I hit the jackpot!!!!

Jem

New member
Ok, I made you look! But really I did hit the jackpot!

This afternoon I attended the New Jersey Technology Council conference on "Social Networking Sites as an Emerging Market." I attended not because my husband was moderating the panel discussion but because I heard that Jeanne Barnett, our foundress here at Cysticfibrosis.com was on the panel. How is that for a small world?

She did an amazing job with her presentation especially explaining the definition of an e-patient in reference to this website. I was so proud of her. When the question and answer time came up...I raised my hand when my husband said, "We will take one more question." I was not the only one to raise my hand but I guess my husband figured he better pick me because he knew it would be a long drive home if he didn't! lol.... It was then that I stood up and explained why I attended...not because my husband was the moderator but because this was an opportunity to meet Jeanne in person as I was one of the e-patients on her website, cysticfibrosis.com. I then gave a little background about me and my experience with being an e-patient. I concluded by thanking Jeanne on behalf of all of us here on this forum for the many sacrifices and hard work she puts into running this site which provides, information, support and hope to each one of us. She is such a gracious lady and very beautiful too!

I also had the privilege of meeting her husband Peter, her two daughters- Sarah and MaryHelen, and Ennio our "IT Guru". What a jackpot that was to receive! They are an amazing group of individuals with many dreams for the future concerning this website. I am overwhelmed by the kindness and love they pour into their work. This truly is a labor of love for them that each one of us has been graced with.

Please join me in giving Jeanne 3 cheers for a job well done. Hip Hip Hurray!!! Hip Hip Hurray!!!! Hip Hip Hurray!!!

God Bless you Jeanne for all you do...and to your family that works along side you and Ennio who helps make it all happen.
 

Jem

New member
Ok, I made you look! But really I did hit the jackpot!

This afternoon I attended the New Jersey Technology Council conference on "Social Networking Sites as an Emerging Market." I attended not because my husband was moderating the panel discussion but because I heard that Jeanne Barnett, our foundress here at Cysticfibrosis.com was on the panel. How is that for a small world?

She did an amazing job with her presentation especially explaining the definition of an e-patient in reference to this website. I was so proud of her. When the question and answer time came up...I raised my hand when my husband said, "We will take one more question." I was not the only one to raise my hand but I guess my husband figured he better pick me because he knew it would be a long drive home if he didn't! lol.... It was then that I stood up and explained why I attended...not because my husband was the moderator but because this was an opportunity to meet Jeanne in person as I was one of the e-patients on her website, cysticfibrosis.com. I then gave a little background about me and my experience with being an e-patient. I concluded by thanking Jeanne on behalf of all of us here on this forum for the many sacrifices and hard work she puts into running this site which provides, information, support and hope to each one of us. She is such a gracious lady and very beautiful too!

I also had the privilege of meeting her husband Peter, her two daughters- Sarah and MaryHelen, and Ennio our "IT Guru". What a jackpot that was to receive! They are an amazing group of individuals with many dreams for the future concerning this website. I am overwhelmed by the kindness and love they pour into their work. This truly is a labor of love for them that each one of us has been graced with.

Please join me in giving Jeanne 3 cheers for a job well done. Hip Hip Hurray!!! Hip Hip Hurray!!!! Hip Hip Hurray!!!

God Bless you Jeanne for all you do...and to your family that works along side you and Ennio who helps make it all happen.
 

Jem

New member
Ok, I made you look! But really I did hit the jackpot!

This afternoon I attended the New Jersey Technology Council conference on "Social Networking Sites as an Emerging Market." I attended not because my husband was moderating the panel discussion but because I heard that Jeanne Barnett, our foundress here at Cysticfibrosis.com was on the panel. How is that for a small world?

She did an amazing job with her presentation especially explaining the definition of an e-patient in reference to this website. I was so proud of her. When the question and answer time came up...I raised my hand when my husband said, "We will take one more question." I was not the only one to raise my hand but I guess my husband figured he better pick me because he knew it would be a long drive home if he didn't! lol.... It was then that I stood up and explained why I attended...not because my husband was the moderator but because this was an opportunity to meet Jeanne in person as I was one of the e-patients on her website, cysticfibrosis.com. I then gave a little background about me and my experience with being an e-patient. I concluded by thanking Jeanne on behalf of all of us here on this forum for the many sacrifices and hard work she puts into running this site which provides, information, support and hope to each one of us. She is such a gracious lady and very beautiful too!

I also had the privilege of meeting her husband Peter, her two daughters- Sarah and MaryHelen, and Ennio our "IT Guru". What a jackpot that was to receive! They are an amazing group of individuals with many dreams for the future concerning this website. I am overwhelmed by the kindness and love they pour into their work. This truly is a labor of love for them that each one of us has been graced with.

Please join me in giving Jeanne 3 cheers for a job well done. Hip Hip Hurray!!! Hip Hip Hurray!!!! Hip Hip Hurray!!!

God Bless you Jeanne for all you do...and to your family that works along side you and Ennio who helps make it all happen.
 

Jem

New member
Ok, I made you look! But really I did hit the jackpot!

This afternoon I attended the New Jersey Technology Council conference on "Social Networking Sites as an Emerging Market." I attended not because my husband was moderating the panel discussion but because I heard that Jeanne Barnett, our foundress here at Cysticfibrosis.com was on the panel. How is that for a small world?

She did an amazing job with her presentation especially explaining the definition of an e-patient in reference to this website. I was so proud of her. When the question and answer time came up...I raised my hand when my husband said, "We will take one more question." I was not the only one to raise my hand but I guess my husband figured he better pick me because he knew it would be a long drive home if he didn't! lol.... It was then that I stood up and explained why I attended...not because my husband was the moderator but because this was an opportunity to meet Jeanne in person as I was one of the e-patients on her website, cysticfibrosis.com. I then gave a little background about me and my experience with being an e-patient. I concluded by thanking Jeanne on behalf of all of us here on this forum for the many sacrifices and hard work she puts into running this site which provides, information, support and hope to each one of us. She is such a gracious lady and very beautiful too!

I also had the privilege of meeting her husband Peter, her two daughters- Sarah and MaryHelen, and Ennio our "IT Guru". What a jackpot that was to receive! They are an amazing group of individuals with many dreams for the future concerning this website. I am overwhelmed by the kindness and love they pour into their work. This truly is a labor of love for them that each one of us has been graced with.

Please join me in giving Jeanne 3 cheers for a job well done. Hip Hip Hurray!!! Hip Hip Hurray!!!! Hip Hip Hurray!!!

God Bless you Jeanne for all you do...and to your family that works along side you and Ennio who helps make it all happen.
 

Jem

New member
Ok, I made you look! But really I did hit the jackpot!

This afternoon I attended the New Jersey Technology Council conference on "Social Networking Sites as an Emerging Market." I attended not because my husband was moderating the panel discussion but because I heard that Jeanne Barnett, our foundress here at Cysticfibrosis.com was on the panel. How is that for a small world?

She did an amazing job with her presentation especially explaining the definition of an e-patient in reference to this website. I was so proud of her. When the question and answer time came up...I raised my hand when my husband said, "We will take one more question." I was not the only one to raise my hand but I guess my husband figured he better pick me because he knew it would be a long drive home if he didn't! lol.... It was then that I stood up and explained why I attended...not because my husband was the moderator but because this was an opportunity to meet Jeanne in person as I was one of the e-patients on her website, cysticfibrosis.com. I then gave a little background about me and my experience with being an e-patient. I concluded by thanking Jeanne on behalf of all of us here on this forum for the many sacrifices and hard work she puts into running this site which provides, information, support and hope to each one of us. She is such a gracious lady and very beautiful too!

I also had the privilege of meeting her husband Peter, her two daughters- Sarah and MaryHelen, and Ennio our "IT Guru". What a jackpot that was to receive! They are an amazing group of individuals with many dreams for the future concerning this website. I am overwhelmed by the kindness and love they pour into their work. This truly is a labor of love for them that each one of us has been graced with.

Please join me in giving Jeanne 3 cheers for a job well done. Hip Hip Hurray!!! Hip Hip Hurray!!!! Hip Hip Hurray!!!

God Bless you Jeanne for all you do...and to your family that works along side you and Ennio who helps make it all happen.
 
M

Mommafirst

Guest
YAY!!! I'm so glad you got to meet Jeanne and go to the panel. That is soooo funny that your husband was the moderator! Very very small world.

I couldn't agree with you more that Jeanne and her family & crew have put their hearts and souls into this place. I have spoken with Jeanne on the phone and she is an amazing woman!!!

I felt incredibly alone when my daughter was first diagnosed, and then I found this place. I am grateful for all the hard work that goes into making this place run, and finding new ways to keep it getting better -- like speaking today at this panel!!!
 
M

Mommafirst

Guest
YAY!!! I'm so glad you got to meet Jeanne and go to the panel. That is soooo funny that your husband was the moderator! Very very small world.

I couldn't agree with you more that Jeanne and her family & crew have put their hearts and souls into this place. I have spoken with Jeanne on the phone and she is an amazing woman!!!

I felt incredibly alone when my daughter was first diagnosed, and then I found this place. I am grateful for all the hard work that goes into making this place run, and finding new ways to keep it getting better -- like speaking today at this panel!!!
 
M

Mommafirst

Guest
YAY!!! I'm so glad you got to meet Jeanne and go to the panel. That is soooo funny that your husband was the moderator! Very very small world.

I couldn't agree with you more that Jeanne and her family & crew have put their hearts and souls into this place. I have spoken with Jeanne on the phone and she is an amazing woman!!!

I felt incredibly alone when my daughter was first diagnosed, and then I found this place. I am grateful for all the hard work that goes into making this place run, and finding new ways to keep it getting better -- like speaking today at this panel!!!
 
M

Mommafirst

Guest
YAY!!! I'm so glad you got to meet Jeanne and go to the panel. That is soooo funny that your husband was the moderator! Very very small world.

I couldn't agree with you more that Jeanne and her family & crew have put their hearts and souls into this place. I have spoken with Jeanne on the phone and she is an amazing woman!!!

I felt incredibly alone when my daughter was first diagnosed, and then I found this place. I am grateful for all the hard work that goes into making this place run, and finding new ways to keep it getting better -- like speaking today at this panel!!!
 
M

Mommafirst

Guest
YAY!!! I'm so glad you got to meet Jeanne and go to the panel. That is soooo funny that your husband was the moderator! Very very small world.

I couldn't agree with you more that Jeanne and her family & crew have put their hearts and souls into this place. I have spoken with Jeanne on the phone and she is an amazing woman!!!

I felt incredibly alone when my daughter was first diagnosed, and then I found this place. I am grateful for all the hard work that goes into making this place run, and finding new ways to keep it getting better -- like speaking today at this panel!!!
 

bittyhorse23

New member
That is great you got to meet them!

I would be so lost with out this site! I feel so much better about my health care and my outlook on life now....it is amazing what a few friends can do <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
That is great you got to meet them!

I would be so lost with out this site! I feel so much better about my health care and my outlook on life now....it is amazing what a few friends can do <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
That is great you got to meet them!

I would be so lost with out this site! I feel so much better about my health care and my outlook on life now....it is amazing what a few friends can do <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
That is great you got to meet them!

I would be so lost with out this site! I feel so much better about my health care and my outlook on life now....it is amazing what a few friends can do <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
That is great you got to meet them!

I would be so lost with out this site! I feel so much better about my health care and my outlook on life now....it is amazing what a few friends can do <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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