Ibuprofen

[mom4holly]

I found a news articly on CF & Ibuprofen used for inflamation. Holly takes zithro 3x weekly for inflamation. does anyone use Ibuprofen for inflamation? Does it work better than zithro?

heres the link

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drugdigest.org/DD/Articles/News/0,10141,610466,00.html">Ibuprofen</a>

 

[mom4holly]

I found a news articly on CF & Ibuprofen used for inflamation. Holly takes zithro 3x weekly for inflamation. does anyone use Ibuprofen for inflamation? Does it work better than zithro?

heres the link

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drugdigest.org/DD/Articles/News/0,10141,610466,00.html">Ibuprofen</a>

 

[mom4holly]

I found a news articly on CF & Ibuprofen used for inflamation. Holly takes zithro 3x weekly for inflamation. does anyone use Ibuprofen for inflamation? Does it work better than zithro?

heres the link

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drugdigest.org/DD/Articles/News/0,10141,610466,00.html">Ibuprofen</a>

 

[mom4holly]

I found a news articly on CF & Ibuprofen used for inflamation. Holly takes zithro 3x weekly for inflamation. does anyone use Ibuprofen for inflamation? Does it work better than zithro?

heres the link

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drugdigest.org/DD/Articles/News/0,10141,610466,00.html">Ibuprofen</a>

 

[mom4holly]

I found a news articly on CF & Ibuprofen used for inflamation. Holly takes zithro 3x weekly for inflamation. does anyone use Ibuprofen for inflamation? Does it work better than zithro?

heres the link

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drugdigest.org/DD/Articles/News/0,10141,610466,00.html">Ibuprofen</a>

 

[rubyroselee]

Hi there,

I'd love to give you my experience with it. My doctor is the one who created/discovered this Ibuprofen treatment so he tried to get most of his patients on this 15 years ago when it finished studies. I started it in 1994 when I was 13 years old. They say it should be started before age 13 because otherwise it doesn't have much benefit.

At age 13 before the Ibuprofen, I was very low on the weight charts and my FEV1 was pretty stinky. Now, there's not proof that the Ibuprofen did this for me but I really feel that it helped me be as healthy as I am today. I swear by this treatment! My FEV1 is now great and I am actually overweight. This all could've happened with a growth spurt or some other thing (like Tobi), but I really feel that Ibuprofen has played a lot in keeping me healthy.

It is shown to slow the progression of the lung disease by reducing the inflammation. Apparently most CFers lose 3% of their lung function per year, whereas on the Ibuprofen, you lose less than 3%. It also sort of "tricks" your body into thinking your lungs are normal (without inflammation), which can increase your body weight as well. Sometimes people with CF can have lower weights/heights because their lungs cannot sustain a large body. I know a lot has to do with malabsorption too though. I grew a ton after I started the Ibuprofen.

I have since had to come off the Ibuprofen (I stopped it a few months ago) due to me trying to get pregnant. I also had to stop it because it was causing me severe stomach problems. That is the most common side effect from taking large doses of Ibuprofen and that is the reason why most people have to end the treatment. I was experiencing severe reflux and gastritis because of it. So I would say that I had a great 13-year experience with it, but I will not be going back on it after my pregnancy either. My stomach needs to reheal and I believe I was one of the lucky ones who was able to be on it for many years. I had great benefits from it. But that's not the case with everyone.

A lot of doctors disapprove of the treatment and do not encourage it. But I think if it's something you're interested in then you should pursue it. It is a controversial treatment, but some people do VERY well with it.

PM me if you have any other questions.

Good luck to you,
Leah 26 w/CF, pregnant due Aug '08, mom to 10-month-old

 

[rubyroselee]

Hi there,

I'd love to give you my experience with it. My doctor is the one who created/discovered this Ibuprofen treatment so he tried to get most of his patients on this 15 years ago when it finished studies. I started it in 1994 when I was 13 years old. They say it should be started before age 13 because otherwise it doesn't have much benefit.

At age 13 before the Ibuprofen, I was very low on the weight charts and my FEV1 was pretty stinky. Now, there's not proof that the Ibuprofen did this for me but I really feel that it helped me be as healthy as I am today. I swear by this treatment! My FEV1 is now great and I am actually overweight. This all could've happened with a growth spurt or some other thing (like Tobi), but I really feel that Ibuprofen has played a lot in keeping me healthy.

It is shown to slow the progression of the lung disease by reducing the inflammation. Apparently most CFers lose 3% of their lung function per year, whereas on the Ibuprofen, you lose less than 3%. It also sort of "tricks" your body into thinking your lungs are normal (without inflammation), which can increase your body weight as well. Sometimes people with CF can have lower weights/heights because their lungs cannot sustain a large body. I know a lot has to do with malabsorption too though. I grew a ton after I started the Ibuprofen.

I have since had to come off the Ibuprofen (I stopped it a few months ago) due to me trying to get pregnant. I also had to stop it because it was causing me severe stomach problems. That is the most common side effect from taking large doses of Ibuprofen and that is the reason why most people have to end the treatment. I was experiencing severe reflux and gastritis because of it. So I would say that I had a great 13-year experience with it, but I will not be going back on it after my pregnancy either. My stomach needs to reheal and I believe I was one of the lucky ones who was able to be on it for many years. I had great benefits from it. But that's not the case with everyone.

A lot of doctors disapprove of the treatment and do not encourage it. But I think if it's something you're interested in then you should pursue it. It is a controversial treatment, but some people do VERY well with it.

PM me if you have any other questions.

Good luck to you,
Leah 26 w/CF, pregnant due Aug '08, mom to 10-month-old

 

[rubyroselee]

Hi there,

I'd love to give you my experience with it. My doctor is the one who created/discovered this Ibuprofen treatment so he tried to get most of his patients on this 15 years ago when it finished studies. I started it in 1994 when I was 13 years old. They say it should be started before age 13 because otherwise it doesn't have much benefit.

At age 13 before the Ibuprofen, I was very low on the weight charts and my FEV1 was pretty stinky. Now, there's not proof that the Ibuprofen did this for me but I really feel that it helped me be as healthy as I am today. I swear by this treatment! My FEV1 is now great and I am actually overweight. This all could've happened with a growth spurt or some other thing (like Tobi), but I really feel that Ibuprofen has played a lot in keeping me healthy.

It is shown to slow the progression of the lung disease by reducing the inflammation. Apparently most CFers lose 3% of their lung function per year, whereas on the Ibuprofen, you lose less than 3%. It also sort of "tricks" your body into thinking your lungs are normal (without inflammation), which can increase your body weight as well. Sometimes people with CF can have lower weights/heights because their lungs cannot sustain a large body. I know a lot has to do with malabsorption too though. I grew a ton after I started the Ibuprofen.

I have since had to come off the Ibuprofen (I stopped it a few months ago) due to me trying to get pregnant. I also had to stop it because it was causing me severe stomach problems. That is the most common side effect from taking large doses of Ibuprofen and that is the reason why most people have to end the treatment. I was experiencing severe reflux and gastritis because of it. So I would say that I had a great 13-year experience with it, but I will not be going back on it after my pregnancy either. My stomach needs to reheal and I believe I was one of the lucky ones who was able to be on it for many years. I had great benefits from it. But that's not the case with everyone.

A lot of doctors disapprove of the treatment and do not encourage it. But I think if it's something you're interested in then you should pursue it. It is a controversial treatment, but some people do VERY well with it.

PM me if you have any other questions.

Good luck to you,
Leah 26 w/CF, pregnant due Aug '08, mom to 10-month-old

 

[rubyroselee]

Hi there,

I'd love to give you my experience with it. My doctor is the one who created/discovered this Ibuprofen treatment so he tried to get most of his patients on this 15 years ago when it finished studies. I started it in 1994 when I was 13 years old. They say it should be started before age 13 because otherwise it doesn't have much benefit.

At age 13 before the Ibuprofen, I was very low on the weight charts and my FEV1 was pretty stinky. Now, there's not proof that the Ibuprofen did this for me but I really feel that it helped me be as healthy as I am today. I swear by this treatment! My FEV1 is now great and I am actually overweight. This all could've happened with a growth spurt or some other thing (like Tobi), but I really feel that Ibuprofen has played a lot in keeping me healthy.

It is shown to slow the progression of the lung disease by reducing the inflammation. Apparently most CFers lose 3% of their lung function per year, whereas on the Ibuprofen, you lose less than 3%. It also sort of "tricks" your body into thinking your lungs are normal (without inflammation), which can increase your body weight as well. Sometimes people with CF can have lower weights/heights because their lungs cannot sustain a large body. I know a lot has to do with malabsorption too though. I grew a ton after I started the Ibuprofen.

I have since had to come off the Ibuprofen (I stopped it a few months ago) due to me trying to get pregnant. I also had to stop it because it was causing me severe stomach problems. That is the most common side effect from taking large doses of Ibuprofen and that is the reason why most people have to end the treatment. I was experiencing severe reflux and gastritis because of it. So I would say that I had a great 13-year experience with it, but I will not be going back on it after my pregnancy either. My stomach needs to reheal and I believe I was one of the lucky ones who was able to be on it for many years. I had great benefits from it. But that's not the case with everyone.

A lot of doctors disapprove of the treatment and do not encourage it. But I think if it's something you're interested in then you should pursue it. It is a controversial treatment, but some people do VERY well with it.

PM me if you have any other questions.

Good luck to you,
Leah 26 w/CF, pregnant due Aug '08, mom to 10-month-old

 

[rubyroselee]

Hi there,

I'd love to give you my experience with it. My doctor is the one who created/discovered this Ibuprofen treatment so he tried to get most of his patients on this 15 years ago when it finished studies. I started it in 1994 when I was 13 years old. They say it should be started before age 13 because otherwise it doesn't have much benefit.

At age 13 before the Ibuprofen, I was very low on the weight charts and my FEV1 was pretty stinky. Now, there's not proof that the Ibuprofen did this for me but I really feel that it helped me be as healthy as I am today. I swear by this treatment! My FEV1 is now great and I am actually overweight. This all could've happened with a growth spurt or some other thing (like Tobi), but I really feel that Ibuprofen has played a lot in keeping me healthy.

It is shown to slow the progression of the lung disease by reducing the inflammation. Apparently most CFers lose 3% of their lung function per year, whereas on the Ibuprofen, you lose less than 3%. It also sort of "tricks" your body into thinking your lungs are normal (without inflammation), which can increase your body weight as well. Sometimes people with CF can have lower weights/heights because their lungs cannot sustain a large body. I know a lot has to do with malabsorption too though. I grew a ton after I started the Ibuprofen.

I have since had to come off the Ibuprofen (I stopped it a few months ago) due to me trying to get pregnant. I also had to stop it because it was causing me severe stomach problems. That is the most common side effect from taking large doses of Ibuprofen and that is the reason why most people have to end the treatment. I was experiencing severe reflux and gastritis because of it. So I would say that I had a great 13-year experience with it, but I will not be going back on it after my pregnancy either. My stomach needs to reheal and I believe I was one of the lucky ones who was able to be on it for many years. I had great benefits from it. But that's not the case with everyone.

A lot of doctors disapprove of the treatment and do not encourage it. But I think if it's something you're interested in then you should pursue it. It is a controversial treatment, but some people do VERY well with it.

PM me if you have any other questions.

Good luck to you,
Leah 26 w/CF, pregnant due Aug '08, mom to 10-month-old

 

[pnhuffman]

Austin is 6 and he just started the ibuprofen therapy this past year. The doctor told me it has the most benefits when using from the age of 5-6 through puberty around 12-13. Just like the previous post it is used to slow down the progression.

He seems to do just fine with it. We did have to go into to like an outpatient thing for a few hours. They inserted and IV and did blood draws through it at different hours. Like at 2,3, and 5 hours. While they had given him the Ibuprofen. Then that is how they determine how much to use. Austin takes 600 mg twice daily.
He gets a script for it and his insurance covers it.

But Austin was in the hospital this summer not long after he started it so the doctor pulled him off of it until he was released.

I do know there are also side effects too. Austin hasn't had any. I would talk to your doctor and get more information about what he or she thinks. I know I thought hard about it and asked questions and decided it was in Austin's best interest to try it.

 

[pnhuffman]

Austin is 6 and he just started the ibuprofen therapy this past year. The doctor told me it has the most benefits when using from the age of 5-6 through puberty around 12-13. Just like the previous post it is used to slow down the progression.

He seems to do just fine with it. We did have to go into to like an outpatient thing for a few hours. They inserted and IV and did blood draws through it at different hours. Like at 2,3, and 5 hours. While they had given him the Ibuprofen. Then that is how they determine how much to use. Austin takes 600 mg twice daily.
He gets a script for it and his insurance covers it.

But Austin was in the hospital this summer not long after he started it so the doctor pulled him off of it until he was released.

I do know there are also side effects too. Austin hasn't had any. I would talk to your doctor and get more information about what he or she thinks. I know I thought hard about it and asked questions and decided it was in Austin's best interest to try it.

 

[pnhuffman]

Austin is 6 and he just started the ibuprofen therapy this past year. The doctor told me it has the most benefits when using from the age of 5-6 through puberty around 12-13. Just like the previous post it is used to slow down the progression.

He seems to do just fine with it. We did have to go into to like an outpatient thing for a few hours. They inserted and IV and did blood draws through it at different hours. Like at 2,3, and 5 hours. While they had given him the Ibuprofen. Then that is how they determine how much to use. Austin takes 600 mg twice daily.
He gets a script for it and his insurance covers it.

But Austin was in the hospital this summer not long after he started it so the doctor pulled him off of it until he was released.

I do know there are also side effects too. Austin hasn't had any. I would talk to your doctor and get more information about what he or she thinks. I know I thought hard about it and asked questions and decided it was in Austin's best interest to try it.

 

[pnhuffman]

Austin is 6 and he just started the ibuprofen therapy this past year. The doctor told me it has the most benefits when using from the age of 5-6 through puberty around 12-13. Just like the previous post it is used to slow down the progression.

He seems to do just fine with it. We did have to go into to like an outpatient thing for a few hours. They inserted and IV and did blood draws through it at different hours. Like at 2,3, and 5 hours. While they had given him the Ibuprofen. Then that is how they determine how much to use. Austin takes 600 mg twice daily.
He gets a script for it and his insurance covers it.

But Austin was in the hospital this summer not long after he started it so the doctor pulled him off of it until he was released.

I do know there are also side effects too. Austin hasn't had any. I would talk to your doctor and get more information about what he or she thinks. I know I thought hard about it and asked questions and decided it was in Austin's best interest to try it.

 

[pnhuffman]

Austin is 6 and he just started the ibuprofen therapy this past year. The doctor told me it has the most benefits when using from the age of 5-6 through puberty around 12-13. Just like the previous post it is used to slow down the progression.

He seems to do just fine with it. We did have to go into to like an outpatient thing for a few hours. They inserted and IV and did blood draws through it at different hours. Like at 2,3, and 5 hours. While they had given him the Ibuprofen. Then that is how they determine how much to use. Austin takes 600 mg twice daily.
He gets a script for it and his insurance covers it.

But Austin was in the hospital this summer not long after he started it so the doctor pulled him off of it until he was released.

I do know there are also side effects too. Austin hasn't had any. I would talk to your doctor and get more information about what he or she thinks. I know I thought hard about it and asked questions and decided it was in Austin's best interest to try it.

 

[jaimers]

i was in a study when the whole ibuprofen thing started back i guess in 1994 like rubyrose said. i was 8 at the time and started it and i think it definitely helped a lot. i'm actually still on it now and i'm almost 23 but there hasn't been any proved affectiveness in adults so it might be pointless but i don't have stomach probs with it and my doc checks the levels regularly to make sure everything's still ok! so as long as there aren't bad things happening i'm going to stay on it...i take 800mg twice a day. plus i never get headaches! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jaimers]

i was in a study when the whole ibuprofen thing started back i guess in 1994 like rubyrose said. i was 8 at the time and started it and i think it definitely helped a lot. i'm actually still on it now and i'm almost 23 but there hasn't been any proved affectiveness in adults so it might be pointless but i don't have stomach probs with it and my doc checks the levels regularly to make sure everything's still ok! so as long as there aren't bad things happening i'm going to stay on it...i take 800mg twice a day. plus i never get headaches! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jaimers]

i was in a study when the whole ibuprofen thing started back i guess in 1994 like rubyrose said. i was 8 at the time and started it and i think it definitely helped a lot. i'm actually still on it now and i'm almost 23 but there hasn't been any proved affectiveness in adults so it might be pointless but i don't have stomach probs with it and my doc checks the levels regularly to make sure everything's still ok! so as long as there aren't bad things happening i'm going to stay on it...i take 800mg twice a day. plus i never get headaches! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jaimers]

i was in a study when the whole ibuprofen thing started back i guess in 1994 like rubyrose said. i was 8 at the time and started it and i think it definitely helped a lot. i'm actually still on it now and i'm almost 23 but there hasn't been any proved affectiveness in adults so it might be pointless but i don't have stomach probs with it and my doc checks the levels regularly to make sure everything's still ok! so as long as there aren't bad things happening i'm going to stay on it...i take 800mg twice a day. plus i never get headaches! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jaimers]

i was in a study when the whole ibuprofen thing started back i guess in 1994 like rubyrose said. i was 8 at the time and started it and i think it definitely helped a lot. i'm actually still on it now and i'm almost 23 but there hasn't been any proved affectiveness in adults so it might be pointless but i don't have stomach probs with it and my doc checks the levels regularly to make sure everything's still ok! so as long as there aren't bad things happening i'm going to stay on it...i take 800mg twice a day. plus i never get headaches! <img src="i/expressions/face-icon-small-smile.gif" border="0">