If You HAVE to Skip SOMETHING...

mywish

New member
You sound much like my son. I guess he will do it when he feels bad enough<img src="i/expressions/face-icon-small-smile.gif" border="0"> I wonder why I worry more about him now that he is 22 rather when he was younger. I know part is a control thing, but he has taken care of himself since he was 13! It must be because we are all getting older.
 

mywish

New member
You sound much like my son. I guess he will do it when he feels bad enough<img src="i/expressions/face-icon-small-smile.gif" border="0"> I wonder why I worry more about him now that he is 22 rather when he was younger. I know part is a control thing, but he has taken care of himself since he was 13! It must be because we are all getting older.
 

mywish

New member
You sound much like my son. I guess he will do it when he feels bad enough<img src="i/expressions/face-icon-small-smile.gif" border="0"> I wonder why I worry more about him now that he is 22 rather when he was younger. I know part is a control thing, but he has taken care of himself since he was 13! It must be because we are all getting older.
 

mywish

New member
You sound much like my son. I guess he will do it when he feels bad enough<img src="i/expressions/face-icon-small-smile.gif" border="0"> I wonder why I worry more about him now that he is 22 rather when he was younger. I know part is a control thing, but he has taken care of himself since he was 13! It must be because we are all getting older.
 

mywish

New member
You sound much like my son. I guess he will do it when he feels bad enough<img src="i/expressions/face-icon-small-smile.gif" border="0"> I wonder why I worry more about him now that he is 22 rather when he was younger. I know part is a control thing, but he has taken care of himself since he was 13! It must be because we are all getting older.
 

Transplantmommy

New member
When I had to do all of this stuff (before transplants) I tended to skip the CPT. That was more because I was allergic to the material in the vest and I had to have my husband use the percussor on me. So, needless to say, when he was working overtime, it was skipped a lot. I also had trouble with the HTS...it would irritate me really bad. I was on 10% when the 7% wasn't released here in the US yet. It was horrible and tended to irritate me more than it helped. Now there is the 7% and I don't need it anymore. I did all the other ones though because they helped me a lot.

I do not have to do the CPT or the breathing treatments anymore and all I take is pills. Now I don't skip anything but sometimes I accidentally miss a dose. That has only happened twice in the last year and a half though because missing the anti-rejection is not good!
 

Transplantmommy

New member
When I had to do all of this stuff (before transplants) I tended to skip the CPT. That was more because I was allergic to the material in the vest and I had to have my husband use the percussor on me. So, needless to say, when he was working overtime, it was skipped a lot. I also had trouble with the HTS...it would irritate me really bad. I was on 10% when the 7% wasn't released here in the US yet. It was horrible and tended to irritate me more than it helped. Now there is the 7% and I don't need it anymore. I did all the other ones though because they helped me a lot.

I do not have to do the CPT or the breathing treatments anymore and all I take is pills. Now I don't skip anything but sometimes I accidentally miss a dose. That has only happened twice in the last year and a half though because missing the anti-rejection is not good!
 

Transplantmommy

New member
When I had to do all of this stuff (before transplants) I tended to skip the CPT. That was more because I was allergic to the material in the vest and I had to have my husband use the percussor on me. So, needless to say, when he was working overtime, it was skipped a lot. I also had trouble with the HTS...it would irritate me really bad. I was on 10% when the 7% wasn't released here in the US yet. It was horrible and tended to irritate me more than it helped. Now there is the 7% and I don't need it anymore. I did all the other ones though because they helped me a lot.

I do not have to do the CPT or the breathing treatments anymore and all I take is pills. Now I don't skip anything but sometimes I accidentally miss a dose. That has only happened twice in the last year and a half though because missing the anti-rejection is not good!
 

Transplantmommy

New member
When I had to do all of this stuff (before transplants) I tended to skip the CPT. That was more because I was allergic to the material in the vest and I had to have my husband use the percussor on me. So, needless to say, when he was working overtime, it was skipped a lot. I also had trouble with the HTS...it would irritate me really bad. I was on 10% when the 7% wasn't released here in the US yet. It was horrible and tended to irritate me more than it helped. Now there is the 7% and I don't need it anymore. I did all the other ones though because they helped me a lot.

I do not have to do the CPT or the breathing treatments anymore and all I take is pills. Now I don't skip anything but sometimes I accidentally miss a dose. That has only happened twice in the last year and a half though because missing the anti-rejection is not good!
 

Transplantmommy

New member
When I had to do all of this stuff (before transplants) I tended to skip the CPT. That was more because I was allergic to the material in the vest and I had to have my husband use the percussor on me. So, needless to say, when he was working overtime, it was skipped a lot. I also had trouble with the HTS...it would irritate me really bad. I was on 10% when the 7% wasn't released here in the US yet. It was horrible and tended to irritate me more than it helped. Now there is the 7% and I don't need it anymore. I did all the other ones though because they helped me a lot.
<br />
<br />I do not have to do the CPT or the breathing treatments anymore and all I take is pills. Now I don't skip anything but sometimes I accidentally miss a dose. That has only happened twice in the last year and a half though because missing the anti-rejection is not good!
 

ladybug

New member
I RARELY skip anything and do the vest no matter what cause I can do it while I do my nebs (xopenex and H.S.), so it doesn't add time unless I do it alone.

If I do skip anything, I will skip H.S. since its not a medication. I do usually feel gunkier, but at least I'm not missing a bronchodialator or antibiotic.

Usually the only reason I'll skip something is if my neb isn't dry from the first treatment or if they're all in the dishwasher or something... I never skip cause I don't have time... I make time, even if, like others, it means cutting down on "fun" stuff or sleep. But, when treatment parts are wet or getting cleaned, there is no choice. I know its just poor time management on my part when this happens cause if I'd think ahead there would always be a neb ready and waiting for me, but sometimes I simply "forget" or think I have more time to dry them than really happens.

Anyway, I agree in a perfect world no treatments would be skipped, but I also think we're human with human schedules and it is sometimes inevitable for most people, especially those who work as well as try to manage their CF schedules! I think most people do remarkably well with managing all this crap, even if/when we do skip occasionally for reasons out of our control. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
I RARELY skip anything and do the vest no matter what cause I can do it while I do my nebs (xopenex and H.S.), so it doesn't add time unless I do it alone.

If I do skip anything, I will skip H.S. since its not a medication. I do usually feel gunkier, but at least I'm not missing a bronchodialator or antibiotic.

Usually the only reason I'll skip something is if my neb isn't dry from the first treatment or if they're all in the dishwasher or something... I never skip cause I don't have time... I make time, even if, like others, it means cutting down on "fun" stuff or sleep. But, when treatment parts are wet or getting cleaned, there is no choice. I know its just poor time management on my part when this happens cause if I'd think ahead there would always be a neb ready and waiting for me, but sometimes I simply "forget" or think I have more time to dry them than really happens.

Anyway, I agree in a perfect world no treatments would be skipped, but I also think we're human with human schedules and it is sometimes inevitable for most people, especially those who work as well as try to manage their CF schedules! I think most people do remarkably well with managing all this crap, even if/when we do skip occasionally for reasons out of our control. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
I RARELY skip anything and do the vest no matter what cause I can do it while I do my nebs (xopenex and H.S.), so it doesn't add time unless I do it alone.

If I do skip anything, I will skip H.S. since its not a medication. I do usually feel gunkier, but at least I'm not missing a bronchodialator or antibiotic.

Usually the only reason I'll skip something is if my neb isn't dry from the first treatment or if they're all in the dishwasher or something... I never skip cause I don't have time... I make time, even if, like others, it means cutting down on "fun" stuff or sleep. But, when treatment parts are wet or getting cleaned, there is no choice. I know its just poor time management on my part when this happens cause if I'd think ahead there would always be a neb ready and waiting for me, but sometimes I simply "forget" or think I have more time to dry them than really happens.

Anyway, I agree in a perfect world no treatments would be skipped, but I also think we're human with human schedules and it is sometimes inevitable for most people, especially those who work as well as try to manage their CF schedules! I think most people do remarkably well with managing all this crap, even if/when we do skip occasionally for reasons out of our control. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
I RARELY skip anything and do the vest no matter what cause I can do it while I do my nebs (xopenex and H.S.), so it doesn't add time unless I do it alone.

If I do skip anything, I will skip H.S. since its not a medication. I do usually feel gunkier, but at least I'm not missing a bronchodialator or antibiotic.

Usually the only reason I'll skip something is if my neb isn't dry from the first treatment or if they're all in the dishwasher or something... I never skip cause I don't have time... I make time, even if, like others, it means cutting down on "fun" stuff or sleep. But, when treatment parts are wet or getting cleaned, there is no choice. I know its just poor time management on my part when this happens cause if I'd think ahead there would always be a neb ready and waiting for me, but sometimes I simply "forget" or think I have more time to dry them than really happens.

Anyway, I agree in a perfect world no treatments would be skipped, but I also think we're human with human schedules and it is sometimes inevitable for most people, especially those who work as well as try to manage their CF schedules! I think most people do remarkably well with managing all this crap, even if/when we do skip occasionally for reasons out of our control. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ladybug

New member
I RARELY skip anything and do the vest no matter what cause I can do it while I do my nebs (xopenex and H.S.), so it doesn't add time unless I do it alone.
<br />
<br />If I do skip anything, I will skip H.S. since its not a medication. I do usually feel gunkier, but at least I'm not missing a bronchodialator or antibiotic.
<br />
<br />Usually the only reason I'll skip something is if my neb isn't dry from the first treatment or if they're all in the dishwasher or something... I never skip cause I don't have time... I make time, even if, like others, it means cutting down on "fun" stuff or sleep. But, when treatment parts are wet or getting cleaned, there is no choice. I know its just poor time management on my part when this happens cause if I'd think ahead there would always be a neb ready and waiting for me, but sometimes I simply "forget" or think I have more time to dry them than really happens.
<br />
<br />Anyway, I agree in a perfect world no treatments would be skipped, but I also think we're human with human schedules and it is sometimes inevitable for most people, especially those who work as well as try to manage their CF schedules! I think most people do remarkably well with managing all this crap, even if/when we do skip occasionally for reasons out of our control. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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