I thought all was well...

H

holmfamily1992

New member
It has only been a couple of days since I updated my blog and all was good when we left..We had clinic appointments for the 4 CF'ers and we left with only one concern, so I thought. Dylan ended having an infection in his small airways and is now a treatment of antibiotics. We can deal with that...

One of the things I was hoping my children with CF would never have to deal with was enzymes and yes, we now have one that is pancreatic insuffient. Ryan who is 6 now must begin enzymes...

Ok, its not the end of the world I know BUT I am dealing with a little boy who is to busy for anything not to mention grumpy about his meds and stubborn as HELL!!
I need you guys on this one!! I know that I can break them open and sprinkle them in his mouth but what happens if that doesn't work? I can't put them in pudding because pudding isn't crunchy you know! I'm just thinking of the things he will say...

You guys have to have some good idea's and I could not think of any other place to go to get some answers....I know we can do this, its just a matter of finding the right way to go about it and the easiest for Ryan.

FREAKIN OUT,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It has only been a couple of days since I updated my blog and all was good when we left..We had clinic appointments for the 4 CF'ers and we left with only one concern, so I thought. Dylan ended having an infection in his small airways and is now a treatment of antibiotics. We can deal with that...

One of the things I was hoping my children with CF would never have to deal with was enzymes and yes, we now have one that is pancreatic insuffient. Ryan who is 6 now must begin enzymes...

Ok, its not the end of the world I know BUT I am dealing with a little boy who is to busy for anything not to mention grumpy about his meds and stubborn as HELL!!
I need you guys on this one!! I know that I can break them open and sprinkle them in his mouth but what happens if that doesn't work? I can't put them in pudding because pudding isn't crunchy you know! I'm just thinking of the things he will say...

You guys have to have some good idea's and I could not think of any other place to go to get some answers....I know we can do this, its just a matter of finding the right way to go about it and the easiest for Ryan.

FREAKIN OUT,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It has only been a couple of days since I updated my blog and all was good when we left..We had clinic appointments for the 4 CF'ers and we left with only one concern, so I thought. Dylan ended having an infection in his small airways and is now a treatment of antibiotics. We can deal with that...

One of the things I was hoping my children with CF would never have to deal with was enzymes and yes, we now have one that is pancreatic insuffient. Ryan who is 6 now must begin enzymes...

Ok, its not the end of the world I know BUT I am dealing with a little boy who is to busy for anything not to mention grumpy about his meds and stubborn as HELL!!
I need you guys on this one!! I know that I can break them open and sprinkle them in his mouth but what happens if that doesn't work? I can't put them in pudding because pudding isn't crunchy you know! I'm just thinking of the things he will say...

You guys have to have some good idea's and I could not think of any other place to go to get some answers....I know we can do this, its just a matter of finding the right way to go about it and the easiest for Ryan.

FREAKIN OUT,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It has only been a couple of days since I updated my blog and all was good when we left..We had clinic appointments for the 4 CF'ers and we left with only one concern, so I thought. Dylan ended having an infection in his small airways and is now a treatment of antibiotics. We can deal with that...

One of the things I was hoping my children with CF would never have to deal with was enzymes and yes, we now have one that is pancreatic insuffient. Ryan who is 6 now must begin enzymes...

Ok, its not the end of the world I know BUT I am dealing with a little boy who is to busy for anything not to mention grumpy about his meds and stubborn as HELL!!
I need you guys on this one!! I know that I can break them open and sprinkle them in his mouth but what happens if that doesn't work? I can't put them in pudding because pudding isn't crunchy you know! I'm just thinking of the things he will say...

You guys have to have some good idea's and I could not think of any other place to go to get some answers....I know we can do this, its just a matter of finding the right way to go about it and the easiest for Ryan.

FREAKIN OUT,
Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
H

holmfamily1992

New member
It has only been a couple of days since I updated my blog and all was good when we left..We had clinic appointments for the 4 CF'ers and we left with only one concern, so I thought. Dylan ended having an infection in his small airways and is now a treatment of antibiotics. We can deal with that...
<br />
<br />One of the things I was hoping my children with CF would never have to deal with was enzymes and yes, we now have one that is pancreatic insuffient. Ryan who is 6 now must begin enzymes...
<br />
<br />Ok, its not the end of the world I know BUT I am dealing with a little boy who is to busy for anything not to mention grumpy about his meds and stubborn as HELL!!
<br />I need you guys on this one!! I know that I can break them open and sprinkle them in his mouth but what happens if that doesn't work? I can't put them in pudding because pudding isn't crunchy you know! I'm just thinking of the things he will say...
<br />
<br />You guys have to have some good idea's and I could not think of any other place to go to get some answers....I know we can do this, its just a matter of finding the right way to go about it and the easiest for Ryan.
<br />
<br />FREAKIN OUT,
<br />Tina
<br /><img src="http://i284.photobucket.com/albums/ll15/holmfamiy/100_1001.jpg">
 
J

JazzysMom

New member
I am not sure why this upsets you so much, but its easy for me to say since I am a seasoned CFer. Its one of the smaller things we deal with IMHO.

He will learn to swallow them whole quick enough. Its something that is a must sooner then later in the CF world.

In the meantime.....many parents use applesauce. That is allowed to be lumpy LOL!

HUGS
 
J

JazzysMom

New member
I am not sure why this upsets you so much, but its easy for me to say since I am a seasoned CFer. Its one of the smaller things we deal with IMHO.

He will learn to swallow them whole quick enough. Its something that is a must sooner then later in the CF world.

In the meantime.....many parents use applesauce. That is allowed to be lumpy LOL!

HUGS
 
J

JazzysMom

New member
I am not sure why this upsets you so much, but its easy for me to say since I am a seasoned CFer. Its one of the smaller things we deal with IMHO.

He will learn to swallow them whole quick enough. Its something that is a must sooner then later in the CF world.

In the meantime.....many parents use applesauce. That is allowed to be lumpy LOL!

HUGS
 
J

JazzysMom

New member
I am not sure why this upsets you so much, but its easy for me to say since I am a seasoned CFer. Its one of the smaller things we deal with IMHO.

He will learn to swallow them whole quick enough. Its something that is a must sooner then later in the CF world.

In the meantime.....many parents use applesauce. That is allowed to be lumpy LOL!

HUGS
 
J

JazzysMom

New member
I am not sure why this upsets you so much, but its easy for me to say since I am a seasoned CFer. Its one of the smaller things we deal with IMHO.
<br />
<br />He will learn to swallow them whole quick enough. Its something that is a must sooner then later in the CF world.
<br />
<br />In the meantime.....many parents use applesauce. That is allowed to be lumpy LOL!
<br />
<br />HUGS
 
H

hmw

New member
I would consider trying to teach him to swallow pills at this age. You can put the capsule whole in a bite of soft food (if you choose to try with food rather than with liquid) and at his age, brainstorming w/ him on good foods to try this with might help the process go well. Applesauce was the standard food here w/ Emily, but coolwhip and a few others also worked well.

Or if swallowing pills whole won't work, try opening them in a soft food like applesauce rather than something completely smooth like pudding. Not only is it's acidity better suited to helping the enzymes work, but it's texture might work better with masking the enzymes. In any case, make sure he knows he cannot CHEW the beads.

Emily didn't have to start enzymes till she was 7 (late dx) so getting used to taking them every time she ate was a big deal for her in the beginning (ok, she hated it), overwhelming for us as parents too (it felt like all we did was chase her around with a med bottle & applesauce... you never realize how often these kids actually eat until you have to remember to give them pills each and every time.) But, it really did become a way of life very quickly for both HER and US- the parents here who told us this would happen were right, even though at the time it didn't feel like there was any way that this was possible. So I can empathize with what you and Ryan are going through and hope for a smooth transition onto enzymes. Hopefully he'll see a difference in how he is FEELING, too, and that will help... i.e. if he's been having stomachaches, diarrhea and that improves, you can explain how his new medicine is helping him.

And I hope Dylan is feeling better soon too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hmw

New member
I would consider trying to teach him to swallow pills at this age. You can put the capsule whole in a bite of soft food (if you choose to try with food rather than with liquid) and at his age, brainstorming w/ him on good foods to try this with might help the process go well. Applesauce was the standard food here w/ Emily, but coolwhip and a few others also worked well.

Or if swallowing pills whole won't work, try opening them in a soft food like applesauce rather than something completely smooth like pudding. Not only is it's acidity better suited to helping the enzymes work, but it's texture might work better with masking the enzymes. In any case, make sure he knows he cannot CHEW the beads.

Emily didn't have to start enzymes till she was 7 (late dx) so getting used to taking them every time she ate was a big deal for her in the beginning (ok, she hated it), overwhelming for us as parents too (it felt like all we did was chase her around with a med bottle & applesauce... you never realize how often these kids actually eat until you have to remember to give them pills each and every time.) But, it really did become a way of life very quickly for both HER and US- the parents here who told us this would happen were right, even though at the time it didn't feel like there was any way that this was possible. So I can empathize with what you and Ryan are going through and hope for a smooth transition onto enzymes. Hopefully he'll see a difference in how he is FEELING, too, and that will help... i.e. if he's been having stomachaches, diarrhea and that improves, you can explain how his new medicine is helping him.

And I hope Dylan is feeling better soon too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hmw

New member
I would consider trying to teach him to swallow pills at this age. You can put the capsule whole in a bite of soft food (if you choose to try with food rather than with liquid) and at his age, brainstorming w/ him on good foods to try this with might help the process go well. Applesauce was the standard food here w/ Emily, but coolwhip and a few others also worked well.

Or if swallowing pills whole won't work, try opening them in a soft food like applesauce rather than something completely smooth like pudding. Not only is it's acidity better suited to helping the enzymes work, but it's texture might work better with masking the enzymes. In any case, make sure he knows he cannot CHEW the beads.

Emily didn't have to start enzymes till she was 7 (late dx) so getting used to taking them every time she ate was a big deal for her in the beginning (ok, she hated it), overwhelming for us as parents too (it felt like all we did was chase her around with a med bottle & applesauce... you never realize how often these kids actually eat until you have to remember to give them pills each and every time.) But, it really did become a way of life very quickly for both HER and US- the parents here who told us this would happen were right, even though at the time it didn't feel like there was any way that this was possible. So I can empathize with what you and Ryan are going through and hope for a smooth transition onto enzymes. Hopefully he'll see a difference in how he is FEELING, too, and that will help... i.e. if he's been having stomachaches, diarrhea and that improves, you can explain how his new medicine is helping him.

And I hope Dylan is feeling better soon too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hmw

New member
I would consider trying to teach him to swallow pills at this age. You can put the capsule whole in a bite of soft food (if you choose to try with food rather than with liquid) and at his age, brainstorming w/ him on good foods to try this with might help the process go well. Applesauce was the standard food here w/ Emily, but coolwhip and a few others also worked well.

Or if swallowing pills whole won't work, try opening them in a soft food like applesauce rather than something completely smooth like pudding. Not only is it's acidity better suited to helping the enzymes work, but it's texture might work better with masking the enzymes. In any case, make sure he knows he cannot CHEW the beads.

Emily didn't have to start enzymes till she was 7 (late dx) so getting used to taking them every time she ate was a big deal for her in the beginning (ok, she hated it), overwhelming for us as parents too (it felt like all we did was chase her around with a med bottle & applesauce... you never realize how often these kids actually eat until you have to remember to give them pills each and every time.) But, it really did become a way of life very quickly for both HER and US- the parents here who told us this would happen were right, even though at the time it didn't feel like there was any way that this was possible. So I can empathize with what you and Ryan are going through and hope for a smooth transition onto enzymes. Hopefully he'll see a difference in how he is FEELING, too, and that will help... i.e. if he's been having stomachaches, diarrhea and that improves, you can explain how his new medicine is helping him.

And I hope Dylan is feeling better soon too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hmw

New member
I would consider trying to teach him to swallow pills at this age. You can put the capsule whole in a bite of soft food (if you choose to try with food rather than with liquid) and at his age, brainstorming w/ him on good foods to try this with might help the process go well. Applesauce was the standard food here w/ Emily, but coolwhip and a few others also worked well.
<br />
<br />Or if swallowing pills whole won't work, try opening them in a soft food like applesauce rather than something completely smooth like pudding. Not only is it's acidity better suited to helping the enzymes work, but it's texture might work better with masking the enzymes. In any case, make sure he knows he cannot CHEW the beads.
<br />
<br />Emily didn't have to start enzymes till she was 7 (late dx) so getting used to taking them every time she ate was a big deal for her in the beginning (ok, she hated it), overwhelming for us as parents too (it felt like all we did was chase her around with a med bottle & applesauce... you never realize how often these kids actually eat until you have to remember to give them pills each and every time.) But, it really did become a way of life very quickly for both HER and US- the parents here who told us this would happen were right, even though at the time it didn't feel like there was any way that this was possible. So I can empathize with what you and Ryan are going through and hope for a smooth transition onto enzymes. Hopefully he'll see a difference in how he is FEELING, too, and that will help... i.e. if he's been having stomachaches, diarrhea and that improves, you can explain how his new medicine is helping him.
<br />
<br />And I hope Dylan is feeling better soon too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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