I am in hospital

carly23

New member
I have been worrying n crying since i was told this..my doc told me that this was the one thing that hw wished i would have never had cultured.can anyone relate to me out there im online on cf chat sittn in my hospital bed im feeln down and not good and its valentines day my boyfriend got me flowers baloons a bear and a card and lots of chocs i cried and so did he coz he saw me crying he does not know yet what i have and im not to sure how i want to tell him...
 

carly23

New member
I have been worrying n crying since i was told this..my doc told me that this was the one thing that hw wished i would have never had cultured.can anyone relate to me out there im online on cf chat sittn in my hospital bed im feeln down and not good and its valentines day my boyfriend got me flowers baloons a bear and a card and lots of chocs i cried and so did he coz he saw me crying he does not know yet what i have and im not to sure how i want to tell him...
 

carly23

New member
I have been worrying n crying since i was told this..my doc told me that this was the one thing that hw wished i would have never had cultured.can anyone relate to me out there im online on cf chat sittn in my hospital bed im feeln down and not good and its valentines day my boyfriend got me flowers baloons a bear and a card and lots of chocs i cried and so did he coz he saw me crying he does not know yet what i have and im not to sure how i want to tell him...
 

carly23

New member
I have been worrying n crying since i was told this..my doc told me that this was the one thing that hw wished i would have never had cultured.can anyone relate to me out there im online on cf chat sittn in my hospital bed im feeln down and not good and its valentines day my boyfriend got me flowers baloons a bear and a card and lots of chocs i cried and so did he coz he saw me crying he does not know yet what i have and im not to sure how i want to tell him...
 

carly23

New member
I have been worrying n crying since i was told this..my doc told me that this was the one thing that hw wished i would have never had cultured.can anyone relate to me out there im online on cf chat sittn in my hospital bed im feeln down and not good and its valentines day my boyfriend got me flowers baloons a bear and a card and lots of chocs i cried and so did he coz he saw me crying he does not know yet what i have and im not to sure how i want to tell him...
 

KrazyKat

New member
am in hospital

Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have.

Next, relax again. This is not a death sentence for most, and is simply another nasty bug, which we CFers are well accustomed to.

Some people deteriorate quicker once they culture cepacia, many don't and for me personally, my cepacia is a whimp and my pseudomonas causes me way more problems.

Try not to freak out, it's not that bad! Knowledge is power, ask what genomovar you have first, second, ask how many antibiotics your strain is currently sensitive too. Then come back to us.
 

KrazyKat

New member
am in hospital

Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have.

Next, relax again. This is not a death sentence for most, and is simply another nasty bug, which we CFers are well accustomed to.

Some people deteriorate quicker once they culture cepacia, many don't and for me personally, my cepacia is a whimp and my pseudomonas causes me way more problems.

Try not to freak out, it's not that bad! Knowledge is power, ask what genomovar you have first, second, ask how many antibiotics your strain is currently sensitive too. Then come back to us.
 

KrazyKat

New member
am in hospital

Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have.

Next, relax again. This is not a death sentence for most, and is simply another nasty bug, which we CFers are well accustomed to.

Some people deteriorate quicker once they culture cepacia, many don't and for me personally, my cepacia is a whimp and my pseudomonas causes me way more problems.

Try not to freak out, it's not that bad! Knowledge is power, ask what genomovar you have first, second, ask how many antibiotics your strain is currently sensitive too. Then come back to us.
 

KrazyKat

New member
am in hospital

Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have.

Next, relax again. This is not a death sentence for most, and is simply another nasty bug, which we CFers are well accustomed to.

Some people deteriorate quicker once they culture cepacia, many don't and for me personally, my cepacia is a whimp and my pseudomonas causes me way more problems.

Try not to freak out, it's not that bad! Knowledge is power, ask what genomovar you have first, second, ask how many antibiotics your strain is currently sensitive too. Then come back to us.
 

KrazyKat

New member
am in hospital

Ok, first of all relax!! you need to know what type of Cepacia you have cultured, there are nine genomovars, the most common two being 'multivorans - genomovar 2' and 'cenocepacia - genomovar 3', ask your doc which one you have.
<br />
<br />Next, relax again. This is not a death sentence for most, and is simply another nasty bug, which we CFers are well accustomed to.
<br />
<br />Some people deteriorate quicker once they culture cepacia, many don't and for me personally, my cepacia is a whimp and my pseudomonas causes me way more problems.
<br />
<br />Try not to freak out, it's not that bad! Knowledge is power, ask what genomovar you have first, second, ask how many antibiotics your strain is currently sensitive too. Then come back to us.
 

LouLou

New member
I'm sorry Carly. Many people on this site do quite well even with cepacia. Do you know what genomovar of cepacia you have yet? Time will help you feel better about this new development. You are still the same person and I'm sure others with cepacia can give you some good advice.
 

LouLou

New member
I'm sorry Carly. Many people on this site do quite well even with cepacia. Do you know what genomovar of cepacia you have yet? Time will help you feel better about this new development. You are still the same person and I'm sure others with cepacia can give you some good advice.
 

LouLou

New member
I'm sorry Carly. Many people on this site do quite well even with cepacia. Do you know what genomovar of cepacia you have yet? Time will help you feel better about this new development. You are still the same person and I'm sure others with cepacia can give you some good advice.
 

LouLou

New member
I'm sorry Carly. Many people on this site do quite well even with cepacia. Do you know what genomovar of cepacia you have yet? Time will help you feel better about this new development. You are still the same person and I'm sure others with cepacia can give you some good advice.
 

LouLou

New member
I'm sorry Carly. Many people on this site do quite well even with cepacia. Do you know what genomovar of cepacia you have yet? Time will help you feel better about this new development. You are still the same person and I'm sure others with cepacia can give you some good advice.
 

carly23

New member
hey there no i dont.i asked him what strain i am through a text message he said he didnt know.i will see him tomorow though.what do i ask him tho what type of genomovar i am?he jus found out today i cultured it so will he need to do more tests to see what strain or genomovar i am...i dont mean to freak out but i jus am feeln down today and my doc was saddend to tel me thats all
 

carly23

New member
hey there no i dont.i asked him what strain i am through a text message he said he didnt know.i will see him tomorow though.what do i ask him tho what type of genomovar i am?he jus found out today i cultured it so will he need to do more tests to see what strain or genomovar i am...i dont mean to freak out but i jus am feeln down today and my doc was saddend to tel me thats all
 

carly23

New member
hey there no i dont.i asked him what strain i am through a text message he said he didnt know.i will see him tomorow though.what do i ask him tho what type of genomovar i am?he jus found out today i cultured it so will he need to do more tests to see what strain or genomovar i am...i dont mean to freak out but i jus am feeln down today and my doc was saddend to tel me thats all
 

carly23

New member
hey there no i dont.i asked him what strain i am through a text message he said he didnt know.i will see him tomorow though.what do i ask him tho what type of genomovar i am?he jus found out today i cultured it so will he need to do more tests to see what strain or genomovar i am...i dont mean to freak out but i jus am feeln down today and my doc was saddend to tel me thats all
 

carly23

New member
hey there no i dont.i asked him what strain i am through a text message he said he didnt know.i will see him tomorow though.what do i ask him tho what type of genomovar i am?he jus found out today i cultured it so will he need to do more tests to see what strain or genomovar i am...i dont mean to freak out but i jus am feeln down today and my doc was saddend to tel me thats all
 
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