I would like to show you how I am overcoming my disease!

[EnergyGal]

Hi Evan

I feel it took a lot of courage to choose a title using the word Cure. I personally do not believe in "Cures" for any disease. Better treatments, of course. I think the word cure is a bunch of hype.

AFter reading your article that had the word Cure in it, I was confused at first, however, I understood why you chose it just like you recently stated in this thread it came from your heart and you clearly stated this in your artilce.

I personally think that trying alternative therapies are beneficial. It is too bad that you found the wrong ones. Exercise has always been known to improve overall health along with proper food intake.

I like your writing style and feel you will help a lot of younger people with CF. When trying anything new, I always like to keep up with my daily routines if they were working for me. I like to try one new thing at a time. A healthy lifestyle incorporates many facets such as exercise, supplementing, meditating, praying and whatever makes you happy.

I am not sure if I remember if you stated exactly what remedies you tried that did not work, If you did not, I think it would be a good idea. That too would also be searchable.

There are many alterative therapies for CF and for the general population and if you have researched this website, you will find that many have had great success with them.

I hope you continue to write and send your message to many. Keep up the great work. I hope you take my advice as something positive
all the best
Risa

 

[EnergyGal]

Hi Evan

I feel it took a lot of courage to choose a title using the word Cure. I personally do not believe in "Cures" for any disease. Better treatments, of course. I think the word cure is a bunch of hype.

AFter reading your article that had the word Cure in it, I was confused at first, however, I understood why you chose it just like you recently stated in this thread it came from your heart and you clearly stated this in your artilce.

I personally think that trying alternative therapies are beneficial. It is too bad that you found the wrong ones. Exercise has always been known to improve overall health along with proper food intake.

I like your writing style and feel you will help a lot of younger people with CF. When trying anything new, I always like to keep up with my daily routines if they were working for me. I like to try one new thing at a time. A healthy lifestyle incorporates many facets such as exercise, supplementing, meditating, praying and whatever makes you happy.

I am not sure if I remember if you stated exactly what remedies you tried that did not work, If you did not, I think it would be a good idea. That too would also be searchable.

There are many alterative therapies for CF and for the general population and if you have researched this website, you will find that many have had great success with them.

I hope you continue to write and send your message to many. Keep up the great work. I hope you take my advice as something positive
all the best
Risa

 

[EnergyGal]

Hi Evan

I feel it took a lot of courage to choose a title using the word Cure. I personally do not believe in "Cures" for any disease. Better treatments, of course. I think the word cure is a bunch of hype.

AFter reading your article that had the word Cure in it, I was confused at first, however, I understood why you chose it just like you recently stated in this thread it came from your heart and you clearly stated this in your artilce.

I personally think that trying alternative therapies are beneficial. It is too bad that you found the wrong ones. Exercise has always been known to improve overall health along with proper food intake.

I like your writing style and feel you will help a lot of younger people with CF. When trying anything new, I always like to keep up with my daily routines if they were working for me. I like to try one new thing at a time. A healthy lifestyle incorporates many facets such as exercise, supplementing, meditating, praying and whatever makes you happy.

I am not sure if I remember if you stated exactly what remedies you tried that did not work, If you did not, I think it would be a good idea. That too would also be searchable.

There are many alterative therapies for CF and for the general population and if you have researched this website, you will find that many have had great success with them.

I hope you continue to write and send your message to many. Keep up the great work. I hope you take my advice as something positive
all the best
Risa

 

[EnergyGal]

Hi Evan

I feel it took a lot of courage to choose a title using the word Cure. I personally do not believe in "Cures" for any disease. Better treatments, of course. I think the word cure is a bunch of hype.

AFter reading your article that had the word Cure in it, I was confused at first, however, I understood why you chose it just like you recently stated in this thread it came from your heart and you clearly stated this in your artilce.

I personally think that trying alternative therapies are beneficial. It is too bad that you found the wrong ones. Exercise has always been known to improve overall health along with proper food intake.

I like your writing style and feel you will help a lot of younger people with CF. When trying anything new, I always like to keep up with my daily routines if they were working for me. I like to try one new thing at a time. A healthy lifestyle incorporates many facets such as exercise, supplementing, meditating, praying and whatever makes you happy.

I am not sure if I remember if you stated exactly what remedies you tried that did not work, If you did not, I think it would be a good idea. That too would also be searchable.

There are many alterative therapies for CF and for the general population and if you have researched this website, you will find that many have had great success with them.

I hope you continue to write and send your message to many. Keep up the great work. I hope you take my advice as something positive
all the best
Risa

 

[EnergyGal]

Hi Evan

I feel it took a lot of courage to choose a title using the word Cure. I personally do not believe in "Cures" for any disease. Better treatments, of course. I think the word cure is a bunch of hype.

AFter reading your article that had the word Cure in it, I was confused at first, however, I understood why you chose it just like you recently stated in this thread it came from your heart and you clearly stated this in your artilce.

I personally think that trying alternative therapies are beneficial. It is too bad that you found the wrong ones. Exercise has always been known to improve overall health along with proper food intake.

I like your writing style and feel you will help a lot of younger people with CF. When trying anything new, I always like to keep up with my daily routines if they were working for me. I like to try one new thing at a time. A healthy lifestyle incorporates many facets such as exercise, supplementing, meditating, praying and whatever makes you happy.

I am not sure if I remember if you stated exactly what remedies you tried that did not work, If you did not, I think it would be a good idea. That too would also be searchable.

There are many alterative therapies for CF and for the general population and if you have researched this website, you will find that many have had great success with them.

I hope you continue to write and send your message to many. Keep up the great work. I hope you take my advice as something positive
all the best
Risa

 

[LeneSouthAfrica]

I read all the articles on the mentioned website. I found it thought provoking and refreshing. I don't find the title of the one article 'natural cure' offensive, as it explains why the author did all those experiments: he was trying to find the natural cure, not a remedy or just to manage his cf, he wanted the CURE and was willing to experiment on himself to try and find it.

And he explains clearly that after trying various natural therapies he could not find a natural miracle cure yet, and describes all the things he has tried which proved to be harmful...which is helpful info to someone who might be thinking about trying these things.

He also explains what he feels has improved his health, like his positive 'no-victim' attitude and his disciplined approach to exercise. He does not say to ignore you have CF or pretend it isn't serious or to ditch your meds, instead he says to face it - positive outlook is important but so is putting in the real work. He says there is no quick fix. He also describes the conventional meds he found beneficial like hypertonic saline, pulmozyme, enzymes and bronchodilators and which ones he prefers to not use unless absolutely necessary. I did not find where he said to self-medicate or use remedies, but I did read several times to not change your meds unless discussed with your doctor.

Also, the guy using Chi-Gong to manage CF wasn't the author Evan, it was a quoted article by a guy in his 50's who claims to now be symptom-free due to Chi-Gong: the point was that this success-story sparked Evan's interest in Chi-Gong and now he is trying it as one of the things in his further search to find a cure for CF. We all have CF in common, but there are many different approaches and hopefully, one day, someone may really stumble on a cure. I myself found his contribution enriching.
(The only article I had a problem with was the non-CF one about depression, I feel the author should have included actual references to the studies which he refers to and stress that these ideas may not work for everyone)

 

[LeneSouthAfrica]

I read all the articles on the mentioned website. I found it thought provoking and refreshing. I don't find the title of the one article 'natural cure' offensive, as it explains why the author did all those experiments: he was trying to find the natural cure, not a remedy or just to manage his cf, he wanted the CURE and was willing to experiment on himself to try and find it.

And he explains clearly that after trying various natural therapies he could not find a natural miracle cure yet, and describes all the things he has tried which proved to be harmful...which is helpful info to someone who might be thinking about trying these things.

He also explains what he feels has improved his health, like his positive 'no-victim' attitude and his disciplined approach to exercise. He does not say to ignore you have CF or pretend it isn't serious or to ditch your meds, instead he says to face it - positive outlook is important but so is putting in the real work. He says there is no quick fix. He also describes the conventional meds he found beneficial like hypertonic saline, pulmozyme, enzymes and bronchodilators and which ones he prefers to not use unless absolutely necessary. I did not find where he said to self-medicate or use remedies, but I did read several times to not change your meds unless discussed with your doctor.

Also, the guy using Chi-Gong to manage CF wasn't the author Evan, it was a quoted article by a guy in his 50's who claims to now be symptom-free due to Chi-Gong: the point was that this success-story sparked Evan's interest in Chi-Gong and now he is trying it as one of the things in his further search to find a cure for CF. We all have CF in common, but there are many different approaches and hopefully, one day, someone may really stumble on a cure. I myself found his contribution enriching.
(The only article I had a problem with was the non-CF one about depression, I feel the author should have included actual references to the studies which he refers to and stress that these ideas may not work for everyone)

 

[LeneSouthAfrica]

I read all the articles on the mentioned website. I found it thought provoking and refreshing. I don't find the title of the one article 'natural cure' offensive, as it explains why the author did all those experiments: he was trying to find the natural cure, not a remedy or just to manage his cf, he wanted the CURE and was willing to experiment on himself to try and find it.

And he explains clearly that after trying various natural therapies he could not find a natural miracle cure yet, and describes all the things he has tried which proved to be harmful...which is helpful info to someone who might be thinking about trying these things.

He also explains what he feels has improved his health, like his positive 'no-victim' attitude and his disciplined approach to exercise. He does not say to ignore you have CF or pretend it isn't serious or to ditch your meds, instead he says to face it - positive outlook is important but so is putting in the real work. He says there is no quick fix. He also describes the conventional meds he found beneficial like hypertonic saline, pulmozyme, enzymes and bronchodilators and which ones he prefers to not use unless absolutely necessary. I did not find where he said to self-medicate or use remedies, but I did read several times to not change your meds unless discussed with your doctor.

Also, the guy using Chi-Gong to manage CF wasn't the author Evan, it was a quoted article by a guy in his 50's who claims to now be symptom-free due to Chi-Gong: the point was that this success-story sparked Evan's interest in Chi-Gong and now he is trying it as one of the things in his further search to find a cure for CF. We all have CF in common, but there are many different approaches and hopefully, one day, someone may really stumble on a cure. I myself found his contribution enriching.
(The only article I had a problem with was the non-CF one about depression, I feel the author should have included actual references to the studies which he refers to and stress that these ideas may not work for everyone)

 

[LeneSouthAfrica]

I read all the articles on the mentioned website. I found it thought provoking and refreshing. I don't find the title of the one article 'natural cure' offensive, as it explains why the author did all those experiments: he was trying to find the natural cure, not a remedy or just to manage his cf, he wanted the CURE and was willing to experiment on himself to try and find it.

And he explains clearly that after trying various natural therapies he could not find a natural miracle cure yet, and describes all the things he has tried which proved to be harmful...which is helpful info to someone who might be thinking about trying these things.

He also explains what he feels has improved his health, like his positive 'no-victim' attitude and his disciplined approach to exercise. He does not say to ignore you have CF or pretend it isn't serious or to ditch your meds, instead he says to face it - positive outlook is important but so is putting in the real work. He says there is no quick fix. He also describes the conventional meds he found beneficial like hypertonic saline, pulmozyme, enzymes and bronchodilators and which ones he prefers to not use unless absolutely necessary. I did not find where he said to self-medicate or use remedies, but I did read several times to not change your meds unless discussed with your doctor.

Also, the guy using Chi-Gong to manage CF wasn't the author Evan, it was a quoted article by a guy in his 50's who claims to now be symptom-free due to Chi-Gong: the point was that this success-story sparked Evan's interest in Chi-Gong and now he is trying it as one of the things in his further search to find a cure for CF. We all have CF in common, but there are many different approaches and hopefully, one day, someone may really stumble on a cure. I myself found his contribution enriching.
(The only article I had a problem with was the non-CF one about depression, I feel the author should have included actual references to the studies which he refers to and stress that these ideas may not work for everyone)

 

[LeneSouthAfrica]

I read all the articles on the mentioned website. I found it thought provoking and refreshing. I don't find the title of the one article 'natural cure' offensive, as it explains why the author did all those experiments: he was trying to find the natural cure, not a remedy or just to manage his cf, he wanted the CURE and was willing to experiment on himself to try and find it.

And he explains clearly that after trying various natural therapies he could not find a natural miracle cure yet, and describes all the things he has tried which proved to be harmful...which is helpful info to someone who might be thinking about trying these things.

He also explains what he feels has improved his health, like his positive 'no-victim' attitude and his disciplined approach to exercise. He does not say to ignore you have CF or pretend it isn't serious or to ditch your meds, instead he says to face it - positive outlook is important but so is putting in the real work. He says there is no quick fix. He also describes the conventional meds he found beneficial like hypertonic saline, pulmozyme, enzymes and bronchodilators and which ones he prefers to not use unless absolutely necessary. I did not find where he said to self-medicate or use remedies, but I did read several times to not change your meds unless discussed with your doctor.

Also, the guy using Chi-Gong to manage CF wasn't the author Evan, it was a quoted article by a guy in his 50's who claims to now be symptom-free due to Chi-Gong: the point was that this success-story sparked Evan's interest in Chi-Gong and now he is trying it as one of the things in his further search to find a cure for CF. We all have CF in common, but there are many different approaches and hopefully, one day, someone may really stumble on a cure. I myself found his contribution enriching.
(The only article I had a problem with was the non-CF one about depression, I feel the author should have included actual references to the studies which he refers to and stress that these ideas may not work for everyone)

 

[kmaried]

Hi Evan,

You've certainly provided an interesting discussion. I looked at your website and skimmed most of the articles. I'll look further later.

I think the whole idea of 'a warrior's guide' is a necessary one. We're all warriors and if we weren't; we wouldn't be here, because living with CF isn't a walk in the park. At the same time, the people that aren't here with us, were no less warriors than us. I think that is where the problem sets in.

A few years ago I began doing pilates and yoga regularly, and I think it helped me tremendously. Until (through no fault of my own) I got too sick to continue for a while. At that time, it was a big ugly downward spiral... without being able to work out and eat properly, I became less able to work out and eat properly. (I managed to get better and am just getting back to it now tho!). If I had read your articles during that time, I probably would have been rolling my eyes and wanting to tell you where to put your advice <img src="i/expressions/face-icon-small-wink.gif" border="0"> Only because I felt out of control, and sometimes even the most warrior-like attitude can't fix that.

I do like the sections where you've shared your experiences with your CF treatment 'experiments.' If you've ever read that paper by Dr. Warwick he advocates experimenting with certain aspects of your treatment and not taking anything at face value. Within certain safety constraints, this is the way we learn. I do caution though; if you 'feel' no difference between taking certain treatments every day versus every other day, doesn't necessarily mean there aren't benefits that aren't tangible to you... and sometimes even microscopic daily improvements in our mucous clearance matter, and add up in the long run.

Thanks again -- And I'm totally belly-breathing at my desk right now... Of course, unfortunately, I do think I am one of those people too vain to give up my pilates toned abs <img src="i/expressions/face-icon-small-wink.gif" border="0">

Kris

 

[kmaried]

Hi Evan,

You've certainly provided an interesting discussion. I looked at your website and skimmed most of the articles. I'll look further later.

I think the whole idea of 'a warrior's guide' is a necessary one. We're all warriors and if we weren't; we wouldn't be here, because living with CF isn't a walk in the park. At the same time, the people that aren't here with us, were no less warriors than us. I think that is where the problem sets in.

A few years ago I began doing pilates and yoga regularly, and I think it helped me tremendously. Until (through no fault of my own) I got too sick to continue for a while. At that time, it was a big ugly downward spiral... without being able to work out and eat properly, I became less able to work out and eat properly. (I managed to get better and am just getting back to it now tho!). If I had read your articles during that time, I probably would have been rolling my eyes and wanting to tell you where to put your advice <img src="i/expressions/face-icon-small-wink.gif" border="0"> Only because I felt out of control, and sometimes even the most warrior-like attitude can't fix that.

I do like the sections where you've shared your experiences with your CF treatment 'experiments.' If you've ever read that paper by Dr. Warwick he advocates experimenting with certain aspects of your treatment and not taking anything at face value. Within certain safety constraints, this is the way we learn. I do caution though; if you 'feel' no difference between taking certain treatments every day versus every other day, doesn't necessarily mean there aren't benefits that aren't tangible to you... and sometimes even microscopic daily improvements in our mucous clearance matter, and add up in the long run.

Thanks again -- And I'm totally belly-breathing at my desk right now... Of course, unfortunately, I do think I am one of those people too vain to give up my pilates toned abs <img src="i/expressions/face-icon-small-wink.gif" border="0">

Kris

 

[kmaried]

Hi Evan,

You've certainly provided an interesting discussion. I looked at your website and skimmed most of the articles. I'll look further later.

I think the whole idea of 'a warrior's guide' is a necessary one. We're all warriors and if we weren't; we wouldn't be here, because living with CF isn't a walk in the park. At the same time, the people that aren't here with us, were no less warriors than us. I think that is where the problem sets in.

A few years ago I began doing pilates and yoga regularly, and I think it helped me tremendously. Until (through no fault of my own) I got too sick to continue for a while. At that time, it was a big ugly downward spiral... without being able to work out and eat properly, I became less able to work out and eat properly. (I managed to get better and am just getting back to it now tho!). If I had read your articles during that time, I probably would have been rolling my eyes and wanting to tell you where to put your advice <img src="i/expressions/face-icon-small-wink.gif" border="0"> Only because I felt out of control, and sometimes even the most warrior-like attitude can't fix that.

I do like the sections where you've shared your experiences with your CF treatment 'experiments.' If you've ever read that paper by Dr. Warwick he advocates experimenting with certain aspects of your treatment and not taking anything at face value. Within certain safety constraints, this is the way we learn. I do caution though; if you 'feel' no difference between taking certain treatments every day versus every other day, doesn't necessarily mean there aren't benefits that aren't tangible to you... and sometimes even microscopic daily improvements in our mucous clearance matter, and add up in the long run.

Thanks again -- And I'm totally belly-breathing at my desk right now... Of course, unfortunately, I do think I am one of those people too vain to give up my pilates toned abs <img src="i/expressions/face-icon-small-wink.gif" border="0">

Kris

 

[kmaried]

Hi Evan,

You've certainly provided an interesting discussion. I looked at your website and skimmed most of the articles. I'll look further later.

I think the whole idea of 'a warrior's guide' is a necessary one. We're all warriors and if we weren't; we wouldn't be here, because living with CF isn't a walk in the park. At the same time, the people that aren't here with us, were no less warriors than us. I think that is where the problem sets in.

A few years ago I began doing pilates and yoga regularly, and I think it helped me tremendously. Until (through no fault of my own) I got too sick to continue for a while. At that time, it was a big ugly downward spiral... without being able to work out and eat properly, I became less able to work out and eat properly. (I managed to get better and am just getting back to it now tho!). If I had read your articles during that time, I probably would have been rolling my eyes and wanting to tell you where to put your advice <img src="i/expressions/face-icon-small-wink.gif" border="0"> Only because I felt out of control, and sometimes even the most warrior-like attitude can't fix that.

I do like the sections where you've shared your experiences with your CF treatment 'experiments.' If you've ever read that paper by Dr. Warwick he advocates experimenting with certain aspects of your treatment and not taking anything at face value. Within certain safety constraints, this is the way we learn. I do caution though; if you 'feel' no difference between taking certain treatments every day versus every other day, doesn't necessarily mean there aren't benefits that aren't tangible to you... and sometimes even microscopic daily improvements in our mucous clearance matter, and add up in the long run.

Thanks again -- And I'm totally belly-breathing at my desk right now... Of course, unfortunately, I do think I am one of those people too vain to give up my pilates toned abs <img src="i/expressions/face-icon-small-wink.gif" border="0">

Kris

 

[kmaried]

Hi Evan,

You've certainly provided an interesting discussion. I looked at your website and skimmed most of the articles. I'll look further later.

I think the whole idea of 'a warrior's guide' is a necessary one. We're all warriors and if we weren't; we wouldn't be here, because living with CF isn't a walk in the park. At the same time, the people that aren't here with us, were no less warriors than us. I think that is where the problem sets in.

A few years ago I began doing pilates and yoga regularly, and I think it helped me tremendously. Until (through no fault of my own) I got too sick to continue for a while. At that time, it was a big ugly downward spiral... without being able to work out and eat properly, I became less able to work out and eat properly. (I managed to get better and am just getting back to it now tho!). If I had read your articles during that time, I probably would have been rolling my eyes and wanting to tell you where to put your advice <img src="i/expressions/face-icon-small-wink.gif" border="0"> Only because I felt out of control, and sometimes even the most warrior-like attitude can't fix that.

I do like the sections where you've shared your experiences with your CF treatment 'experiments.' If you've ever read that paper by Dr. Warwick he advocates experimenting with certain aspects of your treatment and not taking anything at face value. Within certain safety constraints, this is the way we learn. I do caution though; if you 'feel' no difference between taking certain treatments every day versus every other day, doesn't necessarily mean there aren't benefits that aren't tangible to you... and sometimes even microscopic daily improvements in our mucous clearance matter, and add up in the long run.

Thanks again -- And I'm totally belly-breathing at my desk right now... Of course, unfortunately, I do think I am one of those people too vain to give up my pilates toned abs <img src="i/expressions/face-icon-small-wink.gif" border="0">

Kris

 

[Diane]

I looked at the site a few days ago and thought it was good. I saved it in my favorites so i can go back from time to time. I got the jist of what you were saying pretty quickly.... that you had tried various things that are supposed to be the "best thing for you with cf" and it didnt turn out to be. I tried that myself with the anti-inflammatory diet and found it wasnt doing me any favors at all.
I do agree with you that exercise and pushing yourself is the way to go. Over-all i liked your site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

I looked at the site a few days ago and thought it was good. I saved it in my favorites so i can go back from time to time. I got the jist of what you were saying pretty quickly.... that you had tried various things that are supposed to be the "best thing for you with cf" and it didnt turn out to be. I tried that myself with the anti-inflammatory diet and found it wasnt doing me any favors at all.
I do agree with you that exercise and pushing yourself is the way to go. Over-all i liked your site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

I looked at the site a few days ago and thought it was good. I saved it in my favorites so i can go back from time to time. I got the jist of what you were saying pretty quickly.... that you had tried various things that are supposed to be the "best thing for you with cf" and it didnt turn out to be. I tried that myself with the anti-inflammatory diet and found it wasnt doing me any favors at all.
I do agree with you that exercise and pushing yourself is the way to go. Over-all i liked your site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

I looked at the site a few days ago and thought it was good. I saved it in my favorites so i can go back from time to time. I got the jist of what you were saying pretty quickly.... that you had tried various things that are supposed to be the "best thing for you with cf" and it didnt turn out to be. I tried that myself with the anti-inflammatory diet and found it wasnt doing me any favors at all.
I do agree with you that exercise and pushing yourself is the way to go. Over-all i liked your site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

I looked at the site a few days ago and thought it was good. I saved it in my favorites so i can go back from time to time. I got the jist of what you were saying pretty quickly.... that you had tried various things that are supposed to be the "best thing for you with cf" and it didnt turn out to be. I tried that myself with the anti-inflammatory diet and found it wasnt doing me any favors at all.
I do agree with you that exercise and pushing yourself is the way to go. Over-all i liked your site <img src="i/expressions/face-icon-small-smile.gif" border="0">