I want children

KLeigh · Dec 31, 2008

Hi, my name is Kathryn. I'm a 23 year old living with CF. I am getting married in April and my fiance and i talk about having children.
I feel i was born to be a mother. I want this more than anything. He, just wants me to be healthy.
My current FEV1 is usually 55. My doctor says he would like for me to be atleast 70. But he won't tell me no if I insist on having kids.

Anyone out there have children and feel it's completely the right thing to do? Or not?
~ Kathryn

KLeigh · Dec 31, 2008

Hi, my name is Kathryn. I'm a 23 year old living with CF. I am getting married in April and my fiance and i talk about having children.
I feel i was born to be a mother. I want this more than anything. He, just wants me to be healthy.
My current FEV1 is usually 55. My doctor says he would like for me to be atleast 70. But he won't tell me no if I insist on having kids.

Anyone out there have children and feel it's completely the right thing to do? Or not?
~ Kathryn

KLeigh · Dec 31, 2008

Hi, my name is Kathryn. I'm a 23 year old living with CF. I am getting married in April and my fiance and i talk about having children.
I feel i was born to be a mother. I want this more than anything. He, just wants me to be healthy.
My current FEV1 is usually 55. My doctor says he would like for me to be atleast 70. But he won't tell me no if I insist on having kids.

Anyone out there have children and feel it's completely the right thing to do? Or not?
~ Kathryn

KLeigh · Dec 31, 2008

Hi, my name is Kathryn. I'm a 23 year old living with CF. I am getting married in April and my fiance and i talk about having children.
I feel i was born to be a mother. I want this more than anything. He, just wants me to be healthy.
My current FEV1 is usually 55. My doctor says he would like for me to be atleast 70. But he won't tell me no if I insist on having kids.

Anyone out there have children and feel it's completely the right thing to do? Or not?
~ Kathryn

KLeigh · Dec 31, 2008

Hi, my name is Kathryn. I'm a 23 year old living with CF. I am getting married in April and my fiance and i talk about having children.
 I feel i was born to be a mother. I want this more than anything. He, just wants me to be healthy.
 My current FEV1 is usually 55. My doctor says he would like for me to be atleast 70. But he won't tell me no if I insist on having kids.
 
 Anyone out there have children and feel it's completely the right thing to do? Or not?
 ~ Kathryn

BrittaniJo2190 · Dec 31, 2008

it all depends on if you feel healthy enough.. and how often you get sick.. like how often do you have to get iv antibiotics

if you feel like you can handle it i'd say go for it

BrittaniJo2190 · Dec 31, 2008

it all depends on if you feel healthy enough.. and how often you get sick.. like how often do you have to get iv antibiotics

if you feel like you can handle it i'd say go for it

BrittaniJo2190 · Dec 31, 2008

it all depends on if you feel healthy enough.. and how often you get sick.. like how often do you have to get iv antibiotics

if you feel like you can handle it i'd say go for it

BrittaniJo2190 · Dec 31, 2008

it all depends on if you feel healthy enough.. and how often you get sick.. like how often do you have to get iv antibiotics

if you feel like you can handle it i'd say go for it

BrittaniJo2190 · Dec 31, 2008

it all depends on if you feel healthy enough.. and how often you get sick.. like how often do you have to get iv antibiotics
 
 if you feel like you can handle it i'd say go for it

rubyroselee · Dec 31, 2008

Hi Kathryn,

I had always thought that I would never be able to have biological children. It wasn't until I found this web site that I realized that there are plenty of CF women having children and that it is a possibility. But only you, your fiance, and your doctor can decide if it's a good time for you to carry a pregnancy. It depends on how stable your health is and many other factors. It sounds like your doctor is supportive of your decisions and that's great to have. My doctors were the same and told me the risks and that it's not ideal for a CF woman to carry children but that many people do it with no adverse consequences.

For me, my FEV1 was around 85-95% prior to getting pregnant and I was considered a normal weight. The pregnancy went wonderfully and I was monitored very closely by a high-risk OB. I was very fortunate to not have developed gestational diabetes (because it happens to about 50% of CF women who do not have CFRD already). I did have an exacerbation about 4 months into the pregnancy, but that was fixed with some colistin. Luckily I did not require any IV antibiotics. I would have been a little afraid for the baby if I had to do IV's while pregnant, although I've heard that many are safe for pregnancy. I took all my regular meds which included inhaled Tobi, Pulmozyme, enzymes, and vitamins. I had an incredibly fast labor of just a few hours and pushed for 30 mins. It was such a great experience!

Following the birth, the baby was colicky, ate irratically, and slept horrible. Breast feeding was a nightmare and I had to give that up within the first week. I was terribly sleep deprived and exhausted. My FEV1 at 3 weeks postpartum was down to 65% and my weight had dropped 20 lbs from my pre-pregnancy weight. My doctors weren't sure if I would regain my lung function since some women don't after pregnancy. Luckily with the baby sleeping and eating better over the months, I gradually got more sleep and started eating better. My PFT's and weight are now back to baseline.

I'm still a bit tired now since the baby is still getting up once a night to eat, but overall life is calm now and he's 5 months old. I'm thrilled I got to experience it but it scared me to think I may have gotten sicker from having a baby. But the experience is something I will never forget.

I hope you will be able to find the route that works best for you. Good luck and keep us updated.

rubyroselee · Dec 31, 2008

Hi Kathryn,

I had always thought that I would never be able to have biological children. It wasn't until I found this web site that I realized that there are plenty of CF women having children and that it is a possibility. But only you, your fiance, and your doctor can decide if it's a good time for you to carry a pregnancy. It depends on how stable your health is and many other factors. It sounds like your doctor is supportive of your decisions and that's great to have. My doctors were the same and told me the risks and that it's not ideal for a CF woman to carry children but that many people do it with no adverse consequences.

For me, my FEV1 was around 85-95% prior to getting pregnant and I was considered a normal weight. The pregnancy went wonderfully and I was monitored very closely by a high-risk OB. I was very fortunate to not have developed gestational diabetes (because it happens to about 50% of CF women who do not have CFRD already). I did have an exacerbation about 4 months into the pregnancy, but that was fixed with some colistin. Luckily I did not require any IV antibiotics. I would have been a little afraid for the baby if I had to do IV's while pregnant, although I've heard that many are safe for pregnancy. I took all my regular meds which included inhaled Tobi, Pulmozyme, enzymes, and vitamins. I had an incredibly fast labor of just a few hours and pushed for 30 mins. It was such a great experience!

Following the birth, the baby was colicky, ate irratically, and slept horrible. Breast feeding was a nightmare and I had to give that up within the first week. I was terribly sleep deprived and exhausted. My FEV1 at 3 weeks postpartum was down to 65% and my weight had dropped 20 lbs from my pre-pregnancy weight. My doctors weren't sure if I would regain my lung function since some women don't after pregnancy. Luckily with the baby sleeping and eating better over the months, I gradually got more sleep and started eating better. My PFT's and weight are now back to baseline.

I'm still a bit tired now since the baby is still getting up once a night to eat, but overall life is calm now and he's 5 months old. I'm thrilled I got to experience it but it scared me to think I may have gotten sicker from having a baby. But the experience is something I will never forget.

I hope you will be able to find the route that works best for you. Good luck and keep us updated.

rubyroselee · Dec 31, 2008

Hi Kathryn,

I had always thought that I would never be able to have biological children. It wasn't until I found this web site that I realized that there are plenty of CF women having children and that it is a possibility. But only you, your fiance, and your doctor can decide if it's a good time for you to carry a pregnancy. It depends on how stable your health is and many other factors. It sounds like your doctor is supportive of your decisions and that's great to have. My doctors were the same and told me the risks and that it's not ideal for a CF woman to carry children but that many people do it with no adverse consequences.

For me, my FEV1 was around 85-95% prior to getting pregnant and I was considered a normal weight. The pregnancy went wonderfully and I was monitored very closely by a high-risk OB. I was very fortunate to not have developed gestational diabetes (because it happens to about 50% of CF women who do not have CFRD already). I did have an exacerbation about 4 months into the pregnancy, but that was fixed with some colistin. Luckily I did not require any IV antibiotics. I would have been a little afraid for the baby if I had to do IV's while pregnant, although I've heard that many are safe for pregnancy. I took all my regular meds which included inhaled Tobi, Pulmozyme, enzymes, and vitamins. I had an incredibly fast labor of just a few hours and pushed for 30 mins. It was such a great experience!

Following the birth, the baby was colicky, ate irratically, and slept horrible. Breast feeding was a nightmare and I had to give that up within the first week. I was terribly sleep deprived and exhausted. My FEV1 at 3 weeks postpartum was down to 65% and my weight had dropped 20 lbs from my pre-pregnancy weight. My doctors weren't sure if I would regain my lung function since some women don't after pregnancy. Luckily with the baby sleeping and eating better over the months, I gradually got more sleep and started eating better. My PFT's and weight are now back to baseline.

I'm still a bit tired now since the baby is still getting up once a night to eat, but overall life is calm now and he's 5 months old. I'm thrilled I got to experience it but it scared me to think I may have gotten sicker from having a baby. But the experience is something I will never forget.

I hope you will be able to find the route that works best for you. Good luck and keep us updated.

rubyroselee · Dec 31, 2008

Hi Kathryn,

I had always thought that I would never be able to have biological children. It wasn't until I found this web site that I realized that there are plenty of CF women having children and that it is a possibility. But only you, your fiance, and your doctor can decide if it's a good time for you to carry a pregnancy. It depends on how stable your health is and many other factors. It sounds like your doctor is supportive of your decisions and that's great to have. My doctors were the same and told me the risks and that it's not ideal for a CF woman to carry children but that many people do it with no adverse consequences.

For me, my FEV1 was around 85-95% prior to getting pregnant and I was considered a normal weight. The pregnancy went wonderfully and I was monitored very closely by a high-risk OB. I was very fortunate to not have developed gestational diabetes (because it happens to about 50% of CF women who do not have CFRD already). I did have an exacerbation about 4 months into the pregnancy, but that was fixed with some colistin. Luckily I did not require any IV antibiotics. I would have been a little afraid for the baby if I had to do IV's while pregnant, although I've heard that many are safe for pregnancy. I took all my regular meds which included inhaled Tobi, Pulmozyme, enzymes, and vitamins. I had an incredibly fast labor of just a few hours and pushed for 30 mins. It was such a great experience!

Following the birth, the baby was colicky, ate irratically, and slept horrible. Breast feeding was a nightmare and I had to give that up within the first week. I was terribly sleep deprived and exhausted. My FEV1 at 3 weeks postpartum was down to 65% and my weight had dropped 20 lbs from my pre-pregnancy weight. My doctors weren't sure if I would regain my lung function since some women don't after pregnancy. Luckily with the baby sleeping and eating better over the months, I gradually got more sleep and started eating better. My PFT's and weight are now back to baseline.

I'm still a bit tired now since the baby is still getting up once a night to eat, but overall life is calm now and he's 5 months old. I'm thrilled I got to experience it but it scared me to think I may have gotten sicker from having a baby. But the experience is something I will never forget.

I hope you will be able to find the route that works best for you. Good luck and keep us updated.

rubyroselee · Dec 31, 2008

Hi Kathryn,
 
 I had always thought that I would never be able to have biological children. It wasn't until I found this web site that I realized that there are plenty of CF women having children and that it is a possibility. But only you, your fiance, and your doctor can decide if it's a good time for you to carry a pregnancy. It depends on how stable your health is and many other factors. It sounds like your doctor is supportive of your decisions and that's great to have. My doctors were the same and told me the risks and that it's not ideal for a CF woman to carry children but that many people do it with no adverse consequences.
 
 For me, my FEV1 was around 85-95% prior to getting pregnant and I was considered a normal weight. The pregnancy went wonderfully and I was monitored very closely by a high-risk OB. I was very fortunate to not have developed gestational diabetes (because it happens to about 50% of CF women who do not have CFRD already). I did have an exacerbation about 4 months into the pregnancy, but that was fixed with some colistin. Luckily I did not require any IV antibiotics. I would have been a little afraid for the baby if I had to do IV's while pregnant, although I've heard that many are safe for pregnancy. I took all my regular meds which included inhaled Tobi, Pulmozyme, enzymes, and vitamins. I had an incredibly fast labor of just a few hours and pushed for 30 mins. It was such a great experience!
 
 Following the birth, the baby was colicky, ate irratically, and slept horrible. Breast feeding was a nightmare and I had to give that up within the first week. I was terribly sleep deprived and exhausted. My FEV1 at 3 weeks postpartum was down to 65% and my weight had dropped 20 lbs from my pre-pregnancy weight. My doctors weren't sure if I would regain my lung function since some women don't after pregnancy. Luckily with the baby sleeping and eating better over the months, I gradually got more sleep and started eating better. My PFT's and weight are now back to baseline.
 
 I'm still a bit tired now since the baby is still getting up once a night to eat, but overall life is calm now and he's 5 months old. I'm thrilled I got to experience it but it scared me to think I may have gotten sicker from having a baby. But the experience is something I will never forget.
 
 I hope you will be able to find the route that works best for you. Good luck and keep us updated.

KLeigh · Dec 31, 2008

Thank you both for your replies.
I am most afraid that my PFT's will drop lower. It was weird because about 2 years ago I was based at 75 and now I have dropped significantly to 50-55.
I go to the hospital about twice a year and my PFT's come back to the 70's. I believe i could last 9 months without IV antibodics and i feel strong enough to have kids now...
Leah- It's great to hear you kept your same meds. My doctor said he might be concerened about the TOBI.

Congrats on your baby. Your boys look happy in your picture!
Thanks again!

KLeigh · Dec 31, 2008

Thank you both for your replies.
I am most afraid that my PFT's will drop lower. It was weird because about 2 years ago I was based at 75 and now I have dropped significantly to 50-55.
I go to the hospital about twice a year and my PFT's come back to the 70's. I believe i could last 9 months without IV antibodics and i feel strong enough to have kids now...
Leah- It's great to hear you kept your same meds. My doctor said he might be concerened about the TOBI.

Congrats on your baby. Your boys look happy in your picture!
Thanks again!

KLeigh · Dec 31, 2008

Thank you both for your replies.
I am most afraid that my PFT's will drop lower. It was weird because about 2 years ago I was based at 75 and now I have dropped significantly to 50-55.
I go to the hospital about twice a year and my PFT's come back to the 70's. I believe i could last 9 months without IV antibodics and i feel strong enough to have kids now...
Leah- It's great to hear you kept your same meds. My doctor said he might be concerened about the TOBI.

Congrats on your baby. Your boys look happy in your picture!
Thanks again!

KLeigh · Dec 31, 2008

Thank you both for your replies.
I am most afraid that my PFT's will drop lower. It was weird because about 2 years ago I was based at 75 and now I have dropped significantly to 50-55.
I go to the hospital about twice a year and my PFT's come back to the 70's. I believe i could last 9 months without IV antibodics and i feel strong enough to have kids now...
Leah- It's great to hear you kept your same meds. My doctor said he might be concerened about the TOBI.

Congrats on your baby. Your boys look happy in your picture!
Thanks again!

KLeigh · Dec 31, 2008

Thank you both for your replies.
 I am most afraid that my PFT's will drop lower. It was weird because about 2 years ago I was based at 75 and now I have dropped significantly to 50-55.
 I go to the hospital about twice a year and my PFT's come back to the 70's. I believe i could last 9 months without IV antibodics and i feel strong enough to have kids now...
 Leah- It's great to hear you kept your same meds. My doctor said he might be concerened about the TOBI.
 
 Congrats on your baby. Your boys look happy in your picture!
 Thanks again!

I want children

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