "suffers" from the disease. It is very easy to screen for CF and prevent having a kid with CF, if that is a deterrant to you. I take exception to the misery you assume that all of us with the disease endure. I am 37 and I have climbed mountains and run a half marathon in the same year that I was in the ICU for a lung bleed that I thought would end my life. I am sorry for your loss, but I think you should keep your value judgements to yourself. I am glad I was born and glad my parents did not have the information to make a very tough decision. Also, I am not a big fan of eugenics. The thought of it kind of makes me ill. I have a 10 week old son using donor sperm, for those of you reading. He is a great little guy.

 

[damndisease]

CF is a homozygous recessive trait, meaning you need 2 copies of the allele to have a child who "suffers" from the disease. It is very easy to screen for CF and prevent having a kid with CF, if that is a deterrant to you. I take exception to the misery you assume that all of us with the disease endure. I am 37 and I have climbed mountains and run a half marathon in the same year that I was in the ICU for a lung bleed that I thought would end my life. I am sorry for your loss, but I think you should keep your value judgements to yourself. I am glad I was born and glad my parents did not have the information to make a very tough decision. Also, I am not a big fan of eugenics. The thought of it kind of makes me ill. I have a 10 week old son using donor sperm, for those of you reading. He is a great little guy.

 

[damndisease]

CF is a homozygous recessive trait, meaning you need 2 copies of the allele to have a child who "suffers" from the disease. It is very easy to screen for CF and prevent having a kid with CF, if that is a deterrant to you. I take exception to the misery you assume that all of us with the disease endure. I am 37 and I have climbed mountains and run a half marathon in the same year that I was in the ICU for a lung bleed that I thought would end my life. I am sorry for your loss, but I think you should keep your value judgements to yourself. I am glad I was born and glad my parents did not have the information to make a very tough decision. Also, I am not a big fan of eugenics. The thought of it kind of makes me ill. I have a 10 week old son using donor sperm, for those of you reading. He is a great little guy.

 

[PoppaLung]

WeloveDavid, this is going to be rough, so I apologize ahead of time, but you got my ire up.

I'm a 35 year old male, daddy to a 3 yr old girl by virtue of IVF, and more specifically, ICSI. I like to joke that the way they had to get my end of the deal ended up hurting as much as labor, just so I can see every woman's eyes in the room roll. Before we had our daughter, we had my wife tested for CF and the 1001 mutations, and she was negative. That drove our decision to jump in. I'm reading some of these posts with a little bit of chagrin, because I had no idea there were any resources out there to make it less financially taxing - we coughed up the full 25K (well, not at once... I'm getting ready to cough up the last payment in two months...), but let me tell you - it was the BEST 'investment' I will ever make in my life. Our 'baby' girl is a thriving, amusing as all get-out whippersnapper that is everything my parents ever wished on me when I was growing up. There's the background. Now for the KMA...

I know my life may - MAY - be shorter than most 'normal' people. But A)that's in God's hands, and His only, and B)the risk that I may not be around for everything in my daughter's life that I want to be there for is worth it, because even 'normal' people aren't guaranteed anything. I've seen younger dads than me get wiped out by freak accidents, leaving behind more kids than just one. I find it ABSOLUTELY MORONIC that those outside of the CF brother- and cysterhood want to put even more constraints on us than the damn disease does. Get a grip. Where did David's so-called consideration get him? Oh yea, dead. Where we all end up, CF or not. I daresay his life could have been filled with much more joy on the way out if he had a kid.

Round 2: Your comments seem to intimate that life with CF is no life at all. Given the choice - and I have that choice, whether it's illegal to end it on my own, or not - I'll take life with CF over no life at all ANY GASPING DAY OF THE WEEK. My 'such an existence' flat rocks: married to the woman of my dreams, daddy to the best kid on the planet (ok, moms and dads, you're all welcome to your own opinion, I don't want to do the back-and-forth email 'No, MY kids is the best on the planet!'... hee), and praising God that I get to go to work every day! Quit focusing on how much it sucks that David is gone, and realize that the rest of us on here have a unique perspective that makes us want to milk every last drop out of every minute of every day. And passing that perspective on to the next generation is about the best thing a person can do.

 

[PoppaLung]

WeloveDavid, this is going to be rough, so I apologize ahead of time, but you got my ire up.

I'm a 35 year old male, daddy to a 3 yr old girl by virtue of IVF, and more specifically, ICSI. I like to joke that the way they had to get my end of the deal ended up hurting as much as labor, just so I can see every woman's eyes in the room roll. Before we had our daughter, we had my wife tested for CF and the 1001 mutations, and she was negative. That drove our decision to jump in. I'm reading some of these posts with a little bit of chagrin, because I had no idea there were any resources out there to make it less financially taxing - we coughed up the full 25K (well, not at once... I'm getting ready to cough up the last payment in two months...), but let me tell you - it was the BEST 'investment' I will ever make in my life. Our 'baby' girl is a thriving, amusing as all get-out whippersnapper that is everything my parents ever wished on me when I was growing up. There's the background. Now for the KMA...

I know my life may - MAY - be shorter than most 'normal' people. But A)that's in God's hands, and His only, and B)the risk that I may not be around for everything in my daughter's life that I want to be there for is worth it, because even 'normal' people aren't guaranteed anything. I've seen younger dads than me get wiped out by freak accidents, leaving behind more kids than just one. I find it ABSOLUTELY MORONIC that those outside of the CF brother- and cysterhood want to put even more constraints on us than the damn disease does. Get a grip. Where did David's so-called consideration get him? Oh yea, dead. Where we all end up, CF or not. I daresay his life could have been filled with much more joy on the way out if he had a kid.

Round 2: Your comments seem to intimate that life with CF is no life at all. Given the choice - and I have that choice, whether it's illegal to end it on my own, or not - I'll take life with CF over no life at all ANY GASPING DAY OF THE WEEK. My 'such an existence' flat rocks: married to the woman of my dreams, daddy to the best kid on the planet (ok, moms and dads, you're all welcome to your own opinion, I don't want to do the back-and-forth email 'No, MY kids is the best on the planet!'... hee), and praising God that I get to go to work every day! Quit focusing on how much it sucks that David is gone, and realize that the rest of us on here have a unique perspective that makes us want to milk every last drop out of every minute of every day. And passing that perspective on to the next generation is about the best thing a person can do.

 

[PoppaLung]

WeloveDavid, this is going to be rough, so I apologize ahead of time, but you got my ire up.
<br />
<br />I'm a 35 year old male, daddy to a 3 yr old girl by virtue of IVF, and more specifically, ICSI. I like to joke that the way they had to get my end of the deal ended up hurting as much as labor, just so I can see every woman's eyes in the room roll. Before we had our daughter, we had my wife tested for CF and the 1001 mutations, and she was negative. That drove our decision to jump in. I'm reading some of these posts with a little bit of chagrin, because I had no idea there were any resources out there to make it less financially taxing - we coughed up the full 25K (well, not at once... I'm getting ready to cough up the last payment in two months...), but let me tell you - it was the BEST 'investment' I will ever make in my life. Our 'baby' girl is a thriving, amusing as all get-out whippersnapper that is everything my parents ever wished on me when I was growing up. There's the background. Now for the KMA...
<br />
<br />I know my life may - MAY - be shorter than most 'normal' people. But A)that's in God's hands, and His only, and B)the risk that I may not be around for everything in my daughter's life that I want to be there for is worth it, because even 'normal' people aren't guaranteed anything. I've seen younger dads than me get wiped out by freak accidents, leaving behind more kids than just one. I find it ABSOLUTELY MORONIC that those outside of the CF brother- and cysterhood want to put even more constraints on us than the damn disease does. Get a grip. Where did David's so-called consideration get him? Oh yea, dead. Where we all end up, CF or not. I daresay his life could have been filled with much more joy on the way out if he had a kid.
<br />
<br />Round 2: Your comments seem to intimate that life with CF is no life at all. Given the choice - and I have that choice, whether it's illegal to end it on my own, or not - I'll take life with CF over no life at all ANY GASPING DAY OF THE WEEK. My 'such an existence' flat rocks: married to the woman of my dreams, daddy to the best kid on the planet (ok, moms and dads, you're all welcome to your own opinion, I don't want to do the back-and-forth email 'No, MY kids is the best on the planet!'... hee), and praising God that I get to go to work every day! Quit focusing on how much it sucks that David is gone, and realize that the rest of us on here have a unique perspective that makes us want to milk every last drop out of every minute of every day. And passing that perspective on to the next generation is about the best thing a person can do.

 

[mamaScarlett]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>WeloveDavid820927</b></i>

Why would you take such chance of subjecting more lives to suffering with CF, either by the baby being born with this horrific disease that so far has no cure, or the strong possibility of them being a carrier which only means the possibility of their child repeating the cycle.



I recently lost someone to CF who was only 27 and he certainly showed much more consideration than what I am hearing from those that would try to bring in more and more lives to such an existance.</end quote></div>

Sorry for your loss sincerely, but you'd be giving your loved one the best gift by educating yourself about all aspects of Cf, and seeing us as humans and not 'sick people'.
Your negative and heartless comments are unfounded and do nothing to help people with Cf. You are posting in a PREGNANCY section afterall-maybe you should think of it from others perspective.
You do realize that in effect you are telling all of us with Cf to just live out our lives without following dreams and wait to die...Don't you? That we don't have a right to life. A right to make our own choices and build a life.
Sounds like what a dictator in 1940s germany wanted to do with all sick people...sterilize them and send them away.
Why not take a look at the current thread in the adult section on Cfers over 35-check out the patients in their 50s 60s and 70s-should none of them had children, gone to college, pursued a dream and led as full and rich a life as you deserve to?

 

[mamaScarlett]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>WeloveDavid820927</b></i>

Why would you take such chance of subjecting more lives to suffering with CF, either by the baby being born with this horrific disease that so far has no cure, or the strong possibility of them being a carrier which only means the possibility of their child repeating the cycle.



I recently lost someone to CF who was only 27 and he certainly showed much more consideration than what I am hearing from those that would try to bring in more and more lives to such an existance.</end quote>

Sorry for your loss sincerely, but you'd be giving your loved one the best gift by educating yourself about all aspects of Cf, and seeing us as humans and not 'sick people'.
Your negative and heartless comments are unfounded and do nothing to help people with Cf. You are posting in a PREGNANCY section afterall-maybe you should think of it from others perspective.
You do realize that in effect you are telling all of us with Cf to just live out our lives without following dreams and wait to die...Don't you? That we don't have a right to life. A right to make our own choices and build a life.
Sounds like what a dictator in 1940s germany wanted to do with all sick people...sterilize them and send them away.
Why not take a look at the current thread in the adult section on Cfers over 35-check out the patients in their 50s 60s and 70s-should none of them had children, gone to college, pursued a dream and led as full and rich a life as you deserve to?

 

[mamaScarlett]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>WeloveDavid820927</b></i>
<br />
<br />Why would you take such chance of subjecting more lives to suffering with CF, either by the baby being born with this horrific disease that so far has no cure, or the strong possibility of them being a carrier which only means the possibility of their child repeating the cycle.
<br />
<br />
<br />
<br />I recently lost someone to CF who was only 27 and he certainly showed much more consideration than what I am hearing from those that would try to bring in more and more lives to such an existance.</end quote>
<br />
<br />Sorry for your loss sincerely, but you'd be giving your loved one the best gift by educating yourself about all aspects of Cf, and seeing us as humans and not 'sick people'.
<br />Your negative and heartless comments are unfounded and do nothing to help people with Cf. You are posting in a PREGNANCY section afterall-maybe you should think of it from others perspective.
<br />You do realize that in effect you are telling all of us with Cf to just live out our lives without following dreams and wait to die...Don't you? That we don't have a right to life. A right to make our own choices and build a life.
<br />Sounds like what a dictator in 1940s germany wanted to do with all sick people...sterilize them and send them away.
<br />Why not take a look at the current thread in the adult section on Cfers over 35-check out the patients in their 50s 60s and 70s-should none of them had children, gone to college, pursued a dream and led as full and rich a life as you deserve to?

 

[mamaScarlett]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PoppaLung</b></i>
My 'such an existence' flat rocks: married to the woman of my dreams, daddy to the best kid on the planet (ok, moms and dads, you're all welcome to your own opinion, I don't want to do the back-and-forth email 'No, MY kids is the best on the planet!'... hee)
, and praising God that I get to go to work every day! Quit focusing on how much it sucks that David is gone, and realize that the rest of us on here have a unique perspective that makes us want to milk every last drop out of every minute of every day.

And passing that perspective on to the next generation is about the best thing a person can do.</end quote></div>

Perfectly put.
(i have the best kid on the planet by the way...haha)
Enjoyed reading your words, especially from the perspective of a dad.

Even when times are rougher than when you describe-I would never trade my place with anyone else, ever. And I know my husband and my family feel the same way, much more than I even do. My daughter is the light of our family, the pride of her grandparents and aunts and uncles, best buddy to her dozen or so cousins;She's done more and seen more fun exciting stuff than most 3 yrs olds, and is surrounded by love and the potential to be the brightest, smartest and most compassionate adult in the world someday.
Oh yeah...and she's a carrier.