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I haven't got to bring my baby home yet.
- Thread starter Tcole
- Start date
L
lhkraus
Guest
I've been there too, and I remember how my heart hurt also. But,here's the good part -- my daughter is 16 and living a basically healthy normal life. (In fact, she has a long scar across her tummy, but wears a teeny-weeny bikini!) Even though she started out with intestinal surgery on her first day of life, and we were scared to death about what the future would hold, it turned out she has fairly mild CF. And they keep coming up with amazing medications, which makes her prognosis, and your child's better and better. So, my advice to you is don't look too far into the future, just treat yourself kindly, remember you have more strength than you know, do the best you can, and be hopeful. Good luck to you -- my thoughts are with you.
L
lhkraus
Guest
I've been there too, and I remember how my heart hurt also. But,here's the good part -- my daughter is 16 and living a basically healthy normal life. (In fact, she has a long scar across her tummy, but wears a teeny-weeny bikini!) Even though she started out with intestinal surgery on her first day of life, and we were scared to death about what the future would hold, it turned out she has fairly mild CF. And they keep coming up with amazing medications, which makes her prognosis, and your child's better and better. So, my advice to you is don't look too far into the future, just treat yourself kindly, remember you have more strength than you know, do the best you can, and be hopeful. Good luck to you -- my thoughts are with you.
L
lhkraus
Guest
I've been there too, and I remember how my heart hurt also. But,here's the good part -- my daughter is 16 and living a basically healthy normal life. (In fact, she has a long scar across her tummy, but wears a teeny-weeny bikini!) Even though she started out with intestinal surgery on her first day of life, and we were scared to death about what the future would hold, it turned out she has fairly mild CF. And they keep coming up with amazing medications, which makes her prognosis, and your child's better and better. So, my advice to you is don't look too far into the future, just treat yourself kindly, remember you have more strength than you know, do the best you can, and be hopeful. Good luck to you -- my thoughts are with you.
L
lhkraus
Guest
I've been there too, and I remember how my heart hurt also. But,here's the good part -- my daughter is 16 and living a basically healthy normal life. (In fact, she has a long scar across her tummy, but wears a teeny-weeny bikini!) Even though she started out with intestinal surgery on her first day of life, and we were scared to death about what the future would hold, it turned out she has fairly mild CF. And they keep coming up with amazing medications, which makes her prognosis, and your child's better and better. So, my advice to you is don't look too far into the future, just treat yourself kindly, remember you have more strength than you know, do the best you can, and be hopeful. Good luck to you -- my thoughts are with you.
L
lhkraus
Guest
I've been there too, and I remember how my heart hurt also. But,here's the good part -- my daughter is 16 and living a basically healthy normal life. (In fact, she has a long scar across her tummy, but wears a teeny-weeny bikini!) Even though she started out with intestinal surgery on her first day of life, and we were scared to death about what the future would hold, it turned out she has fairly mild CF. And they keep coming up with amazing medications, which makes her prognosis, and your child's better and better. So, my advice to you is don't look too far into the future, just treat yourself kindly, remember you have more strength than you know, do the best you can, and be hopeful. Good luck to you -- my thoughts are with you.
fourkidsmom
New member
I am sorry I did not see your post earlier. I have been thru the EXACT same thing with my son when he was born. Except I found out he had a bowel blockage, which ended up being a burst bowel when I was 7 months pregnant and that prepared us to go to a more equipped hospital 2 hours away and I had a planned C-section. He had a 4 hour bowel surgery at 6 hours old. He had the stoma bag and illeostomy for 2 months until they reconnected for failure to thrive. He developed peusdo instead of MRSA) in the hospital. He had 2 blood transfusions,he had the oxygen, the isolation room, etc., He does the breathing treatments every 4 hours (still does at 7 yrs old)but in the hospital did thru the night too. (now we do just during the day-- unless he is sick then all thru the night too.) He spent the 1st 77 days in the hospital before going home. (you can read more on my blogs) If you have questons please PM me, I know what you are going thru it is a tough time!!
fourkidsmom
New member
I am sorry I did not see your post earlier. I have been thru the EXACT same thing with my son when he was born. Except I found out he had a bowel blockage, which ended up being a burst bowel when I was 7 months pregnant and that prepared us to go to a more equipped hospital 2 hours away and I had a planned C-section. He had a 4 hour bowel surgery at 6 hours old. He had the stoma bag and illeostomy for 2 months until they reconnected for failure to thrive. He developed peusdo instead of MRSA) in the hospital. He had 2 blood transfusions,he had the oxygen, the isolation room, etc., He does the breathing treatments every 4 hours (still does at 7 yrs old)but in the hospital did thru the night too. (now we do just during the day-- unless he is sick then all thru the night too.) He spent the 1st 77 days in the hospital before going home. (you can read more on my blogs) If you have questons please PM me, I know what you are going thru it is a tough time!!
fourkidsmom
New member
I am sorry I did not see your post earlier. I have been thru the EXACT same thing with my son when he was born. Except I found out he had a bowel blockage, which ended up being a burst bowel when I was 7 months pregnant and that prepared us to go to a more equipped hospital 2 hours away and I had a planned C-section. He had a 4 hour bowel surgery at 6 hours old. He had the stoma bag and illeostomy for 2 months until they reconnected for failure to thrive. He developed peusdo instead of MRSA) in the hospital. He had 2 blood transfusions,he had the oxygen, the isolation room, etc., He does the breathing treatments every 4 hours (still does at 7 yrs old)but in the hospital did thru the night too. (now we do just during the day-- unless he is sick then all thru the night too.) He spent the 1st 77 days in the hospital before going home. (you can read more on my blogs) If you have questons please PM me, I know what you are going thru it is a tough time!!
fourkidsmom
New member
I am sorry I did not see your post earlier. I have been thru the EXACT same thing with my son when he was born. Except I found out he had a bowel blockage, which ended up being a burst bowel when I was 7 months pregnant and that prepared us to go to a more equipped hospital 2 hours away and I had a planned C-section. He had a 4 hour bowel surgery at 6 hours old. He had the stoma bag and illeostomy for 2 months until they reconnected for failure to thrive. He developed peusdo instead of MRSA) in the hospital. He had 2 blood transfusions,he had the oxygen, the isolation room, etc., He does the breathing treatments every 4 hours (still does at 7 yrs old)but in the hospital did thru the night too. (now we do just during the day-- unless he is sick then all thru the night too.) He spent the 1st 77 days in the hospital before going home. (you can read more on my blogs) If you have questons please PM me, I know what you are going thru it is a tough time!!
fourkidsmom
New member
I am sorry I did not see your post earlier. I have been thru the EXACT same thing with my son when he was born. Except I found out he had a bowel blockage, which ended up being a burst bowel when I was 7 months pregnant and that prepared us to go to a more equipped hospital 2 hours away and I had a planned C-section. He had a 4 hour bowel surgery at 6 hours old. He had the stoma bag and illeostomy for 2 months until they reconnected for failure to thrive. He developed peusdo instead of MRSA) in the hospital. He had 2 blood transfusions,he had the oxygen, the isolation room, etc., He does the breathing treatments every 4 hours (still does at 7 yrs old)but in the hospital did thru the night too. (now we do just during the day-- unless he is sick then all thru the night too.) He spent the 1st 77 days in the hospital before going home. (you can read more on my blogs) If you have questons please PM me, I know what you are going thru it is a tough time!!
grassisgreener
New member
Hang in there sweetie! I hope you can bring your little girl home soon!
grassisgreener
New member
Hang in there sweetie! I hope you can bring your little girl home soon!
grassisgreener
New member
Hang in there sweetie! I hope you can bring your little girl home soon!
grassisgreener
New member
Hang in there sweetie! I hope you can bring your little girl home soon!
grassisgreener
New member
Hang in there sweetie! I hope you can bring your little girl home soon!