I would like to show you how I am overcoming my disease!

Sakem

New member
Evan,
I so agree with you that the mind is a powerful thing. We can do so much more than we think if we put out mind to it. We may not always feel like exercising or may have the blues, but somethings u just have to give yourself a swift kick in the butt and tell yourself u can complete that workout and/or tell yourself life is wonderful. BUT: there are some things with CF that you can't control. No matter how much exercise u do, how much CPT you do or how much medications u take, they may never be enough to hold CF off. That is the reality of this disease.

And as much as I think my son's future is bright and work hard to keep his health good, I also know and want him to know the horrible side of this disease. The reality of CF. Hopefully he will not ever after to experience most of these things with the advancements I am hopeful will continue to be made, but 20 years from now when he is an adult and his health has deterioated, I want him to know it is not his fault.
 

Sakem

New member
Evan,
I so agree with you that the mind is a powerful thing. We can do so much more than we think if we put out mind to it. We may not always feel like exercising or may have the blues, but somethings u just have to give yourself a swift kick in the butt and tell yourself u can complete that workout and/or tell yourself life is wonderful. BUT: there are some things with CF that you can't control. No matter how much exercise u do, how much CPT you do or how much medications u take, they may never be enough to hold CF off. That is the reality of this disease.

And as much as I think my son's future is bright and work hard to keep his health good, I also know and want him to know the horrible side of this disease. The reality of CF. Hopefully he will not ever after to experience most of these things with the advancements I am hopeful will continue to be made, but 20 years from now when he is an adult and his health has deterioated, I want him to know it is not his fault.
 

Sakem

New member
Evan,
I so agree with you that the mind is a powerful thing. We can do so much more than we think if we put out mind to it. We may not always feel like exercising or may have the blues, but somethings u just have to give yourself a swift kick in the butt and tell yourself u can complete that workout and/or tell yourself life is wonderful. BUT: there are some things with CF that you can't control. No matter how much exercise u do, how much CPT you do or how much medications u take, they may never be enough to hold CF off. That is the reality of this disease.

And as much as I think my son's future is bright and work hard to keep his health good, I also know and want him to know the horrible side of this disease. The reality of CF. Hopefully he will not ever after to experience most of these things with the advancements I am hopeful will continue to be made, but 20 years from now when he is an adult and his health has deterioated, I want him to know it is not his fault.
 

Sakem

New member
Evan,
I so agree with you that the mind is a powerful thing. We can do so much more than we think if we put out mind to it. We may not always feel like exercising or may have the blues, but somethings u just have to give yourself a swift kick in the butt and tell yourself u can complete that workout and/or tell yourself life is wonderful. BUT: there are some things with CF that you can't control. No matter how much exercise u do, how much CPT you do or how much medications u take, they may never be enough to hold CF off. That is the reality of this disease.

And as much as I think my son's future is bright and work hard to keep his health good, I also know and want him to know the horrible side of this disease. The reality of CF. Hopefully he will not ever after to experience most of these things with the advancements I am hopeful will continue to be made, but 20 years from now when he is an adult and his health has deterioated, I want him to know it is not his fault.
 

Sakem

New member
Evan,
I so agree with you that the mind is a powerful thing. We can do so much more than we think if we put out mind to it. We may not always feel like exercising or may have the blues, but somethings u just have to give yourself a swift kick in the butt and tell yourself u can complete that workout and/or tell yourself life is wonderful. BUT: there are some things with CF that you can't control. No matter how much exercise u do, how much CPT you do or how much medications u take, they may never be enough to hold CF off. That is the reality of this disease.

And as much as I think my son's future is bright and work hard to keep his health good, I also know and want him to know the horrible side of this disease. The reality of CF. Hopefully he will not ever after to experience most of these things with the advancements I am hopeful will continue to be made, but 20 years from now when he is an adult and his health has deterioated, I want him to know it is not his fault.
 

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EvtonB</b></i>
This is the very kind of mentality that categorizes us into this box of sick people and creates an identity of sickness for us.
</end quote></div>

You know what else creates that mentality? Being sick. Yup.
 

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EvtonB</b></i>
This is the very kind of mentality that categorizes us into this box of sick people and creates an identity of sickness for us.
</end quote></div>

You know what else creates that mentality? Being sick. Yup.
 

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EvtonB</b></i>
This is the very kind of mentality that categorizes us into this box of sick people and creates an identity of sickness for us.
</end quote></div>

You know what else creates that mentality? Being sick. Yup.
 

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EvtonB</b></i>
This is the very kind of mentality that categorizes us into this box of sick people and creates an identity of sickness for us.
</end quote>

You know what else creates that mentality? Being sick. Yup.
 

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EvtonB</b></i>
This is the very kind of mentality that categorizes us into this box of sick people and creates an identity of sickness for us.
</end quote>

You know what else creates that mentality? Being sick. Yup.
 

Mockingbird

New member
<div class="FTQUOTE"><begin quote>"get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very. </end quote></div>

<div class="FTQUOTE"><begin quote>Mockingbird, ask your god and he will tell you, the best reality check you can ever give somebody is through the power of love, not through "ripping" on somebody. </end quote></div>

Whatever.
 

Mockingbird

New member
<div class="FTQUOTE"><begin quote>"get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very. </end quote></div>

<div class="FTQUOTE"><begin quote>Mockingbird, ask your god and he will tell you, the best reality check you can ever give somebody is through the power of love, not through "ripping" on somebody. </end quote></div>

Whatever.
 

Mockingbird

New member
<div class="FTQUOTE"><begin quote>"get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very. </end quote></div>

<div class="FTQUOTE"><begin quote>Mockingbird, ask your god and he will tell you, the best reality check you can ever give somebody is through the power of love, not through "ripping" on somebody. </end quote></div>

Whatever.
 

Mockingbird

New member
<div class="FTQUOTE"><begin quote>"get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very. </end quote>

<div class="FTQUOTE"><begin quote>Mockingbird, ask your god and he will tell you, the best reality check you can ever give somebody is through the power of love, not through "ripping" on somebody. </end quote>

Whatever.
 

Mockingbird

New member
<div class="FTQUOTE"><begin quote>"get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very. </end quote>

<div class="FTQUOTE"><begin quote>Mockingbird, ask your god and he will tell you, the best reality check you can ever give somebody is through the power of love, not through "ripping" on somebody. </end quote>

Whatever.
 

katyf13

New member
You said:
"Hey Faust, I'd like you to look in the face of a young boy with CF and tell him "although you might feel healthy now, as you get older your lungs are going to start bleeding and its going to be hard to breath and its at that point that you will know how long you will live""

No one is saying anything like that. I think what people are saying is YES take care of yourself and have a positive attitude!! But cf is still a progressive disease so don't feel like it's your fault when your numbers start to go down. When that happens, you still stay positive and still fight. Just like everyone here.
 

katyf13

New member
You said:
"Hey Faust, I'd like you to look in the face of a young boy with CF and tell him "although you might feel healthy now, as you get older your lungs are going to start bleeding and its going to be hard to breath and its at that point that you will know how long you will live""

No one is saying anything like that. I think what people are saying is YES take care of yourself and have a positive attitude!! But cf is still a progressive disease so don't feel like it's your fault when your numbers start to go down. When that happens, you still stay positive and still fight. Just like everyone here.
 

katyf13

New member
You said:
"Hey Faust, I'd like you to look in the face of a young boy with CF and tell him "although you might feel healthy now, as you get older your lungs are going to start bleeding and its going to be hard to breath and its at that point that you will know how long you will live""

No one is saying anything like that. I think what people are saying is YES take care of yourself and have a positive attitude!! But cf is still a progressive disease so don't feel like it's your fault when your numbers start to go down. When that happens, you still stay positive and still fight. Just like everyone here.
 

katyf13

New member
You said:
"Hey Faust, I'd like you to look in the face of a young boy with CF and tell him "although you might feel healthy now, as you get older your lungs are going to start bleeding and its going to be hard to breath and its at that point that you will know how long you will live""

No one is saying anything like that. I think what people are saying is YES take care of yourself and have a positive attitude!! But cf is still a progressive disease so don't feel like it's your fault when your numbers start to go down. When that happens, you still stay positive and still fight. Just like everyone here.
 

katyf13

New member
You said:
"Hey Faust, I'd like you to look in the face of a young boy with CF and tell him "although you might feel healthy now, as you get older your lungs are going to start bleeding and its going to be hard to breath and its at that point that you will know how long you will live""

No one is saying anything like that. I think what people are saying is YES take care of yourself and have a positive attitude!! But cf is still a progressive disease so don't feel like it's your fault when your numbers start to go down. When that happens, you still stay positive and still fight. Just like everyone here.
 
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