I want to thank you all.

S

shealeighsmom

New member
The sweat test. It was her third test. The first was a t a local centre and the second two were at Sick Kids in toronto, where the CF gene was discovered. They did a third test when a GI biopsy came back with some unexpected results.

We still have to figure out what it is.

Thanks for being so kind. I have been involved with the CF foundation since I was a kid. I volunteered at fundraisers with my Mom. A family friend has a daughter with it. I know how many advancements have been made in the last 20 years. What I really think is great is that CF seems to have a chance to be cured, if things keep advancing at these rates a cure should be just around the corner.

I will come back here when we know what it is going on with Shea. Today I just feel like I might unintentionally be insensitive. I really wanted an answer.
 
S

shealeighsmom

New member
The sweat test. It was her third test. The first was a t a local centre and the second two were at Sick Kids in toronto, where the CF gene was discovered. They did a third test when a GI biopsy came back with some unexpected results.

We still have to figure out what it is.

Thanks for being so kind. I have been involved with the CF foundation since I was a kid. I volunteered at fundraisers with my Mom. A family friend has a daughter with it. I know how many advancements have been made in the last 20 years. What I really think is great is that CF seems to have a chance to be cured, if things keep advancing at these rates a cure should be just around the corner.

I will come back here when we know what it is going on with Shea. Today I just feel like I might unintentionally be insensitive. I really wanted an answer.
 
S

shealeighsmom

New member
The sweat test. It was her third test. The first was a t a local centre and the second two were at Sick Kids in toronto, where the CF gene was discovered. They did a third test when a GI biopsy came back with some unexpected results.

We still have to figure out what it is.

Thanks for being so kind. I have been involved with the CF foundation since I was a kid. I volunteered at fundraisers with my Mom. A family friend has a daughter with it. I know how many advancements have been made in the last 20 years. What I really think is great is that CF seems to have a chance to be cured, if things keep advancing at these rates a cure should be just around the corner.

I will come back here when we know what it is going on with Shea. Today I just feel like I might unintentionally be insensitive. I really wanted an answer.
 
S

shealeighsmom

New member
The sweat test. It was her third test. The first was a t a local centre and the second two were at Sick Kids in toronto, where the CF gene was discovered. They did a third test when a GI biopsy came back with some unexpected results.

We still have to figure out what it is.

Thanks for being so kind. I have been involved with the CF foundation since I was a kid. I volunteered at fundraisers with my Mom. A family friend has a daughter with it. I know how many advancements have been made in the last 20 years. What I really think is great is that CF seems to have a chance to be cured, if things keep advancing at these rates a cure should be just around the corner.

I will come back here when we know what it is going on with Shea. Today I just feel like I might unintentionally be insensitive. I really wanted an answer.
 
S

shealeighsmom

New member
The sweat test. It was her third test. The first was a t a local centre and the second two were at Sick Kids in toronto, where the CF gene was discovered. They did a third test when a GI biopsy came back with some unexpected results.
<br />
<br />We still have to figure out what it is.
<br />
<br />Thanks for being so kind. I have been involved with the CF foundation since I was a kid. I volunteered at fundraisers with my Mom. A family friend has a daughter with it. I know how many advancements have been made in the last 20 years. What I really think is great is that CF seems to have a chance to be cured, if things keep advancing at these rates a cure should be just around the corner.
<br />
<br />I will come back here when we know what it is going on with Shea. Today I just feel like I might unintentionally be insensitive. I really wanted an answer.
<br />
<br />
<br />
<br />
 
R

Ratatosk

Administrator
Staff member
You're not being insensitive, I just worry that because of her symptoms -- malabsorption, digestive issues, etc. that they are dropping the ball by not doing genetic blood testing. My son had a normal sweat test, a normal 32 and I believe several people on this site had much much lower numbers.
 
R

Ratatosk

Administrator
Staff member
You're not being insensitive, I just worry that because of her symptoms -- malabsorption, digestive issues, etc. that they are dropping the ball by not doing genetic blood testing. My son had a normal sweat test, a normal 32 and I believe several people on this site had much much lower numbers.
 
R

Ratatosk

Administrator
Staff member
You're not being insensitive, I just worry that because of her symptoms -- malabsorption, digestive issues, etc. that they are dropping the ball by not doing genetic blood testing. My son had a normal sweat test, a normal 32 and I believe several people on this site had much much lower numbers.
 
R

Ratatosk

Administrator
Staff member
You're not being insensitive, I just worry that because of her symptoms -- malabsorption, digestive issues, etc. that they are dropping the ball by not doing genetic blood testing. My son had a normal sweat test, a normal 32 and I believe several people on this site had much much lower numbers.
 
R

Ratatosk

Administrator
Staff member
You're not being insensitive, I just worry that because of her symptoms -- malabsorption, digestive issues, etc. that they are dropping the ball by not doing genetic blood testing. My son had a normal sweat test, a normal 32 and I believe several people on this site had much much lower numbers.
 
S

shealeighsmom

New member
I asked them when they called today about that issue, lots of CF patients not having positive sweat results. Shea had one 78 and 2 results in the 20's.

They said they are an accredited centre and it is unlikely they make mistakes. The 78 was at a local hospital and not at Sick Kids.

I am going to ask about the genetic screen at our appt on tuesday.
 
S

shealeighsmom

New member
I asked them when they called today about that issue, lots of CF patients not having positive sweat results. Shea had one 78 and 2 results in the 20's.

They said they are an accredited centre and it is unlikely they make mistakes. The 78 was at a local hospital and not at Sick Kids.

I am going to ask about the genetic screen at our appt on tuesday.
 
S

shealeighsmom

New member
I asked them when they called today about that issue, lots of CF patients not having positive sweat results. Shea had one 78 and 2 results in the 20's.

They said they are an accredited centre and it is unlikely they make mistakes. The 78 was at a local hospital and not at Sick Kids.

I am going to ask about the genetic screen at our appt on tuesday.
 
S

shealeighsmom

New member
I asked them when they called today about that issue, lots of CF patients not having positive sweat results. Shea had one 78 and 2 results in the 20's.

They said they are an accredited centre and it is unlikely they make mistakes. The 78 was at a local hospital and not at Sick Kids.

I am going to ask about the genetic screen at our appt on tuesday.
 
S

shealeighsmom

New member
I asked them when they called today about that issue, lots of CF patients not having positive sweat results. Shea had one 78 and 2 results in the 20's.
<br />
<br />They said they are an accredited centre and it is unlikely they make mistakes. The 78 was at a local hospital and not at Sick Kids.
<br />
<br />I am going to ask about the genetic screen at our appt on tuesday.
<br />
<br />
<br />
<br />
 
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