I would like to show you how I am overcoming my disease!

spacemom · Jan 8, 2008

Hiya Evan

I just found this thread, haven't looked at your site but I sure will.
Still I want to tell you up front - you can't utter the word cure around here, there will be flaming allover ... Hee Heee, some people even sound as if one day a cure will be really found and those people will prolly say "I pass, I don't believe in a cure"... LOL Keep up the good work, I'm certainly glad to know POSITIVE ppl..

spacemom · Jan 8, 2008

Hiya Evan

I just found this thread, haven't looked at your site but I sure will.
Still I want to tell you up front - you can't utter the word cure around here, there will be flaming allover ... Hee Heee, some people even sound as if one day a cure will be really found and those people will prolly say "I pass, I don't believe in a cure"... LOL Keep up the good work, I'm certainly glad to know POSITIVE ppl..

spacemom · Jan 8, 2008

Hiya Evan

I just found this thread, haven't looked at your site but I sure will.
Still I want to tell you up front - you can't utter the word cure around here, there will be flaming allover ... Hee Heee, some people even sound as if one day a cure will be really found and those people will prolly say "I pass, I don't believe in a cure"... LOL Keep up the good work, I'm certainly glad to know POSITIVE ppl..

spacemom · Jan 8, 2008

Hiya Evan

I just found this thread, haven't looked at your site but I sure will.
Still I want to tell you up front - you can't utter the word cure around here, there will be flaming allover ... Hee Heee, some people even sound as if one day a cure will be really found and those people will prolly say "I pass, I don't believe in a cure"... LOL Keep up the good work, I'm certainly glad to know POSITIVE ppl..

spacemom · Jan 8, 2008

Hiya Evan

I just found this thread, haven't looked at your site but I sure will.
Still I want to tell you up front - you can't utter the word cure around here, there will be flaming allover ... Hee Heee, some people even sound as if one day a cure will be really found and those people will prolly say "I pass, I don't believe in a cure"... LOL Keep up the good work, I'm certainly glad to know POSITIVE ppl..

EvtonB · Jan 8, 2008

Thank you all so much for your very informative and insightful reviews of my website. I understand that the information contained is not going to be for everyone but it was not my intention to be a crowd pleaser, but to express the ideas that I feel morally obligated to spread to the world. The things that work for me.

Energy Gal- It is a good idea to have a list of alternative methods that have and have not worked for me and I will look into having that feature added to the site.

Lene South Africa- The depression article has the references embedded into the text, you need to click on the highlighted words to be linked to the articles I referenced. Big thanks for stopping by!!

KMarried- I too have felt out of control before and its not an easy thing to deal with. It is my hope that is somebody were feeling that way that they could use my website as a tool for hope and inspiration to get themselves better. I remember the time after my doctor gave me my transplant talk I was super depressed. Eating crappy, sitting around the house for weeks. Not doing anything. My brother came and gave me a talk about me sitting around and waiting to die like I had no backbone. He told me to get up right now, get my running shoes on, and start exercising. He didn't take no for an answer. Thats what got me back on my feet again with confidence. This is what I wish to achieve through my website. "get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very.

I think most people with CF have good abs. Mine have been rock hard for years, i think from all the coughing? not sure.

-Diane- i'm glad to hear that the anti-inflammatory didn't work for you either and that it wasn't just me! Thanks for reading!

@everybody= Be sure to come back often and either bookmark the page or subscribe the the RSS feed. I look forward to hearing from you all very soon. We will be posting a few articles a week to keep things fresh and we have some very special "guest" articles from writers on other CF websites who support our cause. Should be cool!

Thanks again!
-Evan Burton

EvtonB · Jan 8, 2008

Thank you all so much for your very informative and insightful reviews of my website. I understand that the information contained is not going to be for everyone but it was not my intention to be a crowd pleaser, but to express the ideas that I feel morally obligated to spread to the world. The things that work for me.

Energy Gal- It is a good idea to have a list of alternative methods that have and have not worked for me and I will look into having that feature added to the site.

Lene South Africa- The depression article has the references embedded into the text, you need to click on the highlighted words to be linked to the articles I referenced. Big thanks for stopping by!!

KMarried- I too have felt out of control before and its not an easy thing to deal with. It is my hope that is somebody were feeling that way that they could use my website as a tool for hope and inspiration to get themselves better. I remember the time after my doctor gave me my transplant talk I was super depressed. Eating crappy, sitting around the house for weeks. Not doing anything. My brother came and gave me a talk about me sitting around and waiting to die like I had no backbone. He told me to get up right now, get my running shoes on, and start exercising. He didn't take no for an answer. Thats what got me back on my feet again with confidence. This is what I wish to achieve through my website. "get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very.

I think most people with CF have good abs. Mine have been rock hard for years, i think from all the coughing? not sure.

-Diane- i'm glad to hear that the anti-inflammatory didn't work for you either and that it wasn't just me! Thanks for reading!

@everybody= Be sure to come back often and either bookmark the page or subscribe the the RSS feed. I look forward to hearing from you all very soon. We will be posting a few articles a week to keep things fresh and we have some very special "guest" articles from writers on other CF websites who support our cause. Should be cool!

Thanks again!
-Evan Burton

EvtonB · Jan 8, 2008

Thank you all so much for your very informative and insightful reviews of my website. I understand that the information contained is not going to be for everyone but it was not my intention to be a crowd pleaser, but to express the ideas that I feel morally obligated to spread to the world. The things that work for me.

Energy Gal- It is a good idea to have a list of alternative methods that have and have not worked for me and I will look into having that feature added to the site.

Lene South Africa- The depression article has the references embedded into the text, you need to click on the highlighted words to be linked to the articles I referenced. Big thanks for stopping by!!

KMarried- I too have felt out of control before and its not an easy thing to deal with. It is my hope that is somebody were feeling that way that they could use my website as a tool for hope and inspiration to get themselves better. I remember the time after my doctor gave me my transplant talk I was super depressed. Eating crappy, sitting around the house for weeks. Not doing anything. My brother came and gave me a talk about me sitting around and waiting to die like I had no backbone. He told me to get up right now, get my running shoes on, and start exercising. He didn't take no for an answer. Thats what got me back on my feet again with confidence. This is what I wish to achieve through my website. "get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very.

I think most people with CF have good abs. Mine have been rock hard for years, i think from all the coughing? not sure.

-Diane- i'm glad to hear that the anti-inflammatory didn't work for you either and that it wasn't just me! Thanks for reading!

@everybody= Be sure to come back often and either bookmark the page or subscribe the the RSS feed. I look forward to hearing from you all very soon. We will be posting a few articles a week to keep things fresh and we have some very special "guest" articles from writers on other CF websites who support our cause. Should be cool!

Thanks again!
-Evan Burton

EvtonB · Jan 8, 2008

Thank you all so much for your very informative and insightful reviews of my website. I understand that the information contained is not going to be for everyone but it was not my intention to be a crowd pleaser, but to express the ideas that I feel morally obligated to spread to the world. The things that work for me.

Energy Gal- It is a good idea to have a list of alternative methods that have and have not worked for me and I will look into having that feature added to the site.

Lene South Africa- The depression article has the references embedded into the text, you need to click on the highlighted words to be linked to the articles I referenced. Big thanks for stopping by!!

KMarried- I too have felt out of control before and its not an easy thing to deal with. It is my hope that is somebody were feeling that way that they could use my website as a tool for hope and inspiration to get themselves better. I remember the time after my doctor gave me my transplant talk I was super depressed. Eating crappy, sitting around the house for weeks. Not doing anything. My brother came and gave me a talk about me sitting around and waiting to die like I had no backbone. He told me to get up right now, get my running shoes on, and start exercising. He didn't take no for an answer. Thats what got me back on my feet again with confidence. This is what I wish to achieve through my website. "get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very.

I think most people with CF have good abs. Mine have been rock hard for years, i think from all the coughing? not sure.

-Diane- i'm glad to hear that the anti-inflammatory didn't work for you either and that it wasn't just me! Thanks for reading!

@everybody= Be sure to come back often and either bookmark the page or subscribe the the RSS feed. I look forward to hearing from you all very soon. We will be posting a few articles a week to keep things fresh and we have some very special "guest" articles from writers on other CF websites who support our cause. Should be cool!

Thanks again!
-Evan Burton

EvtonB · Jan 8, 2008

Thank you all so much for your very informative and insightful reviews of my website. I understand that the information contained is not going to be for everyone but it was not my intention to be a crowd pleaser, but to express the ideas that I feel morally obligated to spread to the world. The things that work for me.

Energy Gal- It is a good idea to have a list of alternative methods that have and have not worked for me and I will look into having that feature added to the site.

Lene South Africa- The depression article has the references embedded into the text, you need to click on the highlighted words to be linked to the articles I referenced. Big thanks for stopping by!!

KMarried- I too have felt out of control before and its not an easy thing to deal with. It is my hope that is somebody were feeling that way that they could use my website as a tool for hope and inspiration to get themselves better. I remember the time after my doctor gave me my transplant talk I was super depressed. Eating crappy, sitting around the house for weeks. Not doing anything. My brother came and gave me a talk about me sitting around and waiting to die like I had no backbone. He told me to get up right now, get my running shoes on, and start exercising. He didn't take no for an answer. Thats what got me back on my feet again with confidence. This is what I wish to achieve through my website. "get your ass up and stop being a victim and start doing something about it" offensive? yes. Effective? very.

I think most people with CF have good abs. Mine have been rock hard for years, i think from all the coughing? not sure.

-Diane- i'm glad to hear that the anti-inflammatory didn't work for you either and that it wasn't just me! Thanks for reading!

@everybody= Be sure to come back often and either bookmark the page or subscribe the the RSS feed. I look forward to hearing from you all very soon. We will be posting a few articles a week to keep things fresh and we have some very special "guest" articles from writers on other CF websites who support our cause. Should be cool!

Thanks again!
-Evan Burton

Carebear7 · Jan 8, 2008

EvantB wrote: "I understand the fact that a lot of what I am saying can be angering to people with CF who have not experienced great success with their disease because it suggests that they have perhaps done something wrong. It is not my intention to implicate this. All I am saying that until we get over feeling like a victim, like somebody has dealt us a bad hand in life, can we start to take charge of our health and life and start to create the kind of results we want. Full responsibility is key. "

From experience, I personally think that people who have CF rarely act like the victim. From the people that I know that have CF, they have never ever complained about it, nor have they ever said "Why me?". CF'ers are the strongest people I know!!

Carebear7 · Jan 8, 2008

EvantB wrote: "I understand the fact that a lot of what I am saying can be angering to people with CF who have not experienced great success with their disease because it suggests that they have perhaps done something wrong. It is not my intention to implicate this. All I am saying that until we get over feeling like a victim, like somebody has dealt us a bad hand in life, can we start to take charge of our health and life and start to create the kind of results we want. Full responsibility is key. "

From experience, I personally think that people who have CF rarely act like the victim. From the people that I know that have CF, they have never ever complained about it, nor have they ever said "Why me?". CF'ers are the strongest people I know!!

Carebear7 · Jan 8, 2008

EvantB wrote: "I understand the fact that a lot of what I am saying can be angering to people with CF who have not experienced great success with their disease because it suggests that they have perhaps done something wrong. It is not my intention to implicate this. All I am saying that until we get over feeling like a victim, like somebody has dealt us a bad hand in life, can we start to take charge of our health and life and start to create the kind of results we want. Full responsibility is key. "

From experience, I personally think that people who have CF rarely act like the victim. From the people that I know that have CF, they have never ever complained about it, nor have they ever said "Why me?". CF'ers are the strongest people I know!!

Carebear7 · Jan 8, 2008

EvantB wrote: "I understand the fact that a lot of what I am saying can be angering to people with CF who have not experienced great success with their disease because it suggests that they have perhaps done something wrong. It is not my intention to implicate this. All I am saying that until we get over feeling like a victim, like somebody has dealt us a bad hand in life, can we start to take charge of our health and life and start to create the kind of results we want. Full responsibility is key. "

From experience, I personally think that people who have CF rarely act like the victim. From the people that I know that have CF, they have never ever complained about it, nor have they ever said "Why me?". CF'ers are the strongest people I know!!

Carebear7 · Jan 8, 2008

EvantB wrote: "I understand the fact that a lot of what I am saying can be angering to people with CF who have not experienced great success with their disease because it suggests that they have perhaps done something wrong. It is not my intention to implicate this. All I am saying that until we get over feeling like a victim, like somebody has dealt us a bad hand in life, can we start to take charge of our health and life and start to create the kind of results we want. Full responsibility is key. "

From experience, I personally think that people who have CF rarely act like the victim. From the people that I know that have CF, they have never ever complained about it, nor have they ever said "Why me?". CF'ers are the strongest people I know!!

katyf13 · Jan 8, 2008

A positive attitude is very important, but it can't save you. Mike never thought of himself as a victim. Not only did he have a positive attitude, he acted as a mentor and cheerleader for many other cfers in the hospital with him. He strongly advocated transplants and organ donation, he wrote to people all over the world, he never doubted that he would be okay someday. And he was. Even at 14% lung capacity, he lived his life. However, the positive attitude and his strict regimen did not keep Cf from destroying his lungs to the point where he was at 14% on his pfts.
A good attitude, a healthy lifestyle, and a good relationship with your doctor are all fabulous. But they are still not going to work for everyone.

katyf13 · Jan 8, 2008

A positive attitude is very important, but it can't save you. Mike never thought of himself as a victim. Not only did he have a positive attitude, he acted as a mentor and cheerleader for many other cfers in the hospital with him. He strongly advocated transplants and organ donation, he wrote to people all over the world, he never doubted that he would be okay someday. And he was. Even at 14% lung capacity, he lived his life. However, the positive attitude and his strict regimen did not keep Cf from destroying his lungs to the point where he was at 14% on his pfts.
A good attitude, a healthy lifestyle, and a good relationship with your doctor are all fabulous. But they are still not going to work for everyone.

katyf13 · Jan 8, 2008

A positive attitude is very important, but it can't save you. Mike never thought of himself as a victim. Not only did he have a positive attitude, he acted as a mentor and cheerleader for many other cfers in the hospital with him. He strongly advocated transplants and organ donation, he wrote to people all over the world, he never doubted that he would be okay someday. And he was. Even at 14% lung capacity, he lived his life. However, the positive attitude and his strict regimen did not keep Cf from destroying his lungs to the point where he was at 14% on his pfts.
A good attitude, a healthy lifestyle, and a good relationship with your doctor are all fabulous. But they are still not going to work for everyone.

katyf13 · Jan 8, 2008

A positive attitude is very important, but it can't save you. Mike never thought of himself as a victim. Not only did he have a positive attitude, he acted as a mentor and cheerleader for many other cfers in the hospital with him. He strongly advocated transplants and organ donation, he wrote to people all over the world, he never doubted that he would be okay someday. And he was. Even at 14% lung capacity, he lived his life. However, the positive attitude and his strict regimen did not keep Cf from destroying his lungs to the point where he was at 14% on his pfts.
A good attitude, a healthy lifestyle, and a good relationship with your doctor are all fabulous. But they are still not going to work for everyone.

katyf13 · Jan 8, 2008

A positive attitude is very important, but it can't save you. Mike never thought of himself as a victim. Not only did he have a positive attitude, he acted as a mentor and cheerleader for many other cfers in the hospital with him. He strongly advocated transplants and organ donation, he wrote to people all over the world, he never doubted that he would be okay someday. And he was. Even at 14% lung capacity, he lived his life. However, the positive attitude and his strict regimen did not keep Cf from destroying his lungs to the point where he was at 14% on his pfts.
A good attitude, a healthy lifestyle, and a good relationship with your doctor are all fabulous. But they are still not going to work for everyone.

I would like to show you how I am overcoming my disease!

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